#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | RaquelRoschell @raquelonpurpose RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage w/others on the topic |
 | Mary MACK @MaryOCMack #patientchat |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s special #patientchat |
 | Chris Sarfaty @ChrisAug89 RT @power4patients: How and why should patients be included in design? Let's discuss Fri 2/23, 1pmET #patientchat https://t.co/fwsy6UHxB6 https://t.co/Ml0VNCKTwm |
| Patient Chat @patientchat This week’s #patientchat is a special one because we are trying something new! We want to publish a guide after the chat explaining how health care systems can include patients in the design and implementation of systems and processes |
 | Christina Lizaso @btrfly12 RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Richard Kreis @kreisr1 RT @patientchat: This week’s #patientchat is a special one because we are trying something new! We want to publish a guide after the chat explaining how health care systems can include patients in the design and implementation of systems and processes |
 | Jamie Holloway, PhD @jamienholloway Hi, I'm Jamie. Breast cancer scientist & patient advocate in the DC area. Clinical research advocate for @Science37x. #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Barby Ingle Official @BarbyIngle I am @BarbyIngle, Pres of @powerofpain, Amazon best selling author, & Reality Personality sharing my story about life-changing events that forced reflection & sprouted my journey From Wheels to Heals. Glad to be here today with all of you! #patientchat https://t.co/aC9TMUmo0F |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @GraceCordovano: A call-to-action for #PsychiatricAdvancedDirectives #MentalHealth @StuckonSW @KateLufkin1 #patientchat @savvy_coop @S4PM @BerylInstitute @boissyad @jasonawolf #hcldr @MedStartr https://t.co/Ky3GejsefL |
| Christina Lizaso @btrfly12 Hi all :) I'm passionate about community engagement and health. Find me tweeting at #gyncsm #patientchat #breakthroughcrew #nsgcgenepool |
| Patient Chat @patientchat Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar w/your medical needs and history |
| Christina Lizaso @btrfly12 RT @patientchat: This week’s #patientchat is a special one because we are trying something new! We want to publish a guide after the chat explaining how health care systems can include patients in the design and implementation of systems and processes |
| Richard Kreis @kreisr1 Hello, Trifecta Richard here. I care for myself, mom (cardiac) and BIL (Epilepsy). Looking to a great chat. #patientchat |
 | Marcela Musgrove @marcela RT @GraceCordovano: A call-to-action for #PsychiatricAdvancedDirectives #MentalHealth @StuckonSW @KateLufkin1 #patientchat @savvy_coop @S4PM @BerylInstitute @boissyad @jasonawolf #hcldr @MedStartr https://t.co/Ky3GejsefL |
| Richard Kreis @kreisr1 RT @patientchat: Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar w/your medical needs and history |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey <tap tap tap> IS THIS THING ON? Casey Q here, the Mighty Mouth, all about #healthliteracy + #science + #patientsincluded + #opendata. Loud. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
 | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private cancer patient advocate & #PtExp enhancer, joining from NJ. https://t.co/CAqbISEb0d |
| Enlightening Results 💡 @GraceCordovano @jamienholloway @Science37x Hey Jaime! Great to see you!#patientchat |
| Patient Chat @patientchat Today's #patientchat topic is How to Include Patients in Design https://t.co/orcg0zpcRH |
 | The Advocate Is In @TheAdvocateIsIn Hi. I'm Claire, patient advocate also in the DC area. #patientchat |
| Christina Lizaso @btrfly12 Note that the #patientchat in twitter seems off today. You might need to try joining the chat with a tool like https://t.co/PworuvY0vZ |
| Enlightening Results 💡 @GraceCordovano @btrfly12 @NLMdirector Hi Christina! Great topic today! #patientchat |
| Mary MACK @MaryOCMack Hello, my name is Mary. I'm a patient and advocate for laminopathy disorders. #patientchat |
| Jamie Holloway, PhD @jamienholloway @TheAdvocateIsIn Hi Claire! Good to see someone local! #patientchat |
| Richard Kreis @kreisr1 RT @jamienholloway: Hi, I'm Jamie. Breast cancer scientist & patient advocate in the DC area. Clinical research advocate for @Science37x. #patientchat |
 | Alan Brewington @abrewi3010 Hi all. Alan here. I see the world through my #rheum, #ChronicPain, and #mentalhealth eyes. I tell stories. #patientchat |
| Jamie Holloway, PhD @jamienholloway @GraceCordovano @Science37x Hi Grace! #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Today's #patientchat topic is How to Include Patients in Design https://t.co/orcg0zpcRH |
