#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Empowerment @power4patients
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Empowerment @power4patients
RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat with @LReedsBooks here: https://t.co/59gUTDyVjf
Patient Chat @patientchat
Excited to have guest and patient advocate @LReedsBooks here. She is dedicated to ensuring the voice of the patient is heard in an effort to effect change in healthcare. #patientchat
Patient Empowerment @power4patients
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with ot…
Patient Empowerment @power4patients
RT @LReedsbooks: Join #patientchat Fri 11/16 1pmET as we discuss the role of support and advocacy throughout the patient journey with guest…
Patient Chat @patientchat
You can find out more about @LReedsBooks and read her blog here: https://t.co/3TY86l7bjt #patientchat
Vera Rulon FAHIMA @vrulon
Hello everyone. Vera here from NY. Artist, advocate, strategist, questioner... #patientchat
Your GPS Doc, LLC @yourgpsdoc
Hi, I’m Nicole Rochester, physician, former caregiver to my dad, and CEO of @yourgpsdoc, a health advocacy and consulting company. I’m multitasking today so will probably be in and out, but happy to be here! #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Vera Rulon FAHIMA @vrulon
RT @patientchat: Excited to have guest and patient advocate @LReedsBooks here. She is dedicated to ensuring the voice of the patient is hea…
Dee Sparacio @womenofteal
@patientchat @LReedsbooks Dee here! Dx #ovca Stage3B 2005, #OC research advocate, blogger & co-moderator #gyncsm #patientchat
Jamie Roger @JamieRoger8
Hello #patientchat . Jamie here from the beautiful state of CT and @SalemOaks Excited to share that we have now launched online learning about the research and development process and what patients need to know to be more #empowered https://t.co/x2ZltRkcH5 #patientchat
Alan Brewington @abrewi3010
Alan here. My tired can beat up your tired! #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Excited to have guest and patient advocate @LReedsBooks here. She is dedicated to ensuring the voice of the patient is hea…
Angela Cohen @angelee828
@patientchat Hey, Angela joining in from WI! 👋🏽 #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Jamie Roger @JamieRoger8
great to see you @abrewi3010 #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical need…
Dee Sparacio @womenofteal
@abrewi3010 Hi Alan how are you doing? tired - I get that #patientchat
Patient Chat @patientchat
Today's #patientchat topic is The Role of Support and Advocacy Throughout the Patient Journey https://t.co/59gUTDyVjf https://t.co/l0VmATzwv1
ReedsBooks @LReedsbooks
@patientchat Hi! I'm Laurie -- writer, patient advocate and relatively new to PatientChat. Looking forward to today's discussion. #patientchat
Alan Brewington @abrewi3010
@JamieRoger8 Great to see you too! #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Jamie Roger @JamieRoger8
@LReedsbooks @patientchat It's a wonderful group to be with. #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Barby Ingle 📣 @BarbyIngle
I am @BarbyIngle, speaker & author on chronic care and pain challenges. #patientchat #nervember
lillian lake @llake
RT @patientchat: Time to start our topics. Here comes T1: #patientchat
Ken Taylor @KenRayTaylor
Hi, i am @kenraytaylor glad to be with you all. #patientchat
Patient Chat @patientchat
T1: What types of support, if any, did you have when you were first diagnosed? #patientchat https://t.co/QWjxdftVKy
Richard Zhao @richardzhao
Hello, this is Richard from #Minneapolis #patientchat
Heather McCullen @H_SalemOaks
Hi #patientchat I'm almost on time for once! Heather from outside of Ann Arbor, representing @SalemOaks check out our exciting new webpage after the chat (or right now) https://t.co/7qXFMVXnrH
Jamie Roger @JamieRoger8
@BarbyIngle How have you been? #patientchat
Alan Brewington @abrewi3010
@womenofteal It’s been a long year! How are you? #patientchat
lillian lake @llake
@patientchat T1 Family. That's it. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: What types of support, if any, did you have when you were first diagnosed? #patientchat https://t.co/QWjxdftVKy
Dee Sparacio @womenofteal
@abrewi3010 Had some knee issues but otherwise doing ok. #patientchat
lillian lake @llake
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
lillian lake @llake
RT @patientchat: Excited to have guest and patient advocate @LReedsBooks here. She is dedicated to ensuring the voice of the patient is hea…
ReedsBooks @LReedsbooks
@patientchat T1 -- I had no one with me when I learned I had MS. Family didn't know I was seeing a neurologist. Partner (future husband) was working in London. It felt very lonely. #patientchat
lillian lake @llake
@patientchat @power4patients Hi Kara! Nice to meet you and have you moderate this afternoon. #patientchat
Becky Brandt RN @bbhomebody
Hi everyone. 👋 Becky here from Washington. RN, Central Pain patient, advocate. @Cpnervecenter cofounder w/ the amazing @lisadbudzinski #patientchat
Cameron J. Navy @navy_cameron
Do patients want to learn more about #clinicaltrials? #patientchat
Dee Sparacio @womenofteal
T1 Family and friends and I reached out to @CancerHopeNet to speak to a long term #ovca Survivor for emotional support. #patientchat
ReedsBooks @LReedsbooks
@llake @patientchat T1 What did it mean to you to have your family there? #patientchat
lillian lake @llake
@yourgpsdoc Nicole! How awesome to cross paths today. Have you recovered from the conference? #patientchat
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
I'm Lynda from Phila, PA. Very involved in online patient support and advocacy for food allergy and asthma. Also multitasking (big allergy conference started today) but will jump in as I can. #patientchat
Becky Brandt RN @bbhomebody
@richardzhao Hi Richard👋 Great to see you again! #patientchat
Cameron J. Navy @navy_cameron
Would you want your doctor to be more knowledgeable about #clinicaltrials or would you want to do the research on your own? #patientchat
Jamie Roger @JamieRoger8
@LReedsbooks @patientchat My husband was with me, I can only imagine trying to go through it entirely alone. I chose to be alone at some appt's, but I am thankful he was there. #patientchat
