#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Simply Kristy @SimplyKristyD RT @patientchat: You can find the topics we’ll cover on today’s Empowered #patientchat with @SimplyKristyD here: You can find the topics we’ll cover on today’s Empowered #patientchat with @SimplyKristyD here: https://t.co/7ZQMkkDLsb |
| Simply Kristy @SimplyKristyD RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Christina Lizaso @btrfly12 RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat Hi all! I’m Annie-Danielle (Ma vie de zèbre - My Life as a Zebra), francophone voice for rare disease in North America from Québec (Canada), always happy to join #PatientChat! |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat 😊 |
| Simply Kristy @SimplyKristyD @ADanGrenier @patientchat Hi Annie-Danielle 👋 Looking forward to chatting with you! #PatientChat |
| Patient Chat @patientchat Excited to have @SimplyKristyD founder of Chronically Simple here as today’s #patientchat guest! |
 | Carly Flumer (she/her) @carlyflumer Hello! I’m Carly, a #thyca patient and advocate for #AYA friends. 🦋 #patientchat |
| Simply Kristy @SimplyKristyD Hi Everyone 👋 I'm Kristy, wife, mom to 3 kids and rare disease patient. I'm also the founder of @cshealthapp Excited to be the guest on today's #patientchat |
 | Patient Empowerment Network @power4patients Hi #patientchat I’m Kara from PEN! I'm a brain cancer survivor and happy to be here as a participant today :) |
| Patient Chat @patientchat RT @SimplyKristyD: Hi Everyone 👋 I'm Kristy, wife, mom to 3 kids and rare disease patient. I'm also the founder of @cshealthapp Excited to be the guest on today's #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Christina Lizaso @btrfly12 Hi #patientchat - One of those rare Fridays where I can join. Always nice to chat along with you all. I'm passionate about the intersection of community building and healthcare. |
| Simply Kristy @SimplyKristyD @power4patients Hi Kara! #patientchat |
| Simply Kristy @SimplyKristyD @carlyflumer Hi Carly! 😊 #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
| Patient Empowerment Network @power4patients @SimplyKristyD Hi Kristy! Happy Friday to you! #patientchat |
| Simply Kristy @SimplyKristyD @btrfly12 So glad you could make it, Christina 😊 #patientchat |
 | ROHHADwarrior @ROHHAD_warrior @patientchat Hello I’m Sarah and I have ROHHAD. #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb |
| Simply Kristy @SimplyKristyD @ROHHAD_warrior @patientchat Hi Sarah, glad you are able to join us today #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Today's #patientchat topic is The Engaged Patient: Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is The Engaged Patient: Today's #patientchat topic is The Engaged Patient: Utilizing Digital Health https://t.co/7ZQMkkDLsb |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
 | Inspire @InspireIsHealth Hello to #PatientChat and Happy New Year, John Novack from Inspire checking in to listen and learn from @SimplyKristyD and all here. |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH |
| Simply Kristy @SimplyKristyD T1 a) Patient engagement in healthcare means that the patient is a respected member of their care team. #patientchat |
 | Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat Hi everyone! I'm a bit late, but excited to be here. Happy New Year. I'm Christie from NY, founder of HowtoTalkToYourDoctor and #publichealth consultant. #patientchat |
| Simply Kristy @SimplyKristyD T1 b) They are taking an active role in managing their personal health and perhaps have taken on an advocacy role to assist the broader healthcare system with understanding the patient perspective. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T1 Getting informed about how things work, about my conditions, taking opportunities to educate HCW, to be a patient-partner, participate in research, answer surveys and more! #PatientChat |
| Simply Kristy @SimplyKristyD T1 c) It means that the physician or organization is open and willing to treat patient advocates with respect and listen to the very important lived experiences that they bring to the table. #patientchat |
| Simply Kristy @SimplyKristyD RT @ADanGrenier: @patientchat T1 Getting informed about how things work, about my conditions, taking opportunities to educate HCW, to be a patient-partner, participate in research, answer surveys and more! #PatientChat |
| Simply Kristy @SimplyKristyD @ADanGrenier Great minds 😊 #patientchat |
| Patient Chat @patientchat RT @ADanGrenier: @patientchat T1 Getting informed about how things work, about my conditions, taking opportunities to educate HCW, to be a patient-partner, participate in research, answer surveys and more! #PatientChat |
| Patient Chat @patientchat RT @SimplyKristyD: T1 c) It means that the physician or organization is open and willing to treat patient advocates with respect and listen to the very important lived experiences that they bring to the table. #patientchat |
