#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
Hey hey hey! Casey Q aka the Mighty Mouth here thru the magic of scheduled tweets. Hanging w/a buddy today for our holiday get-together, wanted to participate in #patientchat tho.
Patient Empowerment Network @power4patients
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Empowerment Network @power4patients
RT @patientchat: You can find the topics we'll cover on todayโ€™s Empowered #patientchat here: You can find the topics we'll cover on todayโ€™s Empowered #patientchat here: https://t.co/E8vRChPOUP https://t.co/OHTqnHTxMi
Patient Chat @patientchat
Iโ€™m Kara from @power4patients and Iโ€™m excited to be moderating the last #patientchat of 2019
Patient Empowerment Network @power4patients
RT @patientchat: Hereโ€™s an article with more tips for participating in tweet chats: Hereโ€™s an article with more tips for participating in tweet chats: https://t.co/5JyoTGvZvH #patientchat
Carly Flumer (she/her) @carlyflumer
Iโ€™m Carly, trying to be a regular of #patientchat. :)
Patient Chat @patientchat
Please continue intros and welcomes. Iโ€™ll share a couple โ€œground rules" :) #patientchat
Patient Chat @patientchat
Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history.
laminopathies support group @laminopathies
Hi, Mary Mack, patient advocate for laminopathies and passionate protester against health care/pharmaceutical price-gouging. #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/mKfy3dIc2W #patientchat
Salem Oaks @SalemOaks
@K_SalemOaks from CT today. We are committed to helping people understand biophjama R&D. #patientchat #pinksocks
Patient Chat @patientchat
Today's #patientchat topic is A Year in Review: Looking back on 2019 and Ahead to 2020 https://t.co/btsj1qF6XI
Salem Oaks @SalemOaks
@K_SalemOaks and spelling too **biopharma** #patientchat
Alan Brewington @abrewi3010
Alan here. Recovering from another cardio ablation from my couch. #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat #patientchat
Patient Chat @patientchat
T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat https://t.co/90r7H0yUUO
Inspire @InspireIsHealth
RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat https://t.co/90r7H0yUUO
Patient Empowerment Network @power4patients
RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat https://t.co/90r7H0yUUO
Inspire @InspireIsHealth
Hello to #patientchat, and Happy Holidays. John Novack here from Inspire.
Kevin Freiert @K_SalemOaks
A1: Proudest that I became a grandpa! #patientchat #pinksocks @SalemOaks
Carly Flumer (she/her) @carlyflumer
T1: Iโ€™m proud of remaining positive and being recognized as an advocate for other #cancer patients. #passion #patientchat
Seth Rotberg @Srotberg15
Stopping in to quickly say hello and Iโ€™m sad I wonโ€™t be able to participate in the #patientchat today. However my goal for next year is to try participating in more of these!
Seth Rotberg @Srotberg15
RT @carlyflumer: T1: T1: Iโ€™m proud of remaining positive and being recognized as an advocate for other #cancer patients. #passion #patientchat
J.B. et al., ๐Ÿ”ญ๐“† ๐ŸŒŠ @negronjb
RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat https://t.co/90r7H0yUUO
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A1: Proud of keeping my podcast @hilarious_is up'n'running. Latest w/@ePatientDave https://t.co/PQCbcuk7Ju Proud of being part of @BeLikeLight Proud of my ongoing blog contribution here on @power4patients #patientchat
Alan Brewington @abrewi3010
A1 despite severe mental and physical exhaustion Iโ€™m still fighting for my own quality of life. Each day Iโ€™m becoming more aware of my capabilities and capacity to continue #patientchat
Inspire @InspireIsHealth
RT @MightyCasey: A1: A1: Proud of keeping my podcast @hilarious_is up'n'running. Latest w/@ePatientDave https://t.co/PQCbcuk7Ju Proud of being part of @BeLikeLight Proud of my ongoing blog contribution here on @power4patients #patientchat
Carly Flumer (she/her) @carlyflumer
@Srotberg15 And growing @_OurOdyssey_!! #tribelife #patientchat
Salem Oaks @SalemOaks
Also proud of @ImDevPodcast Our 4th episode just came out. Scientist and Author Don Kirsch https://t.co/jTbzpB5wlL
Carly Flumer (she/her) @carlyflumer
@MightyCasey @hilarious_is @ePatientDave @BeLikeLight @power4patients Thatโ€™s so cool! Congrats! #patientchat
Melissa VanHouten @melissarvh
Most proud of our #Gastroparesis rally in DC. Amazing to gather with other community members who truly understand & support each other. Nothing else like it! #GPGreen2019 #CureGP #PatientChat
Carly Flumer (she/her) @carlyflumer
@abrewi3010 Yes! Learning about yourself is one of the best gifts you can have to be able to grow! #patientchat
Vera Rulon FAHIMA @vrulon
Vera here from NY. Sorry to be late!#patientchat A1: proud of = part of start up @ProximityHS engaging patients in clinical trials
Alan Brewington @abrewi3010
A1 my goals for 2020 is to get back in shape, learn to handle stress better, and write more. #patientchat
Melissa VanHouten @melissarvh
Still working on goals for 2020, but they certainly include more in-person events. #PatientChat
Our Odyssey @_OurOdyssey_
Perhaps we will try to participate in more of these #patientchat Twitter chats in 2020!