Patient Chat @patientchat
@llake @power4patients Nice to meet you @llake! Glad you could join #patientchat today :)
Vera Rulon FAHIMA @vrulon
T1: Had to find my own resources, family, pretty good support from my doctor. But is wasn't a catastrophic dx, a common ailment. A family member, however, when dx'd w/ CA had an awful time getting support and guidance on what to do when, what questions to ask, etc. #patientchat
Richard Zhao @richardzhao
T1: My family supported my brother when he had #stroke several years ago. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@llake Hi Lillian! Yes, I have. The conference was awesome! #patientchat
Ken Taylor @KenRayTaylor
T1: Once my wife @BarbyIngle was diagnosed we were able to start researching the proper groups for help. The support group was not a good experience and we remained on our own. With the internet and social media we are able to keep who we want around us. #patientchat #nervember
Barby Ingle 📣 @BarbyIngle
T1: I didnt have much help from the pro community when I first got sick, it took almost 3 yrs & 42 pros 2 get a proper Dx. I did have my parents & siblings (in another state) & my new neighbor (now husband) @KenRayTaylor who remain priceless n their help #patientchat #nervember
Alan Brewington @abrewi3010
A1 at the time multiple members of the #rheum community. #patientchat
lillian lake @llake
Hi! Lil here having been blown in on the winds of one of our daily #NovemberSnow blizzards. Patient. /Caregiver/Young carers advocate My business is Compassion Consultancy - The Lake Method. Great to be here with you all today! #patientchat
Richard Zhao @richardzhao
@bbhomebody Hi, Becky It is good to see you again. It has been a long time. I only find some free time today. #patientchat
Jamie Roger @JamieRoger8
RT @KenRayTaylor: T1: Once my wife @BarbyIngle was diagnosed we were able to start researching the proper groups for help. The support grou…
Barby Ingle 📣 @BarbyIngle
@JamieRoger8 having a bad week, hoping this weekend (11 yr wedding anniversary and 46th bday) is better. hope you are doing ok? #patientchat #nervember
ReedsBooks @LReedsbooks
@BarbyIngle @KenRayTaylor T1 When you were diagnosed, what type of support did your family and future husband provide? #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up... https://t.co/59gUTDyVjf #patientchat
Frank R. @SarcoidosisofLI
Hi I am Frank Rivera from NY. #patientchat
Your GPS Doc, LLC @yourgpsdoc
T1: My dad (dementia) had my sisters and I and multiple other family members. As the doc in the family, I did my best to advocate for him in healthcare settings but it was surprisingly difficult! #patientchat
Patient Chat @patientchat
T2: How do you think having/not having support at the time of diagnosis impacted your decisions or course of treatment? #patientchat https://t.co/kSrGM7MiMM
Dee Sparacio @womenofteal
@abrewi3010 Thanks I am enjoying PT . #patientchat
ReedsBooks @LReedsbooks
@KenRayTaylor @BarbyIngle T1 Why was the support group not a good experience? #patientchat
Melissa VanHouten @melissarvh
T1 Only immediate family. Very little information or support from the medical system initially. #PatientChat
lillian lake @llake
@yourgpsdoc Fabulous! I saw the highlights. I was putting out igniting emergencies at that time so I wasn't in sync all of the time, but it looked awesome & I responded randomly to tweets. #patientchat
Alan Brewington @abrewi3010
A1 At the time of diagnosis I didn’t need support, I needed a diagnosis. My frustration levels were high after years of running around without one. #patientchat
Becky Brandt RN @bbhomebody
T1 I had the medical library at Swedish Medical Center in Seattle, which had 1 measly article. That's it! There was nothing online yet & a doctor who had seen Central Pain Syndrome just 1 time in his career. Thank goodness times have changed! #patientchat
Jamie Roger @JamieRoger8
@BarbyIngle Congrats.I hope the excitement of the weekend helps a bit... even with just the mental aspect of everything. I'm doing better, still trying to figure out what is going on with my stomach since surgery (im thinking I might be getting a bug at this point) but better. #patientchat
ReedsBooks @LReedsbooks
@abrewi3010 T1 In what way did they provide support? #patientchat
Barby Ingle 📣 @BarbyIngle
physical, took over driving, cooking, cleaning. Emotional daily phone calls, helping coordinate, as well as financial. Family took turns come to help Ken for the first 3 years #patientchat #nervember
Jamie Roger @JamieRoger8
@yourgpsdoc Which aspect of it was difficult? Just curious. #patientchat
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
Very little patient info or support was available in the 1990's when my son as diagnosed with food allergies...which led me to start an online community for parents raising children with food allergies. #patientchat
ReedsBooks @LReedsbooks
@yourgpsdoc T1 Why was it difficult to provide support in healthcare settings? #patientchat
Dee Sparacio @womenofteal
@LReedsbooks Didn't have the energy to get myself to the evening support groups so I used @CancerHopeNet & ACOR listserv. #patientchat
Patient Empowerment @power4patients
RT @bbhomebody: T1 I had the medical library at Swedish Medical Center in Seattle, which had 1 measly article. That's it! There was nothin…
Jamie Roger @JamieRoger8
I think I was still a mess, but my husband helped keep me focused and positive and pushed for surgery as soon as possible. He just wanted to see me happier. #patientchat
lillian lake @llake
@LReedsbooks @patientchat sWell, it was all I had, so it was everything. It was a situation where healthcare wasn't interested until it was to their benefit. And anyway, people who know us feed us an energy that helps us to survive. They are essential to thriving. #patientchat
Vera Rulon FAHIMA @vrulon
T2: Not having support - increased stress, decisions not aligned with personal preferences, #patientchat
lillian lake @llake
RT @JamieRoger8: I think I was still a mess, but my husband helped keep me focused and positive and pushed for surgery as soon as possible.…
Alan Brewington @abrewi3010