| Enlightening Results 💡 @GraceCordovano @MaryOCMack Nice to see you Mary! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @jamienholloway @Science37x HAAAAIIII!! I forgot to mention @Science37x myself - I also am a #clinicalresearch advocate for them. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: Hi all. Alan here. I see the world through my #rheum, #ChronicPain, and #mentalhealth eyes. I tell stories. #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
 | Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is How to Include Patients in Design https://t.co/orcg0zpcRH |
| Richard Kreis @kreisr1 RT @btrfly12: Note that the #patientchat in twitter seems off today. You might need to try joining the chat with a tool like https://t.co/PworuvY0vZ |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Marcela Musgrove @marcela Hi all. I aspire to do UX and am involved with mental health and autism advocacy so am excited about today's topic #patientchat |
 | Patient Critical Co-op @PatientCritical Hello PJ here for PatientCritical Co-op, Canada's only member-owned advocacy & education organization. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Christina Lizaso @btrfly12 @GraceCordovano @NLMdirector Been nice to be able to catch a few of these chats while I was on a brief break. Will miss it but so glad to make it for today's amazing topic. #patientchat |
| Richard Kreis @kreisr1 RT @MaryOCMack: Hello, my name is Mary. I'm a patient and advocate for laminopathy disorders. #patientchat |
| Patient Chat @patientchat T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide? #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Time to start our topics. Here comes T1: Time to start our topics. Here comes T1: #patientchat |
 | Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Hi Kevin checking in from Chicago Patient Advocacy interests: spectrum of #kidneydisease #patientchat |
| The Advocate Is In @TheAdvocateIsIn @jamienholloway Hi, Jamie! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/orcg0zpcRH |
| Richard Kreis @kreisr1 RT @patientchat: T1: T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide? #patientchat |
 | Richard Zhao @richardzhao Hello, everybody. Richard is here from Minneapolis. #patientchat |
| Jamie Holloway, PhD @jamienholloway T1: Patients know what is important to them and what expectations of the patient are realistic. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide? #patientchat |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 Great to see you Alan! #patientchat |
 | The II @Interventional2 We are joining in on the #patientchat to talk with Patient Empowerment @power4patients about including patients in healthcare. #withoutascalpel #FridayMotivation https://t.co/i2aNpymgqp |
| Christina Lizaso @btrfly12 RT @patientchat T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide? #patientchat |
| Enlightening Results 💡 @GraceCordovano @gratefull080504 Hi Kevin. Hope all is well! #patientchat |
| Richard Kreis @kreisr1 @patientchat Patients and families now what they need to feel 100% comfortable with the system. They are the missing link to a powerful system. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/orcg0zpcRH |
| Alan Brewington @abrewi3010 @GraceCordovano Good to see you too! #patientchat |
| Marcela Musgrove @marcela Seems kind of obvious that as the end-users patients should have a say in the systems that are going to impact them #patientchat |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all, Shereese her in Maryland #Patientchat https://t.co/3aLcdOcDjW |
 | Beth Morton @beth_morton Hi everyone! Beth, joining from Vermont. Mostly lurking today. But I'm a patient and passionate #migraine advocate. #patientchat |
| Patient Chat @patientchat RT @btrfly12: Note that the #patientchat in twitter seems off today. You might need to try joining the chat with a tool like https://t.co/PworuvY0vZ |
| Christina Lizaso @btrfly12 @rheumpatient that isn't catching all tweets either, but catching more - what other chat tools are ppl having luck with today? #patientchat |
| Jamie Holloway, PhD @jamienholloway @btrfly12 @rheumpatient I use tweetdeck. seems like it's working ok... #patientchat |
| Richard Kreis @kreisr1 RT @marcela: Hi all. I aspire to do UX and am involved with mental health and autism advocacy so am excited about today's topic #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T1: In the US healthcare has never been designed for patients Time to right the ship #patientchat https://t.co/WmyYtHqAIr |
 | Dr Rheum @rheumdoctor #EULARYoungPARE is looking committee members #patientchat #PatientAdvocate https://t.co/h2yRiZ0Uup |
 | Anthony Leon @anthonynotleon @EmMorgan27 @patientchat Love your answer Emily. Healthcare exists for the patients. Many times, the family is a big part of their care team. If the patient asks for it, they need to be involved, likewise should always be included in the design and workflow. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: In 2018, to this group, the question sounds like something from Capt. Obvious. However, actual system-side culture still stuck in steampunk mashup with Jetsons mess. IOW, still not 21st cent thinking. #patientchat |
