#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

ProfileTweet
Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Christina Lizaso @btrfly12
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat 😊
Patient Chat @patientchat
Excited to have [REDACTED USER] founder of Chronically Simple here as today’s #patientchat guest!
Carly Flumer (she/her) @carlyflumer
Hello! I’m Carly, a #thyca patient and advocate for #AYA friends. 🦋 #patientchat
Patient Empowerment Network @power4patients
Hi #patientchat I’m Kara from PEN! I'm a brain cancer survivor and happy to be here as a participant today :)
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Christina Lizaso @btrfly12
Hi #patientchat - One of those rare Fridays where I can join. Always nice to chat along with you all. I'm passionate about the intersection of community building and healthcare.
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat
Patient Empowerment Network @power4patients
[REDACTED USER] Hi Kristy! Happy Friday to you! #patientchat
ROHHADwarrior @ROHHAD_warrior
@patientchat Hello I’m Sarah and I have ROHHAD. #patientchat
Patient Chat @patientchat
Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb
Christina Lizaso @btrfly12
RT @patientchat: Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb
Patient Empowerment Network @power4patients
RT @patientchat: Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Inspire @InspireIsHealth
Hello to #PatientChat and Happy New Year, John Novack from Inspire checking in to listen and learn from [REDACTED USER] and all here.
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Patient Chat @patientchat
T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH
Patient Empowerment Network @power4patients
RT @patientchat: T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH
@christie_mph
@patientchat Hi everyone! I'm a bit late, but excited to be here. Happy New Year. I'm Christie from NY, founder of HowtoTalkToYourDoctor and #publichealth consultant. #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH
ROHHADwarrior @ROHHAD_warrior
@patientchat T1 Being able to talk to your provider(s) about all issues and having them listen, explain and involve you. Research studies, surveys ect. #patientchat
Carly Flumer (she/her) @carlyflumer
T1: Being an #advocate, doing research on your disease, being a caregiver, or simply interacting with the patient community. You can also engage in your own health through technology, such as through apps and portals. #patientchat
Patient Chat @patientchat
T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwDB218U
@christie_mph
@patientchat Patient engagement means many things to me, but most importantly, the relationship between the provider and the patient is a partnership. The doctor is a medical expert; the patient is the expert of their experiences and symptoms. #patientchat
Christina Lizaso @btrfly12
"Patient engagement in healthcare" means to me that Shared Decision Making is integrated and that patients are met where they are and involved based on their interest and helped to increase their capacity to be active in their own care #patientchat
Christina Lizaso @btrfly12
RT @christie_health: @patientchat Patient engagement means many things to me, but most importantly, the relationship between the provider a…
Patient Empowerment Network @power4patients
T1: Successful patient engagement is HCPs engaging patients as equal partners in care #patientchat
Carly Flumer (she/her) @carlyflumer
T2: Through a plethora of patient portals, advocating for #AYA patients with #rare and #chronic diseases, and attending support groups. #patientchat
@christie_mph
@patientchat 2: I think there is always room for growth. Medicine is always changing and ways to patient manage care is always evolving. Keeping up with the options is the hard part! #patientchat
ROHHADwarrior @ROHHAD_warrior
@patientchat T2: I currently am trying to do as many virtual visits as possible with the pandemic. I am always juggling symptoms and results, but do the best I can. There is always room for improvement. #patientchat
Inspire @InspireIsHealth
RT @patientchat: T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwD…
Patient Chat @patientchat
T3: What, if any, digital tools have you utilized to help you manage your health journey? #patientchat https://t.co/ooYBaFv4Ep
Patient Empowerment Network @power4patients
RT @patientchat: T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwD…
Patient Empowerment Network @power4patients
RT @patientchat: T3: What, if any, digital tools have you utilized to help you manage your health journey? #patientchat https://t.co/ooYBaF…
Patient Empowerment Network @power4patients
T3: I use apps to track my fitness/health, patient portals, and had my first telehealth appointment recently #patientchat
Christina Lizaso @btrfly12
T3: I consider online patient communities a great "digital tool" in my health journey. I utilize @smart_patients and hashtag communities on Twitter. #patientchat
Bingle @TheBingle
T1 Learning what you can. Trying to explain more than doctor(s) may know. Open to being wrong which many professionals are not open to. #patientchat
Carly Flumer (she/her) @carlyflumer
T3: Patient portals have been huge, whether they’re on a computer or phone. Although I wish I didn’t have so many, it’s nice to be able to message my doctors and see my results when I need to. #lifeofacancerpatient #patientchat
Christina Lizaso @btrfly12
RT @carlyflumer: T3: Patient portals have been huge, whether they’re on a computer or phone. Although I wish I didn’t have so many, it’s ni…
ROHHADwarrior @ROHHAD_warrior
@patientchat T3: I have used @Facebook to join groups of others with the same disease to discuss symptoms/treatment ect. I have used zoom for appointments, email, and patient portal apps and websites. #patientchat
@christie_mph
@patientchat Putting a plug here for [REDACTED USER]'s [REDACTED USER]! I recently interviewed her for my blog. What an incredible resource. Patients need a one-stop shop to manage their health information. (she did not put me up to this) :) #patientchat https://t.co/XIUbiI6G0d
Christina Lizaso @btrfly12
RT @christie_health: @patientchat Putting a plug here for [REDACTED USER]'s [REDACTED USER]! I recently interviewed her for my blog. What an in…
@christie_mph