@LReedsbooks I was able to listen and be apart of their #rheum story which increased my medical literacy. I was a better communicator. #patientchat
Frank R. @SarcoidosisofLI
@patientchat A1- When I was diagnosed the support I received was from my Wife. It was so hard to find any others with my disease. That is what made me go into advocating. I don't want anyone to ever feel as lonely as I did! #patientchat
lillian lake @llake
@JamieRoger8 Jamie! It's so good to see you today! #patientchat
lillian lake @llake
RT @KenRayTaylor: T1: Once my wife @BarbyIngle was diagnosed we were able to start researching the proper groups for help. The support grou…
Patient Chat @patientchat
@JamesStiegler Hi James, glad you could join in today! Make sure to include #patientchat in your responses so everyone can see :)
Your GPS Doc, LLC @yourgpsdoc
T2: Support is critically important! A new diagnosis is scary for all involved. Knowing others are there as a sounding board (or just a shoulder to cry on) can help patients make more sound decisions. #patientchat
Alan Brewington @abrewi3010
A2 id learn long before diagnosis to fight for my quality of life. My support levels are not determinates of my #QOL. #patientchat
lillian lake @llake
@KenRayTaylor @BarbyIngle Internet and social media connection are essential - especially in rural areas or other conditions of isolation. #patientchat
Jamie Roger @JamieRoger8
@llake Great to see you as well Lillian. How have you been? Hope you aren't trapped from the weather... it was AWFUL here last night. My husband took over two and a half hours to get home in the snow (normally 60 min) . and today its in the 50s. #patientchat
Richard Zhao @richardzhao
T1: I bought iPad for my brother to help him to train his figures and connect with family members and society. #technology can be used as support #patientchat
Frank R. @SarcoidosisofLI
@patientchat A2- It made me do research for myself. It made me be even more of a fighter! In the beginning I was scared with nobody to talk to about the disease. #patientchat
Jamie Roger @JamieRoger8
RT @SarcoidosisofLI: @patientchat A1- When I was diagnosed the support I received was from my Wife. It was so hard to find any others with…
Patient Chat @patientchat
Topic 3 (T3:) coming up... https://t.co/59gUTDyVjf #patientchat
Angela Cohen @angelee828
@patientchat T1: I had Family and friends and I’m grateful to have them!! But now I also found people who “get it” and it’s a different type of support and a different type of family. #patientchat
Jamie Roger @JamieRoger8
#passion to help others is always a good reason to go into a new field. #patientchat
Patient Chat @patientchat
RT @yourgpsdoc: T2: Support is critically important! A new diagnosis is scary for all involved. Knowing others are there as a sounding boar…
Melissa VanHouten @melissarvh
T2 Forced me to search online where I found fabulous support groups, full of information and help. They suggested doctors as well as courses of treatment -- and, for the 1st time since being diagnosed, I thought I might actually survive. #PatientChat #Gastroparesis
Patient Chat @patientchat
T3: During treatment what type of support have you had? #patientchat https://t.co/2EXjTFrOdK
Barby Ingle 📣 @BarbyIngle
T2. I stumbled finding a proper coarse of treatment without a proper Dx, and did a lot A LOT of wrong treatments, It made me worse off overall and long-term. Now my pro care team is part of my team, part of my life. #patientchat #nervember
Ken Taylor @KenRayTaylor
T2: It was the best thing that came out of the support group before we stopped attending. We heard what treatment options were available allowing us to research on our own and make wise decisions. I became more educated as a caregiver to my wife. #patientchat #nervember
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 EVERY aspect. As a family caregiver I was often invisible. I had to speak up often. Medication errors, faulty communication, you name it, we dealt with it. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@LReedsbooks It wasn’t difficult to provide support. It was difficult advocating for my dad, even with a healthcare background. #patientchat
Jamie Roger @JamieRoger8
@yourgpsdoc At least you were there. Not everyone can pick up on all those errors. #patientchat
Dee Sparacio @womenofteal
T2 somehow I missed Q2 - Support meant I could take part in a clinical trial, extra trips , tests my husband by my side #patientchat
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
T1 - It's sad to see how hard it was for all of us to get that initial support and resources that we really needed when we were diagnosed! #patientchat
Dee Sparacio @womenofteal
Got to run - I have to leave for another meeting at 1:30 . Hope to join you again soon. #patientchat
lillian lake @llake
@JamieRoger8 I'm good. Wow! I am glad he arrived home safely. How stressful it is waiting for someone to come through a storm (literally and figuaratively). We are trapped for the time being. Tomorrow we will dig out. Day of reprieve expected. Then plunge into the tundra again. #patientchat https://t.co/NRcdpU6eUv
James Stiegler @JamesStiegler
@patientchat A2 - it was so valuable to be able to reach out to #clinicalresearch scientists and oncologists to hear their advice and recs. I know most people don't have access to this type of network. It definitely put my mind at ease to know that the experts were on my side #patientchat
Jamie Roger @JamieRoger8
I had my family there to help, and friends to talk to. But I think most important was when I found a doctor who was compassionate and INTELLIGENT and willing to do everything it took to be successful. That was my turning point #patientchat #weekendphonecallstocheckuponme
ReedsBooks @LReedsbooks
@patientchat T3 As we move into treatment we become more knowledgeable and the types of support and the amount of support can be more than when we're first diagnosed. #patientchat
Angela Cohen @angelee828
@patientchat T2: I had support but not the same thing as people who understood. At times I was getting unsolicited advice. Sometimes I felt misunderstood/they or I didn’t understand & it made it harder to make treatment informed decisions. Too many opinions but it was my life. #patientchat