| Christina Lizaso @btrfly12 RT @gratefull080504: T1: T1: In the US healthcare has never been designed for patients Time to right the ship #patientchat https://t.co/WmyYtHqAIr |
| The Advocate Is In @TheAdvocateIsIn @jamienholloway And we can often see sides of a patient-focused project that a design or management team doesn't see. #patientchat |
| Barby Ingle Official @BarbyIngle T1. patients & families should be included throughout all processes of redesigning healthcare because we need to have end-user tools that actually help us function better in r daily lives between appts We have to have buy-in to be/stay engaged in someone else's goals #patientchat https://t.co/4sYUKKX7Z1 |
| Anthony Leon @anthonynotleon @EmMorgan27 @patientchat T1: Love your answer Emily. Healthcare exists for the patients. Many times, the family is a big part of their care team. If the patient asks for it, they need to be involved, likewise should always be included in the design and workflow. #patientchat |
| Patient Critical Co-op @PatientCritical T1: is the better question HOW can patients and families be included in redesigning health care systems & processes? #healthcare exists to make us well after all. A byproduct of patient #codesign? It save $ for biz & make system more sustainable for all. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: further to previous, the "why" here is ... well, heck, I'll just quote myself, "if medicine isn't patient-centered, what is it even DOING?" #patientchat |
 | Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T1. patients & families should be included throughout all processes of redesigning healthcare because we need to have end-user tools that actually help us function better in r daily lives between appts We have to have buy-in to be/stay engaged in someone else's goals #patientchat https://t.co/4sYUKKX7Z1 |
| Alan Brewington @abrewi3010 T1 healthcare for people needs to be designed by humans, not the beast of #healthcare. QOL comes from human centered ideas. #patientchat |
 | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T1. patients & families should be included throughout all processes of redesigning healthcare because we need to have end-user tools that actually help us function better in r daily lives between appts We have to have buy-in to be/stay engaged in someone else's goals #patientchat https://t.co/4sYUKKX7Z1 |
 | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T1. patients & families should be included throughout all processes of redesigning healthcare because we need to have end-user tools that actually help us function better in r daily lives between appts We have to have buy-in to be/stay engaged in someone else's goals #patientchat https://t.co/4sYUKKX7Z1 |
| Mary MACK @MaryOCMack T1 patient input is much needed and too often absent. The culture of medicine needs to change. Real Patient input will help level the playing field. #patientchat |
| Patient Empowerment Network @power4patients @gratefull080504 Agreed. Where do we start? #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Topic 2 (T2:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T1 healthcare for people needs to be designed by humans, not the beast of #healthcare. QOL comes from human centered ideas. #patientchat |
| Patient Chat @patientchat T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Patient Critical Co-op @PatientCritical T1: even the apocryphal stories of Henry Ford & Steve Jobs 'telling' people what they want ignore the reality of focus group testing & market research sorely missing from #healthcare ventures today. Reinvent with patients, or be doomed to costly changes later. #patientchat |
| Alan Brewington @abrewi3010 T1 if everyone is not included in #healthcare reform we will never leave paternalistic medicine. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: T2: T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth Hi Shereese! Nice to see you! #patientchat |
| Mary MACK @MaryOCMack RT @abrewi3010: T1 if everyone is not included in #healthcare reform we will never leave paternalistic medicine. #patientchat |
 | Dr Mary Ann Wilmarth @Back2backPT Hello Everyone - Looking forward to todays #patientchat Attending virtually from @RockportMA I am #DrofPT x35yrs but #patient of multiple #immune #autoimmunediseases now. #Advocate @Back2backPT @power4patients #patients2Bseenandheard :-) https://t.co/XDEVTVEQQU |
 | Melissa VanHouten @melissarvh T1 Try as they might, non (or sometimes) patients don't always know needs & goals of each illness community or indiv patient #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T1: #Patientcentered Healthcare policies are the foundation for #patientcentered design #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T2: T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T1 if everyone is not included in #healthcare reform we will never leave paternalistic medicine. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: Not only does patient/family inclusion in treatment, and #RESEARCH (yaaasss), design improve framing, it also increases participation, adds PROs to outcome tally. Win/win, on fleek. #patientchat |
