#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
– ().
See #patientchat Influencers/Analytics.
Profile | Tweet |
---|---|
![]() | Tambre Leighn, MA, CPC she/her @tambreleighn RT @patientchat: You can find the topics we’ll cover on today’s Empowered #patientchat here: https://t.co/nGw582jsrf |
![]() | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
![]() | Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww @patientchat Hi Julia from London (UK) lurking around #patientchat |
![]() | Patient Chat @patientchat I’m Nykema from @power4patients today and looking forward to chatting with you all! Happy Friday! #patientchat |
![]() | Brett Hansen @RadiologyAlly Hello! I'm Brett, I staff the American College of Radiology's Patient and Family Centered Care Commission. #patientchat @RadiologyACR |
![]() | Patient Chat @patientchat @bccww Hi Julia -- happy to have you join us today! #patientchat |
![]() | Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @RadiologyAlly: Hello! I'm Brett, I staff the American College of Radiology's Patient and Family Centered Care Commission. #patientchat… |
![]() | Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical need… |
![]() | Patient Chat @patientchat @aggievic14 @savvy_coop Happy Friday, Victoria! Thanks for tuning in! #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww If you want to join #PatientChat see here |
![]() | Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @patientchat: You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
![]() | Amanda Crowell Itliong @MIShouldTalk Hi! I’m Amanda, 13 years with ovarian cancer. Researcher, advocate and speaker. Always excited to learn from y’all! #patientchat |
![]() | Patient Chat @patientchat Today's #patientchat topic is Building Trust: Striving for Equitable Care https://t.co/nGw582jsrf |
![]() | Patient Chat @patientchat RT @bccww: If you want to join #PatientChat see here |
![]() | Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
@aggievic14 Any #hcldr friends participating today? #PatientChat | |
![]() | Brett Hansen @RadiologyAlly @MIShouldTalk Hi Amanda! |
![]() | Patient Chat @patientchat RT @aggievic14: Any #hcldr friends participating today? #PatientChat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @aggievic14: Any #hcldr friends participating today? #PatientChat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @patientchat: I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpf… |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @MIShouldTalk: Hi! I’m Amanda, 13 years with ovarian cancer. Researcher, advocate and speaker. Always excited to learn from y’all! #pati… |
![]() | Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
![]() | Patient Chat @patientchat T1: What fuels current medical mistrust? #patientchat https://t.co/rrlRHwuAsL |
![]() | Alan Brewington @abrewi3010 Alan here. I’m an #rheum #ChronicPain #mentalhealth #Caregiver advocate with a #photography addiction #patientchat https://t.co/ziweEz2fsc |
![]() | PatientOrator @PatientOrator @patientchat Hello! We’re a digital health platform helping people talk about their health concerns and gain access to social resources #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @abrewi3010: Alan here. I’m an #rheum #ChronicPain #mentalhealth #Caregiver advocate with a #photography addiction #patientchat https:/… |
![]() | Brett Hansen @RadiologyAlly T1: I think mistrust is similar to what we feel when we take our car to get serviced. I know nothing about cars. We as patients sometimes have to rely completely on the expertise of the docs, and because docs can be wrong sometimes. That's really scary. #patientchat |
![]() | Alan Brewington @abrewi3010 T1 part of it is to much emphasis is placed on technology. This makes people think everything is curable in a matter of a few minutes. This isn’t fair. #patientchat |
![]() | Patient Chat @patientchat @MIShouldTalk Great you can join us, Amanda! #patientchat |
![]() | Patient Chat @patientchat @RadiologyAlly @RadiologyACR Hi Brett, welcome to #patientchat!! |
![]() | Brett Hansen @RadiologyAlly T1: Also, the way doc visits are billed to insurance (and to us as patients) is so convoluted, it adds to the noise. #patientchat |
![]() | Patient Chat @patientchat Topic 2 (T2:) coming up..... #patientchat |
![]() | Patient Chat @patientchat T2: How can medical mistrust harm one's health? #patientchat https://t.co/t6xUdqzGJL |
![]() | Alan Brewington @abrewi3010 T1 quality of life is considered almost spiritual or pure. Business is associated with greed & consumption. The business of #healthcare creates dirt where I just don’t want to hurt anymore #patientchat |
![]() | Patient Chat @patientchat @aggievic14 Huge yikes!! #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww @patientchat Sorry #patientchat argh. |
![]() | Alan Brewington @abrewi3010 T2 mistrust makes us reevaluate our ideal risk levels. We make decisions based on mistrust, not what is best for our quality of life. #patientchat |