Barby Ingle 📣 @BarbyIngle
T3. I created a team. My family, husband/caregiver, medical providers. We all work together to develop a plan and make sure I am getting best care I can, living life to fullest I can, and learn as much as we can for future is better! #patientchat #nervember
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
T2- For me at the time, there was not good patient education, nor was there much literature (not that patients had access!) So it was a very hard time trying to navigate medically and was quite stressful. #patientchat
Vera Rulon FAHIMA @vrulon
@JamieRoger8 Finding the right doctor is paramount. Sometimes it takes a while but when you do find them it makes all the difference. #patientchat
ShereeseM, MS/MBA @ShereesePubHlth
RT @JamieRoger8: I had my family there to help, and friends to talk to. But I think most important was when I found a doctor who was compa…
Melissa VanHouten @melissarvh
T3 Continued support from my family & groups as well as a GI who is willing to research & who competently & compassionately works w/me on my care. Not all are so fortunate. #PatientChat
Jamie Roger @JamieRoger8
I was so stressed out about it, and calling him wasn't helping because then I was stressing that he was distracted... and accident reports were coming in constantly. I hope the dig out isn't too bad... Did you get heavy snow or fluffy? GOOD LUCK! #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up... https://t.co/59gUTDyVjf #patientchat
Frank R. @SarcoidosisofLI
@patientchat A3- First off my wife and daughter have been there for me. But when I decided to start my organization I reached out to anyone and everyone I thought that could help me. I worked with the national organization to get all inclusive. To have a voice! #patientchat
Alan Brewington @abrewi3010
A3 I don’t allow anyone with me during surgery or procedures. They can use the waiting room or go eat until I’m free. Maybe I’m a control freak but procedures are my time. #patientchat
Jamie Roger @JamieRoger8
@vrulon I started with just about the WORST doctor possible, so anything would have been better. But my surgeon was amazing, regardless of who I compare him to. #patientchat
lillian lake @llake
@SarcoidosisofLI @patientchat I am sending you warm hugs and gratitude for your courage. And a reminder we are never as alone as it feels. #patientchat https://t.co/nD2R7wLvxT
Patient Chat @patientchat
T4: How do you think having support during treatment had an impact on your decisions or the course of treatment? #patientchat https://t.co/ZzDGp9Nk2U
ReedsBooks @LReedsbooks
@angelee828 @patientchat T2 This is an interesting observation. Sometimes we get what people think is support but it's not appropriate or helpful. #patientchat
Jamie Roger @JamieRoger8
@BarbyIngle Sounds like you have a great team fighting for your #QoL and your health. #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T1: I didnt have much help from the pro community when I first got sick, it took almost 3 yrs & 42 pros 2 get a proper Dx.…
lillian lake @llake
@JamieRoger8 I am so sorry you had to endure that. It must have been frightening. I heard from others in your area there were hundreds of accidents. He had great blessings with your "virtual" support even if you couldn't talk directly. #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T2. I stumbled finding a proper coarse of treatment without a proper Dx, and did a lot A LOT of wrong treatments, It made m…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T3. I created a team. My family, husband/caregiver, medical providers. We all work together to develop a plan and make sure…
Ken Taylor @KenRayTaylor
T3: I (caregiver) with strong family support have helped my wife @BarbyIngle through many treatments for RSD. Most of them not very helpful. She is in a stable remission now due to ketamine iv and an oral orthotic, 2 rounds of stem cell therapies. #patientchat #nervember
Patient Empowerment @power4patients
RT @patientchat: T4: How do you think having support during treatment had an impact on your decisions or the course of treatment? #patientc
Patient Empowerment @power4patients
RT @LReedsbooks: @patientchat T3 As we move into treatment we become more knowledgeable and the types of support and the amount of support…
ReedsBooks @LReedsbooks
@abrewi3010 T3 That's interesting. You don't think it would be helpful while you're sedated or recovering to have someone with you to ensure that this are happening as they should? #patientchat
Alan Brewington @abrewi3010
A4 dad always told me to not worry about money, plan my treatment options that are best for me. There are always ways to finance afterwards #patientchat
lillian lake @llake
@JamieRoger8 It won't be bad. It's all relative. Two days ago 3" of heavy weight snow was exhausting. This is 8" of light fluff. Except it's blowing. My mother would say "I wish the good Lord would make up his mind where He wants it!" LOL That memory keeps me sane. ⛄️❄️😅#patientchat
lillian lake @llake
RT @yourgpsdoc: T1: My dad (dementia) had my sisters and I and multiple other family members. As the doc in the family, I did my best to ad…
Jamie Roger @JamieRoger8
@llake On the plus side we are looking for our next vehicle (4-wheel drive) so I can stress a little less.Accidents were everywhere, he said tons of people were just stopped on the highway.1st storm is always the worst. #patientchat
Barby Ingle 📣 @BarbyIngle
T4. I think it is vital. I have written 7 of my 9 books based around support, what it is, what it means, how it helps, tips, tricks, ideas for different situations that I struggled through the first time, had to learn as a chronic patient #patientchat #nervember
lillian lake @llake
@yourgpsdoc And now you are using your experience to help the rest of us! And we love you for that! Thank you! #patientchat
Heather McCullen @H_SalemOaks
@abrewi3010 It's really good that you had that kind of support. It's super frustrating that cost is a factor in treatment choices. #patientchat
Melissa VanHouten @melissarvh
T4 Gave me the confidence to speak up & to engage in my own care. I knew at least some involved would support my decisions & that makes everything just a bit easier. Also had family members willing to advocate for me in hospital & when I was too ill to do so myself. #PatientChat