@btrfly12 @smart_patients That sounds like a great resource! #patientchat
Patient Chat @patientchat
T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2
Bingle @TheBingle
T3 Always good discussing things in open forums. Sometimes much can be accomplished/learned. #patientchat
Carly Flumer (she/her) @carlyflumer
@ROHHAD_warrior @patientchat @Facebook Facebook groups have been a god-send for sharing personal stories and asking questions! #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat http…
Patient Empowerment Network @power4patients
RT @patientchat: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat http…
Carly Flumer (she/her) @carlyflumer
T4: Interoperability between medical records and patient portals. #patientchat
@christie_mph
@patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are some great things happening at libraries. They are building health kiosks. We also need to advocate for funding for folks to tech and internet hot spots. #patientchat
Patient Chat @patientchat
RT @christie_health: @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are som…
Christina Lizaso @btrfly12
T4: Digital health tools have lots of potential... juggling different ones and getting buy-in from your providers in your utilization of and the information they help you track, etc. can be a challenge. #patientchat
Patient Chat @patientchat
#patientchat
ROHHADwarrior @ROHHAD_warrior
@patientchat T4: some people are not used to the technology(older population), software updates that can just happen, wifi issues, hacking concerns, not a strong connection, user error. I think the more these are used, people get used to it. Practice makes perfect. #patientchat
Patient Chat @patientchat
RT @carlyflumer: T4: Interoperability between medical records and patient portals. #patientchat
Bingle @TheBingle
T4 Always should make sure your patient record is correct. One mistake could be fatal in all seriousness! #patientchat
Christina Lizaso @btrfly12
T4: Too many digital health tools get developed without well thought-out, diverse and involved group of patients - and providers - being part of the development process so that it really works for end-users and solves a real problem. #patientchat
Christina Lizaso @btrfly12
RT @TheBingle: T4 Always should make sure your patient record is correct. One mistake could be fatal in all seriousness! #patientchat
Patient Chat @patientchat
RT @btrfly12: T4: Too many digital health tools get developed without well thought-out, diverse and involved group of patients - and provid…
Patient Chat @patientchat
T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientchat https://t.co/QJS7sgkSuW
Christina Lizaso @btrfly12
RT @ROHHAD_warrior: @patientchat T4: some people are not used to the technology(older population), software updates that can just happen, w…
Christina Lizaso @btrfly12
RT @christie_health: @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are som…
Inspire @InspireIsHealth
RT @patientchat: T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientc
ROHHADwarrior @ROHHAD_warrior
@patientchat T4: the benefits are: you have all your health in the palm of you hand, you can easily share information with providers and everything can be kept in one place. #patientchat
Christina Lizaso @btrfly12
[REDACTED USER] don't get me started on faxing in healthcare! #patientchat
Bingle @TheBingle
T4 Also have heard of wrong drugs given to patients by purely not paying attention. Considering how full hospitals are these COVID days this can be more prominent. Patient Beware! #patientchat
@christie_mph
@patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and patients to bridge the knowledge gaps, and provide people with the resources to access care virtually. #patientchat
Carly Flumer (she/her) @carlyflumer
T5: Overall, I think 2020 highlighted the nuances and disparities of healthcare, including digital health and telehealth...hopefully for the better. #patientchat
ROHHADwarrior @ROHHAD_warrior
@patientchat T5: If we had this pandemic even 10 years ago, we would be in trouble. No time is good for a pandemic, but we now can video chat with providers and technology has made 2020 much easier. #patientchat
Christina Lizaso @btrfly12
T5: I think that patient advocates are going to have to "hold the line" in keeping telehealth where it was always needed and makes sense to keep past the pandemic. There are provider barriers across states that need addressing too. #patientchat
Patient Chat @patientchat
RT @christie_health: @patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and pat…
Patient Chat @patientchat
T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5
Patient Empowerment Network @power4patients
RT @patientchat: T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientc
Patient Empowerment Network @power4patients
RT @patientchat: T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5
Christina Lizaso @btrfly12
Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https://t.co/w1kzWCsAgm #patientchat
Patient Chat @patientchat
RT @btrfly12: Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https:/…
@christie_mph
I have to run, but thanks for this very important chat today @patientchat and [REDACTED USER]! Have a great weekend, everyone. #patientchat
Patient Empowerment Network @power4patients
Thanks for sharing! #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5
ROHHADwarrior @ROHHAD_warrior
@patientchat T6: I look forward to providers working with everyone to bridge the gap of using technology to communicate with them. Also, make it more accessible for all providers to work together. #patientchat
Bingle @TheBingle
RT @btrfly12: Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https:/…
Bingle @TheBingle
T6 Digital records with backups! At all your Doctors offices also. #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Christina Lizaso @btrfly12
haven't really let myself think about "things I look forward to" in a while.. hmmmm.. Reading #patientchat responses to T6: and trying to latch on to some optimism :)
ROHHADwarrior @ROHHAD_warrior
@patientchat CT: Digital tools are very helpful for those that are familiar using them. We need to bridge the knowledge gap with the tools patients and providers use. We need to work on making the digital tools accessible, functional and flexible. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime.
