#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empower patients.
Patient Empowerment Network @power4patients
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empower patients.
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Empowerment Network @power4patients
Hey all! Kara from @power4patients here and looking forward to the last #patientchat of 2021!
Patient Chat @patientchat
Happy Friday! I’m Nykema from @power4patients and I’m looking forward to our last #patientchat of 2021- can you believe it?
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
@DHealthhub @power4patients Always happy to have you, Jemela! #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat
Patient Empowerment Network @power4patients
Hi Jemela, Happy Friday! #patientchat
Patient Chat @patientchat
Today's #PatientChat is an “A Year in Review: Looking Back on 2021 and Ahead to 2022." https://t.co/XiycMrAYf1
Alan Brewington @abrewi3010
Alan sort of here. Currently trying to balance neck pain with work with participating in todays #patientchat. Here are some more photos from my photography hobby/pain distraction. https://t.co/nIt1YSgq3W
Memej99-SickleCellLifeOfMemej @Memej99
I'm joining today's #PatientChat! Are you? We're starting!! 👇🏿
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of your answer - hard to remember but helpful #patientchat
Patient Empowerment Network @power4patients
Wow these are beautiful Alan! #patientchat
Diverse Health Hub @DHealthhub
@power4patients Hi!! Happy Friday to you too!😊 #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Patient Chat @patientchat
T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2022? #patientchat https://t.co/blD2La83yB
Patient Empowerment Network @power4patients
RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2022? #patientchat https://t.co/blD2La83yB
Alan Brewington @abrewi3010
@power4patients Thank you 🙏 #patientchat
Patient Empowerment Network @power4patients
T1: At PEN, we’re excited to have expanded into new disease areas, added more Network Managers, and produced more patient programs than ever #patientchat
Alan Brewington @abrewi3010
T1 I’ve become much more consistent at taking my work breaks in order to help both my mental and physical health. Have a bad habit of working through breaks/lunch. #patientchat
Diverse Health Hub @DHealthhub
@patientchat T1:For my personal Empowered Patient Year in Review, I’m proud that I’ve been more in charge of my medical records, my medications and that I’ve just become more in charge of my health in general and learning more about my disease. #patientchat
Patient Chat @patientchat
@abrewi3010 Taking time for yourself is always so important, but seems like the easiest thing to neglect. #PatientChat
Patient Empowerment Network @power4patients
RT @patientchat: @abrewi3010 Taking time for yourself is always so important, but seems like the easiest thing to neglect. #PatientChat
Alan Brewington @abrewi3010
T1 for 2022 I would like to regain control of the paperwork. I spend all day at work dealing with paperwork, the last thing I want to do after work is more paperwork. Especially true these last 3 years with my new heart issues, 2nd neck surgery, and dad dying #patientchat
Patient Chat @patientchat
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2022? #PatientChat https://t.co/qAIDpWSL4B
Patient Empowerment Network @power4patients
RT @patientchat: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2022? #PatientChat https://t.co/qAIDpWSL4B
Patient Chat @patientchat
@DHealthhub Love to hear that! #PatientChat
Patient Chat @patientchat
#PatientChat
Alan Brewington @abrewi3010
@patientchat Ironically, for a lack of a better term, responsiblilies and personal time are often opposing forces. Taking/acceptance of responsibility can lead to destructive personal time #patientchat
Diverse Health Hub @DHealthhub
@patientchat T2: A lot! I wish I’d have been able to travel more but that wasn’t possible. I plan to start some things I’ve been procrastinating about, maybe blogging, more advocacy, some things in the works coming up! #patientchat
Patient Chat @patientchat
@abrewi3010 Always appreciate your transparency during #PatientChat, Alan. I really hope you achieve everything you desire in 2022!