![]() | PatientOrator @PatientOrator @patientchat T1: Medical mistrust is fueled by past experiences (with medical misconduct) in historical context on an individual or group basis #patientchat #healthdisparities |
![]() | Patient Chat @patientchat #patientchat |
![]() | Patient Chat @patientchat Topic 3 (T3:) coming up..... #patientchat |
![]() | Alan Brewington @abrewi3010 T2 living in pain is physically & mentally exhausting. Mistrust is also exhausting. Decisions made in this space usually will need a factor of luck so it won’t hurt us #patientchat |
![]() | Patient Chat @patientchat T3: Whose responsibility is it to dismantle medical mistrust? Does it fall on just one person/group? #patientchat https://t.co/0XIF66fWbI |
@aggievic14 @abrewi3010 Great point! I know some people more concerned about the small risks associated with the vaccine vs their chance of getting covid #PatientChat | |
![]() | Patient Chat @patientchat RT @abrewi3010: T2 mistrust makes us reevaluate our ideal risk levels. We make decisions based on mistrust, not what is best for our qualit… |
![]() | Brett Hansen @RadiologyAlly T2: Not trusting the doctor for whatever reason (misinformation, fear of leaving your house, fear of not being able to pay) is harmful to one's health. How many folks with cancer have a worse case because they haven't been screened since before COVID. #patientchat |
![]() | Alan Brewington @abrewi3010 @aggievic14 I agree completely. Especially true with #covid since the epidemic is now a political issue. Risk always increases when bad politics are in play. #patientchat |
![]() | Patient Chat @patientchat @aggievic14 10000% agree #patientchat |
![]() | Brett Hansen @RadiologyAlly @abrewi3010 Is it luck or is it educating, and empowering, patients to make concerted decisions with their doctor and receiving the respect they deserve? #patientchat |
![]() | Patient Chat @patientchat [REDACTED USER] Better late than never! Thanks for joining Nigel. #patientchat |
![]() | Alan Brewington @abrewi3010 T3 at this point it’s up to all of us to help increase trust in medicine. This includes everything from active listening at an appointment to conferences becoming patient centered to better education opportunities for all. #patientchat |
![]() | Brett Hansen @RadiologyAlly [REDACTED USER] I agree that docs are responsible for cultivating trust/distrust. However, I believe patients can be empowered as partners with the doctors. Gone are the days when we can stick our heads in the sand and rely on the doc for an immediate diagnosis and automatic cure. #patientchat |
![]() | Patient Chat @patientchat Topic 4 (T4:) coming up..... #patientchat |
![]() | Patient Chat @patientchat T4: What is the difference between equity and equality in healthcare? #patientchat https://t.co/VVsQzzYoLV |
![]() | PatientOrator @PatientOrator @patientchat T2: in the context of #healthequity medical mistrust leads to disparities that disproportionately impact marginalized communities and underserved groups, leading to poorer health outcomes for these individuals #patientchat |
![]() | Patient Chat @patientchat [REDACTED USER] So true, but so sad at the same time. #patientchat |
![]() | Alan Brewington @abrewi3010 @RadiologyAlly Luck is needed when exhaustion is high. Under normal circumstances better education and empowerment (on all sides of the healthcare table) is the ideal. #patientchat |
![]() | Patient Chat @patientchat RT @PatientOrator: @patientchat T2: in the context of #healthequity medical mistrust leads to disparities that disproportionately impact ma… |
![]() | Alan Brewington @abrewi3010 T4 I know this is old but it works perfectly for this question #patientchat https://t.co/OH4X6qRsMl |
![]() | Brett Hansen @RadiologyAlly T3: Everyone has probably seen this, but I think it's still a good example of the difference between equality and equity. Source: Interaction Institute for Social Change | Artist: Angus Maguire. #patientchat https://t.co/cGKRltvALP |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @RadiologyAlly: T3: Everyone has probably seen this, but I think it's still a good example of the difference between equality and equity… |
![]() | Patient Chat @patientchat Topic 5 (T5:) coming up..... #patientchat |
![]() | Alan Brewington @abrewi3010 T4 the hard part is identifying if there is a equity or equality issue then creating policies that help. #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @patientchat: T4: What is the difference between equity and equality in healthcare? #patientchat https://t.co/VVsQzzYoLV |
![]() | Patient Chat @patientchat [REDACTED USER] Thank you for sharing this! #PatientChat |
![]() | Patient Chat @patientchat T5: What actions can be taken at this time towards mending trust in various communities? #patientchat https://t.co/LX7YIwKCiz |
