#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Your GPS Doc, LLC @yourgpsdoc
I’ll be at the Empowered #patientchat on Fri 10/6 1pmET. Join me! https://t.co/EMV4WAsSyi via @power4patients
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat
Amanda @LAlupusLady
RT @patientchat: The Empowered #patientchat is a project of @power4patients and @intakeme
Melissa VanHouten @melissarvh
#Gastroparesis patient and advocate. #patientchat
Patient Empowerment @power4patients
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Whitney Petit @CfEpilepsy
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage w/ othe…
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
burtrosen @burtrosen
hi Burt here from @HealthSparq on a great day in #PDX #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Patient Chat @patientchat
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history #patientchat
Kat Quinn, MBA HIT @DPCNavigator
Kat the @DPCNavigator ready to join #patientchat about "How to Find a Doctor Who Listens" #PatientEmpowerment with #DirectPrimaryCare!👊 #DPC
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
Patient Empowerment @power4patients
Hi, it's Andrea from PEN. Happy Friday, everyone #patientchat
Mary MACK @MaryOCMack
Hi all, my name is Mary #patientchat
HealthSparq @HealthSparq
Hi there #patientchat! Excited to be here (@annerskg on behalf of HealthSparq) from #PDX today!
Whitney Petit @CfEpilepsy
I made it! Hey all! Whit here. Epilepsy and healthcare advocate. #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & his…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
I'm Lucy, 24 from UK. Neuromuscular disease & multi-organ failure. will join in as best I can w/ dodgy phone signal #patientchat
Nigel H @Crohnoid
Hi. Nigel from UK. #NHS patient being treated for #crohns #PVT #BAM, amongst others. Will be with you shortly - horses to feed! #patientchat
CP Nerve Center @Cpnervecenter
Hi Becky here from @Cpnervecenter #patientchat
Bob Tufts @TuftsB
#patientchat - Bob Tufts, 8+ year myeloma patient, currently 6 months into clinical trial. Same oncologist and team for that entire time.
Tatiana Skomski @tatiskomski
HI everyone! Tatiana from Portland here. Joining my first #patientchat
Christina Lizaso @btrfly12
via buffer: First #patientchat since Feb 2015 that I've missed! Waving hi and sending you all positive energy. Excited to guest mod 10/20
Polly Marie Fielding @FieldingPolly
@patientchat #patientchat Hi I'm Polly Fielding https://t.co/LzlEJR0qyQ
Enlightening Results @GraceCordovano
Happy, happy Friday #patientchat!! Grace, private cancer patient advocate joining in from NJ. https://t.co/n2DohxaVjw
HealthSparq @HealthSparq
@CfEpilepsy Hi Whitney!!! How are you? #PatientChat
Polly Marie Fielding @FieldingPolly
@DPCNavigator Good topic #patientchat
HealthSparq @HealthSparq
@Cpnervecenter Hi Becky! How has your week been? #patientchat
Enlightening Results @GraceCordovano
@burtrosen @HealthSparq Hi Burt! Long time no see (speak?) #patientchat
HealthSparq @HealthSparq
@GraceCordovano Heck yes! Friday! #patientchat
CP Nerve Center @Cpnervecenter
RT @btrfly12: via buffer: First #patientchat since Feb 2015 that I've missed! Waving hi and sending you all positive energy. Excited to gue…
Patient Chat @patientchat
Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat
Your GPS Doc, LLC @yourgpsdoc
I'm Nicole Rochester, pediatrician, former caregiver to my dad, patient advocate, and founder of @yourgpsdoc. #patientchat
Enlightening Results @GraceCordovano
Come join us! #patientchat https://t.co/8J1HAWoa7m
nonye aghanya @nonyet777
#patientchat Hi everyone! Happy to be part of the conversation today
Polly Marie Fielding @FieldingPolly
@patientchat #patientchat new here so forgive me if I haven't a clue
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw
Polly Marie Fielding @FieldingPolly
RT @GraceCordovano: Come join us! #patientchat https://t.co/8J1HAWoa7m
Whitney Petit @CfEpilepsy
@HealthSparq Hey!!!! I’m good! Long time no tweet! ☺️ #PatientChat
CP Nerve Center @Cpnervecenter
@HealthSparq Hi. Great week here minus the chill in the air. #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw
Team Intake.Me @Intakeme
RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
HealthSparq @HealthSparq
@CfEpilepsy I know! I've been terrible the last couple months, back on it for fall! #PatientChat
Patient Chat @patientchat
T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Team Intake.Me @Intakeme
RT @patientchat: The Empowered #patientchat is a project of @power4patients and @intakeme
Enlightening Results @GraceCordovano
Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize, & care. #patientchat https://t.co/jixPZA7o8H
HealthSparq @HealthSparq
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Team Intake.Me @Intakeme
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
CP Nerve Center @Cpnervecenter
@FieldingPolly @patientchat Hi Polly. #patientchat
Amanda @LAlupusLady
Amanda #Lupus #Fibro patient/advocate/warrior ready to rock #patientchat despite the ice pack on my wrist.
Kimberly Hartmann @fireflyrn84
Sorry a little late, Kim here! #patientchat
Amanda @LAlupusLady
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @GraceCordovano: Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize,…
Polly Marie Fielding @FieldingPolly
@patientchat I would suggest you keep what you say clear, brief & to the point of what you have really come for #patientchat
CP Nerve Center @Cpnervecenter
@fireflyrn84 Hi Kim🖑#patientchat
Enlightening Results @GraceCordovano
T1: Come prepared for your appt! Speak up. Engage the dr. Take the front seat every single time. You need to drive your appt. #patientchat
Melissa VanHouten @melissarvh
T1 Make written list of questions & topics you'd like 2 discuss in advance. Prioritize so most important concerns are addressed #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Your GPS Doc, LLC @yourgpsdoc
T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat
gail simmons @jurylady5
RT @GraceCordovano: Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize,…
Team Intake.Me @Intakeme
T1. Create your intention/agenda before the visit and share it with everyone #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
Hello all. #patientchat was on my mind in a meeting today. Let's find some docs who listen. I'm Shereese here in Maryland. https://t.co/RvxPgbW802
nonye aghanya @nonyet777
#patientchat burden really lies on the clinician to identify patient's anxieties and communicate appropriately to alleviate such anxiety
Amanda @LAlupusLady
A1 Make a list, take notes but during the appointment look your HCP in the eyes and connect, engage and share. #patientchat
Kimberly Hartmann @fireflyrn84
T1: Make list of ?s before visit, be frank, this is a relationship that needs developed. Let your doc really know your needs #patientchat
HealthSparq @HealthSparq
T1. Always speaking up for yourself and asking questions certainly helps make sure the care is at least personalized! #patientchat
Enlightening Results @GraceCordovano
@fireflyrn84 Hey stranger! Wouldn't be a chat without you :) #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T1 #patientchat go in armed w/ info. Learn what you can. Have clear outcomes you want from appt. Be espectful. dont be afraid to speak up.