| Patient Empowerment Network @power4patients @abrewi3010 What's the best way to get everyone involved without causing even more bottlenecks? #patientchat |
| Richard Kreis @kreisr1 @patientchat I agree with Alan’s comment. #patientchat |
| The II @Interventional2 What do patients prefer for the engagement process - through patient advocacy groups or direct with healthcare systems? #patientchat https://t.co/LeazEtFX3m |
| Christina Lizaso @btrfly12 RT @patientchat T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 if everyone is not included in #healthcare reform we will never leave paternalistic medicine. #patientchat |
 | Savvy Cooperative | #AskPatients @savvy_coop Hey all! It's Jen from Savvy Coop, we are a patient-owned co-op that helps companies and researchers connect with patients to #codesign new solutions - so this #patientchat is our jam! Sorry to jump in late! |
| Richard Zhao @richardzhao RT @BarbyIngle: T1. patients & families should be included throughout all processes of redesigning healthcare because we need to have end-user tools that actually help us function better in r daily lives between appts We have to have buy-in to be/stay engaged in someone else's goals #patientchat https://t.co/4sYUKKX7Z1 |
| Patient Critical Co-op @PatientCritical T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted? From square one, include #patients & #caregivers in every level of design, reform & delivery. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 healthcare for people needs to be designed by humans, not the beast of #healthcare. QOL comes from human centered ideas. #patientchat |
| Jamie Holloway, PhD @jamienholloway T2: Involve patients EARLY and OFTEN. They're important in the earliest research, trial design, and implementation. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Both #patientchat https://t.co/zL5U7iC9qf |
| Richard Zhao @richardzhao @BarbyIngle Great ponit! #patientchat |
 | HealthSparq @HealthSparq Whew! Got sidetracked but here for #patientchat from a stilly snowy #PDX! Hi everyone! https://t.co/CfGZukC4B3 |
| Christina Lizaso @btrfly12 RT @anthonynotleon: @EmMorgan27 @patientchat T1: @EmMorgan27 @patientchat T1: Love your answer Emily. Healthcare exists for the patients. Many times, the family is a big part of their care team. If the patient asks for it, they need to be involved, likewise should always be included in the design and workflow. #patientchat |
| HealthSparq @HealthSparq RT @btrfly12: RT @patientchat T2: RT @patientchat T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: @abrewi3010 What's the best way to get everyone involved without causing even more bottlenecks? #patientchat |
| Alan Brewington @abrewi3010 @power4patients Going back to basics. Putting more emphasis on a human connection vs a computer connection. #patientchat |
| Barby Ingle Official @BarbyIngle T2. Patients & families should be engaged, 1st in their personal care options, understanding their disease, then clinical trials, treatment options, setting up at home time saver tools, learn what meds do, research, All aspects of care are important, learn as you can #patientchat https://t.co/xcNh0wDBRc |
| Richard Kreis @kreisr1 RT @btrfly12: RT @patientchat T2: RT @patientchat T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc. #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T2. Patients & families should be engaged, 1st in their personal care options, understanding their disease, then clinical trials, treatment options, setting up at home time saver tools, learn what meds do, research, All aspects of care are important, learn as you can #patientchat https://t.co/xcNh0wDBRc |
| Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T2. Patients & families should be engaged, 1st in their personal care options, understanding their disease, then clinical trials, treatment options, setting up at home time saver tools, learn what meds do, research, All aspects of care are important, learn as you can #patientchat https://t.co/xcNh0wDBRc |
| Enlightening Results 💡 @GraceCordovano T1: A majority of the #healthcare arena is based on assumptions of what is valuable to patients. Asking & obtaining facts & lived experience needs to become cornerstone. Building on assumptions leads to failure & shortcomings that are too costly to fix #patientchat https://t.co/fJE4lDYUka |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T2. Patients & families should be engaged, 1st in their personal care options, understanding their disease, then clinical trials, treatment options, setting up at home time saver tools, learn what meds do, research, All aspects of care are important, learn as you can #patientchat https://t.co/xcNh0wDBRc |