lillian lake @llake
And here it is. The bane of every struggling caregiver. #patientchat
James Stiegler @JamesStiegler
@angelee828 @patientchat When you get diagnosed with #cancer, so many people offer their opinions re: diet, supplements and alternative remedies. It made me feel like it was my fault that I got cancer. No thanks, I'll stick to the #clinicalresearch and #science. #patientchat
lillian lake @llake
RT @bbhomebody: T1 I had the medical library at Swedish Medical Center in Seattle, which had 1 measly article. That's it! There was nothin…
ReedsBooks @LReedsbooks
@patientchat T4 Did having support during treatment make a difference? If so, in what way? #patientchat
Jamie Roger @JamieRoger8
@llake Haha, I love that. I am originally from western NY, near Niagara Falls, and the wind and drifts through the fields was AWFUL! #goodluck #patientchat
Richard Zhao @richardzhao
No good patient education for family members as care takers. Patients reviews is something we can gather to provide valuable information. #patientchat #patientsentiment
Your GPS Doc, LLC @yourgpsdoc
RT @llake: And here it is. The bane of every struggling caregiver. #patientchat https://t.co/U7YUzSgolV
Patient Chat @patientchat
Topic 5 (T5:) coming up... https://t.co/59gUTDyVjf #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T4. I think it is vital. I have written 7 of my 9 books based around support, what it is, what it means, how it helps, tips…
lillian lake @llake
T4 Defintiely kept me set back on all levels - financially, emotionally, physically, psychologically. I lost 18 mos that was unnecessary to lose. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@llake I truly feel it is my life’s mission/purpose. Thank you Lillian! ❤️❤️❤️ #patientchat
Your GPS Doc, LLC @yourgpsdoc
@JamieRoger8 So true! #patientchat
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T1: Once my wife @BarbyIngle was diagnosed we were able to start researching the proper groups for help. The support grou…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T2: It was the best thing that came out of the support group before we stopped attending. We heard what treatment options…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T3: I (caregiver) with strong family support have helped my wife @BarbyIngle through many treatments for RSD. Most of the…
ReedsBooks @LReedsbooks
T4 Has anyone found support organizations that can help with the cost for treatment? #patientchat
Patient Chat @patientchat
T5: How has support changed for you from the time of diagnosis through treatment? #patientchat https://t.co/Wsg2rcCQxr
lillian lake @llake
@patientchat T4 During Western Medicine treatment I continued to have no support. Worse, I was abused and degraded. Whe I went the holistic route I had more and different support either through information, listening, hugs, advice, treatment opportunities. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T5: How has support changed for you from the time of diagnosis through treatment? #patientchat https://t.co/Wsg2rcCQxr
lillian lake @llake
RT @yourgpsdoc: T2: Support is critically important! A new diagnosis is scary for all involved. Knowing others are there as a sounding boar…
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
Food allergy management is mostly lifestyle management to avoid life-threatening allergic reactions and injecting with epinephrine. Learning from others about the need for action plans, allergen avoidance and navigating schools, restaurants, etc. - so valuable. #patientchat
Ken Taylor @KenRayTaylor
T4: Very important having support even if its only your spouse. Its easy to feel like nobody believes you. As a caregiver i think you should only keep the positive support and catch up with the others when your better and more educated with your diagnosis. #patientchat #nervember
Alan Brewington @abrewi3010
@LReedsbooks I work hard at establishing a friendship with my surgeons. By the time I go into surgery I’m comfortable with their staff & am ready for surgery. Surgeries aren’t scary, they are my opportunity at a higher #qol. #patientchat
ReedsBooks @LReedsbooks
@JamesStiegler @angelee828 @patientchat T4 Has anyone found a way to positively discourage unwelcome support or advice? #patientchat
lillian lake @llake
@yourgpsdoc I think it is, too. 👍❤️#patientchat
Vera Rulon FAHIMA @vrulon
T5: Having grown up in a very private family, I am now more apt to ask for help or advice since first diagnosed than I was when younger. This was the most impactful change for me. #patientchat
Patient Chat @patientchat
RT @LReedsbooks: @JamesStiegler @angelee828 @patientchat T4 Has anyone found a way to positively discourage unwelcome support or advice? #p
James Stiegler @JamesStiegler
@patientchat A4 - I had a rare type of #cancer, and there wasn't a lot of research on it aside from 1 paper written 4 years ago. But I was relieved to know that same treatment was what my #oncologist and #clinicalresearch friends recommended. Next week I'll be 1 yr #CancerFree #patientchat
lillian lake @llake
RT @JamieRoger8: @llake Haha, I love that. I am originally from western NY, near Niagara Falls, and the wind and drifts through the fields…
Jamie Roger @JamieRoger8
At the time of diagnosis, I was also going through a bit of other stuff, I just wanted it all to be "fixed." I wasn't ready for the time my body needed to heal between everything, now I am just thankful I have people to talk to as I recover. #patientchat
Robin R @rhrousu
@richardzhao That is a really good point. Medical folks educate the patient, then the burden is on the patient to educate and inform their family & caregivers. Even just a “so your spouse has gastroparsis” handout would have been nice. #patientchat
Patient Chat @patientchat
@JamesStiegler Congratulations James! #patientchat
Alan Brewington @abrewi3010
@H_SalemOaks For a long time I didn’t have health insurance. Dad said I was just spending my inheritance. #PatientChat
lillian lake @llake
@JamieRoger8 It is the worse. Not sure why. I gues we forget. We have a @subaru_usa Crosstrek. It loves the snow. It lives for a challenge! 😅☃️#patientchat