HealthSparq @HealthSparq
@fireflyrn84 Morning Kimberly! Happy Friday! #PatientChat
Kimberly Hartmann @fireflyrn84
@Cpnervecenter Hey there! #patientchat
Polly Marie Fielding @FieldingPolly
RT @GraceCordovano: Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize,…
burtrosen @burtrosen
T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help #patientchat
Tatiana Skomski @tatiskomski
T1: Coming prepared with what you want to discuss before the visit and being persistent to cover those topics during the visit! #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: T1: Come prepared for your appt! Speak up. Engage the dr. Take the front seat every single time. You need to drive your…
Talk UK Telecoms @talkuktelecoms
RT @LucyAlexandria: I'm Lucy, 24 from UK. Neuromuscular disease & multi-organ failure. will join in as best I can w/ dodgy phone signal #pa
Bob Tufts @TuftsB
#patientchat T1 - time is limited, I always come with 5 questions to focus discussion. I will not leave until they are answered @MLIWI
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @melissarvh: T1 Make written list of questions & topics you'd like 2 discuss in advance. Prioritize so most important concerns are addre…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @yourgpsdoc: T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Intakeme: T1. Create your intention/agenda before the visit and share it with everyone #patientchat
Amanda @LAlupusLady
RT @ShereesePubHlth: Hello all. #patientchat was on my mind in a meeting today. Let's find some docs who listen. I'm Shereese here in Ma…
HealthSparq @HealthSparq
RT @fireflyrn84: T1: Make list of ?s before visit, be frank, this is a relationship that needs developed. Let your doc really know your nee…
ShereeseM, MS/MBA @ShereesePubHlth
Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Kimberly Hartmann @fireflyrn84
@GraceCordovano Aww thanks! You too! #patientchat
Amanda @LAlupusLady
RT @Intakeme: T1. Create your intention/agenda before the visit and share it with everyone #patientchat
Melissa VanHouten @melissarvh
T1 Make certain doc has rec'd all medical records before appointment & research your illness as much as possible prior 2 visit #patientchat
CP Nerve Center @Cpnervecenter
A1 Write down your issues in order of importance. Ask for a long enough appt to cover your list #patientchat
Kimberly Hartmann @fireflyrn84
@HealthSparq Same to you! #patientchat
Amanda @LAlupusLady
RT @burtrosen: T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help…
Whitney Petit @CfEpilepsy
T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo #PatientChat
Alan Brewington @abrewi3010
T1 come to the visit as a whole person with a quality of life, not a collection of symptoms #patientchat
Melissa VanHouten @melissarvh
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Emily Drake @EK_Drake
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Enlightening Results @GraceCordovano
T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential. #patientchat
Rie Lopez, MPH @RieOfLetters
Hello all! Mostly lurking today. Looking forward to learning from all of you. #patientchat
Patient Chat @patientchat
RT @GraceCordovano: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential.…
Amanda @LAlupusLady
There it is... #patientchat the best reason to be an "empowered patient." https://t.co/TM1G0A4lKb
Kimberly Hartmann @fireflyrn84
Cannot stress how important this is !!!! #patientchat https://t.co/PuvRR7mF3J
nonye aghanya @nonyet777
#patientchat Attentive observation peaks curiosity which can improve listening skills...a necessity for optimal healthcare delivery
Patient Empowerment @power4patients
T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patientchat
Whitney Petit @CfEpilepsy
RT @tatiskomski: T1: Coming prepared with what you want to discuss before the visit and being persistent to cover those topics during the v…
Kat Quinn, MBA HIT @DPCNavigator
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Melissa VanHouten @melissarvh
RT @yourgpsdoc: T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat
Enlightening Results @GraceCordovano
@melissarvh Being prepared is key! You wouldn't show up to a business meeting unprepared. 1000X more important than any meeting you go to #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T1 #patientchat also helps to write a list of things to discuss & to bring handouts of medication list, diagnosis list etc
Mary MACK @MaryOCMack
T1: If you don't understand something ask for examples #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @GraceCordovano: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential.…
CP Nerve Center @Cpnervecenter
A2 Be concise. Healthcare providers are looking for certain objective, facts more than longwinded explanations. Be honest #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential.…
Amanda @LAlupusLady
T1 but will the HCPs be willing and able to see patients as people not a collection of symptoms with a list of meds? #PatientChat https://t.co/1tQ9c7L9KP
Enlightening Results @GraceCordovano
@ShereesePubHlth Hey Shereese! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @CfEpilepsy: T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo…
Patient Chat @patientchat
Topic 2 (T2:) coming up… #patientchat
CP Nerve Center @Cpnervecenter
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @TuftsB: #patientchat T1 - time is limited, I always come with 5 questions to focus discussion. I will not leave until they are answere…
Amanda @LAlupusLady
RT @power4patients: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patie
Kat Quinn, MBA HIT @DPCNavigator
RT @power4patients: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patie
DaniSearching @daniscotchirish
Quit making Drs and other practitioners schedule 15 minute appointments! You can't listen and answer everything in 15 minutes! #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
CP Nerve Center @Cpnervecenter
RT @burtrosen: T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help…
Kimberly Hartmann @fireflyrn84
Especially with new docs and new diagnosis...this is essential! So much information and you forget things. #patientchat https://t.co/bvTzjs676Y
Whitney Petit @CfEpilepsy
RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat
Bob Tufts @TuftsB
#patientchat T1 - whenever there is a conference on a change in treatment, a caregiver's presence is almost mandatory. @MLIWI
nonye aghanya @nonyet777
RT @CfEpilepsy: T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo…
ShereeseM, MS/MBA @ShereesePubHlth
@LAlupusLady Seems I followed you here, lol #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @LAlupusLady: T1 but will the HCPs be willing and able to see patients as people not a collection of symptoms with a list of meds…
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patie
Enlightening Results @GraceCordovano
@TuftsB @MLIWI Preparation is key! Also, knowing next steps & being clear on what to do AFTER you leave the appt is essential #patientchat
Alan Brewington @abrewi3010
T1 Want doc to see you has a person, come with good & bad symptoms. People care about people. #patientchat
Patient Chat @patientchat
T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
nonye aghanya @nonyet777
RT @melissarvh: T1 Make certain doc has rec'd all medical records before appointment & research your illness as much as possible prior 2 vi…
Nigel H @Crohnoid
T1 Been giving this subject a lot of thought. Here's some reading for after tonight's #patientchat - https://t.co/EayajWbCKE
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: @TuftsB @MLIWI Preparation is key! Also, knowing next steps & being clear on what to do AFTER you leave the appt is ess…
Kimberly Hartmann @fireflyrn84
Once you have a relationship established, then it is much easier to address the whole person. Initially difficult #patientchat https://t.co/F6jJMCxAlh
Kat Quinn, MBA HIT @DPCNavigator
#DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies. 🤓
nonye aghanya @nonyet777
RT @yourgpsdoc: T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat
HealthSparq @HealthSparq
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Nigel H @Crohnoid
T1 I view my consultant as an expert resource that I can use to try and get the best outcomes for my particular conditions #patientchat
Enlightening Results @GraceCordovano
@JotallyWalksome Reviewing medical history & current meds prior to doctor coming in saves time. Use the time with the nurse to your benefit #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@GraceCordovano #patientchat https://t.co/b0BhyEp14p
Bob Tufts @TuftsB
@DaniScotchIrish #patientchat - and that 15 minutes includes infuriating computer time. Want my doc to look in my eyes, see my fears not a screen @MLIWI
CP Nerve Center @Cpnervecenter
@burtrosen So true! My Doc is more inclined to try my suggestions when I can back them up with Data #patientchat
Patient Empowerment @power4patients
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Team Intake.Me @Intakeme
RT @power4patients: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patie
Kimberly Hartmann @fireflyrn84
T2: number of pts, time for visit, experience with this condition, best communication route, staff coverage when gone, priority #patientchat
Amanda @LAlupusLady
Great minds chat together. #HITsm #patientchat Happy Friday. https://t.co/6fx3Vb3Jjt
CP Nerve Center @Cpnervecenter
RT @DPCNavigator: #DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies…
Amanda @LAlupusLady
RT @fireflyrn84: Once you have a relationship established, then it is much easier to address the whole person. Initially difficult…
Kimberly Hartmann @fireflyrn84
RT @DPCNavigator: #DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies…
HealthSparq @HealthSparq
T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #patientchat
Rie Lopez, MPH @RieOfLetters
@GraceCordovano A #carepartner was so helpful for me. It can be overwhelming that you forget things or your notes become unreadable. #patientchat
Team Intake.Me @Intakeme
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T2 #patientchat are you happy to work w/ me? Will you value my input & as the expert in myself? Do you see healthcare as team effort?
