#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
 | Simply Kristy @SimplyKristyD @patientchat Looking forward to it! #patientchat |
 | PatientOrator @PatientOrator RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat with @DHealthhub and @PatientOrator here: You can find the topics we'll cover on today’s Empowered #patientchat with @DHealthhub and @PatientOrator here: https://t.co/my5iTY3uJw |
| Patient Chat @patientchat Hi #patientchat! I’m Kara from @power4patients and I'm looking forward to today's chat |
| Patient Chat @patientchat Excited to have Diverse Health Hub @DHealthhub and Patient Orator @PatientOrator here as today’s #patientchat guests |
| Simply Kristy @SimplyKristyD Hi Everyone, I'm Kristy! I'm a mom to 3 kids, wife to a first responder, founder of @cshealthapp and a rare disease patient #patientchat |
| Patient Chat @patientchat @DHealthhub is a team of health equity advocates developing resources for patients, communities and providers. Learn more: https://t.co/KXNJnBow3M #patientchat |
 | Patient Empowerment Network @power4patients RT @patientchat: Excited to have Diverse Health Hub @DHealthhub and Patient Orator @PatientOrator here as today’s #patientchat guests |
 | Carly Flumer (she/her) @carlyflumer Hey, I’m Carly! An #AYA #thyca patient who’s just tired. Lol #patientchat |
 | Alexa Jett 🦋 @ohhiialexa Alexa checking in for #patientchat. I don’t know how useful I’ll be since I’m still recovering from pneumonia, but happy (as always) to be here! |
| Patient Chat @patientchat @PatientOrator, a digital health platform empowering underserved and chronically ill patients with communicating changes in their health and connecting to health resources. Learn more: https://t.co/rlVMNSS4mY #patientchat |
 | Adam Johnson - DadVocate @RareDiseaseDad @patientchat Hi everyone. Adam joining in from Idaho. I'm a dad who is also #raredisease patient & advocate...a Rare Disease DadVocate. #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Vera Rulon FAHIMA @vrulon Hello All! Vera here. From NY. Big believer in health equity. Artist and healthcare consultant. #patientchat |
 | Diverse Health Hub @DHealthhub Hello everyone! I’m Tamara, Founder of @Dhealthub. Excited to be here! #patientchat |
| Simply Kristy @SimplyKristyD @ohhiialexa Oh no! Sorry to hear that, Alexa. I hope you feel better soon. 🤗 #patientchat |
| PatientOrator @PatientOrator We are #PatientOrator a digital health platform committed to empowering the voices of underserved and chronically ill patients by helping them record changes in their health and connect to health resources through our mobile health app (coming soon). #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/5D9FyEMfSH |
| Patient Empowerment Network @power4patients @ohhiialexa Oh no! We're so sorry to hear that you've been ill. Sending you positive thoughts for a speedy recovery 💛 #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @SimplyKristyD @cshealthapp Hi Kristy! Good to see you here on the chat today. Hope you're doing well! #patientchat |
| Vera Rulon FAHIMA @vrulon @ohhiialexa Oh my! Please feel better. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @SimplyKristyD Thank you, Kristy!! I thankfully do not feel as bad as I did!! LOL #patientchat |
| Patient Chat @patientchat @ROHHAD_warrior Hi Sarah! Don't forget to include #patientchat in all your tweets so everyone can see :) |
| Patient Chat @patientchat Today's #patientchat topic is “Using Your Voice: Speaking Against Inequities” with special guests @DHealthhub and @PatientOrator https://t.co/bJnYFEXbjQ |
| Simply Kristy @SimplyKristyD @vrulon Hi Vera 👋wNice to meet you #patientchat |
 | Ma vie de zèbre • A-Danielle G. @ADanGrenier Hello! I’m Dan, behind Ma vie de zèbre (Life as a zebra), francophone voice in North America for rare diseases 🙂 #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is “Using Your Voice: Today's #patientchat topic is “Using Your Voice: Speaking Against Inequities” with special guests @DHealthhub and @PatientOrator https://t.co/bJnYFEXbjQ |
| Alexa Jett 🦋 @ohhiialexa @power4patients Thank you so much, I appreciate it! 😊❤️ #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Simply Kristy @SimplyKristyD @RareDiseaseDad @cshealthapp Hi Adam! 👋 I'm doing well, adjusting to the drop in temperature outside. How are you doing? #patientchat |
 | Kistein Monkhouse, MPA @KisteinM @patientchat Hi everyone, great to join you all today. I am Kistein founder of @PatientOrator - I’m a storyteller, innovator and advocate for equitable health and quality care for all. #patientchat |
| PatientOrator @PatientOrator RT @patientchat: Today's #patientchat topic is “Using Your Voice: Today's #patientchat topic is “Using Your Voice: Speaking Against Inequities” with special guests @DHealthhub and @PatientOrator https://t.co/bJnYFEXbjQ |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
 | ROHHADwarrior @ROHHAD_warrior @patientchat Sorry. Multitasking. I’m Sarah. #patientchat |
| Patient Chat @patientchat T1: Why does health equity matter to you? #patientchat https://t.co/6V4zoETSfr |
| Vera Rulon FAHIMA @vrulon @KisteinM @patientchat @PatientOrator Hello Kistein! Wonderful to "see" you here!! #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: Why does health equity matter to you? #patientchat https://t.co/6V4zoETSfr |
 | Regence Health Policy Center @RegenceHPC RT @patientchat: Today's #patientchat topic is “Using Your Voice: Today's #patientchat topic is “Using Your Voice: Speaking Against Inequities” with special guests @DHealthhub and @PatientOrator https://t.co/bJnYFEXbjQ |
 | Inspire @InspireIsHealth RT @patientchat: T1: T1: Why does health equity matter to you? #patientchat https://t.co/6V4zoETSfr |
| Patient Chat @patientchat @StrongerThanT1D Welcome back Cayla! #patientchat |
| Patient Empowerment Network @power4patients @StrongerThanT1D Hi Cayla, welcome back to #patientchat |
| Diverse Health Hub @DHealthhub T1: @DHealthhub we believe race, age, zip code, gender and sexual orientation shouldn’t determine treatment access #patientchat |
| Kistein Monkhouse, MPA @KisteinM @vrulon @patientchat @PatientOrator Hi Vera! Great to see you as well😄 #patientchat |
| Vera Rulon FAHIMA @vrulon T1: #patientchat #healthequity is paramount for a thriving society. If some get less or worse care than others then we haven't achieved what we all want: health & happiness. |
| Simply Kristy @SimplyKristyD @StrongerThanT1D Nice to meet you Cayla 👋 #patientchat |
 | Leslie Krongold, EdD @Leslie_GHF I'll be at the Empowered #patientchat on Fri 11/13 1pm ET. Join me! https://t.co/hFupR8Hdgr via @power4patients |
| Carly Flumer (she/her) @carlyflumer T1: #Healthequity matters because everyone deserves healthcare. Period. #patientchat |
| Patient Chat @patientchat #patientchat |