Salem Oaks @SalemOaks
A1 Also proud of @ImDevPodcast Our 4th episode is avaialble. Scientist and Author Don Kirsch. https://t.co/jTbzpB5wlL #patientchat #pinksocks https://t.co/TjXumTbZz1
Salem Oaks @SalemOaks
A1: Goal - test the idea of a Patients Included Rare Disease Incubator. #patientchat #pinksocks @SalemOaks
Salem Oaks @SalemOaks
A1: Goal: Deliver for @cureFA ambassador training project #patientchat #pinksocks @SalemOaks
Patient Chat @patientchat
Topic 2 (T2:) coming up... https://t.co/52iG5trkfU #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A1: in re @power4patients work product, the latest! https://t.co/Od86R733IV #patientchat
Patient Empowerment Network @power4patients
RT @SalemOaks: A1 Also proud of @ImDevPodcast Our 4th episode is avaialble. Scientist and Author Don Kirsch. https://t.co/jTbzpB5wlL #patientchat #pinksocks https://t.co/TjXumTbZz1
Vera Rulon FAHIMA @vrulon
Goals for 2020: take better care of my own health, keep pushing to ensure #patients' participation in design, own care, healthcare team #patientchat
Patient Empowerment Network @power4patients
RT @MightyCasey: A1: A1: in re @power4patients work product, the latest! https://t.co/Od86R733IV #patientchat
Salem Oaks @SalemOaks
A1: Goal: Build on @ImDevPodcast and start a new, more patient-focused podcast. Stay tuned for more! #patientchat #pinksocks @SalemOaks
laminopathies support group @laminopathies
T1 proud of my work with patient advocacy groups (that donโ€™t accept pharma $) to help put an end to pharmaceutical price gouging. Still a work in progress for 2020... #patientchat
Patient Chat @patientchat
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2020?#patientchat https://t.co/H6jCmOPvc3
Patient Empowerment Network @power4patients
RT @patientchat: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2020?#patientchat https://t.co/H6jCmOPvc3
Vera Rulon FAHIMA @vrulon
A2: This year - more advocacy @S4PM. 2020: new - start a new blog leveraging my #artbyvera creations #patientchat
Patient Empowerment Network @power4patients
A1: Speaking on behalf of PEN, we're so incredibly proud to have our Digital Sherpa Program featured in @OncologyNursing To have a program that help empower both nurses AND patients makes our year! https://t.co/F1C2gT9csL #patientchat
Alan Brewington @abrewi3010
A2 I wish I would have got help for dads death. Iโ€™m still hurting from that incident #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A2: Wish #epatient + #patientsincluded movements were making more inroads in institutional culture. In re 2020, plan on continuing to bring thunder/point out issues/offer solutions at volume. #dataprivacy also BIG front line for me. I'm ๐Ÿ”ฅ even on slow days ๐Ÿคฃ #patientchat
Patient Empowerment Network @power4patients
RT @MightyCasey: A2: A2: Wish #epatient + #patientsincluded movements were making more inroads in institutional culture. In re 2020, plan on continuing to bring thunder/point out issues/offer solutions at volume. #dataprivacy also BIG front line for me. I'm ๐Ÿ”ฅ even on slow days ๐Ÿคฃ #patientchat
Alan Brewington @abrewi3010
@power4patients @patientchat Thank you ๐Ÿ™ #patientchat
Patient Empowerment Network @power4patients
@abrewi3010 I lost my Mom a few years ago and wish I would have gotten more help as well #patientchat
Alan Brewington @abrewi3010
A2 I would love to expand my design thinking skills/experiences in 2020. Also would like to learn to teach it so I could bring it to government and policy innovation. #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up... https://t.co/52iG5trkfU #patientchat
Kevin Freiert @K_SalemOaks
@power4patients @abrewi3010 Not to pry, what types of help? #patientchat
Seth Rotberg @Srotberg15
@abrewi3010 Thatโ€™s great to hear and definitely takes time to get into the routine of things. Itโ€™s important to take time out of each day for yourself. #patientchat
Salem Oaks @SalemOaks
A2: Talked to even more patients, parents, and caregivers than we did. #patientchat #pinksocks @SalemOaks
Patient Chat @patientchat
T3: Which healthcare trends were important to you in 2019? What trends would you like to see gain momentum? #patientchat https://t.co/4qleMGk6G3
Alan Brewington @abrewi3010
@power4patients To often we assume coping as being healthy or recovering. #patientchat
Melissa VanHouten @melissarvh
I always reflect on what I could not accomplish & what I could have done differently/better to make our #Gastroparesis advocacy efforts more effective, & I am always looking for something new & innovative that will lead to greater awareness & beneficial change. #PatientChat