HealthSparq @HealthSparq
@fireflyrn84 It definitely takes time to establish a strong relationship. #Patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Mary MACK @MaryOCMack
T2: How familiar are you with rare diseases and the fact that they can be syndromic?#patientchat
Kat Quinn, MBA HIT @DPCNavigator
@patientchat T2: How much time do visits last? How long of wait time to see my doctor? Does my doctor offer discounted Rx & lab work? #patientchat #DPC
Melissa VanHouten @melissarvh
T2 How long have you specialized in my condition & how many patients w/ my condition have you treated? #patientchat
Kimberly Hartmann @fireflyrn84
@Cpnervecenter @burtrosen I've gone to dr appts with studies pulled up on my phone so that I can show them the research #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @fireflyrn84: Once you have a relationship established, then it is much easier to address the whole person. Initially difficult…
Enlightening Results @GraceCordovano
T2: Conversation should be natural, discuss what you value. You don't necessarily need answers to get a sense of a good fit. #patientchat
CP Nerve Center @Cpnervecenter
A2 Be disease specific! If they aren't sure how to treat you will they learn so they can treat u effectively #patientchat
Kat Quinn, MBA HIT @DPCNavigator
T2: How much time do visits last? How long of wait time to see my doctor? Does my doctor offer discounted Rx & lab work? #patientchat #DPC https://t.co/qp92WmOTcj
Nigel H @Crohnoid
T2 Not really something that happens in the UK #NHS but if you don't hit it off with your doctor you do have right to change #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Crohnoid: T1 I view my consultant as an expert resource that I can use to try and get the best outcomes for my particular conditions #p
Amanda @LAlupusLady
Since my #ptexp in healthcare is a journey as a person wish that the HCPs could understand my concern for QOL and ROM. #patientchat
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: Especially with new docs and new diagnosis...this is essential! So much information and you forget things.…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @HealthSparq: T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #…
Kat Quinn, MBA HIT @DPCNavigator
RT @HealthSparq: T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #…
Alan Brewington @abrewi3010
T2 what's the docs definition of quality of life? What do they do for fun? #patientchat
Your GPS Doc, LLC @yourgpsdoc
T2- Ask how they deal with uncertainty. Most docs can handle the common stuff. What do they do when they don't know? #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: T2: Conversation should be natural, discuss what you value. You don't necessarily need answers to get a sense of a good…
Kat Quinn, MBA HIT @DPCNavigator
RT @HealthSparq: @fireflyrn84 It definitely takes time to establish a strong relationship. #Patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Crohnoid: T2 Not really something that happens in the UK #NHS but if you don't hit it off with your doctor you do have right to change…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @LAlupusLady: Since my #ptexp in healthcare is a journey as a person wish that the HCPs could understand my concern for QOL and ROM. #pa
Patient Empowerment @power4patients
T2 Finding the right oncologist is difficult, We're here to help make this important decision easier https://t.co/9yq3xXxAg5 #patientchat
Kimberly Hartmann @fireflyrn84
@HealthSparq BINGO! You usually get that feeling within the first visit or two #patientchat
burtrosen @burtrosen
T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill #patientchat
Amanda @LAlupusLady
RT @HealthSparq: T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #…
Enlightening Results @GraceCordovano
@MaryOCMack So important! Similar to patients opting for particular procedures. Asking how often the dr does the procedure is key. #patientchat
Melissa VanHouten @melissarvh
T2 Interview is also about how attentive doc is & how well he communicates & demonstrates concern/empathy. Just as significant. #patientchat
Amanda @LAlupusLady
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Patient Empowerment @power4patients
RT @abrewi3010: T2 what's the docs definition of quality of life? What do they do for fun? #patientchat
Bob Tufts @TuftsB
#patientchat T2 - What is their experience w/the disease? What is menu of treatments? You suggest X, why? What are signs of failure? @MLIWI
Tatiana Skomski @tatiskomski
T2: For me, it's more about that gut feeling (no pun intended) I get when talking with a doctor #IBDpuns #patientchat
CP Nerve Center @Cpnervecenter
RT @burtrosen: T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill…
Team Intake.Me @Intakeme
T2 Observe how they communicate with you including reception. Are they open to listening then? Or are they rushing you? #patientchat
burtrosen @burtrosen
@fireflyrn84 @Cpnervecenter i try to remember to always bring my purple binder with all my test results so that all my docs can see what each other do #patientchat https://t.co/U3ydJO9x19
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Enlightening Results @GraceCordovano
@RieOfLetters It can be a lot to process. We've been taught to use the buddy system as children. Then we grew up. Should still apply #patientchat
Kimberly Hartmann @fireflyrn84
@abrewi3010 Knowing their hobbies helps to find a common ground and that's a perfect starting point for forming a relationship #patientchat
CP Nerve Center @Cpnervecenter
@yourgpsdoc GREAT QUESTION TO ASK! #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @burtrosen: T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill…
CP Nerve Center @Cpnervecenter
RT @abrewi3010: T2 what's the docs definition of quality of life? What do they do for fun? #patientchat
HealthSparq @HealthSparq
@fireflyrn84 And that is when you have to decide to stay with them or move on...too much longer & the breakup becomes harder! #PatientChat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
T2 #patientchat I also ask them if they will prioritise my quality of life & help me live the life I want 2 lead. Need to 'click' w/them too
Team Intake.Me @Intakeme
RT @DPCNavigator: T2: How much time do visits last? How long of wait time to see my doctor? Does my doctor offer discounted Rx & lab…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @melissarvh: T2 Interview is also about how attentive doc is & how well he communicates & demonstrates concern/empathy. Just as signific…
Polly Marie Fielding @FieldingPolly
@patientchat What is your attitude towards #mentalillness ? #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up… #patientchat
Alan Brewington @abrewi3010
T2 Are they open to multiple forms of communication? #patientchat
Team Intake.Me @Intakeme
RT @LucyAlexandria: @patientchat T2 #patientchat are you happy to work w/ me? Will you value my input & as the expert in myself? Do you…
Amanda @LAlupusLady
T2 get the basic info on Dr. online but i ask human questions to engage them get the HCP to "understand" that i am a ePatient. #patientchat
Enlightening Results @GraceCordovano
@tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice requires more than words #PatientChat
Kimberly Hartmann @fireflyrn84
@burtrosen @Cpnervecenter Oh I never forget about your binder! I would need a lot of them and aubergine a wagon to pull it with 😊.#patientchat
Patient Chat @patientchat
T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @GraceCordovano: @JotallyWalksome Reviewing medical history & current meds prior to doctor coming in saves time. Use the time with t…
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: @burtrosen @Cpnervecenter Oh I never forget about your binder! I would need a lot of them and aubergine a wagon to…
ShereeseM, MS/MBA @ShereesePubHlth
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
HealthSparq @HealthSparq
RT @LAlupusLady: T2 get the basic info on Dr. online but i ask human questions to engage them get the HCP to "understand" that i am a ePati…
Bob Tufts @TuftsB
#patientchat T2 - problem w/ specialists is that they are brilliant about the disease but not the person - lack communication skills @MLIWI
Kat Quinn, MBA HIT @DPCNavigator
RT @GraceCordovano: @tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Enlightening Results @GraceCordovano
@abrewi3010 Different patients have different preferences for communication. Its hard to have a relationship with someone you can't reach #Patientchat
Polly Marie Fielding @FieldingPolly
@GraceCordovano @tatiskomski yes. Body language/facial expression - important #patientchat
Rie Lopez, MPH @RieOfLetters
Yes! I want a health care partnership. My provider should be interested in my conditions and be open to learn with me! #patientchat https://t.co/ZGb18h2JEW
burtrosen @burtrosen
@LucyAlexandria @morgan_gleason said it best, focus on what i want to be able to do (for her, ride horses), not just my test results #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @GraceCordovano: @tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice…
Jim Katzaman @jkatzaman
T1 On a doctor visit, take along all your medications prescribed by this doc and other specialists. I need to remember that. #patientchat
Kimberly Hartmann @fireflyrn84
Autocorrect everytime...a wagon to pull #patientchat https://t.co/rvg0DY29lr
Amanda @LAlupusLady
wrist pain is stronger than #patientchat ~ taking a Twitter time out.