| Simply Kristy @SimplyKristyD T1: Health equity to me means equal access to equal care regardless of gender, race, financial ability or geographic location. #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @KisteinM: @patientchat Hi everyone, great to join you all today. I am Kistein founder of @PatientOrator - I’m a storyteller, innovator and advocate for equitable health and quality care for all. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A1: On a selfish level, it matters to me because I suffered from INequity! Lack of info in French, discrimination because I was female & overweight, w/invisible diseases, young, because of rare diseases being thought of as impossible instead of rare, too. #patientchat |
| Diverse Health Hub @DHealthhub RT @SimplyKristyD: T1: T1: Health equity to me means equal access to equal care regardless of gender, race, financial ability or geographic location. #patientchat |
| PatientOrator @PatientOrator T1: HealthEquity matters because every patient deserves the right to quality care and fair access to healthcare care. #patientchat |
| Diverse Health Hub @DHealthhub Well said Carly #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @KisteinM @patientchat @PatientOrator Just got here, SO glad to see your avatar! I'm gonna mostly listen. I got stuff to learn =) #patientchat |
 | Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A1: Our zip codes should not determine whether we live or die. -Bono #patientchat |
 | DenetraHampton @ProducerNurse A1: Health equity is just as vital as the democracy scandal of our time. The people of our country all deserve access and effective care.. @patientchat #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T1: Health equity matters to me because it matters to so many others. Equity is the quality of being fair and impartial, & many things in health/health care aren’t fair or impartial. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @PatientOrator: T1: T1: HealthEquity matters because every patient deserves the right to quality care and fair access to healthcare care. #patientchat |
| Diverse Health Hub @DHealthhub RT @PatientOrator: T1: T1: HealthEquity matters because every patient deserves the right to quality care and fair access to healthcare care. #patientchat |
| Patient Empowerment Network @power4patients @patientchat Health equity should matter to everyone. From our perspective, we can't aspire to empower #cancer patients and care partners (that's our mission!) without health equity #patientchat |
| Patient Empowerment Network @power4patients RT @christie_health: @patientchat A1: @patientchat A1: Our zip codes should not determine whether we live or die. -Bono #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T1: Better care for all populations, lower costs, better care for individuals, better health care overall. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A1b: but it also matters to me because it’s something important to me in general. Injustice makes me furious & I believe everyone benefits from everyone being healthier. #patientchat |
| Diverse Health Hub @DHealthhub RT @power4patients: @patientchat Health equity should matter to everyone. From our perspective, we can't aspire to empower #cancer patients and care partners (that's our mission!) without health equity #patientchat |
| Patient Empowerment Network @power4patients @christie_health @patientchat Well said! #patientchat |
| Alexa Jett 🦋 @ohhiialexa T1: It’s a simple concept. Nobody does well until we all do well. I care about my neighbors health and well-being, and that means I need to help remove the barriers to getting them there. #patientchat |
| Vera Rulon FAHIMA @vrulon @ADanGrenier @patientchat That is unacceptable. I am very sorry you went through that. #patientchat |
| Simply Kristy @SimplyKristyD RT @ohhiialexa: T1: T1: It’s a simple concept. Nobody does well until we all do well. I care about my neighbors health and well-being, and that means I need to help remove the barriers to getting them there. #patientchat |
| Patient Chat @patientchat RT @ohhiialexa: T1: T1: It’s a simple concept. Nobody does well until we all do well. I care about my neighbors health and well-being, and that means I need to help remove the barriers to getting them there. #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: T1: T1: #Healthequity matters because everyone deserves healthcare. Period. #patientchat |
| Diverse Health Hub @DHealthhub RT @ohhiialexa: T1: T1: It’s a simple concept. Nobody does well until we all do well. I care about my neighbors health and well-being, and that means I need to help remove the barriers to getting them there. #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up… #patientchat |
| Kistein Monkhouse, MPA @KisteinM @MightyCasey @patientchat @PatientOrator It is always good to see you here Casey #patientchat |
| Alexa Jett 🦋 @ohhiialexa @RareDiseaseDad Believe me Adam, the prince of darkness WILL rise again!!! 😂 And thank you! #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph I'm Christie, a #publichealth consultant and founder of https://t.co/tq9DVPM9EN. I do a lot of work to address health equity. I am very excited about the topic today. #patientchat |
| Diverse Health Hub @DHealthhub T1: Equitable access to care benefits all of us #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat More personally, my health struggles have been challenging, as it is for others. I’ve had tests ordered, but a 3rd party insurance intermediary who hasn’t evaluated me ultimately decides. I know how privileged I am to have had quality coverage. What about others? Ugh.#patientchat |
| PatientOrator @PatientOrator RT @ohhiialexa: T1: T1: It’s a simple concept. Nobody does well until we all do well. I care about my neighbors health and well-being, and that means I need to help remove the barriers to getting them there. #patientchat |
| Patient Chat @patientchat T2: How do you suggest patients use their voices to speak up against unequal access to care due to social or economic challenges? #patientchat https://t.co/EGFpibihXY |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: IMO health equity and human/civil rights are the same thing. Can't have one w/out the other. On that topic, this rocked my emotional world this morning. Essential read from @DrKMSimon https://t.co/Bdo11M9Px4 #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How do you suggest patients use their voices to speak up against unequal access to care due to social or economic challenges? #patientchat https://t.co/EGFpibihXY |
| Vera Rulon FAHIMA @vrulon T2: #patientchat Support someone who is experiencing social or economic challenges. Help them find their voice. Go to a medical appointment with them. |
| Diverse Health Hub @DHealthhub T2: Speak up at the outset. Be sure to fill out visit questionnaires and truly share how you feel about your care #patientchat |