| Simply Kristy @SimplyKristyD RT @patientchat: T1: T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH |
| Christina Lizaso @btrfly12 RT @patientchat: T1: T1: What does patient engagement in healthcare mean to you? #patientchat https://t.co/ZTdrAHhUuH |
| ROHHADwarrior @ROHHAD_warrior @patientchat T1 Being able to talk to your provider(s) about all issues and having them listen, explain and involve you. Research studies, surveys ect. #patientchat |
| Christina Lizaso @btrfly12 RT @SimplyKristyD: T1 c) It means that the physician or organization is open and willing to treat patient advocates with respect and listen to the very important lived experiences that they bring to the table. #patientchat |
| Patient Empowerment Network @power4patients RT @SimplyKristyD: T1 a) Patient engagement in healthcare means that the patient is a respected member of their care team. #patientchat |
| Carly Flumer (she/her) @carlyflumer T1: Being an #advocate, doing research on your disease, being a caregiver, or simply interacting with the patient community. You can also engage in your own health through technology, such as through apps and portals. #patientchat |
| Simply Kristy @SimplyKristyD @ROHHAD_warrior @patientchat Feeling like you are being listened to is so important #patientchat |
| Patient Chat @patientchat T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwDB218U |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat Patient engagement means many things to me, but most importantly, the relationship between the provider and the patient is a partnership. The doctor is a medical expert; the patient is the expert of their experiences and symptoms. #patientchat |
| Christina Lizaso @btrfly12 "Patient engagement in healthcare" means to me that Shared Decision Making is integrated and that patients are met where they are and involved based on their interest and helped to increase their capacity to be active in their own care #patientchat |
| Simply Kristy @SimplyKristyD T2 a) I am a very engaged patient and I take an active role in managing my health journey. #patientchat |
| Christina Lizaso @btrfly12 RT @christie_health: @patientchat Patient engagement means many things to me, but most importantly, the relationship between the provider and the patient is a partnership. The doctor is a medical expert; the patient is the expert of their experiences and symptoms. #patientchat |
| Simply Kristy @SimplyKristyD @christie_health @patientchat It 100% is a partnership! #patientchat |
| Patient Empowerment Network @power4patients T1: Successful patient engagement is HCPs engaging patients as equal partners in care #patientchat |
| Carly Flumer (she/her) @carlyflumer T2: Through a plethora of patient portals, advocating for #AYA patients with #rare and #chronic diseases, and attending support groups. #patientchat |
| Simply Kristy @SimplyKristyD T2 b) I communicate as needed with my healthcare providers, I am always researching and trying to source new information or ‘hacks’ to help me manage my conditions. #patientchat |
| Simply Kristy @SimplyKristyD Completely agree with all of this! 👇#patientchat |
| Simply Kristy @SimplyKristyD T2 c) I feel there is always room for improvement. My key consideration is that I need to focus methods/tools that simplify the journey. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat 2: I think there is always room for growth. Medicine is always changing and ways to patient manage care is always evolving. Keeping up with the options is the hard part! #patientchat |
| Simply Kristy @SimplyKristyD RT @patientchat: T2: T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwDB218U |
| ROHHADwarrior @ROHHAD_warrior @patientchat T2: I currently am trying to do as many virtual visits as possible with the pandemic. I am always juggling symptoms and results, but do the best I can. There is always room for improvement. #patientchat |
| Christina Lizaso @btrfly12 RT @SimplyKristyD: Completely agree with all of this! 👇#patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T2 a) Managing by spending a LOT of time on it & using multiple tools, like apps, lists, etc. Being super organized (former stage manager!) helps a lot. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T2 b) Lots of room for improvement… Mainly wish my doctors would talk to each other, share info more & that our digital file was more complete & could be more accessible (both for patients & doctors) #PatientChat |
| Inspire @InspireIsHealth RT @patientchat: T2: T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwDB218U |
| Christina Lizaso @btrfly12 RT @ADanGrenier: @patientchat T2 b) Lots of room for improvement… Mainly wish my doctors would talk to each other, share info more & that our digital file was more complete & could be more accessible (both for patients & doctors) #PatientChat |