Jamie Roger @JamieRoger8
@KenRayTaylor I don't know if you should downplay your role like that "only your spouse." I'm sure you and other spouses have been the rock, the deciding factor, and the main source of strength and love for a lot of people. #patientchat
lillian lake @llake
RT @LyndaGMitchell: T2- For me at the time, there was not good patient education, nor was there much literature (not that patients had acce…
Your GPS Doc, LLC @yourgpsdoc
T5: There is no treatment per se for vascular dementia, so support for my dad was the same and primarily consisted of being his voice when necessary and ensuring he was safe and getting appropriate care for all of his other chronic medical conditions. #patientchat
lillian lake @llake
RT @LyndaGMitchell: T1 - It's sad to see how hard it was for all of us to get that initial support and resources that we really needed when…
Barby Ingle 📣 @BarbyIngle
@patientchat T5. We have settled into a routine and now flares are even more easy to deal with, we all have our responsibilities and make the best of each moment, even when it is a bad moment. We make it through together. #patientchat #NERVEmber
ReedsBooks @LReedsbooks
@patientchat T5 Did you find that support that had been available to you at the beginning is no longer available or useful? #patientchat
Melissa VanHouten @melissarvh
T5 Extended family has become less involved, though not less caring. Life goes on. I find I do not need as much outside support now, as I am more aware & have adjusted to a large extent. Groups still major support system, though, as are disease-related nonprofits. #PatientChat
Jamie Roger @JamieRoger8
@llake @subaru_usa Do you love it? We are looking at a bigger @subaru_usa . I used to have a @Jeep #wrangler and I LOVED it, but we wanted something that a family could grow into a bit. #patientchat #newcar #suggestions
lillian lake @llake
@LyndaGMitchell It is. And frightening. And maddening. When you have a dx that no one understands it's hard - harder still is to have no dx because no one knows what is wrong. Support is even more essential. And that also means if you don't know, admit it, don't abuse the patient. #patientchat
Patient Chat @patientchat
Topic 6 (T6:) coming up... https://t.co/59gUTDyVjf #patientchat
Barby Ingle 📣 @BarbyIngle
@JamieRoger8 @KenRayTaylor I take his opinion as my caregiver and rely on him physically, but in the end, I have to be ok with whatever it is that is going to be done to/with me/my body #patientchat #NERVEmber
Jamie Roger @JamieRoger8
@JamesStiegler @patientchat congrats on being #cancerfree . I hope it stays that way. #patientchat
Patient Chat @patientchat
T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or online community – played for you in the course of treatment? #patientchat https://t.co/Vq0ezS2dWM
James Stiegler @JamesStiegler
@LReedsbooks @angelee828 @patientchat I just smiled and said thank you. 🙂 I had my treatment plan and I needed to focus on healing and ignore the distractions. #patientchat
Ken Taylor @KenRayTaylor
T5: Support has gotten better but less of a need. You cant go back and set the expectations of your diagnosis. Now we just try to educate those who want to hear it and be nice to those who dont. Keep yourself in a good place mentally and physically. #patientchat #nervember
lillian lake @llake
@JamieRoger8 @subaru_usa @Jeep We absolutely love it! It has been through some major blizzards. It's been reliable. When rarely needed @subaru_usa service has been dependable & reliable. They have several supportive programs. Healthcare could take a page from them! 😅#patientchat
Jamie Roger @JamieRoger8
@BarbyIngle @KenRayTaylor Of course, I just meant that his support was probably invaluable to you. Just as my treatment would have been MUCH different without the support of my spouse. #patientchat
Vera Rulon FAHIMA @vrulon
T6: Online "tribes" are there when you need them. Communities, advocacy organizations not only raise areas where healthcare needs to improve, but more importantly empower us to advocate for ourselves. #patientchat
Patient Empowerment @power4patients
RT @patientchat: T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or onl…
Richard Zhao @richardzhao
@rhrousu Most support patients get are from direct family members or close friends. But, how care takers to know what to expect without medical knowledge? #PatientSentiment is my solution by interpreting patients reviews #patientchat
lillian lake @llake
RT @patientchat: T5: How has support changed for you from the time of diagnosis through treatment? #patientchat https://t.co/Wsg2rcCQxr
Jamie Roger @JamieRoger8
RT @llake: @JamieRoger8 @subaru_usa @Jeep We absolutely love it! It has been through some major blizzards. It's been reliable. When rarely…
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
Caregivers need to take care of themselves too. I know research regarding managing food allergies shows decreased QoL for the parents, not just the kids, I don't think we can forget about how caregivers need to put the proverbial oxygen mask on first! #patientchat
Your GPS Doc, LLC @yourgpsdoc
T6: I truly believe my dad would have died on several occasions had I not been there with my medical knowledge to intervene. I have many doctor friends with similar experiences. This scares me tremendously, as I know most don’t have this benefit. #patientchat 1/2
lillian lake @llake
@patientchat T5 T1 Friends are starting to understand. At first many were in disbelief, then when they understood it was real, they were uncomfortable & distant out of fear. Now they're coming together helpfully. #patientchat
lillian lake @llake
RT @BarbyIngle: @patientchat T5. We have settled into a routine and now flares are even more easy to deal with, we all have our responsibil…
Your GPS Doc, LLC @yourgpsdoc
T6: I also know that MANY patients become educated about their condition and serve as strong advocates for themselves. I take my hat off to all of you. 2/2 #patientchat
lillian lake @llake
RT @LyndaGMitchell: Food allergy management is mostly lifestyle management to avoid life-threatening allergic reactions and injecting with…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T1: What types of support, if any, did you have when you were first diagnosed? #patientchat https://t.co/QWjxdftVKy