| Carly Flumer (she/her) @carlyflumer T2: Patients can write or call their legislators. For example, @CancerAdvocacy helps #cancer patients do just that! #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A2: There are many ways! 1st I think is not being afraid to speak up & give feedback (the right way). Writing or calling the hospital ombudsman to make a complaint, for example. Contact your local politicians if it’s something they can help with. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: I've made an in-public (check my Twitter feed + my weekly newsletter + my podcast) commitment to center, and give up space to, Black women in the work of #patientsincluded that I'm involved in. Start where you are Use what you have Do what you can ~ Arthur Ashe #patientchat |
| Carly Flumer (she/her) @carlyflumer @vrulon Yes! It’s #NationalFamilyCaregiversMonth, and caregivers are sooo important. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @StrongerThanT1D Yes! Well said. #patientchat |
| Simply Kristy @SimplyKristyD T2) I wish the onus was not on patients to have to speak up against unequal access to care. Patients have enough on their plate without having to fight for care based on their social status or economic situation. #patientchat |
| DenetraHampton @ProducerNurse A2: The voice of inequity must first be heard. Awareness is overrated, it's time to make the necessary change. One person at a time. @patientchat #patientchat |
| Kistein Monkhouse, MPA @KisteinM @patientchat T1: #HealthEquity matters to me because I am a woman, I am Black and I live with chronic pain. Most importantly, my community, friends, family and myself are all on the receiving end of healthinquities because of socioeconomic status or demographics. #patientchat |
| Simply Kristy @SimplyKristyD T2 cont'd: That said, patients can & do use their voices to advocate for themselves and to push their care forward which, I guess, is a means of speaking up for equal access to care? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey That said, all BIPOC humans get the same POV from me. Nothing about us without us. ALL of us. ALL the time. #patientsincluded #patientchat |
| Diverse Health Hub @DHealthhub RT @carlyflumer: T1: T1: #Healthequity matters because everyone deserves healthcare. Period. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T2: I am a big believer of change happening at the academic and political levels. And unfortunately, these doors have big barriers too. @renalmedullary is working on teaching the RMC community about political advocacy, which is a great step! #patientchat |
| Vera Rulon FAHIMA @vrulon @carlyflumer Go family #caregivers! Caregivers need to be heard as well. #patientchat |
| Diverse Health Hub @DHealthhub RT @KisteinM: @patientchat T1: @patientchat T1: #HealthEquity matters to me because I am a woman, I am Black and I live with chronic pain. Most importantly, my community, friends, family and myself are all on the receiving end of healthinquities because of socioeconomic status or demographics. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T2: I think chats & discussions like these are a good place to start. Coming together, discussing current needs/challenges, & learning from experiences of others helps us become more knowledgeable. We are #strongertogether. Using our voices collaboratively is a must. #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up… #patientchat |
| Diverse Health Hub @DHealthhub T2: Author @GrigsbyUmi sheds light on story after story: https://t.co/IGUuu2Ex5O. Patients can also share their stories with our Health Equity Emissary Team to report healthcare discrimination and to seek guidance on actionable resources: https://t.co/2QJGqhggGg #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: On the ground, anyone in any community can look around the room(s) [virtual or IRL] where they are, see if their whole community is represented. "I see white people" is a warning flag in any US community conversation. #patientchat |
| Patient Chat @patientchat T3: How do you see providers or payers helping patients use their voices to address health inequities? #patientchat https://t.co/6LrirJYBQg |
| Diverse Health Hub @DHealthhub RT @patientchat: @PatientOrator, a digital health platform empowering underserved and chronically ill patients with communicating changes in their health and connecting to health resources. Learn more: https://t.co/rlVMNSS4mY #patientchat |
| Simply Kristy @SimplyKristyD RT @RareDiseaseDad: @patientchat T2: @patientchat T2: I think chats & discussions like these are a good place to start. Coming together, discussing current needs/challenges, & learning from experiences of others helps us become more knowledgeable. We are #strongertogether. Using our voices collaboratively is a must. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @MightyCasey @DrKMSimon I agree. And thanks for sharing the link. I'm adding it to my list! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @KisteinM: @patientchat T1: @patientchat T1: #HealthEquity matters to me because I am a woman, I am Black and I live with chronic pain. Most importantly, my community, friends, family and myself are all on the receiving end of healthinquities because of socioeconomic status or demographics. #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @vrulon Yes! It’s #NationalFamilyCaregiversMonth, and caregivers are sooo important. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: How do you see providers or payers helping patients use their voices to address health inequities? #patientchat https://t.co/6LrirJYBQg |
| Patient Chat @patientchat RT @RareDiseaseDad: @patientchat T2: @patientchat T2: I think chats & discussions like these are a good place to start. Coming together, discussing current needs/challenges, & learning from experiences of others helps us become more knowledgeable. We are #strongertogether. Using our voices collaboratively is a must. #patientchat |
| Vera Rulon FAHIMA @vrulon T3: #patientchat Providers: LISTEN – don’t discount, build trust. Payers: get out of the way, let patients work with their providers to find the best treatments for them |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A2: This is a challenging for the most marginalized, who often don't feel heard and experience discrimination from our medical system. Folks need to believe that their voice matters, and professionals must be a part of the solution. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @RareDiseaseDad @DrKMSimon It'll hit you in every one of your feels. #patientchat |
| PatientOrator @PatientOrator T2: Patients can use their voices to speak up against unequal access to care ➡️Record instances where ur voices are ignored. Track ur illnesses. Request additional resources, info and second opinions in instances where the care/or services are limited. #patientchat #healthequity |