| Patient Chat @patientchat T3: What, if any, digital tools have you utilized to help you manage your health journey? #patientchat https://t.co/ooYBaFv4Ep |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How are you currently managing your health journey? Is there any room for improvement? #patientchat https://t.co/kLDwDB218U |
| Simply Kristy @SimplyKristyD @ADanGrenier @patientchat If you are okay to share, what are some of the apps you like to use? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What, if any, digital tools have you utilized to help you manage your health journey? #patientchat https://t.co/ooYBaFv4Ep |
| Simply Kristy @SimplyKristyD T3 a) I use @cshealthapp to track and manage the daily admin and symptoms associated with my conditions. #patientchat |
| Patient Empowerment Network @power4patients T3: I use apps to track my fitness/health, patient portals, and had my first telehealth appointment recently #patientchat |
| Christina Lizaso @btrfly12 T3: I consider online patient communities a great "digital tool" in my health journey. I utilize @smart_patients and hashtag communities on Twitter. #patientchat |
 | Bingle @TheBingle T1 Learning what you can. Trying to explain more than doctor(s) may know. Open to being wrong which many professionals are not open to. #patientchat |
| Simply Kristy @SimplyKristyD @ADanGrenier @patientchat It can be especially hard when your physicians are in different jurisdictions. Even within the same province #patientchat |
| Carly Flumer (she/her) @carlyflumer T3: Patient portals have been huge, whether they’re on a computer or phone. Although I wish I didn’t have so many, it’s nice to be able to message my doctors and see my results when I need to. #lifeofacancerpatient #patientchat |
| Simply Kristy @SimplyKristyD T3 b) I use Apple Health via my smart watch to track my activity and cardiac information (which is integrated with my Chronically Simple app so I can cross-reference in my symptom tracking). #patientchat |
| Simply Kristy @SimplyKristyD T3 c) I use an app called @MyPocketHealth to view my diagnostic imaging online and I have log in’s with the two main laboratories in Ontario to view my blood work online. #patientchat |
| Christina Lizaso @btrfly12 RT @carlyflumer: T3: T3: Patient portals have been huge, whether they’re on a computer or phone. Although I wish I didn’t have so many, it’s nice to be able to message my doctors and see my results when I need to. #lifeofacancerpatient #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T3 a) List is long! Lots of apps: lists, reminders, calendar, trackers, Evernote (list of Dx, follow-ups, new problems I am doing research on, etc.), Apple watch. Couldn't manage my health without these, too many appts, drs, tests, Dx, too little brain.😉 #PatientChat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T3: I have used @Facebook to join groups of others with the same disease to discuss symptoms/treatment ect. I have used zoom for appointments, email, and patient portal apps and websites. #patientchat |
 | Liz Da Ponte @lizdaponte RT @SimplyKristyD: T3 a) I use @cshealthapp to track and manage the daily admin and symptoms associated with my conditions. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T3 b) Been working on creating an app for EDS/rare diseases since 2017 (an idea of my cardiologist!). Mockup's done, working on finding studios for estimates now, to get financing. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat Putting a plug here for @SimplyKristyD's @cshealthapp! I recently interviewed her for my blog. What an incredible resource. Patients need a one-stop shop to manage their health information. (she did not put me up to this) :) #patientchat https://t.co/XIUbiI6G0d |
| Simply Kristy @SimplyKristyD @ADanGrenier @patientchat Let me know if you have any questions. I learned a lot while building @cshealthapp! #patientchat |
| Christina Lizaso @btrfly12 RT @christie_health: @patientchat Putting a plug here for @SimplyKristyD's @cshealthapp! I recently interviewed her for my blog. What an incredible resource. Patients need a one-stop shop to manage their health information. (she did not put me up to this) :) #patientchat https://t.co/XIUbiI6G0d |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @btrfly12 @smart_patients That sounds like a great resource! #patientchat |
| Patient Chat @patientchat T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2 |
| Bingle @TheBingle T3 Always good discussing things in open forums. Sometimes much can be accomplished/learned. #patientchat |
| Carly Flumer (she/her) @carlyflumer @ROHHAD_warrior @patientchat @Facebook Facebook groups have been a god-send for sharing personal stories and asking questions! #patientchat |
| Simply Kristy @SimplyKristyD RT @patientchat: T4: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2 |
| Simply Kristy @SimplyKristyD T4 a) The top benefits to digital tools are the mobility – being able to access your information whenever and wherever you need it, keeping everything securely in one place and being able to share with your care team. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T4: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2 |