| The Advocate Is In @TheAdvocateIsIn @power4patients @abrewi3010 Incorporate patients from start to finish? Like adding them (us) as if we were another coder or program manager, as integral part of the team building the system as anybody else. #patientchat |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: Hi all, Shereese her in Maryland #Patientchat https://t.co/3aLcdOcDjW |
| Christina Lizaso @btrfly12 RT @jamienholloway: T2: T2: Involve patients EARLY and OFTEN. They're important in the earliest research, trial design, and implementation. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Agree ferociously with @abrewi3010 re patient directed healthcare = only pathway to ending paternalism, and its terrible children "compliance" and "adherence." Only path to nirvana is PARTICIPATION. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T2: It starts and ends with policy This is the strategy foundation #patientchat https://t.co/JjX9Bz9UDU |
| Dr Mary Ann Wilmarth @Back2backPT Great to see this! Not sure that I qualify with the word "young" in there although I am definitely young at heart <3 ! #patientchat @Back2backPT #EULARYoungPARE #PatientAdvocate :-) https://t.co/RKmPGjTnvX |
| Richard Kreis @kreisr1 RT @HealthSparq: Whew! Got sidetracked but here for #patientchat from a stilly snowy #PDX! Hi everyone! https://t.co/CfGZukC4B3 |
| Richard Kreis @kreisr1 RT @anthonynotleon: @EmMorgan27 @patientchat T1: @EmMorgan27 @patientchat T1: Love your answer Emily. Healthcare exists for the patients. Many times, the family is a big part of their care team. If the patient asks for it, they need to be involved, likewise should always be included in the design and workflow. #patientchat |
| Patient Critical Co-op @PatientCritical T2: How should patients and families be engaged? Include multiple voices to avoid unconscious selection biases. Bake the service user/consumer/patient into the DANA of your offering. Include time, money, resources & education. Hard work, but everyone profits. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @QuinlanTurner #patientchat https://t.co/TshqJ5tNg5 |
| Mary MACK @MaryOCMack T2. Make sure patients can attend conferences. Many patients with chronic conditions can't afford travel and lodging. Pharma Companies, etc. can afford to pay for patients to attend. #patientchat |
| Patient Critical Co-op @PatientCritical T2: How should patients and families be engaged? Include multiple voices to avoid unconscious selection biases. Bake the service user/consumer/patient into the DNA of your offering. Include time, money, resources & education. Hard work, but everyone profits. #patientchat |
| Enlightening Results 💡 @GraceCordovano @HealthSparq Welcome! Glad you braved the elements to get here. #dedicated #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop T1: Patients and caregivers are experts on their experiences, you don't get that insight from a textbook, it comes from lived experiences. When patients/caregivers bring that expertise and work with those in other fields they can create solutions that actually matter #patientchat https://t.co/32tSl4589Q |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Well said @GraceCordovano #patientchat https://t.co/euiYrK5img |
| The II @Interventional2 #patientchat - important to hear the patient perspective on this. https://t.co/U2wBsBX0bs |
| Patient Empowerment Network @power4patients @abrewi3010 Agree in principle but we are living in the "Digital Age" so it's easier said than done. Thoughts? #patientchat |
| Enlightening Results 💡 @GraceCordovano @savvy_coop Hi Jen!! Need you here! #patientchat |
| Richard Kreis @kreisr1 Sorry need to run, doctors calling me in early. #patientchat |
| Jamie Holloway, PhD @jamienholloway T2: Patients should be engaged as collaborators, not tokens. Their input should be respected, acted on when appropriate, and they should be compensated appropriately. #patientchat |
| Richard Zhao @richardzhao T2: Contribute a couple hours of time will help startup like us. We are facing challenges to have more patients or consumers to volunteers 2 hours time only to improve our technology for consumers #patientchat |
| Patient Empowerment Network @power4patients RT @GraceCordovano: T1: T1: A majority of the #healthcare arena is based on assumptions of what is valuable to patients. Asking & obtaining facts & lived experience needs to become cornerstone. Building on assumptions leads to failure & shortcomings that are too costly to fix #patientchat https://t.co/fJE4lDYUka |
| HealthSparq @HealthSparq YESSSS!!! #WTFix #PatientChat https://t.co/wvKTXHrADi |
| Patient Critical Co-op @PatientCritical Absolutely, but the benefits of considering patients aren't just ethical or kind: businesses make more money, period, when they align their profit with #valuebasedcare #patientchat https://t.co/6h4zu0Pwl4 |