| PatientOrator @PatientOrator RT @DHealthhub: T2: Author @GrigsbyUmi sheds light on story after story: T2: Author @GrigsbyUmi sheds light on story after story: https://t.co/IGUuu2Ex5O. Patients can also share their stories with our Health Equity Emissary Team to report healthcare discrimination and to seek guidance on actionable resources: https://t.co/2QJGqhggGg #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T3: I hope it's just me, but from the payer side, I haven’t seen help in terms of assisting patients to use their voices to address health inequities. From that side, my voice seems non-existent. Even the “appeals” aren’t helpful. #patientchat 1/2 |
| ROHHADwarrior @ROHHAD_warrior @patientchat T3: One current way is that some providers have #case managers that help patients with appointments and supplies. #patientchat |
| Diverse Health Hub @DHealthhub T3: @PavlosMsaouel @DrewCampbell @IfyOsunkwo @NRochesterMD, @sicklecelldoc, @mclemoremr, @HealthEquityDoc, @drlenawine, @drzsicklecell, @stewartwjames, @AlexanderGlaros, @DrPowerHays, @DrKMSimon are consistently using their voices. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Simple - recognize your power/privilege, use to to HELP people/communities achieve #healthjustice Anything less is complicity. The status quo needs to be defenestrated. #healthpolicy #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T3: On the flip side, a few of my providers have really stepped up & tried to be the intermediary between me/the payer. It’s almost like they’re my voice sometimes, but I also know that’s not best, or sustainable, or true for every provider/patient relationship. #patientchat 2/2 |
| Carly Flumer (she/her) @carlyflumer T3: I remember while working in the hospital the number of peer-to-peer reviews doctors had to do to meds approved. Sometimes it takes a lot of time & effort, but I was happy to see the docs fighting for their patients! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @DHealthhub: T3: T3: @PavlosMsaouel @DrewCampbell @IfyOsunkwo @NRochesterMD, @sicklecelldoc, @mclemoremr, @HealthEquityDoc, @drlenawine, @drzsicklecell, @stewartwjames, @AlexanderGlaros, @DrPowerHays, @DrKMSimon are consistently using their voices. #patientchat |
| Simply Kristy @SimplyKristyD T3: I am seeing more providers open and accepting in treating patients as a respected member of their care team. Active listening, taking time to explain treatment options and being considerate of the patient or caregivers role in their care plan. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @DHealthhub @PavlosMsaouel @drewcampbell @ifyosunkwo @NRochesterMD @sicklecelldoc @mclemoremr @HealthEquityDoc @drlenawine @drzsicklecell @stewartwjames @AlexanderGlaros @DrPowerHays @DrKMSimon All I see is a list of superheroes ❤️ #patientchat |
| Patient Empowerment Network @power4patients RT @DHealthhub: T3: T3: @PavlosMsaouel @DrewCampbell @IfyOsunkwo @NRochesterMD, @sicklecelldoc, @mclemoremr, @HealthEquityDoc, @drlenawine, @drzsicklecell, @stewartwjames, @AlexanderGlaros, @DrPowerHays, @DrKMSimon are consistently using their voices. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @PatientOrator: T2: T2: Patients can use their voices to speak up against unequal access to care ➡️Record instances where ur voices are ignored. Track ur illnesses. Request additional resources, info and second opinions in instances where the care/or services are limited. #patientchat #healthequity |
| Kistein Monkhouse, MPA @KisteinM @patientchat T2: It is always important to ask for more information, ask to speak with someone else if you feel that the provider is not hearing your voice and/or ask for second opinion when needed #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up… #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @KisteinM: @patientchat T2: @patientchat T2: It is always important to ask for more information, ask to speak with someone else if you feel that the provider is not hearing your voice and/or ask for second opinion when needed #patientchat |
| Diverse Health Hub @DHealthhub T3: @PavlosMsaouel @DrewCampbell @IfyOsunkwo @ @NRochesterMD, @sicklecelldoc, @mclemoremr, @HealthEquityDoc, @drlenawine @drzsicklecell, @stewartwjames, @AlexanderGlaros, @naborala, @DrPowerHays, all superheroes raising awareness for health equity. #patientchat |
| Diverse Health Hub @DHealthhub RT @RareDiseaseDad: @patientchat T2: @patientchat T2: I think chats & discussions like these are a good place to start. Coming together, discussing current needs/challenges, & learning from experiences of others helps us become more knowledgeable. We are #strongertogether. Using our voices collaboratively is a must. #patientchat |
| Patient Chat @patientchat T4: What are some of the public health challenges that need to be addressed to achieve health equity? #patientchat https://t.co/Xau23lB7Xr |
| Carly Flumer (she/her) @carlyflumer @KisteinM @patientchat No question is ever “too dumb!” #patientchat |
| Vera Rulon FAHIMA @vrulon T4: #patientchat Social determinants must be addressed. Better and more accessible treatments for a whole host of diseases. Affordability. |
| ROHHADwarrior @ROHHAD_warrior @RareDiseaseDad @patientchat @RareDiseaseDad sadly it isn’t just you, but most of the time I am lucky with my provider. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T3: I also want to plug @yourgpsdoc’s email newsletter. Great tips from Dr. Nicole on how things can improve on both the provider and patient side! #patientchat |
| Simply Kristy @SimplyKristyD T3 b) I feel like providers & patients are also at the mercy of a system that was built w/ inequalities in place & is exceptionally slow to evolve. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @DHealthhub @PavlosMsaouel @drewcampbell @ifyosunkwo @NRochesterMD @sicklecelldoc @mclemoremr @HealthEquityDoc @drlenawine @drzsicklecell @stewartwjames @AlexanderGlaros @DrPowerHays @DrKMSimon Thank you for sharing this, @DHealthhub! I love the specific examples. Sometimes, this side isn't seen as much. It's nice to know these people are there. To those of you mentioned in this tweet, thank you so much for using your voices to address health inequities! #patientchat |
| PatientOrator @PatientOrator T3: Providers can help patients by recognizing the importance of what is being said by the patient regardless of their income, race, gender, etc. and, by encouraging feedback and questions. #patientchat #healthequity |
| Simply Kristy @SimplyKristyD T3 c) Prime example: patients getting access to their own health info. I have spoken to many physicians who are in support but working within a silo'ed, fragmented system. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A3: Providers play a vital role in change, and a 7-hour bias training is not enough to address the problem. We need a societal shift. Professionals need to address their white supremacy and work to be anti-racist. Unfortunately, there is no quick fix. #patientchat |