Nigel H @Crohnoid
@GraceCordovano @tatiskomski T2 I've just put a post up on my blog that touches on this #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @JKatzaman: T1 On a doctor visit, take along all your medications prescribed by this doc and other specialists. I need to remember that.…
Melissa VanHouten @melissarvh
T3 Respected science-based medical sites are good place 2 begin research, but patient support groups can also provide good info #patientchat
Amanda @LAlupusLady
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Patient Empowerment @power4patients
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Polly Marie Fielding @FieldingPolly
@patientchat I research sometimes on the internet about possible options for treatment #patientchat
Enlightening Results @GraceCordovano
@TuftsB @MLIWI Lack #empathy too often too. #patientchat
Kenny @kenny_pal2
Talk of " #patientchat " on free chat Chat channel https://t.co/sycoW9r9yn
Melissa VanHouten @melissarvh
#patientchat https://t.co/EFyMWhjo3c
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T3 #patientchat I use the internet, medical papers & other info, go in 'armed' & I also speak with my mum to prepare, plan ahead.
Alan Brewington @abrewi3010
T3 what is going on with my quality of life at that moment? Does my definition need updating with circumstances? #PatientChat
Patient Empowerment @power4patients
RT @LucyAlexandria: @patientchat T3 #patientchat I use the internet, medical papers & other info, go in 'armed' & I also speak with my…
Amanda @LAlupusLady
T3 i use the internet to help me prep for HCP appointments and phone calls ~ having the right questions and info is essential. #patientchat
Kimberly Hartmann @fireflyrn84
T3: Use nursing resources, medscape, along with friends who are HCP. Find online resources for particular dx and common sense #patientchat
Bob Tufts @TuftsB
#patientchat T3 - never use Wikipedia. For myeloma, checked with researchers, doctors and sites like MMRF, IMF and Myeloma Beacon. @MLIWI
Jim Katzaman @jkatzaman
T2 Ask doctors what insurance they accept. This is key in case your plan changes, and you have to find another provider. #patientchat
Polly Marie Fielding @FieldingPolly
@LAlupusLady Hope it gets better soon #patientchat
CP Nerve Center @Cpnervecenter
A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat
Enlightening Results @GraceCordovano
T3: Patients must ask for help. Too easy to be mislead by information that isn't evidence-based. Stay away from @goop #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: @abrewi3010 Different patients have different preferences for communication. Its hard to have a relationship with s…
Alan Brewington @abrewi3010
@GraceCordovano Very true! #PatientChat
nonye aghanya @nonyet777
#patientchat Clinicians... please do become defensive when encountering patients perceived as unpleasant attitude https://t.co/7Z4m4fqc4X
Kimberly Hartmann @fireflyrn84
@tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @RieOfLetters: Yes! I want a health care partnership. My provider should be interested in my conditions and be open to learn wit…
Nigel H @Crohnoid
T3 When meeting a new doctor nowadays I produce my diagram and see what their reaction is. (Sorry if you've alrewady seen this) #patientchat https://t.co/2TNJlsCmhI
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @melissarvh: T3 Respected science-based medical sites are good place 2 begin research, but patient support groups can also provide good…
Polly Marie Fielding @FieldingPolly
@JotallyWalksome @patientchat Often there is #stigma even among health professionals #patientchat
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: T3: Use nursing resources, medscape, along with friends who are HCP. Find online resources for particular dx and common se…
Melissa VanHouten @melissarvh
T3 Bring summary of information you've found. Discuss w/ your physician whether your research is pertinent 2 your circumstances #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @Cpnervecenter: A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @LAlupusLady: T3 i use the internet to help me prep for HCP appointments and phone calls ~ having the right questions and info is essent…
ShereeseM, MS/MBA @ShereesePubHlth
RT @melissarvh: T3 Bring summary of information you've found. Discuss w/ your physician whether your research is pertinent 2 your circumsta…
Tatiana Skomski @tatiskomski
T3: I use my network of fellow #IBD patients as well as the internet. Being empowered and informed to talk with your dr is key #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Cpnervecenter: A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat
Melissa VanHouten @melissarvh
RT @fireflyrn84: @tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @tatiskomski: T3: I use my network of fellow #IBD patients as well as the internet. Being empowered and informed to talk with your dr is…
Bob Tufts @TuftsB
#patientchat T3 - and I would never trust a Yelp review of a physician.
Rie Lopez, MPH @RieOfLetters
Love! Patients are more than just numbers or a case to figure out. Make sure that your health care team knows what you value. #patientchat https://t.co/iM52PUwGmd
Polly Marie Fielding @FieldingPolly
@fireflyrn84 @tatiskomski @melissarvh Good point #patientchat
HealthSparq @HealthSparq
YES!! ⬇️ #PatientChat #WTFix https://t.co/NpXitODgMG
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Crohnoid: T3 When meeting a new doctor nowadays I produce my diagram and see what their reaction is. (Sorry if you've alrewad…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @melissarvh: T3 Bring summary of information you've found. Discuss w/ your physician whether your research is pertinent 2 your circumsta…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @tatiskomski: T3: I use my network of fellow #IBD patients as well as the internet. Being empowered and informed to talk with your dr is…
Tiny soccer news @yqqwe1982
find all kinds of backpacks for you with the loweset price at https://t.co/pSqlmaIpfe #patientchat #MFGDay17 https://t.co/PFnCTin5mX
Kimberly Hartmann @fireflyrn84
@GraceCordovano @goop and webmd...you will be dead every time... don't look there either! #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @RieOfLetters: Love! Patients are more than just numbers or a case to figure out. Make sure that your health care team knows what…
claire morris @msclairemorris
RT @LucyAlexandria: T2 #patientchat I also ask them if they will prioritise my quality of life & help me live the life I want 2 lead. Need…
Jim Katzaman @jkatzaman
T3 Talk with friends and family members about issues -- good and bad -- they've had with their docs to prep your own questions. #patientchat
Your GPS Doc, LLC @yourgpsdoc
T3- Reputable internet sources, medical journals, other patients. #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @HealthSparq: YES!! ⬇️ #PatientChat #WTFix https://t.co/NpXitODgMG
claire morris @msclairemorris
RT @LucyAlexandria: @patientchat T2 #patientchat are you happy to work w/ me? Will you value my input & as the expert in myself? Do you…
CP Nerve Center @Cpnervecenter
@Crohnoid LOVE THIS. Saw it when u posted b4 . #patientchat
CP Nerve Center @Cpnervecenter
RT @Crohnoid: T3 When meeting a new doctor nowadays I produce my diagram and see what their reaction is. (Sorry if you've alrewad…
Dr Ben White @drbenwhite
RT @Crohnoid: T3 When meeting a new doctor nowadays I produce my diagram and see what their reaction is. (Sorry if you've alrewad…
Patient Chat @patientchat
Topic 4 (T4:) coming up #patientchat
Bob Tufts @TuftsB
#patientchat T3 - take charge if your disease, keep journsls, do "homework" between visits to prep. @MLIWI
Nigel H @Crohnoid
@tatiskomski Yes. Specialist forums very useful for getting actual experiences. I find the smaller groups more useful thatn some large ones! #patientchat
Patient Chat @patientchat
When #patientchat starts trending we get more spam. Please ignore/report.