| Patient Chat @patientchat Topic 3 (T3:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: Best place to start is in patient/condition communities that are science-based and well-moderated. We are, by the way, legion. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @jamienholloway: T2: T2: Patients should be engaged as collaborators, not tokens. Their input should be respected, acted on when appropriate, and they should be compensated appropriately. #patientchat |
| Melissa VanHouten @melissarvh T2 From pre-design on. Patients should have input re symptom-focus, treatment goals & hardships, obstacles 2 participation, etc #patientchat |
| Enlightening Results 💡 @GraceCordovano T2: I would recommend start discussions with patients & care partners first, then add others. Planning a conference: start w/patient speakers/panels 1st. Building an ad board: patients first. They shouldn't be the final hail mary at the end. #patientchat https://t.co/1mWtAYLRwj |
| Patient Chat @patientchat T3: What elements must be incorporated to create a successful patient-centered system or process? #patientchat |
 | Amanda G @LAlupusLady RT @HealthSparq: YESSSS!!! #WTFix #PatientChat https://t.co/wvKTXHrADi |
| Jamie Holloway, PhD @jamienholloway Anytime anyone asks where to find educated, engaged advocates, I point them straight to twitter! #patientchat https://t.co/GICP3FCC6G |
| Alan Brewington @abrewi3010 @power4patients Technology only works if everyone has access & it continues basic human centerness. If digital doesn’t mean this bar then it’s bad paternalistic digital. #patientchat |
 | Sandi Oelhaupl @sandioelhaupl RT @GraceCordovano: T1: T1: A majority of the #healthcare arena is based on assumptions of what is valuable to patients. Asking & obtaining facts & lived experience needs to become cornerstone. Building on assumptions leads to failure & shortcomings that are too costly to fix #patientchat https://t.co/fJE4lDYUka |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What elements must be incorporated to create a successful patient-centered system or process? #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop T1: healthcare has notoriously been a B2B model, but with the transition to patient-centricity & #valuebasedcare it is paramount that we work with those affected by health conditions and the system so understand what value means to them. Otherwise what are we doing? #patientchat |
| Melissa VanHouten @melissarvh T2 And that input should be meaningful & taken seriously by all involved - not lip service or PR for the players involved #patientchat |
| Enlightening Results 💡 @GraceCordovano @jamienholloway Agreed. Continuity is key and preferred to a single touchpoint. Update patients & care partners on outcomes from their interactions and contributions at end of initiatives/engagements. #patientchat |
| HealthSparq @HealthSparq @btrfly12 Yeah, definitely having some weird connection issues! #PatientChat |
| The II @Interventional2 The Interventional Initiative is a non-profit with a mission to empower patients with more information about treatment options using Minimally Invasive Image guided procedures. We want patients to tell us what they know and prefer! https://t.co/jzSq2vybPI #patientchat https://t.co/ajkNTFKvYt |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes #patientchat https://t.co/7WWjLT4Wit |
| Alan Brewington @abrewi3010 T2 engagement begins when quality of life changes. These 2 must work together. #patientchat |
| Patient Critical Co-op @PatientCritical Disagree there is meaningful difference between 'real life' and digital alignment of service offerings with #valuebasedcare. #patientengagement is crucial in both and the tools change but not the strategy or benefits of inclusion #patientchat https://t.co/toiwqdSsSE |
| Richard Zhao @richardzhao T2: Take actions is the key for any changes will happen for #Patients #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop T2: twitter does not give me enough characters for this one #patientchat |
 | FrancieGrace @FrancieGrace RT @jamienholloway: T2: T2: Patients should be engaged as collaborators, not tokens. Their input should be respected, acted on when appropriate, and they should be compensated appropriately. #patientchat |
| Marcela Musgrove @marcela T2: Patients and their families can be brought in during both formative design process and for usability testing. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat T3: What elements must be incorporated to create a successful patient-centered system or process? #patientchat |
 | Marilee Kujat @cinvmak RT @HealthSparq: YESSSS!!! #WTFix #PatientChat https://t.co/wvKTXHrADi |
 | Your GPS Doc, LLC @yourgpsdoc Joining late. Hello everyone! Nicole Rochester of Your GPS Doc. #patientchat |
| FrancieGrace @FrancieGrace RT @jamienholloway: Anytime anyone asks where to find educated, engaged advocates, I point them straight to twitter! #patientchat https://t.co/GICP3FCC6G |