Patient Empowerment Network @power4patients
A2: We operate on the premise of no regrets. Could we have done better in 2019, of course! Did we work our tails off to move PEN's mission forward, we sure did! Will we strive to do better in 2020, you bet we will! #patientchat
Salem Oaks @SalemOaks
A3: The emergence of real hope with gene therapy. Progress is being made and knowledge accumulating. #patientchat #pinksocks @SalemOaks
Alan Brewington @abrewi3010
@K_SalemOaks @power4patients Mental and physical, anything to help me adjust to my new health situation. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T3: T3: Which healthcare trends were important to you in 2019? What trends would you like to see gain momentum? #patientchat https://t.co/4qleMGk6G3
Carly Flumer (she/her) @carlyflumer
T3: Improved #healthliteracy, education, and improved patient-provider communication (but thatโ€™s kind of my life goal!) #patientchat
laminopathies support group @laminopathies
T3 Doctors are starting to come out more, protesting publicly against healthcare injustices: price-gouging, surprise billing, hospitals suing poor patients, etc #patientchat. Hoping for more docs@join the fight and eventually all in 2020 @MartyMakary
Patient Empowerment Network @power4patients
A3: We're going to spend a significant time in 2020 helping patients & care partners understand #genomictesting & #biomarkertesting and how critical it is to have the proper testing done (sometimes more than 1x) to be matched w/ the right #precisionmedicine treatment #patientchat
Two Faces of MS ๐Ÿ’‹ @TwoFacesofMS
@patientchat My goals are to speak on things like drug pricing, big issues with PBMs, & cost of healthcare overall #patientchat
GinaMcGalliard ๐Ÿงœ๐Ÿปโ€โ™€๏ธ๐ŸŒน๐ŸŒ• @GinaMcGalliard
RT @power4patients: A3: A3: We're going to spend a significant time in 2020 helping patients & care partners understand #genomictesting & #biomarkertesting and how critical it is to have the proper testing done (sometimes more than 1x) to be matched w/ the right #precisionmedicine treatment #patientchat
Alan Brewington @abrewi3010
A3 I like @project_sleep campaign of โ€œyou are not aloneโ€. We need more campaigns like this. Big data, clinical trials, AI are isolating, we need to combat this. #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up... https://t.co/52iG5trkfU #patientchat
Patient Chat @patientchat
T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2020? #patientchat https://t.co/HTg3We06Eu
Melissa VanHouten @melissarvh
Increase in # of physicians (GIs), organizations, & other healthcare players seeking interaction w/patients on social media, & I'm hoping this trend continues. We appreciate the efforts of groups like @ANMSociety @AmerGastroAssn & @RomeFoundation reaching out to us. #PatientChat
Melissa VanHouten @melissarvh
Oh, I love #telehealth & #healthtech in general! More, please! #PatientChat
Alan Brewington @abrewi3010
A4 elections, both locally and nationally, are going to be incredibly important to patients this year. We need to increase engagement and participation of patient advocates in politics. #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A3: battle for patient privacy in age of surveillance capitalism has become central mission for me, i.e. @BeLikeLight Stopped using FB as pers-profile because of it: https://t.co/6oAuQofhkX #dataprivacy #belikelight #cyberwoke #patientchat
Heather McCullen @H_SalemOaks
RT @abrewi3010: A4 elections, both locally and nationally, are going to be incredibly important to patients this year. We need to increase engagement and participation of patient advocates in politics. #patientchat
Carly Flumer (she/her) @carlyflumer
T4: I would say Iโ€™m passionate about patients being #advocates for themselves. However, I would like docs to take into account the emotional side of #oncology care (and not just the scientific side!). #patientchat
Patient Empowerment Network @power4patients
RT @carlyflumer: T4: T4: I would say Iโ€™m passionate about patients being #advocates for themselves. However, I would like docs to take into account the emotional side of #oncology care (and not just the scientific side!). #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T4: T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2020? #patientchat https://t.co/HTg3We06Eu
Carly Flumer (she/her) @carlyflumer