Alan Brewington @abrewi3010
T2 wishing I would have risked (in spite of #covid) a vacation, even if it was just to the next town over. Need a break/change a scenery. #patientchat
Patient Chat @patientchat
@DHealthhub Things in the works!? Sounds exciting 😊 #PatientChat
Alan Brewington @abrewi3010
@patientchat Thank you! Always trying to become a better storyteller. #patientchat
Patient Chat @patientchat
T3: Which healthcare trends were important to you in 2021? What trends would you like to see gain momentum? #PatientChat https://t.co/3HPWm0lh4z
Patient Empowerment Network @power4patients
RT @patientchat: T3: T3: Which healthcare trends were important to you in 2021? What trends would you like to see gain momentum? #PatientChat https://t.co/3HPWm0lh4z
Alan Brewington @abrewi3010
T2 I want to try snowshoeing. Despite being a ski bum I’ve never tried that. #patientchat
Patient Empowerment Network @power4patients
T3: Telemedicine was still huge in 2021, and now I hope that continues so everyone can have access to quality care #patientchat
Alan Brewington @abrewi3010
T3 I think the world of patient advocacy as exploded with new and talented people. I would like to see a return/renewed discussion about basics like storytelling & content creation. Let’s make sure the basics are dynamically updated. #patientchat
Alan Brewington @abrewi3010
RT @power4patients: T3: T3: Telemedicine was still huge in 2021, and now I hope that continues so everyone can have access to quality care #patientchat
Patient Chat @patientchat
@abrewi3010 Snowshoeing? I've never heard of that, but then again I've also never been skiing. Maybe I should add that to my 2022 list as well! #PatientChat
Patient Chat @patientchat
RT @power4patients: T3: T3: Telemedicine was still huge in 2021, and now I hope that continues so everyone can have access to quality care #patientchat
Diverse Health Hub @DHealthhub
@patientchat T3:I think the rise in telehealth, remote patient monitoring and digital wearables are 3 of the important ones that I really paid attention to and that are here to stay and will continue to gain momentum bc people want convenience, now more than ever. #patientchat
Diverse Health Hub @DHealthhub
RT @power4patients: T3: T3: Telemedicine was still huge in 2021, and now I hope that continues so everyone can have access to quality care #patientchat
Patient Chat @patientchat
RT @DHealthhub: @patientchat T3:I think the rise in telehealth, remote patient monitoring and digital wearables are 3 of the important ones that I really paid attention to and that are here to stay and will continue to gain momentum bc people want convenience, now more than ever. #patientchat
Alan Brewington @abrewi3010
T3 we need to work on getting more patients involved in public health & government. This would be everything from local boards to elected positions #patientchat
Patient Chat @patientchat
T4: What topics are you passionate about and would like to hear more of in 2022? What guest host would you like to see? #PatientChat https://t.co/cPOlZR0udN
Patient Empowerment Network @power4patients
RT @patientchat: T4: T4: What topics are you passionate about and would like to hear more of in 2022? What guest host would you like to see? #PatientChat https://t.co/cPOlZR0udN
Patient Chat @patientchat
RT @abrewi3010: T3 we need to work on getting more patients involved in public health & government. This would be everything from local boards to elected positions #patientchat
Diverse Health Hub @DHealthhub
@patientchat T4:I think everyone knows I’m passionate about sickle cell disease, so it’d be great to hear about that, but I’d love to hear more about renal medullary carcinoma, because it disproportionately affects POC and you never hear enough about it. #patientchat
Alan Brewington @abrewi3010
T4 potential guest hosts - @nickdawson & @dennisjboyle to discuss design thinking. Patient leaders like @danamlewis @emilykg1 @ProstheticMedic @terriwingham @stales @Nisha_Pradhan @verylightnosuga would make great guest hosts #patientchat
Patient Chat @patientchat
@Madvocator Yes, I'm happy that conversations about bias and equity are coming to the forefront. Happy you will be continuing the work into 2022! #PatientChat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat
Patient Chat @patientchat
@abrewi3010 @nickdawson @dennisjboyle @danamlewis @emilykg1 @ProstheticMedic @terriwingham @stales @Nisha_Pradhan @verylightnosuga Really appreciate all those suggestions, Alan! Hoping we can all work together in 2022 #PatientChat
Diverse Health Hub @DHealthhub
@patientchat T4a: It would be great to hear from a guest who’s living with RMC. #patientchat
Patient Chat @patientchat
@DHealthhub Love that suggestion! Will make sure to keep that in mind. Thank you, Jemela. #PatientChat
Patient Chat @patientchat
@Madvocator Love all of that, Nikki! I've recently been looking into disparities associated with pediatric to adult transitions in care. I never realized there was so much need there. #PatientChat
Alan Brewington @abrewi3010
CT Covid bites the big one. We are all tired, frustrated, & scared just to name a few states of emotion. However we have still earned a right to a high quality of life. Yes the path to QOL has changed, but not the right. Important to remember. #patientchat
Alan Brewington @abrewi3010
CT to put it another way, it’s still ok to be ok too. #patientchat
Patient Chat @patientchat
RT @abrewi3010: CT Covid bites the big one. We are all tired, frustrated, & scared just to name a few states of emotion. However we have still earned a right to a high quality of life. Yes the path to QOL has changed, but not the right. Important to remember. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime
Diverse Health Hub @DHealthhub
@patientchat CT: I’m always happy to be able to come back to #patientchat! Looking back, I realize I accomplished much more than I thought I did and there is much to look forward to and much to learn, but stepping out of your comfort zone is how you learn!😊 #patientchat
Patient Chat @patientchat
Cheers to another year of #PatientChat! There will be no chat on 12/24 due to the holidays, but we are looking forward to seeing everyone in 2022!
#patientchat content from Twitter.