Patient Empowerment @power4patients
T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help, ask us! #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Patient Chat @patientchat
T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patientchat
Enlightening Results @GraceCordovano
@RieOfLetters Yes! Patient is the expert of living w/their diagnosis. Treatment plans may have different meanings & needs from patient vs dr #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help,…
HealthSparq @HealthSparq
RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help,…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help,…
Whitney Petit @CfEpilepsy
True #patientchat https://t.co/bPYjLmAPyu
nonye aghanya @nonyet777
#patientchat Avoid the awkwardness.....Learn effective, strategic clinician-patient communication tools https://t.co/L0fzDQOwlH
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @GraceCordovano: @RieOfLetters Yes! Patient is the expert of living w/their diagnosis. Treatment plans may have different meanings &…
Patient Empowerment @power4patients
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help,…
Whitney Petit @CfEpilepsy
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Polly Marie Fielding @FieldingPolly
@patientchat Consult a different doctor about it perhaps #patientchat
Alan Brewington @abrewi3010
T4 Ask why? If you don't like the answer then fire them. #PatientChat
CP Nerve Center @Cpnervecenter
@power4patients And if you're too tired to research & ask questions, grab a friend, caregiver, helper etc to assist #patientchat
Melissa VanHouten @melissarvh
T4 Honestly, I'd likely look 4 new doc. I'm not 1 to be left out of convos about my own life & goals. Doc should b open 2 this. #patientchat
Kimberly Hartmann @fireflyrn84
T4: Actually had this happen. I found a med that could ? help symptoms. Neuro said it was a cancer med ... #patientchat
nonye aghanya @nonyet777
RT @fireflyrn84: @tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat
Nigel H @Crohnoid
T3 I keep the following in mind : I AM THE EXPERT IN MY HEALTH MY CONSULTANT IS THE EXPERT IN MY CONDITION #patientchat
Enlightening Results @GraceCordovano
T4: Speak to the nurse after the appt. See if they can address your questions w/dr. #patientchat
Bob Tufts @TuftsB
#patientchat - Leave. We need access to & choice in care. If your doctor is close mouthed & minded, you are missing treatment options @MLIWI
Polly Marie Fielding @FieldingPolly
@abrewi3010 I take it we are talking more about drs in USA tonight? #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat
Whitney Petit @CfEpilepsy
RT @melissarvh: T4 Honestly, I'd likely look 4 new doc. I'm not 1 to be left out of convos about my own life & goals. Doc should b open 2 t…
Kimberly Hartmann @fireflyrn84
T4...he said I didn't have cancer. I told him to use the "phone a friend" option and talk with oncology. Guess who won? Me! #patientchat
Tatiana Skomski @tatiskomski
T4: I would find a new dr. Your dr should be your advocate and discuss everything possible having to do with your disease #patientchat
Enlightening Results @GraceCordovano
T4: Recognize that not every doctor patient relationship works out. Sometimes you must get your medical records and move on. #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T4 #patientchat id ask to reconsider. If not request second opinion (which we can in UK with the #NHS)
Nigel H @Crohnoid
T4 Ask for second opinion or move your care elsewhere. Easy to say but not always as easy to do) #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
T4 Often trials fail due to low participation. If you see something; say something. Ask your Dr about clinical trials #patientchat
Kimberly Hartmann @fireflyrn84
@GraceCordovano Always ask the nurse ;) #patientchat
Melissa VanHouten @melissarvh
T4 Beyond finding a new doc, I might search 4 clinical trials (& make contact w/those leading them) & continue my own research. #patientchat
Polly Marie Fielding @FieldingPolly
@abrewi3010 Not as much choice in reality in NHS in UK #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @Crohnoid: T3 I keep the following in mind : I AM THE EXPERT IN MY HEALTH MY CONSULTANT IS THE EXPERT IN MY CONDITION #patientchat
Jim Katzaman @jkatzaman
T4 Ask why the doctor won't discuss new treatments. Trials might be closed. Insurance companies might prohibit discussions. #patientchat
Kimberly Hartmann @fireflyrn84
@FieldingPolly @abrewi3010 Amen! #patientchat
Rhinase @rhinase_
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Alan Brewington @abrewi3010
@FieldingPolly Yes but if possible fire any doc in any system if they don't listen. #Patientchat
Rhinase @rhinase_
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Rhinase @rhinase_
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Bob Tufts @TuftsB
#patientchat T4 - fortunate my doctor regularly works w/ industry, got me on clinical trial in March. His "conflict" is my benefit. @MLIWI
Rie Lopez, MPH @RieOfLetters
T4: It depends on why they don't want to discuss a particular treatment or trial. Ask why and go from there. #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @ShereesePubHlth: T4 Often trials fail due to low participation. If you see something; say something. Ask your Dr about clinical trials…
Rhinase @rhinase_
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
CP Nerve Center @Cpnervecenter
A4 Ask doctor why they won't discuss it. They'll answer, someway. Then decide what to do.Stay, leave, find new Doc. Report it! #patientchat
Nigel H @Crohnoid
@Cpnervecenter I'm starting to feel a bit like a cracked record. (That's damaged vinyl for you youngsters) Must find some new diagrams etc. #patientchat
Enlightening Results @GraceCordovano
T4: I contact clinical trial study coordinators. Have had great experiences. They spend the time & point you in right direction #patientchat
Kimberly Hartmann @fireflyrn84
Second opinions are always a good idea. Any dr that disagrees, probably shouldn't be on your careteam #patientchat
Patient Empowerment @power4patients
RT @fireflyrn84: Second opinions are always a good idea. Any dr that disagrees, probably shouldn't be on your careteam #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
If Dr. won't discuss w/ you, you can contact sponsoring org directly & work conversation backwards. Most have a outreach plan #patientchat
Enlightening Results @GraceCordovano
@ShereesePubHlth I like reaching out to trial study coordinators. Often eager to help. Spend time answering all questions. #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up… #patientchat
Patient Empowerment @power4patients
T4 If your Dr isn't open to talking with you, it's time to find a new Dr #patientchat
Polly Marie Fielding @FieldingPolly
@RieOfLetters That sounds reasonable to me #patientchat
CP Nerve Center @Cpnervecenter
@fireflyrn84 @GraceCordovano YES! I tell all my non nurse friends the same thing! Nurses know! #patientchat
Bob Tufts @TuftsB
#patientchat T4 - sites are popping up that help connect patients to trials, trying to make process easier. @MLIWI
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: @GraceCordovano Always ask the nurse ;) #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @power4patients: T2 Finding the right oncologist is difficult, We're here to help make this important decision easier https://t.co/9yq3x…
CP Nerve Center @Cpnervecenter
RT @GraceCordovano: @ShereesePubHlth I like reaching out to trial study coordinators. Often eager to help. Spend time answering all questio…
Kimberly Hartmann @fireflyrn84
@Cpnervecenter @GraceCordovano You gor that right! #patientchat
Your GPS Doc, LLC @yourgpsdoc
T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Patient Chat @patientchat
T5: Have you ever had to change doctors? If so, how do you do this? #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
@GraceCordovano Exactly. They are sometimes more informed & more willing to discuss than some Drs. #patientchat
Enlightening Results @GraceCordovano
@RieOfLetters Sometimes the patriarchial way of practicing medicine gets in the way of authentic patient care. No fix. Move on #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Kimberly Hartmann @fireflyrn84