![]() | Brett Hansen @RadiologyAlly T4: In radiology, a fairly recent coalition of different societies and orgs has been put together to address health disparities and improve health equity. Feel free to see what it's all about: https://t.co/uROIOZWARL #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww @patientchat T4 one aspect is ensuring access to health care in the first place not only financially but within communities where it’s needed. #PatientChat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @abrewi3010: T3 at this point it’s up to all of us to help increase trust in medicine. This includes everything from active listening at… |
![]() | PatientOrator @PatientOrator @patientchat T3: Perhaps the question should be how can be collaborate to dismantle medical mistrust? In which case, individuals, caregivers, providers, health systems and regulatory agencies would work towards effective communication, transparency, education and bias training…#patientchat |
![]() | Alan Brewington @abrewi3010 T5 there is a big difference between medical failures & actions that cause mistrust. We need to celebrate medical failures, these create opportunities to learn and better ourselves. Trust can be built through respectful communication & active listening #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @abrewi3010: T4 the hard part is identifying if there is a equity or equality issue then creating policies that help. #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @patientchat: T5: What actions can be taken at this time towards mending trust in various communities? #patientchat https://t.co/LX7YIwK… |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @RadiologyAlly: T4: In radiology, a fairly recent coalition of different societies and orgs has been put together to address health disp… |
![]() | Patient Chat @patientchat RT @PatientOrator: @patientchat T3: Perhaps the question should be how can be collaborate to dismantle medical mistrust? In which case, ind… |
![]() | Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
![]() | Alan Brewington @abrewi3010 T5 our country has a systematic racist & sexist problem. Although better, even compared to 5 years ago, we still have work to do. We need to admit/accept this so we can start designing human centered solutions #patientchat |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @PatientOrator: @patientchat T3: Perhaps the question should be how can be collaborate to dismantle medical mistrust? In which case, ind… |
![]() | BreastCancer Chat WW #BCCWW @bccww RT @abrewi3010: T5 our country has a systematic racist & sexist problem. Although better, even compared to 5 years ago, we still have work… |
![]() | Patient Chat @patientchat RT @abrewi3010: T5 our country has a systematic racist & sexist problem. Although better, even compared to 5 years ago, we still have work… |
![]() | Alan Brewington @abrewi3010 CT the basis of design thinking is developing a better understanding of the problem/issue. The more we understand, the more opportunity there is for human centered solution. #patientchat |
![]() | Brett Hansen @RadiologyAlly T5: Has to be grassroots IMO. Ex: neighbor can't hold a job, has health issues, but doesn't have money/ins.. Her goto is ER when things get really bad. We've lead her to programs that can help, but they point her to fill out an online form. She has no computer. #patientchat |
![]() | Patient Chat @patientchat RT @RadiologyAlly: T5: Has to be grassroots IMO. Ex: neighbor can't hold a job, has health issues, but doesn't have money/ins.. Her goto is… |
![]() | Alan Brewington @abrewi3010 We need to share the positive along with the negative of our healthcare story. Patients are so much more than our symptoms. #patientchat |
![]() | PatientOrator @PatientOrator @patientchat T4: They say “a picture is worth a thousand words”. The image by the Interaction Institute for Social Change @IISCBlog by artist Angus Maguire depicts the difference between equality and equity. #patientchat #sdoh #healthequity https://t.co/rAYqZH4Ypa |
![]() | Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime! |
![]() | Patient Chat @patientchat There will be no empowered #PatientChat on Friday, 11/26. Enjoy your thanksgiving holiday everyone! Join us on Friday, 12/10 for our "Looking back on 2021, Looking Ahead to 2022" Empowered #PatientChat https://t.co/XiycMrAYf1 |
![]() | Brett Hansen @RadiologyAlly CT: We on this chat understand the reforms that need to happen. There are many who lack the capacity (due to socioeconomics, background, cognitive ability, and yes exhaustion). My role is to help reform the system and help those who may not have voices themselves. #patientchat |
![]() | Patient Chat @patientchat Keep the conversation going between chats with hashtag #PatientChat |
![]() | PatientOrator @PatientOrator @patientchat T5: Policy changes, education, patient empowerment could be helpful in mending mistrust in healthcare #patientchat |