| Carly Flumer (she/her) @carlyflumer T4: Writing information in #plainlanguage. Not every patient has the same literacy level! #patientchat |
| PatientOrator @PatientOrator RT @RareDiseaseDad: @patientchat T2: @patientchat T2: I think chats & discussions like these are a good place to start. Coming together, discussing current needs/challenges, & learning from experiences of others helps us become more knowledgeable. We are #strongertogether. Using our voices collaboratively is a must. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @RareDiseaseDad @DHealthhub @PavlosMsaouel @drewcampbell @ifyosunkwo @NRochesterMD @sicklecelldoc @mclemoremr @HealthEquityDoc @drlenawine @drzsicklecell @stewartwjames @AlexanderGlaros @DrPowerHays @DrKMSimon Similar to Mister Rogers’ “look for the helpers”! ❤️ #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A4: Educating medical professionals about bias, about variations (within communities, within ppl w/same disease even!), also about working w/patient as partners, which can prevent & help w/so many other problems! #patientchat |
| Simply Kristy @SimplyKristyD This is SO important 👇 #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T4: Access & cost. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T4: Health insurance and access to care!!! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: Whoa dang, where do I begin?!? ALL the data, ALL the time. Build public health policy with *community input and outreach*. Support health services research on #healthequity Recent ep of @hilarious_is about somma that: https://t.co/7aaLgleVNM #patientchat |
| Simply Kristy @SimplyKristyD @ohhiialexa @yourgpsdoc Thanks for sharing that resource :) #patientchat |
| Kistein Monkhouse, MPA @KisteinM @patientchat T3: From a systems perspective we have to value people that utilize healthcare as human beings. Therefore, providers and payers can begin to implement systemic change to combat bias in medicine so that every patient voice is heard #patientchat #healthequity |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Tear down: Systemic bias Bias in #digitalhealth tech development Bias in #research Bias in care delivery That'll be a start #patientchat |
 | TheMeaningofPain @tmopain RT @christie_health: @patientchat A2: @patientchat A2: This is a challenging for the most marginalized, who often don't feel heard and experience discrimination from our medical system. Folks need to believe that their voice matters, and professionals must be a part of the solution. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @SimplyKristyD @yourgpsdoc She knows I’m a huge fan! 😂 #patientchat |
| Diverse Health Hub @DHealthhub Thanks, Adam! Some superheroes wear white coats :) #patientchat |
 | Pavlos Msaouel @PavlosMsaouel RT @DHealthhub: T3: T3: @PavlosMsaouel @DrewCampbell @IfyOsunkwo @ @NRochesterMD, @sicklecelldoc, @mclemoremr, @HealthEquityDoc, @drlenawine @drzsicklecell, @stewartwjames, @AlexanderGlaros, @naborala, @DrPowerHays, all superheroes raising awareness for health equity. #patientchat |
| Diverse Health Hub @DHealthhub RT @ohhiialexa: @DHealthhub @PavlosMsaouel @drewcampbell @ifyosunkwo @NRochesterMD @sicklecelldoc @mclemoremr @HealthEquityDoc @drlenawine @drzsicklecell @stewartwjames @AlexanderGlaros @DrPowerHays @DrKMSimon All I see is a list of superheroes ❤️ #patientchat |
| Carly Flumer (she/her) @carlyflumer @ohhiialexa @yourgpsdoc How do I sign up?! #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up… #patientchat |
| PatientOrator @PatientOrator RT @DHealthhub: T2: T2: Speak up at the outset. Be sure to fill out visit questionnaires and truly share how you feel about your care #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: Tear down: Systemic bias Bias in #digitalhealth tech development Bias in #research Bias in care delivery That'll be a start #patientchat |
| Diverse Health Hub @DHealthhub T4: Racism is a public health crisis that must be addressed. #patientchat #EndRacism |
| Carly Flumer (she/her) @carlyflumer @PatientOrator For sure! This definitely affects patient outcomes more than the medical community realizes! #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A4: Sector collaboration, health literacy interventions with hospitals and providers, voting in politicians who will work to address disparities, redistricting to end gerrymandering, adopting medicaid (healthcare for all!). #patientchat |
| Simply Kristy @SimplyKristyD @carlyflumer @ohhiialexa @yourgpsdoc Looks like you can sign up here (in the right column) :) https://t.co/biTA5EiKWn #patientchat |
| TheMeaningofPain @tmopain RT @MightyCasey: T1: T1: IMO health equity and human/civil rights are the same thing. Can't have one w/out the other. On that topic, this rocked my emotional world this morning. Essential read from @DrKMSimon https://t.co/Bdo11M9Px4 #patientchat |
| Patient Chat @patientchat T5: Why does every patient’s voice matter when addressing health inequities? #patientchat https://t.co/E3mNQKnYPf |
| Diverse Health Hub @DHealthhub T4: More education around telemedicine tools to extend access to underserved communities: https://t.co/EXLacLBG05 #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @KisteinM @patientchat No question is ever “too dumb!” #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What are some of the public health challenges that need to be addressed to achieve health equity? #patientchat https://t.co/Xau23lB7Xr |
| Alexa Jett 🦋 @ohhiialexa @SimplyKristyD @carlyflumer @yourgpsdoc There it is! 😃 #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T4: There are many public health here are a few: The public needs to be more accepting to all race, not look at rare conditions as monsters(afraid of these people), not to be so judgmental that the person caused the disease such as #diabetes or #cancer #patientchat |
| Simply Kristy @SimplyKristyD T4 a): Ensuring all patients have access to quality health care regardless of where they live or their own health literacy. Patients where English is a second language are at an immediate disadvantage. #patientchat |
| Simply Kristy @SimplyKristyD T4 b) Ensuring access is granted for caregivers during this pandemic is an example that is top of mind for me. #patientchat |
| PatientOrator @PatientOrator RT @MightyCasey: Tear down: Systemic bias Bias in #digitalhealth tech development Bias in #research Bias in care delivery That'll be a start #patientchat |
| PatientOrator @PatientOrator RT @carlyflumer: @KisteinM @patientchat No question is ever “too dumb!” #patientchat |