@Clara_Health has great resources for clinical trials as well as #NIH too #patientchat
CP Nerve Center @Cpnervecenter
My office sends a review after almost every appt. If i have an issue with doc I relay it EVERY TIME #patientchat
Polly Marie Fielding @FieldingPolly
@patientchat In UK you turn up at a new surgery & they will transfer for you #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T4 #patientchat however with #raredisease like my own it's hard to get a good second opinion on #NHS. I've had to pay private numerous times
Enlightening Results @GraceCordovano
@fireflyrn84 Nurses are often the ones who truly "care" for the patient. #patientchat
nonye aghanya @nonyet777
#patientchat Clinicians... please DO NOT become defensive with PATIENTS encounter perceived as unpleasant attitude https://t.co/7Z4m4fqc4X
HealthSparq @HealthSparq
RT @patientchat: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat
HealthSparq @HealthSparq
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Liesbeth Moortgat @MoortgatL
@Crohnoid I really love this, but as #IBD nurse I mis some personal details from your personal life. Your life is more than only Crohn's #patientchat
burtrosen @burtrosen
T5: absolutely. when a dr tells you your condition doesn't exist it might be time to find someone new! #patientchat
Enlightening Results @GraceCordovano
RT @fireflyrn84: @Clara_Health has great resources for clinical trials as well as #NIH too #patientchat
Patient Empowerment @power4patients
RT @patientchat: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat
Kat Quinn, MBA HIT @DPCNavigator
If you can't find another doctor near you, try @SherpaaHealth. It's an online #primarycare platform that's relationship-based. #patientchat https://t.co/Vto4dJt0dh
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Kimberly Hartmann @fireflyrn84
That's why I became a nurse...because I cared #patientchat https://t.co/Ie30bBx3mN
Melissa VanHouten @melissarvh
T5 Yes. Left previous 1 unannounced. Asked 4 recommendations 4 new doc from friends & support groups. Searched online reviews. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @melissarvh: T5 Yes. Left previous 1 unannounced. Asked 4 recommendations 4 new doc from friends & support groups. Searched online revie…
Zarifa Roberson 🇧🇸 @itsanidealworld
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
Bob Tufts @TuftsB
#patientchat - T5 never changed but didn't want ASCT if possible. Doc helped arrange 2nd opinion, knowing I may leave as patient. @MLIWI
Alan Brewington @abrewi3010
T5 ask for another referral. #PatientChat
Your GPS Doc, LLC @yourgpsdoc
T5: I've changed doctors because of the doc and because of the staff. Review your insurance directory, get personal referrals. #patientchat
Jim Katzaman @jkatzaman
T5 I've changed docs within a network because first doc moved farther away (something I said?). Easy to reconnect locally. #patientchat
Enlightening Results @GraceCordovano
T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https://t.co/PudlzWy6eI
CP Nerve Center @Cpnervecenter
A5 Fired my husbands doc in hospital. I asked the nurse, she handled the rest. Wasn't difficult in Hosp setting #patientchat
PVI @patientvoices
RT @GraceCordovano: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential.…
ShereeseM, MS/MBA @ShereesePubHlth
RT @GraceCordovano: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https:/…
Rie Lopez, MPH @RieOfLetters
@GraceCordovano I absolutely agree, @GraceCordovano! That is one huge reason I am looking for a new rheumatologist. #patientchat
Nigel H @Crohnoid
T5 Consultant let me down. Was asked by surgeon if I wanted to switch care to tanother hospital. Said "Yes". It just happened #patientchat
Kat Quinn, MBA HIT @DPCNavigator
RT @GraceCordovano: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https:/…
Tatiana Skomski @tatiskomski
T5: Oh yeah! My entire childhood consisted of Drs telling me I was ok. Thank god for my mom who wouldn't take no for an answer #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
T5 #patientchat I've had HCP refuse 2 believe I'm ill. Refused vital care. Nearly died a few times from this. So changed & got care I needed https://t.co/MKyhierorP
Mary MACK @MaryOCMack
T5: Yes, a few times. I have to great doc's that helped facilitate. I quietly just don't return. #patientchat
Kimberly Hartmann @fireflyrn84
T5: I’ve changed doctors multiple times. Ultimately at the end of the day there is a detachment but it’s a business #PatientChat
Patient Chat @patientchat
Topic 6 (T6:) coming up… #patientchat
Enlightening Results @GraceCordovano
@tatiskomski Thank God for moms. They are often the secret weapon. #patientchat https://t.co/6rIFLUCAQf
Kimberly Hartmann @fireflyrn84
@yourgpsdoc @GraceCordovano My doctor cares a lot. I've worked with so any who also do. But there are ones that aren't there for the right reasons #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
T5 #patientchat I asked fellow pts who to see, got GP to refer me & rest is history. Have an amazing team now!
CP Nerve Center @Cpnervecenter
So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other choice #patientchat
Bob Tufts @TuftsB
#patientchat T5 - under new value rubrics doctors may pawn you off as difficult case: too costly or hurt their scoring. Be careful! @MLIWI
Patient Chat @patientchat
T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat
Melissa VanHouten @melissarvh
RT @GraceCordovano: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https:/…
Tatiana Skomski @tatiskomski
@GraceCordovano I don't know where I would be without her and her persistence #patientchat
Jim Katzaman @jkatzaman
T5 Had to change dentists three times in few years because they stopped accepting insurance. Had to go online to find next doc. #patientchat
nonye aghanya @nonyet777
RT @melissarvh: T2 Interview is also about how attentive doc is & how well he communicates & demonstrates concern/empathy. Just as signific…
Enlightening Results @GraceCordovano
@yourgpsdoc @fireflyrn84 💯 many wish for more time with their patients. But there is a different demeanor exhibited. #patientchat
Melissa VanHouten @melissarvh
T6 Online groups specific 2 illness have been best source of support & info; patient orgs & medical assocs relevant 2 disease. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@GraceCordovano @RieOfLetters So true!I was interviewing a new Endo Dr & he stated,”That’s how we did it in the Navy” If lab #s show fine then you are fine 😳 #patientchat
Enlightening Results @GraceCordovano
T6: incredible support groups on twitter. Like #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T2: When you are ‘interviewing’ a potential doctor, what questions should you ask them? #patientchat
Rie Lopez, MPH @RieOfLetters
@burtrosen This, along with my favorite: "are you feeling depressed?" If a provider uses that as a 'go to' instead of listening. Bye! #patientchat
Patient Empowerment @power4patients
T5 Many Drs are good but your health is MUCH TOO important to work w/ Dr whom isn't a good fit for you https://t.co/qlTwI4MS1e #patientchat
Patient Chat @patientchat
RT @GraceCordovano: T6: incredible support groups on twitter. Like #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @LucyAlexandria: @patientchat T2 #patientchat are you happy to work w/ me? Will you value my input & as the expert in myself? Do you…
Patient Empowerment @power4patients
RT @patientchat: T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat
Lisa Davis Budzinski @lisadbudzinski
@GraceCordovano I’ve done that. Time to part ways #patientchat
Tatiana Skomski @tatiskomski
T6: Fellow #IBD patients, friends, and family. Sometimes educating my friends and family is where I learn the most #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T5 #patientchat I have amazing Clinical Nurse Specialists I can email/call/see, a fantastic hospice nurse, home nurses & of fellow patients
Kat Quinn, MBA HIT @DPCNavigator
@lisadbudzinski @SherpaaHealth @SherpaaHealth is your personal healthcare advocate at your fingertips They have a network of specialists they can refer you to #patientchat
Kimberly Hartmann @fireflyrn84