| Patient Chat @patientchat RT @SimplyKristyD: T4 a) The top benefits to digital tools are the mobility – being able to access your information whenever and wherever you need it, keeping everything securely in one place and being able to share with your care team. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2 |
| Carly Flumer (she/her) @carlyflumer T4: Interoperability between medical records and patient portals. #patientchat |
| Simply Kristy @SimplyKristyD T4 b) The challenges are that there is no one-stop shop for everything. For a patient already overwhelmed just from living with their condition, managing 5-10 different apps and portals and passwords is not ideal. It can end up being more work. #patientchat |
| Bingle @TheBingle RT @SimplyKristyD: T4 a) The top benefits to digital tools are the mobility – being able to access your information whenever and wherever you need it, keeping everything securely in one place and being able to share with your care team. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are some great things happening at libraries. They are building health kiosks. We also need to advocate for funding for folks to tech and internet hot spots. #patientchat |
| Simply Kristy @SimplyKristyD T4 c) To overcome these challenges we need to work collaboratively with ALL stakeholders to build a system or an ecosystem that works for all and is accessible to everyone. #patientchat |
| Patient Chat @patientchat RT @christie_health: @patientchat T4: @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are some great things happening at libraries. They are building health kiosks. We also need to advocate for funding for folks to tech and internet hot spots. #patientchat |
| Simply Kristy @SimplyKristyD RT @christie_health: @patientchat T4: @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are some great things happening at libraries. They are building health kiosks. We also need to advocate for funding for folks to tech and internet hot spots. #patientchat |
| Christina Lizaso @btrfly12 T4: Digital health tools have lots of potential... juggling different ones and getting buy-in from your providers in your utilization of and the information they help you track, etc. can be a challenge. #patientchat |
| Patient Chat @patientchat #patientchat |
| Simply Kristy @SimplyKristyD T4 d) Healthcare is traditionally very siloed and we need to break those barriers to truly capitalize on the opportunities offered via digital tools/solutions. #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T4: some people are not used to the technology(older population), software updates that can just happen, wifi issues, hacking concerns, not a strong connection, user error. I think the more these are used, people get used to it. Practice makes perfect. #patientchat |
| Patient Chat @patientchat RT @SimplyKristyD: T4 c) To overcome these challenges we need to work collaboratively with ALL stakeholders to build a system or an ecosystem that works for all and is accessible to everyone. #patientchat |
| Patient Chat @patientchat RT @carlyflumer: T4: T4: Interoperability between medical records and patient portals. #patientchat |
| Bingle @TheBingle T4 Always should make sure your patient record is correct. One mistake could be fatal in all seriousness! #patientchat |
| Christina Lizaso @btrfly12 T4: Too many digital health tools get developed without well thought-out, diverse and involved group of patients - and providers - being part of the development process so that it really works for end-users and solves a real problem. #patientchat |
| Christina Lizaso @btrfly12 RT @TheBingle: T4 Always should make sure your patient record is correct. One mistake could be fatal in all seriousness! #patientchat |
| Patient Chat @patientchat RT @btrfly12: T4: T4: Too many digital health tools get developed without well thought-out, diverse and involved group of patients - and providers - being part of the development process so that it really works for end-users and solves a real problem. #patientchat |
| Patient Chat @patientchat T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientchat https://t.co/QJS7sgkSuW |
| Christina Lizaso @btrfly12 RT @ROHHAD_warrior: @patientchat T4: @patientchat T4: some people are not used to the technology(older population), software updates that can just happen, wifi issues, hacking concerns, not a strong connection, user error. I think the more these are used, people get used to it. Practice makes perfect. #patientchat |
| Simply Kristy @SimplyKristyD T5 a) 2020 has demonstrated that necessity breeds change. If we had asked all our physicians if they would have embraced virtual care in Dec 2019 I am sure the majority would have said no, it isn’t possible. #patientchat |
| Christina Lizaso @btrfly12 RT @SimplyKristyD: T4 d) Healthcare is traditionally very siloed and we need to break those barriers to truly capitalize on the opportunities offered via digital tools/solutions. #patientchat |