| Vera Rulon FAHIMA @vrulon @DHealthhub Couldn't agree more. Digital health can help a lot and is still underused in the underserved communities. #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T4: working with ALL conditions and being biased, believing patients, and doing research on less common conditions. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @SimplyKristyD: T4 a): T4 a): Ensuring all patients have access to quality health care regardless of where they live or their own health literacy. Patients where English is a second language are at an immediate disadvantage. #patientchat |
| Carly Flumer (she/her) @carlyflumer T5: Because no disease or patient is the same. #patientchat |
| Diverse Health Hub @DHealthhub T5: Collective action can yield more results. We also believe storytelling can shake up normalcy #patientchat |
| Simply Kristy @SimplyKristyD RT @carlyflumer: T5: T5: Because no disease or patient is the same. #patientchat |
| Patient Empowerment Network @power4patients @DHealthhub Here's an example of what we've done with @DHealthhub in #CLL to help overcome barriers to seeking care via telemedicine #patientchat https://t.co/gFJLXswgnQ |
| Alexa Jett 🦋 @ohhiialexa T5: As my grandma puts it “the squeaky wheels gets the grease.” We have to let everyone know we stand with patients of all shapes, forms, and sizes for change to happen. #patientchat |
| Patient Empowerment Network @power4patients RT @carlyflumer: T5: T5: Because no disease or patient is the same. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @DHealthhub Yes! Platforms need to be available in more than one language and in public places such as libraries. #patientchat |
| Vera Rulon FAHIMA @vrulon T5: #patientchat There are many differences in people so understanding how health issues effect an individual is paramount. Not the least of which are physiological differences between races, genders, etc. Also, cultures must be considered when treating. As I said before: LISTEN. |
| TheMeaningofPain @tmopain RT @DHealthhub: T4: T4: Racism is a public health crisis that must be addressed. #patientchat #EndRacism |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T5: Every patient’s voice matters when addressing health inequities because every person matters. Every. Person. Matters. #patientchat #healthequity |
| Diverse Health Hub @DHealthhub T5: The patient voice is powerful and can empower others to share their stories. We love this FAQ format done beautifully by @Patient_Story #patientchat |
| Diverse Health Hub @DHealthhub RT @power4patients: @DHealthhub Here's an example of what we've done with @DHealthhub in #CLL to help overcome barriers to seeking care via telemedicine #patientchat https://t.co/gFJLXswgnQ |
| Patient Chat @patientchat Topic 6 (T6:) coming up… #patientchat |
| Diverse Health Hub @DHealthhub RT @christie_health: @DHealthhub Yes! Platforms need to be available in more than one language and in public places such as libraries. #patientchat |
| Simply Kristy @SimplyKristyD T5: How can you begin to address inequities if you don't listen to those who are directly impacted? The patient lived experience is vital when addressing health inequities. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Nothing about me without me. Lather, rinse, repeat. “Of all the forms of inequality, injustice in health is the most shocking and inhuman.” ~ Dr. Martin Luther King Jr. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @DHealthhub: T5: T5: Collective action can yield more results. We also believe storytelling can shake up normalcy #patientchat |
| Simply Kristy @SimplyKristyD RT @RareDiseaseDad: @patientchat T5: @patientchat T5: Every patient’s voice matters when addressing health inequities because every person matters. Every. Person. Matters. #patientchat #healthequity |
| ROHHADwarrior @ROHHAD_warrior @patientchat T5: This is a simple response: Not every condition affects people the same way. Every human is their own identity and will show/ not show the condition in the same way. We are all unique. #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: T5: T5: Nothing about me without me. Lather, rinse, repeat. “Of all the forms of inequality, injustice in health is the most shocking and inhuman.” ~ Dr. Martin Luther King Jr. #patientchat |
| PatientOrator @PatientOrator RT @patientchat: T5: T5: Why does every patient’s voice matter when addressing health inequities? #patientchat https://t.co/E3mNQKnYPf |
| Patient Chat @patientchat T6: What do you think advocacy organizations can do to increase awareness about the need for equitable care? #patientchat https://t.co/4SCVxKV74e |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T5: In addition, we can’t keep living in our own little silo. There are so many other people out there whose experiences/realities are different than ours. We need to learn from & support each other. Moving beyond our own experiences is a must. #patientchat |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @patientchat A5: Voices matter because we know our bodies and experiences best. We need healthcare to be a partnership. Yes, doctors are experts in medicine, but we are our own experts. Once we believe that we will seek doctors who value our lives and fight for our care. #patientchat |
| PatientOrator @PatientOrator @RareDiseaseDad @patientchat T5: Every patient voice matters when addressing health inequity because when any group of people is negatively impacted by a disparity the health of the overall population is affected. #PatientChat #healthequity |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: What do you think advocacy organizations can do to increase awareness about the need for equitable care? #patientchat https://t.co/4SCVxKV74e |
 | Katie @Katie16956080 #patientchat T4: Black mothers die after giving birth at a rate similar to Mexico. That’s after accounting for income and education (WHO stats). It’s shameful |
| Simply Kristy @SimplyKristyD RT @christie_health: @patientchat A5: @patientchat A5: Voices matter because we know our bodies and experiences best. We need healthcare to be a partnership. Yes, doctors are experts in medicine, but we are our own experts. Once we believe that we will seek doctors who value our lives and fight for our care. #patientchat |
| Patient Chat @patientchat #patientchat |
| Vera Rulon FAHIMA @vrulon T6: What do you think advocacy organizations can do to increase awareness about the need for equitable care? #patientchat Help elevate patient voices. #patientsincluded should be the mantra. Give #patients and their #caregivers a platform. |
| Kistein Monkhouse, MPA @KisteinM @patientchat T5: How we take care of our most vulnerable is a reflection of how civilized we are as a nation. This is why every patient voice matters when addressing health inequity #patientchat #healthequity |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @KisteinM: @patientchat T5: @patientchat T5: How we take care of our most vulnerable is a reflection of how civilized we are as a nation. This is why every patient voice matters when addressing health inequity #patientchat #healthequity |