T6: #patientadvocate, case managers, family, friends, support groups for similar conditions #patientchat
Nigel H @Crohnoid
T6 I find specialist forums (and sometimes Twitter) are great places to get real time answers from fellow patients #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other…
Jim Katzaman @jkatzaman
T6 Your friends and relatives aren't doctors, but they have experience to tap into. Make their questions your questions to ask. #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A2: I ask potential physicians if they are open to trying new treatment options & if they value my input when making decisions #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T6 #patientchat I have amazing Clinical Nurse Specialists I can email/call/see, a fantastic hospice nurse, home nurses & of fellow patients
Tatiana Skomski @tatiskomski
Also, nurses! #patientchat
Bob Tufts @TuftsB
#patientchat -T6 Too often we hide our illness. I reached out to my entire network. Didn't just get sympathy, also got great info! @MLIWI
Enlightening Results @GraceCordovano
@lisadbudzinski @RieOfLetters "That's the way we've always done it". *yawn* #patientchat
Kimberly Hartmann @fireflyrn84
@lisadbudzinski @GraceCordovano @RieOfLetters I actually got asked it I was a munchausen patient!!!! #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Crohnoid: T6 I find specialist forums (and sometimes Twitter) are great places to get real time answers from fellow patients #patientch
Enlightening Results @GraceCordovano
RT @TuftsB: #patientchat -T6 Too often we hide our illness. I reached out to my entire network. Didn't just get sympathy, also got great in…
Patient Empowerment @power4patients
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
CP Nerve Center @Cpnervecenter
A6 Clinic or hosp med director, nurse, #patientchat, online groups, friends, family. Most will help if u ask. #patientchat
Melissa VanHouten @melissarvh
RT @Crohnoid: T6 I find specialist forums (and sometimes Twitter) are great places to get real time answers from fellow patients #patientch
Liesbeth Moortgat @MoortgatL
@JotallyWalksome @Crohnoid I think it's important to find an equality in both. Very often there is a link between life events and disease events. #patientchat
Melissa VanHouten @melissarvh
RT @fireflyrn84: T6: #patientadvocate, case managers, family, friends, support groups for similar conditions #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A1: Make a list of questions for each physician before your visit. Always ask what you can do to help them in-between visits. #patientchat
Rie Lopez, MPH @RieOfLetters
@lisadbudzinski @GraceCordovano Yikes! I assume that was the last time you saw that endocrinologist, @lisadbudzinski! #patientchat
Lisa Davis Budzinski @lisadbudzinski
@fireflyrn84 @GraceCordovano @RieOfLetters Oh good gravy alive! #patientchat
Tinu @Tinu
RT @TiffanyAndLupus: A2: I ask potential physicians if they are open to trying new treatment options & if they value my input when making d…
Alan Brewington @abrewi3010
T6 if you have a tribe them. Science sucks, patient stories are much easier to understand and relate too #PatientChat
Enlightening Results @GraceCordovano
@TuftsB @MLIWI We must disrupt stigma of a diagnosis. We have to stop being so embarrassed, ashamed, afraid. Ask for help. People want to help #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.?…
Tinu @Tinu
RT @Cpnervecenter: So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other…
Kimberly Hartmann @fireflyrn84
@lisadbudzinski @GraceCordovano @RieOfLetters I asked if they were a munchausen is return 🙄 #patientchat
CP Nerve Center @Cpnervecenter
@fireflyrn84 @lisadbudzinski @GraceCordovano @RieOfLetters Ugh! Wow. Insulting! #patientchat
Liesbeth Moortgat @MoortgatL
RT @TuftsB: #patientchat -T6 Too often we hide our illness. I reached out to my entire network. Didn't just get sympathy, also got great in…
Your GPS Doc, LLC @yourgpsdoc
T6- Patient advocates, friends and family members, other patients. #patientchat
Richard Harris @doobarz
A1 in UK we have the right to choose, so take recommendations particularly if not happy with consultant. Ask 4 second opinion #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A3: May be taboo, but I google health concerns 1st & then discuss it w/ my patient community. Last step is asking Dr about it #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T5 Many Drs are good but your health is MUCH TOO important to work w/ Dr whom isn't a good fit for you https://t.co/qlT…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@patientchat T6 #patientchat also have my amazing mum. Not a healthcare prof but can be my sounding board, advisor, advocate, supporter. We're a gr8 team
Kenny @kenny_pal2
If you chat on the theme " #patientchat " Free chat channel https://t.co/sycoW9r9yn
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @doobarz: A1 in UK we have the right to choose, so take recommendations particularly if not happy with consultant. Ask 4 second opinion…
Richard Harris @doobarz
A1 or seek out a specialist centr efor your condition and ask for a referral #patientchat
nonye aghanya @nonyet777
#patientchat T1: We must overcome our fears and reservations about clinicians in order to improve trust/connect. https://t.co/3FPS3r9bFJ
Tiffany | #LupusChat @TiffanyAndLupus
A3: Our patient community always has vast knowledge on new symptoms I may be experiencing or treatments I am considering. #patientchat
Rie Lopez, MPH @RieOfLetters
@fireflyrn84 @lisadbudzinski @GraceCordovano What a thing to ask!! I can't even imagine.... That is horrid. #patientchat
Alan Brewington @abrewi3010
T6 #PatientChat, #hcsm, #wtfix are excellent hashtags to follow for help/advice/friendship
Kimberly Hartmann @fireflyrn84
#patientchat https://t.co/IuFgHArVvH
Liesbeth Moortgat @MoortgatL
@TuftsB @MLIWI I know it's not easy. But sometimes tell about your illness can resolve some wrong assumptions #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T4: Say you found out about a new treatment or trial and your doctor won’t discuss it with you. What should you do? #patie
Enlightening Results @GraceCordovano
@lisadbudzinski @RieOfLetters Sometimes it just doesn't work. There are plenty of drama who want to help and do care. Move on with pride. #patientchat
Katrina Davis @butterfleyez
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @fireflyrn84: #patientchat https://t.co/IuFgHArVvH
Enlightening Results @GraceCordovano
This 💪🏻 #patientchat https://t.co/08br0g2LRp
nonye aghanya @nonyet777
RT @patientchat: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A4: I have asked old Drs about new treatments when current one wasn't effective. If continuously resistant...time for a new Dr! #patientchat
Bob Tufts @TuftsB
#patientchat T6 - off the track, but do any of you use email, texts to communicate? I do on my clinical trial and it is helpful. @MLIWI
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
CP Nerve Center @Cpnervecenter
@TiffanyAndLupus I don't think that's taboo at all! Thats just Smart. Patients know specifics and they'll tell u honestly . #patientchat
Rie Lopez, MPH @RieOfLetters
RT @melissarvh: T6 Online groups specific 2 illness have been best source of support & info; patient orgs & medical assocs relevant 2 disea…
Liesbeth Moortgat @MoortgatL
@Crohnoid And some #IBD nurses and doctors 😜 #twitter #patientchat
Kimberly Hartmann @fireflyrn84
Same boat here! I did ask for one though and it helps...a little...I still do most of the work though he. #patientchat https://t.co/WBaYiXLmN2
Richard Harris @doobarz
@patientchat T5 I’ve had second opinions at consultants suggestion #patientchat
CP Nerve Center @Cpnervecenter
RT @abrewi3010: T6 #PatientChat, #hcsm, #wtfix are excellent hashtags to follow for help/advice/friendship
Tiffany | #LupusChat @TiffanyAndLupus
A4: My current doctor & I make compromises. When my levels are consistently stable for x time then we can try something new. #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
@TuftsB @MLIWI #patientchat I email my drs all the time. So lucky to be able to do that. Makes life so much easier, avoids unnecessary trips to hosp too.