| Christina Lizaso @btrfly12 @kreisr1 Have a good weekend :) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @jamienholloway And as if she was reading our mail, look what landed this week from @Lygeia https://t.co/oW4OecLNom #FYPM #patientchat |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 @power4patients Tech needs to be utilized to enhance care and engagement methods. But to Alan's point, must be accessible and provided. Otherwise, fostering lack of diversity #patientchat |
| FrancieGrace @FrancieGrace RT @jamienholloway: T2: T2: Involve patients EARLY and OFTEN. They're important in the earliest research, trial design, and implementation. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @GraceCordovano @jamienholloway Single touch points are so important and not at all hard to implement policies. Orgs need to get this right, like yesterday #patientchat |
| FrancieGrace @FrancieGrace RT @jamienholloway: T1: T1: Patients know what is important to them and what expectations of the patient are realistic. #patientchat |
| Jamie Holloway, PhD @jamienholloway T3: Easy answer: incorporate PATIENTS into the process to get it to be patient-centered! #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Sorry @savvy_coop Define #patientcentricity I think it is a buzz word #patientchat https://t.co/Vo3HAri0Oz |
| Savvy Cooperative | #AskPatients @savvy_coop T2 I want to say that patients should be engaged from preconception of an initiative, but the reality that is not always the case, and so there are places and times for all levels of engagement. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T2: I would recommend start discussions with patients & care partners first, then add others. Planning a conference: T2: I would recommend start discussions with patients & care partners first, then add others. Planning a conference: start w/patient speakers/panels 1st. Building an ad board: patients first. They shouldn't be the final hail mary at the end. #patientchat https://t.co/1mWtAYLRwj |
| Patient Critical Co-op @PatientCritical Absolutely. Action destroys the tokenism of rhetoric. Make a change, make a plan, don't wait for a perfect confluence events to begin. #patientchat https://t.co/Wtce16Yah2 |
| Christina Lizaso @btrfly12 RT @savvy_coop: T2 I want to say that patients should be engaged from preconception of an initiative, but the reality that is not always the case, and so there are places and times for all levels of engagement. #patientchat |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: @GraceCordovano @jamienholloway Single touch points are so important and not at all hard to implement policies. Orgs need to get this right, like yesterday #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @jamienholloway And do not forget our friends at @symplur and their @healthhashtags !! Helps cut thru the chaff, get straight to the wheat (even for the gluten intolerant!) #patientchat |
| Richard Zhao @richardzhao RT @abrewi3010: @power4patients Technology only works if everyone has access & it continues basic human centerness. If digital doesn’t mean this bar then it’s bad paternalistic digital. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop T2 we need diverse perspectives, so it can't always be the same patients engaged at every juncture, getting patient insights via surveys, focus groups, interviews, user-testing are also valuable ways to cast a wider net #patientchat |
 | Heather McCullen @H_SalemOaks RT @jamienholloway: T2: T2: Patients should be engaged as collaborators, not tokens. Their input should be respected, acted on when appropriate, and they should be compensated appropriately. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @btrfly12 1) Patient Centered Policies 2) Patient Voice Strategy not Tactics 3) Senior Leadership Buy In #patientchat https://t.co/RNSgZS0R7k |
| Christina Lizaso @btrfly12 RT @melissarvh: T2 And that input should be meaningful & taken seriously by all involved - not lip service or PR for the players involved #patientchat |
| Christina Lizaso @btrfly12 RT @savvy_coop: T1: T1: healthcare has notoriously been a B2B model, but with the transition to patient-centricity & #valuebasedcare it is paramount that we work with those affected by health conditions and the system so understand what value means to them. Otherwise what are we doing? #patientchat |
| The II @Interventional2 RT @savvy_coop: T2 we need diverse perspectives, so it can't always be the same patients engaged at every juncture, getting patient insights via surveys, focus groups, interviews, user-testing are also valuable ways to cast a wider net #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3: Involve patients on the front end from the BEGINNING. Put patients on advisory boards and actually listen to what they have to say and incorporate their feedback. #patientchat https://t.co/psAbNJG0Z9 |
| Alan Brewington @abrewi3010 T3 quality of life must be the first metric to judge patient centered care from. Quality of life takes us back to human centered caring first. #patientchat |