| PatientOrator @PatientOrator RT @patientchat: T6: T6: What do you think advocacy organizations can do to increase awareness about the need for equitable care? #patientchat https://t.co/4SCVxKV74e |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A5: because even within a community (be it cultural or suffering from rhe same disease) people have different experiences & life situations & if we don’t hear it from them we can’t learn about it. #patientchat |
| Patient Empowerment Network @power4patients @patientchat Share stories that create awareness and stimulate discussion then turn those into action #patientchat https://t.co/VvaH7TT3sF |
| Carly Flumer (she/her) @carlyflumer T6: Hold chats like these, engage patients through #SoMe, support groups, webinars, lectures, AND invite them to conferences for FREE. #ourvoicesmattertoo #patientchat |
| Patient Empowerment Network @power4patients RT @KisteinM: @patientchat T5: @patientchat T5: How we take care of our most vulnerable is a reflection of how civilized we are as a nation. This is why every patient voice matters when addressing health inequity #patientchat #healthequity |
| Patient Empowerment Network @power4patients RT @PatientOrator: @RareDiseaseDad @patientchat T5: @RareDiseaseDad @patientchat T5: Every patient voice matters when addressing health inequity because when any group of people is negatively impacted by a disparity the health of the overall population is affected. #PatientChat #healthequity |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T6: Advocacy orgs need to look at their leadership teams, their BoDs, make sure they reflect the community they represent/advocate on behalf of. See previous re "I see white people" syndrome ... #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: T6: T6: Advocacy orgs need to look at their leadership teams, their BoDs, make sure they reflect the community they represent/advocate on behalf of. See previous re "I see white people" syndrome ... #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @power4patients: @patientchat Share stories that create awareness and stimulate discussion then turn those into action #patientchat https://t.co/VvaH7TT3sF |
| Diverse Health Hub @DHealthhub RT @patientchat: #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat T6: Advocates can show pictures or statistics of the populations not equally served and get stories from all different populations on how particular conditions affect them personally or in their community. #patientchat #Equality |
| Alexa Jett 🦋 @ohhiialexa T6: I would like advocacy organizations to have broader perspectives of people. For as large of a population colon cancer has, I feel like I *only* see the same few advocates every time. THE VOICES ARE OUT THERE, AMPLIFY THEM!! #patientchat |
| Patient Chat @patientchat Topic 7 (T7:) coming up… #patientchat |
| Diverse Health Hub @DHealthhub T6: Advocate consistently! Advocating for equitable healthcare shouldn’t be seasonal or because its newsworthy #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Sidebar: here's something we need to tear apart like right TF now. I know #bcsm is on this. All #cancer communities have people who know this issue all too well. https://t.co/XjnGVOuIQS #patientchat |
| Patient Chat @patientchat T7: What organizations or resources are available to help you get involved and learn more about health inequities? #patientchat https://t.co/PY7yYu4qWB |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey 👇🏽👇🏽💯💯👏🏽👏🏽🔥🔥 #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @christie_health @patientchat Absolutely! And it's quite simply soul crushing when we (as you said, our own experts) are not believed by the doctors we are seeing. No matter the reason for the gaslighting, it is detrimental. #patientchat |
| Kistein Monkhouse, MPA @KisteinM @patientchat T6: representation matters! In the stories that are told, the initiatives/investments that are taken/made and the inclusiveness of the teams that will address both awareness and empowerment for all to experience health equitably. #patientchat #healthequity |
| Carly Flumer (she/her) @carlyflumer T7: @CancerAdvocacy and @nord are my faves for #cancer and #rare diseases! #patientchat |
| Diverse Health Hub @DHealthhub RT @MightyCasey: 👇🏽👇🏽💯💯👏🏽👏🏽🔥🔥 #patientchat |
| Simply Kristy @SimplyKristyD T6: I think that advocacy groups are in a great position to bring a collective voice of the patient to government or health officials. There is power in numbers and that is where the advocacy groups can be very beneficial to raise the need for equitable care #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @KisteinM: @patientchat T6: @patientchat T6: representation matters! In the stories that are told, the initiatives/investments that are taken/made and the inclusiveness of the teams that will address both awareness and empowerment for all to experience health equitably. #patientchat #healthequity |
| Diverse Health Hub @DHealthhub T7: Check out @power4patients, @RmcAwareness, @patientOrator, @hmcghee @ACIcommunity, @joemsammen, @tigerlilycares #patientchat |
| Alexa Jett 🦋 @ohhiialexa T7: The Renal Medullary Carcinoma community would love to have you join us. Just spreading the word helps. Who to follow/RT: @PavlosMsaouel @renalmedullary @RmcAlliance @RMCAwareness @thermcrf @DHealthhub @ancan501c3 #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T7: I’m excited to see more ideas from others for this question so I can continue to learn. Today, I met & followed @DHealthhub and @PatientOrator. #patientchat |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat A7: @wegohealth helps me be a better advocate, along with networking with other advocates & being involved in things like this Twitter chat! To learn about health inequities sadly is too easy: just read the news, talk to a friend or join a FB support group... #patientchat |
| PatientOrator @PatientOrator RT @DHealthhub: T7: T7: Check out @power4patients, @RmcAwareness, @patientOrator, @hmcghee @ACIcommunity, @joemsammen, @tigerlilycares #patientchat |
| Diverse Health Hub @DHealthhub T7: Connect with organizations like @LazarexCF that provide valuable resources for patients when they need it most #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T7: T7: What organizations or resources are available to help you get involved and learn more about health inequities? #patientchat https://t.co/PY7yYu4qWB |
| ROHHADwarrior @ROHHAD_warrior @patientchat T7: I am following other’s responses because I would like to know. I follow: @FLAWarriorOrg @HA_Summit @NIH and @The_Chronicon here on @Twitter. @instagram I also follow many health accounts. #patientchat |
| Simply Kristy @SimplyKristyD @RareDiseaseDad @patientchat @DHealthhub @PatientOrator Me too! :) #patientchat |