Tiffany | #LupusChat @TiffanyAndLupus
RT @yourgpsdoc: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat
Dr Kate Allatt @kateallatt
RT @LucyAlexandria: @patientchat T6 #patientchat I have amazing Clinical Nurse Specialists I can email/call/see, a fantastic hospice nu…
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat
Nigel H @Crohnoid
@IBDAZDelta Yes. Still can't get #colorectalsurgery to engage with us mere patients though! Have a few questions I would like answers to #patientchat
CP Nerve Center @Cpnervecenter
RT @RieOfLetters: Yes! I want a health care partnership. My provider should be interested in my conditions and be open to learn wit…
Jim Katzaman @jkatzaman
CT When seeking a doctor who listens, try to find current patients to get their opinions. Mouth-to-mouth referrals are best. #patientchat
Kimberly Hartmann @fireflyrn84
CT: Use your gut instincts when choosing a dr. You know your body better than anyone else and don't let them tell it different #patientchat
Rie Lopez, MPH @RieOfLetters
T6: I have met so many wonderful people online, which is especially helpful with a #RareDisease! I lean on my husband, a lot. #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A5: If u need to change doctors make sure to request your entire medical record (including notes) from them. Illegal to say no! #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @patientchat: T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat
Dr Kate Allatt @kateallatt
RT @Crohnoid: T6 I find specialist forums (and sometimes Twitter) are great places to get real time answers from fellow patients #patientch
Lisa Davis Budzinski @lisadbudzinski
@LucyAlexandria @TuftsB @MLIWI OMGosh! That would be great✨ #patientchat
Patient Empowerment @power4patients
CT: It's all about shared decision making = patient is at the center of care, not on the periphery https://t.co/RfqpVcnK4k #patientchat
Kat Quinn, MBA HIT @DPCNavigator
If you want doctor that listens & advocate for your #wellbeing, #DirectPrimaryCare is way to go! i.e. https://t.co/RTCuOTJika #patientchat
Nigel H @Crohnoid
T5 Do you ever consider a doctor's reluctance to adopt new communications media - SoMe, Skype etc. as a reason for changing? #patientchat
Team Intake.Me @Intakeme
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Liesbeth Moortgat @MoortgatL
@Crohnoid Happy to listen and try to help #patientchat
CP Nerve Center @Cpnervecenter
@Crohnoid @IBDAZDelta Maybe That's why those docs chose colorectal. Not much front end face to face discussion Lol. #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A6: Find an online patient community that you can trust with your health concerns & questions. Many have been where we are b4 #patientchat
nonye aghanya @nonyet777
#patientchat T2: Focus more on the clinician's qualifications, mannerisms, empathy....Not on culture, nationality https://t.co/IawGw2TCrv
Enlightening Results @GraceCordovano
CT: Looking to for an amazing group of people that supports shared decision making, patient empowerment? Follow & join @S4PM #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @power4patients: CT: It's all about shared decision making = patient is at the center of care, not on the periphery https://t.co/RfqpVcn…
Team Intake.Me @Intakeme
RT @power4patients: CT: It's all about shared decision making = patient is at the center of care, not on the periphery https://t.co/RfqpVcn…
Alan Brewington @abrewi3010
CT Keep it Simple Stupid. Start with your QOL and go. Remember human causes errors/mistakes have human centered answers #PatientChat
AmericasLastChance @beholdamerica
RT @DPCNavigator: If you want doctor that listens & advocate for your #wellbeing, #DirectPrimaryCare is way to go! i.e. https://t.co/RTCuOT…
Liesbeth Moortgat @MoortgatL
@JotallyWalksome @Crohnoid Good remark. It was just why he bumped in. I take that with me #patientchat
Team Intake.Me @Intakeme
RT @fireflyrn84: CT: Use your gut instincts when choosing a dr. You know your body better than anyone else and don't let them tell it diffe…
Nigel H @Crohnoid
@Cpnervecenter @IBDAZDelta Maybe that's where the sun is shining from! #patientchat
CP Nerve Center @Cpnervecenter
@LucyAlexandria @TuftsB @MLIWI Yes! I love the email system. Usually it's faster than. Callback. #patientchat
CP Nerve Center @Cpnervecenter
RT @LucyAlexandria: @TuftsB @MLIWI #patientchat I email my drs all the time. So lucky to be able to do that. Makes life so much easier,…
Melissa VanHouten @melissarvh
CT Find doc who relates & consider switching to 1 who's better fit if you're not satisfied w/ your care & can't resolve issues. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Enlightening Results @GraceCordovano
Thanks for a terrific chat! Til next time #patientchat https://t.co/MynPZjJ3cq
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
CT: Be your own advocate. Always know&say your desired outcomes. Be part of your own medical team. Use all available resources. #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
A6: Patient/health communities I have found helpful: #rheumchat #lupuschat #bcsm #dsma #lcsm #btsm & #patientchat
Kimberly Hartmann @fireflyrn84
@Cpnervecenter @LucyAlexandria @TuftsB @MLIWI I use the portal all the time for messages. So much easier #patientchat
Patient Empowerment @power4patients
RT @LucyAlexandria: CT: Be your own advocate. Always know&say your desired outcomes. Be part of your own medical team. Use all available re…
Patient Empowerment @power4patients
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour #patientchat
burtrosen @burtrosen
CT: tons of ways to find help & support & to learn more about what you are going through. help teach the Drs too! #patientchat
Patient Empowerment @power4patients
RT @TiffanyAndLupus: A6: Patient/health communities I have found helpful: #rheumchat #lupuschat #bcsm #dsma #lcsm #btsm & #patientchat
Tatiana Skomski @tatiskomski
CT: Trust yourself and your body! Never feel bad for finding a new dr or speaking up during your appointment! #patientchat
Chris Easton @chris_easton1
RT @LucyAlexandria: CT: Be your own advocate. Always know&say your desired outcomes. Be part of your own medical team. Use all available re…
Patient Chat @patientchat
Join us for the next Empowered #patientchat on Fri October 20th at 1pm ET | 10am PT https://t.co/hM6TvegKBD
Your GPS Doc, LLC @yourgpsdoc
CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat
Kimberly Hartmann @fireflyrn84
#patientchat https://t.co/wfkQ1JnYII
teens get cancer too @trials4now
Ask -- How many children with this type of cancer have you treated AND What #ClinicalTrials do you have open #patientchat #childhoodcancer https://t.co/K3925qaRhi
Tiffany | #LupusChat @TiffanyAndLupus
CT: There is an online twitter community for almost every health condition, find yours! 💓 #patientchat
Tiffany | #LupusChat @TiffanyAndLupus
RT @Cpnervecenter: @TiffanyAndLupus I don't think that's taboo at all! Thats just Smart. Patients know specifics and they'll tell u honestl…
Capricorn - It's Me! @_capricorn_247
Capricorn Tshirt, I Love C... Buy now=> https://t.co/Q0Vx3I1Duu #capricornsweatshirt #capricorncup #capricornhoodie #patientchat https://t.co/x2kDZt36Lb
Patient Chat @patientchat
RT @TiffanyAndLupus: CT: There is an online twitter community for almost every health condition, find yours! 💓 #patientchat
burtrosen @burtrosen
this is always such a human, authentic and caring chat. I love when i can be a part of it! #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat
Nigel H @Crohnoid
CT For those of us who have #IBD there are some excellent #tweetchats in the UK. Just check out the #IBDHour hashtag #patientchat
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @yourgpsdoc: CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat
Liesbeth Moortgat @MoortgatL
@burtrosen And nurses also 😉#patientchat
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
CP Nerve Center @Cpnervecenter
CT Be honest & concise with Dr. Suggest what u need for good QOL & research all of your options from Doc to treatments to meds #patientchat
Nigel H @Crohnoid
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Bob Tufts @TuftsB
#patientchat - CT - you are a unique person, not a disease. Find people who will be positive and acknowledge your basic humsnity @MLIWI
Melissa VanHouten @melissarvh
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Alan Brewington @abrewi3010
RT @fireflyrn84: @abrewi3010 Knowing their hobbies helps to find a common ground and that's a perfect starting point for forming a relation…
CP Nerve Center @Cpnervecenter
@burtrosen Agreed! This chat is SPECIAL! #patientchat
CP Nerve Center @Cpnervecenter
RT @burtrosen: this is always such a human, authentic and caring chat. I love when i can be a part of it! #patientchat
Lisa Davis Budzinski @lisadbudzinski
@TiffanyAndLupus Definitely! Find your tribe 💞 #patientchat
CP Nerve Center @Cpnervecenter
RT @TiffanyAndLupus: CT: There is an online twitter community for almost every health condition, find yours! 💓 #patientchat
Lisa Davis Budzinski @lisadbudzinski
RT @yourgpsdoc: CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat
Kimberly Hartmann @fireflyrn84
I got asked to moderate a caregiver/family forum for rare diseases this week...shh it's a secret :) #patientchat
Rie Lopez, MPH @RieOfLetters
CT: Be your own best advocate and push for the best care possible. You deserve it! Remember to ask for help when you need it. #patientchat
Samantha Wayne @samanthamwayne
My YouTube subscribers. We all have overlapping experiences. https://t.co/Ywf8H6VGCI
Melissa VanHouten @melissarvh
RT @RieOfLetters: CT: Be your own best advocate and push for the best care possible. You deserve it! Remember to ask for help when you nee…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @Cpnervecenter: CT Be honest & concise with Dr. Suggest what u need for good QOL & research all of your options from Doc to treatments t…
Lucy Watts MBE MUniv FRSA @LucyAlexandria
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
#patientchat content from Twitter.