Cameron J. Navy @navy_cameron
RT @patientchat: T1: What types of support, if any, did you have when you were first diagnosed? #patientchat https://t.co/QWjxdftVKy
Cameron J. Navy @navy_cameron
RT @JamesStiegler: @patientchat A2 - it was so valuable to be able to reach out to #clinicalresearch scientists and oncologists to hear the…
Melissa VanHouten @melissarvh
T6 Cannot overestimate its importance! I advocate for myself & for my #Gastroparesis community. Physical & emotional "payoffs" of that are beyond compare. Helps me get best possible care but, more significantly, adds meaning & purpose to my life again. #PatientChat
Cameron J. Navy @navy_cameron
RT @JamesStiegler: @patientchat A4 - I had a rare type of #cancer, and there wasn't a lot of research on it aside from 1 paper written 4 ye…
Patient Empowerment @power4patients
@patientchat Don't forget to join our Empowered #patientchat Facebook Group. It's a companion to #patientchat and has become a tremendous resource for patients, care partners, families and friends https://t.co/uz0MeaHV0d #patientchat
Jeremy Murphy @jeremypmurphy
@patientchat A1: Very little if any in the 1970s. It was just my doctor and my family/parents. #patientchat
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
T5 I've found that the need for support waxes and wanes as you move through your diagnosis and treatment journey. Also, as you become more empowered, you might get involved in other ways like advocacy (think of Maslow's hierarchy). #patientchat
Jamie Roger @JamieRoger8
I actually started my role with @salemoaks right before everything started & I was blessed to have joined a community of #patients #advocates & #healthcare #professionals that all seemed to guide or support me in some way. learning about #advocacy helped me heal. #patientchat
Barby Ingle 📣 @BarbyIngle
T6. I had sea legs in the beginning when it came 2 advocacy. I just did what I was told, didnt ask ?s, Got horrible tx & incorrect dx, over & over. Being an advocate has given me responsibility, strength n my care & been helpful 4 self & others long-term. #patientchat #NERVEmber
Alan Brewington @abrewi3010
A6 my advocacy has changed into storytelling, sharing my story. I want/need friendship and support right now, sharing my story forces me to be vulnerable which hopefully will led to deeper relationships #patientchat
Ken Taylor @KenRayTaylor
T6: Advocacy is very important as it is a way to educate the masses and many times you find great leaders that #haveTheNerveToBeHeard helping your cause. Its a way to find empowerment and start conversations that create self worth when you feel worthless. #patientchat #nervember
Patient Empowerment @power4patients
RT @abrewi3010: A6 my advocacy has changed into storytelling, sharing my story. I want/need friendship and support right now, sharing my st…
Vera Rulon FAHIMA @vrulon
@BarbyIngle Now THAT's what we're talking about!!! #patientchat #awesome
lillian lake @llake
@patientchat T4 I probably wouldn't be here today. I was supported in my determination to not just exist, but to thrive. Typical healthcare made me feel like they hated me bec. I was a challenge. Holistic support was was about the whole of me & meeting me where I was #patientchat
ReedsBooks @LReedsbooks
RT @power4patients: @patientchat Don't forget to join our Empowered #patientchat Facebook Group. It's a companion to #patientchat and has b…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T2: How do you think having/not having support at the time of diagnosis impacted your decisions or course of treatment? #p
Angela Cohen @angelee828
@LReedsbooks @patientchat IMO I feel like it comes from a good place most times. I met someone who found out I had multiple chronic illnesses, & her 1st response was to tell me 2 cut out gluten & then say “well at least you’re pretty!”🤦🏻‍♀️ I laughed it off bc she just didn’t know what to say. #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T4: Very important having support even if its only your spouse. Its easy to feel like nobody believes you. As a caregiver…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T5: Support has gotten better but less of a need. You cant go back and set the expectations of your diagnosis. Now we jus…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T6: Advocacy is very important as it is a way to educate the masses and many times you find great leaders that #haveTheNe
lillian lake @llake
@JamesStiegler @patientchat Applauding your amazing courage and success. Thank you for sharing and still being here. #patientchat https://t.co/qe0yvS66Rm
Patient Chat @patientchat
RT @BarbyIngle: T6. I had sea legs in the beginning when it came 2 advocacy. I just did what I was told, didnt ask ?s, Got horrible tx & in…
Jeremy Murphy @jeremypmurphy
@patientchat A2: It put more of the burden on me as an asthmatic. In someways it strengthened my determination to be more healthy and find holistically healthy ways to do that. #patientchat
Jamie Roger @JamieRoger8
@abrewi3010 And you are doing a wonderful job of opening up and being vulnerable. I truly believe #storytelling is the first step in #healing and opening up. #friends #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: @patientchat T5. We have settled into a routine and now flares are even more easy to deal with, we all have our responsibil…
International Pain Foundation® @powerofpain
RT @BarbyIngle: @JamieRoger8 @KenRayTaylor I take his opinion as my caregiver and rely on him physically, but in the end, I have to be ok w…
lillian lake @llake
RT @BarbyIngle: T6. I had sea legs in the beginning when it came 2 advocacy. I just did what I was told, didnt ask ?s, Got horrible tx & in…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T6. I had sea legs in the beginning when it came 2 advocacy. I just did what I was told, didnt ask ?s, Got horrible tx & in…
Ken Taylor @KenRayTaylor
@JamieRoger8 Sorry, i meant "only" to be "1" as that 1 can be the most important person in your life. Just to clarify. #patientchat
Jamie Roger @JamieRoger8