| PatientOrator @PatientOrator @DHealthhub @power4patients @RMCAwareness @hmcghee @ACICommunity @joemsammen @tigerlilycares T7: Adding @CDCgov and the @PublicHealth as additional sources to for learning more about #healthinequity #patientchat |
| Diverse Health Hub @DHealthhub RT @PatientOrator: @DHealthhub @power4patients @RMCAwareness @hmcghee @ACICommunity @joemsammen @tigerlilycares T7: @DHealthhub @power4patients @RMCAwareness @hmcghee @ACICommunity @joemsammen @tigerlilycares T7: Adding @CDCgov and the @PublicHealth as additional sources to for learning more about #healthinequity #patientchat |
| Patient Empowerment Network @power4patients @patientchat We've been and will continue to talk about #healthequity in #cancer care. Please join us #patientchat https://t.co/vVyuRzzQbz |
| Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph @DHealthhub @LazarexCF A7: I highly recommend following @RWJF's work. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @PatientOrator: @DHealthhub @power4patients @RMCAwareness @hmcghee @ACICommunity @joemsammen @tigerlilycares T7: @DHealthhub @power4patients @RMCAwareness @hmcghee @ACICommunity @joemsammen @tigerlilycares T7: Adding @CDCgov and the @PublicHealth as additional sources to for learning more about #healthinequity #patientchat |
| Vera Rulon FAHIMA @vrulon T7: #patientchat https://t.co/4MqkQb20Va |
 | The Patient Story @Patient_Story Thank you! Patients have a lot to say, and a lot to learn from one another. Our community is incredible 🙏❤️ |
| ROHHADwarrior @ROHHAD_warrior @ADanGrenier @patientchat @wegohealth This is 💯 ⬆️ #patientchat |
| ROHHADwarrior @ROHHAD_warrior @RareDiseaseDad @patientchat @DHealthhub @PatientOrator Me three! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alexa Jett 🦋 @ohhiialexa CT: Nothing fancy and stating the obvious. There is still much more work to be done in this area. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T7: My bedrock is still #bcsm. Also haunt the virtual halls of @healthhashtags for tribal connection w/other communities. As still-semi-journo, my antennae are tuned for all signal, which gets loud sometimes 🤣😱 #patientchat |
| Alexa Jett 🦋 @ohhiialexa @MightyCasey @healthhashtags I just went through a cycle of laughing and coughing! 😂🤣 #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat CT: Patient inequality is everywhere, but joining other groups or chats like this one we start discussions that may led to actions. #patientchat |
| Simply Kristy @SimplyKristyD CT: I am grateful for opportunities like this chat because as an engaged patient I learn from what others do and where they have found success in amplifying their voices or the voices of those they support. #patientchat |
| Simply Kristy @SimplyKristyD CT Cont'd: I believe that we are better together and that is how we will ultimately drive change. #patientchat |
 | Autoimmune Community Institute @ACICommunity RT @power4patients: @patientchat We've been and will continue to talk about #healthequity in #cancer care. Please join us #patientchat https://t.co/vVyuRzzQbz |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier @patientchat CT: Today’s topic brings me back to why I started https://t.co/izlYSWJ7yx ➡️ lack of info in French (none at all in N. America!) & lack of knowledge from med professionals & in population about rare diseases. The inequity in care was a huge motivation! #patientchat Thanks all! |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Vera Rulon FAHIMA @vrulon @MightyCasey @RickiDOVE @touchbbca #patientchat Here's another! Black friday walk for Breast CA. https://t.co/YUCGgjWIjm |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Patient Empowerment Network @power4patients @patientchat We always learn so much from these discussions with the #patientchat community. Thank you for always being open and willing to talk about important things like creating #healthequity for all. Today, and everyday, we are grateful for this community! |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey CT: I'm just going to keep on keepin' on, doing what I'm already committed to re centering/giving space to ensure *everyone* has a seat at the #publichealth table, the #clinicalresearch table, the #healthjustice table. Onward =) #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Diverse Health Hub @DHealthhub CT: We are ALL in this together! :) #patientchat |
| Patient Chat @patientchat A big thank you to @DHealthhub and @PatientOrator for joining #patientchat today and sharing your insights! |
| Simply Kristy @SimplyKristyD @patientchat Thank you for hosting and moderating 😊 #patientchat |
 | Brandon Hudgins @bhudgruns RT @christie_health: @patientchat A1: @patientchat A1: Our zip codes should not determine whether we live or die. -Bono #patientchat |
| Patient Chat @patientchat There will be no #patientchat Friday, 11/27 due to Thanksgiving, but we will be back on December 11th. Hope to see you there! https://t.co/y9TV19GqwU |
| Patient Empowerment Network @power4patients RT @patientchat: There will be no #patientchat Friday, 11/27 due to Thanksgiving, but we will be back on December 11th. Hope to see you there! https://t.co/y9TV19GqwU |
| Ma vie de zèbre • A-Danielle G. @ADanGrenier RT @patientchat: There will be no #patientchat Friday, 11/27 due to Thanksgiving, but we will be back on December 11th. Hope to see you there! https://t.co/y9TV19GqwU |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
| Vera Rulon FAHIMA @vrulon CT: What a great, inspiring chat! I'll be finding ways to contribute, expanding network, speaking out! Thanks for a great chat as always @patientchat #patientchat |
| Patient Chat @patientchat RT @vrulon: CT: CT: What a great, inspiring chat! I'll be finding ways to contribute, expanding network, speaking out! Thanks for a great chat as always @patientchat #patientchat |
| PatientOrator @PatientOrator @patientchat T7: Our YouTube playlist titled Civic Engagement: Thoughts on US #healthcare system is a resource that offers perspectives from the American people on health inequities..#patientchat #healthequity https://t.co/MqFbh11OfR |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat CT for today’s #patientchat: I think this will be incredibly important moving forward... https://t.co/j6MzM2oPFh |
 | GenCOUNSEL @GenCOUNSEL_CA The responses to this question are amazing! Please read them all. #GCChat |
| PatientOrator @PatientOrator @patientchat @DHealthhub Thank you for the bringing us all together for this very important topic of using your voice to speak against #healthinequity @patientchat @DHealthhub 🙌 #patientchat |
| Diverse Health Hub @DHealthhub Looking forward to learning about your hardwork to develop the Patient Orator app! Keep us posted 🙌 #patientchat |
| PatientOrator @PatientOrator @DHealthhub Will do! Keep us posted with your work as well. #healthequity #patientchat |
#patientchat content from Twitter.