| Christina Lizaso @btrfly12 RT @christie_health: @patientchat T4: @patientchat T4: Access and equity. Not everyone has the means or resources to use digital health tools. There are some great things happening at libraries. They are building health kiosks. We also need to advocate for funding for folks to tech and internet hot spots. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientchat https://t.co/QJS7sgkSuW |
| Simply Kristy @SimplyKristyD T5 b) The issue is that our system is playing catch up when it comes to technology. Fax machines are still being used! We need a serious system overhaul to truly reap the benefits of some of the advancements we have seen in 2020. #patientchat |
| Christina Lizaso @btrfly12 RT @SimplyKristyD: T4 b) The challenges are that there is no one-stop shop for everything. For a patient already overwhelmed just from living with their condition, managing 5-10 different apps and portals and passwords is not ideal. It can end up being more work. #patientchat |
| Simply Kristy @SimplyKristyD @btrfly12 I could not agree more - getting buy-in from healthcare providers would make such a difference in assisting with access to information and tracking. #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T4: the benefits are: you have all your health in the palm of you hand, you can easily share information with providers and everything can be kept in one place. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T4 a) Lack of connection between platforms & jurisdictions. Price, often. Complexity for some. Multiplication of specialized tools: sometimes very useful, but I for one don't feel like opening 5 different tracking apps every day, 1 for each type of symptoms. #PatientChat |
| Christina Lizaso @btrfly12 @SimplyKristyD don't get me started on faxing in healthcare! #patientchat |
| Simply Kristy @SimplyKristyD RT @btrfly12: @SimplyKristyD don't get me started on faxing in healthcare! #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T4 b) We can overcome those problems with new, unified apps & working with the health system to integrate things & hipefully make those new apps free for the patients. #PatientChat |
| Bingle @TheBingle T4 Also have heard of wrong drugs given to patients by purely not paying attention. Considering how full hospitals are these COVID days this can be more prominent. Patient Beware! #patientchat |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy @patientchat T4 Challenges: Digital literacy & health literacy of patients. Cultural literacy of application. Wifi/data/device access of patient community. Data privacy & security protections. Clear definitions & delineations between digital health tools & digital therapeutics. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and patients to bridge the knowledge gaps, and provide people with the resources to access care virtually. #patientchat |
| Carly Flumer (she/her) @carlyflumer T5: Overall, I think 2020 highlighted the nuances and disparities of healthcare, including digital health and telehealth...hopefully for the better. #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T5: If we had this pandemic even 10 years ago, we would be in trouble. No time is good for a pandemic, but we now can video chat with providers and technology has made 2020 much easier. #patientchat |
| Christina Lizaso @btrfly12 T5: I think that patient advocates are going to have to "hold the line" in keeping telehealth where it was always needed and makes sense to keep past the pandemic. There are provider barriers across states that need addressing too. #patientchat |
| Christina Lizaso @btrfly12 RT @ADanGrenier: @patientchat T4 a) Lack of connection between platforms & jurisdictions. Price, often. Complexity for some. Multiplication of specialized tools: sometimes very useful, but I for one don't feel like opening 5 different tracking apps every day, 1 for each type of symptoms. #PatientChat |
| Patient Chat @patientchat RT @christie_health: @patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and patients to bridge the knowledge gaps, and provide people with the resources to access care virtually. #patientchat |
| Christina Lizaso @btrfly12 RT @coffeemommy: @patientchat T4 Challenges: Digital literacy & health literacy of patients. Cultural literacy of application. Wifi/data/device access of patient community. Data privacy & security protections. Clear definitions & delineations between digital health tools & digital therapeutics. #patientchat |
| Patient Chat @patientchat T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5 |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: What has 2020 taught you about using digital tools to help navigate your healthcare system and/or care plan? #patientchat https://t.co/QJS7sgkSuW |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T5 That I was right to use them! Now more doctors need to rely on my symptoms tracking, more important than ever. Having access to my records online is also vital. Being able to renew my meds online also vital now. Was very "digital" before, but now it's essential. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5 |