@melissarvh @ANMSociety @AmerGastroAssn @RomeFoundation I love seeing docs and other HCPโ€™s on Twitter and hearing their perspectives! #patientchat
Alan Brewington @abrewi3010
A4 we need to raise the debate of patient privacy, especially on platforms like Facebook. Patients own their data, not social media platforms #patientchat
Melissa VanHouten @melissarvh
I would love to see this in terms of emotional issues associated w/#digestive issues as well - although, we are beginning to notice a change. #PatientChat
Patient Empowerment Network @power4patients
RT @abrewi3010: A4 we need to raise the debate of patient privacy, especially on platforms like Facebook. Patients own their data, not social media platforms #patientchat
J.B. et al., ๐Ÿ”ญ๐“† ๐ŸŒŠ @negronjb
RT @patientchat: T4: T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2020? #patientchat https://t.co/HTg3We06Eu
Carly Flumer (she/her) @carlyflumer
@melissarvh Yay!! Iโ€™m so happy to hear that! #progress #patientchat
Vera Rulon FAHIMA @vrulon
A3: Sorry for phasing out for bit - work gets in the way! Trends 2019 - important to watch the trend of large orgs accessing and using #patient data, lack of privacy, don't ask permission. 2020 = #patient access to personal health data, empower, break down barriers #patientchat
Vera Rulon FAHIMA @vrulon
@abrewi3010 Couldn't agree more. Must get ownership clarified and resolved #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up... https://t.co/52iG5trkfU #patientchat
Patient Chat @patientchat
T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/SQO5vxYeX7
Vera Rulon FAHIMA @vrulon
@melissarvh T4: #access to personal health data, to healthcare #patientchat
Alan Brewington @abrewi3010
A4 we need more creative thinking regarding government healthcare payment models. Right now Medicaidโ€™s across the country are moving towards a budget based model with legislative approval. Not patient centered #patientchat
Vera Rulon FAHIMA @vrulon
A5: Empower people: #educate #access #kindness change #healthcare culture --- providers, pharma, PBMs, etc. #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A4: See previous re #dataprivacy and battle against Big Tech surveillance economy! Planted that flag on @power4patients - f'rinstance: https://t.co/Nkq81SEhG3 #patientchat #belikelight
Vera Rulon FAHIMA @vrulon
@abrewi3010 Yes. #patientchat
Patient Empowerment Network @power4patients
RT @abrewi3010: A4 we need more creative thinking regarding government healthcare payment models. Right now Medicaidโ€™s across the country are moving towards a budget based model with legislative approval. Not patient centered #patientchat
Salem Oaks @SalemOaks
A4: Actions that people have taken to make the world of healthcare better for patients. Real success stories. #patientchat #pinksocks @SalemOaks
Carly Flumer (she/her) @carlyflumer
T5: Volunteer! Do something you enjoy. I enjoy writing, so I write for myself, sometimes getting noticed by other orgs :) This helps me spread the patient voice, and I love it! #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T5: T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/SQO5vxYeX7
Alan Brewington @abrewi3010
A5 return to the basics of advocacy, making sure no one feels alone by using patient stories. We need to implement human centered solutions/ideas which will encourage more human centered resources #patientchat
Patient Empowerment Network @power4patients
RT @carlyflumer: T5: T5: Volunteer! Do something you enjoy. I enjoy writing, so I write for myself, sometimes getting noticed by other orgs :) This helps me spread the patient voice, and I love it! #patientchat
Salem Oaks @SalemOaks
A5: Grass roots face-to-face events. Look at the work @_OurOdyssey_ and #pinksocks are doing with simple meet-ups. #patientchat
J.B. et al., ๐Ÿ”ญ๐“† ๐ŸŒŠ @negronjb
RT @patientchat: T5: T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/SQO5vxYeX7
Melissa VanHouten @melissarvh
This is an ongoing issue. Collaboration must not simply mean patients working together; it must include docs, pharma, gov't players, nonprofits, etc. So many begin w/worthy goals & then stray from those for personal fame & profit. That must end. #PatientChat
Heather McCullen @H_SalemOaks
RT @melissarvh: This is an ongoing issue. Collaboration must not simply mean patients working together; it must include docs, pharma, gov't players, nonprofits, etc. So many begin w/worthy goals & then stray from those for personal fame & profit. That must end. #PatientChat