Patient Empowerment Network @power4patients
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime.
Patient Chat @patientchat
A huge thank you to [REDACTED USER] founder of Chronically Simple for joining our #patientchat and sharing your thoughts with us today!
PF Anderson @pfanderson@disabled.social @pfanderson
RT @patientchat: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat http…
PF Anderson @pfanderson@disabled.social @pfanderson
Wish I had seen this sooner! What a GREAT topic! I'm a huge fan of digital health for patient activism, advocacy, and engagement. #PatientChat
Christina Lizaso @btrfly12
CT: Patient engagement is a challenge to embody vs have as a buzzword. Digital tools, especially now, have potential to bring SharedDecisionMaking closer to reality for more patients. Keep moving forward w/ "How might we" &inclusion of patients in design #patientchat #askpatients
Patient Chat @patientchat
Keep the conversation going between chats with hashtag #patientchat
Christina Lizaso @btrfly12
RT @ROHHAD_warrior: @patientchat CT: Digital tools are very helpful for those that are familiar using them. We need to bridge the knowledge…
PF Anderson @pfanderson@disabled.social @pfanderson
[REDACTED USER] @patientchat Which creates even more problems for patients without a smartphone or without network at home. This has become a lifeline, and the digital divide is killing people. #PatientChat
Bingle @TheBingle
RT @pfanderson: Wish I had seen this sooner! What a GREAT topic! I'm a huge fan of digital health for patient activism, advocacy, and engag…
Patient Chat @patientchat
@pfanderson It’s not too late to join the conversation! #patientchat
Patient Chat @patientchat
@MyCareCrew Thank you for joining us today! #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@patientchat I hear that! Scrolling & replying ... #PatientChat
Christina Lizaso @btrfly12
[REDACTED USER] Visuals can be a great bridge in communicating with providers - on top of being super helpful for yourself. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @ROHHAD_warrior: @patientchat T5: If we had this pandemic even 10 years ago, we would be in trouble. No time is good for a pandemic, but…
PF Anderson @pfanderson@disabled.social @pfanderson
RT @carlyflumer: T5: Overall, I think 2020 highlighted the nuances and disparities of healthcare, including digital health and telehealth..…
PF Anderson @pfanderson@disabled.social @pfanderson
RT @christie_health: @patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and pat…
Christina Lizaso @btrfly12
[REDACTED USER] [REDACTED USER] [REDACTED USER] which I can only laugh about since I once had a job checking large practice's group email for the e-Faxes, downloading the PDF to my hard drive, then uploading it into the EMR. creating quite a data security risk... #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
[REDACTED USER] The nice thing about general use programs like the ones you mention are their flexibility and how you can customize them for your own personal needs. Most of the prefab apps I've found don't meet my needs because they aren't flexible enough #PatientChat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @btrfly12: CT: Patient engagement is a challenge to embody vs have as a buzzword. Digital tools, especially now, have potential to bring…
Amar Kelkar, MD, MPH, FACP @amarkelkar
We’re about to get started with our webinar in 5 minutes (2-3pm EST)! Please join if you can! You can even register (https://t.co/UT3JHXb5ru) and join after we’ve started! #COVID19 #VaccinesWork #patienteducation @UFHealthCancer @WellFlorida
PF Anderson @pfanderson@disabled.social @pfanderson
[REDACTED USER] I would absolutely love to learn more about how you did this. Perhaps #PatientChat could host a brief webinar where you could do a demo?
Christina Lizaso @btrfly12
[REDACTED USER] [REDACTED USER] [REDACTED USER] oh, and another place I worked back in 2000s the Volunteer Office was in the old Breast Center with the SAME fax number that was never changed. We'd get Mammo requests with patient information in our open breakroom weekly. sigh... #patientchat
Christina Lizaso @btrfly12
#patientchat:
Christina Lizaso @btrfly12
RT @pfanderson: [REDACTED USER] The nice thing about general use programs like the ones you mention are their flexibility and how you can customi…
#patientchat content from Twitter.