| Christina Lizaso @btrfly12 Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https://t.co/w1kzWCsAgm #patientchat |
| Patient Chat @patientchat RT @btrfly12: Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https://t.co/w1kzWCsAgm #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph I have to run, but thanks for this very important chat today @patientchat and @SimplyKristyD! Have a great weekend, everyone. #patientchat |
| Patient Empowerment Network @power4patients Thanks for sharing! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T6: T6: What do you look forward to regarding digital health innovation in 2021? #patientchat https://t.co/hT4GXWWVb5 |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat T6 Continuing on that track we are on, making the tools we have more effective, more accessible, advocate for more equity & make sure those gains we made are not lost when things get better. #PatientChat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T6: I look forward to providers working with everyone to bridge the gap of using technology to communicate with them. Also, make it more accessible for all providers to work together. #patientchat |
| Bingle @TheBingle RT @btrfly12: Shout out to @power4patients and their Digital Sherpa program helping bridge that digital health literacy divide :) https://t.co/w1kzWCsAgm #patientchat |
| Simply Kristy @SimplyKristyD T6 a) I am so excited to see where digital health innovation goes in 2021. Knowing that more people are reliant on using digital solutions to access their care means that we need to see investments and improvements made within virtual care and follow up. #patientchat |
| Simply Kristy @SimplyKristyD T6 b) I am a fierce advocate for patients to have easy access to all their medical records and I will continue that fight in 2021. #patientchat |
| Bingle @TheBingle T6 Digital records with backups! At all your Doctors offices also. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Simply Kristy @SimplyKristyD CT: 2020 showed a lot of promise for #digitalhealth but we have some ways to go #patientchat |
| Christina Lizaso @btrfly12 haven't really let myself think about "things I look forward to" in a while.. hmmmm.. Reading #patientchat responses to T6: and trying to latch on to some optimism :) |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat CT It’s been inspiring to see how many are doing so much to help things move along! We don’t just raise awareness, we make things happen! Happy 2021 everyone! #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat CT: Digital tools are very helpful for those that are familiar using them. We need to bridge the knowledge gap with the tools patients and providers use. We need to work on making the digital tools accessible, functional and flexible. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Patient Empowerment Network @power4patients RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Simply Kristy @SimplyKristyD @Crohnoid @btrfly12 YES! It is infuriating that we are still at the mercy of the fax machine in 2021. #patientchat |
| Simply Kristy @SimplyKristyD Thanks to @patientchat for having me on as a guest. It was lovely chatting with everyone! #patientchat |
| Patient Chat @patientchat A huge thank you to @SimplyKristyD founder of Chronically Simple for joining our #patientchat and sharing your thoughts with us today! |
 | PF Anderson @pfanderson@disabled.social @pfanderson RT @patientchat: T4: T4: What are some benefits and challenges of digital health tools? How can we overcome these challenges? #patientchat https://t.co/IiCBMqQ7U2 |
| Simply Kristy @SimplyKristyD @patientchat It was an honour to be here! Always learn interesting takeaways from these #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson Wish I had seen this sooner! What a GREAT topic! I'm a huge fan of digital health for patient activism, advocacy, and engagement. #PatientChat |
| Christina Lizaso @btrfly12 CT: Patient engagement is a challenge to embody vs have as a buzzword. Digital tools, especially now, have potential to bring SharedDecisionMaking closer to reality for more patients. Keep moving forward w/ "How might we" &inclusion of patients in design #patientchat #askpatients |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ADanGrenier: @patientchat T5 That I was right to use them! Now more doctors need to rely on my symptoms tracking, more important than ever. Having access to my records online is also vital. Being able to renew my meds online also vital now. Was very "digital" before, but now it's essential. #PatientChat |