@angelee828 @LReedsbooks @patientchat That is awful. Period. #shocked #patientchat
ReedsBooks @LReedsbooks
@patientchat CT - One thing I take away froom today's discussion is that advocacy and support during a health challenge is very fluid. When support is there for us -- it gives us the courage and strength to move forward. #patientchat
lillian lake @llake
@patientchat T6 Self-advocacy can be draining when you're seriously ill. This is when another advocacy is essential - sharing the burden. Then as you strengthen, self-advocacy can be empowering & exciting. #patientchat
Barby Ingle 📣 @BarbyIngle
CT: Advocacy is important. Support is needed from everyone involved. Have a great week everyone! Happy Thanksgiving! #patientchat #nervember
Patient Chat @patientchat
@WankumTracy Hi Tracy! Follow along by clicking #patientchat and choosing the 'Latest' feature on the menu. And be sure to include #patientchat in all your tweets :) Here's a good blog explaining how to join: https://t.co/5JyoTGvZvH
lillian lake @llake
RT @yourgpsdoc: T6: I also know that MANY patients become educated about their condition and serve as strong advocates for themselves. I ta…
Jamie Roger @JamieRoger8
@KenRayTaylor Makes a bit more sense now. I'm glad you realize your importance in this fun journey of life and healing and finding comfort. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Angela Cohen @angelee828
@LReedsbooks @JamesStiegler @patientchat Depends on the circumstances. If it happens often from the same person, I politely thank them for their information but I have a great team in place that I work closely with. If they’re giving inaccurate info, I may suggest where they can get accurate info #patientchat
Patient Chat @patientchat
RT @llake: @patientchat T6 Self-advocacy can be draining when you're seriously ill. This is when another advocacy is essential - sharing th…
Patient Chat @patientchat
Thanks so much @LReedsBooks for sharing your insights and being our guest for today’s #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour
Jamie Roger @JamieRoger8
@BarbyIngle Happy Thanksgiving! Hope you have a great weekend of celebration and love! Happy Birthday!! #patientchat
James Stiegler @JamesStiegler
@patientchat A6 - I had a hard time finding other #cancer patients that I could relate to and discuss the issues that were concerning to me during and after treatment. It made me feel alone and confused. Plus, my doctor told me to avoid going online 😬 #patientchat
lillian lake @llake
@yourgpsdoc T6 I can feel this to the core. I am sorry. It begs the question of why this situation exists. I believe recourse begins in medical school - but even before through compassion acknowledgement through life. #patientchat
ReedsBooks @LReedsbooks
@patientchat @power4patients CT - Thanks Kara for leading our discussion today. I found it both interesting and helpful. #patientchat
Vera Rulon FAHIMA @vrulon
@patientchat @power4patients Thank you! Singing off. Work to do!!! Another great chat. #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour
Patient Chat @patientchat
SCHEDULE NOTE: The next Empowered #patientchat will be Friday, December 14th https://t.co/71CyoklrGa. Hope to see you there!
Barby Ingle 📣 @BarbyIngle
@JamieRoger8 Thanks so much! Happy Thanksgiving and Best wishes @JamieRoger8! #patientchat #nervember
lillian lake @llake
RT @patientchat: Thanks so much @LReedsBooks for sharing your insights and being our guest for today’s #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: SCHEDULE NOTE: The next Empowered #patientchat will be Friday, December 14th https://t.co/71CyoklrGa. Hope to see you ther…
lillian lake @llake
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Patient Chat @patientchat
.@power4patients is running a photo contest where you can share your photo in 3 empowerment categories for a chance to win a prize! Find out more here: https://t.co/P08CXPNoOF. Submit your photos using #PENBeEmpowered or by emailing admin@powerfulpatients.org #patientchat https://t.co/OhO9RdQI3r
lillian lake @llake
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Lynda Mitchell, MA, RHIA, CAE @LyndaGMitchell
Thank you to everyone! #patientchat
lillian lake @llake
RT @patientchat: T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or onl…
Your GPS Doc, LLC @yourgpsdoc
Absolutely, Lillian. I will say that in many cases it is not a lack of compassion but a lack of appropriate time and attention due to the SYSTEM of healthcare. #patientchat
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Jamie Roger @JamieRoger8
Hope everyone has a wonderfuL #thanksgiving !! Thank you @patientchat for a lovely discussion once again. #patientchat
Jeremy Murphy @jeremypmurphy
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Jeremy Murphy @jeremypmurphy
RT @patientchat: SCHEDULE NOTE: The next Empowered #patientchat will be Friday, December 14th https://t.co/71CyoklrGa. Hope to see you ther…
Jeremy Murphy @jeremypmurphy
RT @patientchat: .@power4patients is running a photo contest where you can share your photo in 3 empowerment categories for a chance to win…
Jeremy Murphy @jeremypmurphy
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour
Jeremy Murphy @jeremypmurphy
RT @patientchat: T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or onl…
Jeremy Murphy @jeremypmurphy
RT @patientchat: T5: How has support changed for you from the time of diagnosis through treatment? #patientchat https://t.co/Wsg2rcCQxr
Jeremy Murphy @jeremypmurphy
RT @patientchat: T4: How do you think having support during treatment had an impact on your decisions or the course of treatment? #patientc
Jeremy Murphy @jeremypmurphy
RT @patientchat: T3: During treatment what type of support have you had? #patientchat https://t.co/2EXjTFrOdK
Cameron J. Navy @navy_cameron
RT @JamesStiegler: @patientchat A6 - I had a hard time finding other #cancer patients that I could relate to and discuss the issues that we…
James Stiegler @JamesStiegler
@patientchat CT - support from the medical and #clinicalresearch communities and advocacy groups pay huge dividends in helping to clear the clutter and give patients the clarity and strength to continue their treatments #patientchat
#patientchat content from Twitter.