Patient Chat @patientchat
RT @melissarvh: This is an ongoing issue. Collaboration must not simply mean patients working together; it must include docs, pharma, gov't players, nonprofits, etc. So many begin w/worthy goals & then stray from those for personal fame & profit. That must end. #PatientChat
Alan Brewington @abrewi3010
A5 we must make sure all questions revolve around the idea of how might we...? The we builds human centered collaboration. #patientchat
Vera Rulon FAHIMA @vrulon
@melissarvh And change the darn culture... not easy but a "must do" #patientchat
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
A5: I commit to doing more to spread word abt @power4patients PARTIC that awesome Digital Sherpa program! https://t.co/k9s5t7IKRz #epatient #cancer #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Carly Flumer (she/her) @carlyflumer
@MightyCasey @power4patients Yes! What an amazing program!! #spreadtheword #patientchat
Melissa VanHouten @melissarvh
@GinaMcGalliard @patientchat I absolutely agree. And not as token participants, either. Genuinely value their input. Let us speak & not simply sit in the audience. #PatientChat
Vera Rulon FAHIMA @vrulon
CT: We should have this same convo early next year. Not enough time. In the meantime, will keep looking for opportunities of the most impact for #patients #patientchat
Vera Rulon FAHIMA @vrulon
@melissarvh @GinaMcGalliard @patientchat Exactly. While there are a few conferences that are starting to be more inclusive we have a long way to go! #patientchat
Grรกinne Daniels ๐Ÿ’™๐ŸŒˆ @grainne_daniels
This ๐Ÿ‘‡๐Ÿป. 100%
Mighty #HeathenSlut Casey๐Ÿ‡บ๐Ÿ‡ฆ๐ŸŒŸ @MightyCasey
CT: Best of all possible holiday seasons to ALL YOU GUYS!! Let's make 2020 the year that humanity wins vs surveillance capitalism ๐Ÿ˜œ #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime.
Alan Brewington @abrewi3010
CT if we donโ€™t combat feeling alone things like clinical trials, AI, big data will only be tools instead of life giving opportunities. #patientchat
Vera Rulon FAHIMA @vrulon
@MightyCasey Here, here! #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
J.B. et al., ๐Ÿ”ญ๐“† ๐ŸŒŠ @negronjb
RT @carlyflumer: T4: T4: I would say Iโ€™m passionate about patients being #advocates for themselves. However, I would like docs to take into account the emotional side of #oncology care (and not just the scientific side!). #patientchat
Patient Chat @patientchat
Thank you all for a great year of #patientchat! There will be no chat on 12/27 due to the holidays. We hope to see you again in 2020!
Our Odyssey @_OurOdyssey_
RT @SalemOaks: A5: A5: Grass roots face-to-face events. Look at the work @_OurOdyssey_ and #pinksocks are doing with simple meet-ups. #patientchat
Melissa VanHouten @melissarvh
Many thanks to @patientchat for hosting a year of engaging & educational chats! Wishing you all a beautiful holiday season and a new year full of success! #PatientChat
Melissa VanHouten @melissarvh
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
Patient Chat @patientchat
@melissarvh Thank you Melissa! Hope you have a great holiday as well :) #patientchat
Patient Chat @patientchat
If you have a topic in mind for a future #patientchat or would like to be a guest host in 2020, please let us know! :)
Amanda G @LAlupusLady
@patientchat CT it is important to share our stories while we support one another. Some people and organizations have different goals. Align yourself with those you trust and share your mission. #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: If you have a topic in mind for a future #patientchat or would like to be a guest host in 2020, please let us know! :)
J.B. et al., ๐Ÿ”ญ๐“† ๐ŸŒŠ @negronjb
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour.
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Enlightening Results ๐Ÿ’ก @GraceCordovano
RT @MightyCasey: A1: A1: Proud of keeping my podcast @hilarious_is up'n'running. Latest w/@ePatientDave https://t.co/PQCbcuk7Ju Proud of being part of @BeLikeLight Proud of my ongoing blog contribution here on @power4patients #patientchat
Sandra Rosenbluth @sanrosenb
RT @melissarvh: This is an ongoing issue. Collaboration must not simply mean patients working together; it must include docs, pharma, gov't players, nonprofits, etc. So many begin w/worthy goals & then stray from those for personal fame & profit. That must end. #PatientChat
#patientchat content from Twitter.