| Christina Lizaso @btrfly12 RT @ROHHAD_warrior: @patientchat CT: @patientchat CT: Digital tools are very helpful for those that are familiar using them. We need to bridge the knowledge gap with the tools patients and providers use. We need to work on making the digital tools accessible, functional and flexible. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @ADanGrenier @patientchat Which creates even more problems for patients without a smartphone or without network at home. This has become a lifeline, and the digital divide is killing people. #PatientChat |
| Bingle @TheBingle RT @pfanderson: Wish I had seen this sooner! What a GREAT topic! I'm a huge fan of digital health for patient activism, advocacy, and engagement. #PatientChat |
| Patient Chat @patientchat @pfanderson It’s not too late to join the conversation! #patientchat |
| Patient Chat @patientchat @MyCareCrew Thank you for joining us today! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @patientchat I hear that! Scrolling & replying ... #PatientChat |
| Christina Lizaso @btrfly12 RT @Crohnoid: CT: |
| Simply Kristy @SimplyKristyD @ROHHAD_warrior @btrfly12 @patientchat Could not agree morre! Accessible, functional and flexible should be requirements for any/all digital health tool developed. #patientchat |
| Christina Lizaso @btrfly12 @Crohnoid Visuals can be a great bridge in communicating with providers - on top of being super helpful for yourself. #patientchat |
| Christina Lizaso @btrfly12 RT @SimplyKristyD: @ROHHAD_warrior @btrfly12 @patientchat Could not agree morre! Accessible, functional and flexible should be requirements for any/all digital health tool developed. #patientchat |
| Simply Kristy @SimplyKristyD @Crohnoid @btrfly12 Your puzzle visual is astounding. Thank you for sharing - I think I am going to have to steal this concept! #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @ROHHAD_warrior: @patientchat T5: @patientchat T5: If we had this pandemic even 10 years ago, we would be in trouble. No time is good for a pandemic, but we now can video chat with providers and technology has made 2020 much easier. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @carlyflumer: T5: T5: Overall, I think 2020 highlighted the nuances and disparities of healthcare, including digital health and telehealth...hopefully for the better. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @christie_health: @patientchat 5. Technology is not going anywhere, it is the wave of the future. We need to work with providers and patients to bridge the knowledge gaps, and provide people with the resources to access care virtually. #patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Crohnoid: |
| Christina Lizaso @btrfly12 @Crohnoid @ADanGrenier @SimplyKristyD which I can only laugh about since I once had a job checking large practice's group email for the e-Faxes, downloading the PDF to my hard drive, then uploading it into the EMR. creating quite a data security risk... #patientchat |
| Simply Kristy @SimplyKristyD @Crohnoid @ADanGrenier @btrfly12 Well, we all know that faxes are the epitome of secure and confidential...right?!? 🤔#patientchat |
| PF Anderson @pfanderson@disabled.social @pfanderson @Crohnoid The nice thing about general use programs like the ones you mention are their flexibility and how you can customize them for your own personal needs. Most of the prefab apps I've found don't meet my needs because they aren't flexible enough #PatientChat |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @btrfly12: CT: CT: Patient engagement is a challenge to embody vs have as a buzzword. Digital tools, especially now, have potential to bring SharedDecisionMaking closer to reality for more patients. Keep moving forward w/ "How might we" &inclusion of patients in design #patientchat #askpatients |
 | Amar Kelkar, MD, MPH, FACP @amarkelkar We’re about to get started with our webinar in 5 minutes (2-3pm EST)! Please join if you can! You can even register (https://t.co/UT3JHXb5ru) and join after we’ve started! #COVID19 #VaccinesWork #patienteducation @UFHealthCancer @WellFlorida |
| PF Anderson @pfanderson@disabled.social @pfanderson RT @Crohnoid: CT: |
| PF Anderson @pfanderson@disabled.social @pfanderson @Crohnoid I would absolutely love to learn more about how you did this. Perhaps #PatientChat could host a brief webinar where you could do a demo? |
| Christina Lizaso @btrfly12 @SimplyKristyD @Crohnoid @ADanGrenier oh, and another place I worked back in 2000s the Volunteer Office was in the old Breast Center with the SAME fax number that was never changed. We'd get Mammo requests with patient information in our open breakroom weekly. sigh... #patientchat |
| Christina Lizaso @btrfly12 #patientchat: |
| Christina Lizaso @btrfly12 RT @pfanderson: @Crohnoid The nice thing about general use programs like the ones you mention are their flexibility and how you can customize them for your own personal needs. Most of the prefab apps I've found don't meet my needs because they aren't flexible enough #PatientChat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
#patientchat content from Twitter.