| Enlightening Results 💡 @GraceCordovano @btrfly12 @patientchat Move towards human-centered is stronger. For example, can't just benefit the patient & burnout the physician. We must strive for compassion, kindness, bridging silos, connections w/resources, leverage tech to enhance care. #patientchat |
| Jamie Holloway, PhD @jamienholloway I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| Enlightening Results 💡 @GraceCordovano RT @savvy_coop: T2 we need diverse perspectives, so it can't always be the same patients engaged at every juncture, getting patient insights via surveys, focus groups, interviews, user-testing are also valuable ways to cast a wider net #patientchat |
| HealthSparq @HealthSparq RT @btrfly12: RT @patientchat T3: RT @patientchat T3: What elements must be incorporated to create a successful patient-centered system or process? #patientchat |
| Barby Ingle Official @BarbyIngle T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| HealthSparq @HealthSparq RT @GraceCordovano: @btrfly12 @patientchat Move towards human-centered is stronger. For example, can't just benefit the patient & burnout the physician. We must strive for compassion, kindness, bridging silos, connections w/resources, leverage tech to enhance care. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop T2 We actually blogged about #patientengagement this week, that it must be continuous, not a one and done thing. Can read thoughts here: https://t.co/2cYyHUEsWo #patientchat https://t.co/FWnSEAtjaK |
| Melissa VanHouten @melissarvh T3 Real-life hardships/obstacles patients face (mental, physical, emotional, financial) & discussion of genuine solutions. #patientchat |
| Richard Zhao @richardzhao T2: Need more consumers to participate in some form of actions. Only patients advocates' efforts won't be enough to change for patients #patientchat |
| Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| Patient Empowerment Network @power4patients RT @abrewi3010: T3 quality of life must be the first metric to judge patient centered care from. Quality of life takes us back to human centered caring first. #patientchat |
| Christina Lizaso @btrfly12 RT @savvy_coop: T1: T1: Patients and caregivers are experts on their experiences, you don't get that insight from a textbook, it comes from lived experiences. When patients/caregivers bring that expertise and work with those in other fields they can create solutions that actually matter #patientchat https://t.co/32tSl4589Q |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @jamienholloway: I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| Marcela Musgrove @marcela RT @yourgpsdoc: T3: T3: Involve patients on the front end from the BEGINNING. Put patients on advisory boards and actually listen to what they have to say and incorporate their feedback. #patientchat https://t.co/psAbNJG0Z9 |
| The Advocate Is In @TheAdvocateIsIn T3: Of course incorporate patient input, but more than that, we need to feel like we're heard not just in what affects our diseases, but in how our diseases affect our whole lives. #patientchat |
| Richard Zhao @richardzhao RT @melissarvh: T2 And that input should be meaningful & taken seriously by all involved - not lip service or PR for the players involved #patientchat |
| Christina Lizaso @btrfly12 RT @jamienholloway: T2: T2: Patients should be engaged as collaborators, not tokens. Their input should be respected, acted on when appropriate, and they should be compensated appropriately. #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| Alan Brewington @abrewi3010 T3 healthcare must become a human right, not a checkbook right. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @gratefull080504 @savvy_coop I also have come to see #valuebasedcare as code for "what can we get away with, price-gouging-wise, 'cause it's evidence-based tx" - srsly, it all boils down to those feverishly holding on to their slice of $3.5T/yr medical $$ pie. #patientchat |
| Patient Chat @patientchat RT @BarbyIngle: T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| Enlightening Results 💡 @GraceCordovano @gratefull080504 @savvy_coop https://t.co/ajuMpldv0j #patientchat |
| HealthSparq @HealthSparq @GraceCordovano @btrfly12 @patientchat Silos still need so much breaking-down, great points @GraceCordovano #PatientChat |
| Anthony Leon @anthonynotleon @btrfly12 @patientchat T3 - If you're trying to reach/educate patients, make sure you are doing it where their attention is. If they are glued to their phone/SoMe, be sure to have a way to connect on there for them. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T1: T1: A majority of the #healthcare arena is based on assumptions of what is valuable to patients. Asking & obtaining facts & lived experience needs to become cornerstone. Building on assumptions leads to failure & shortcomings that are too costly to fix #patientchat https://t.co/fJE4lDYUka |
 | Maureen 🌻 @netzermo RT @BarbyIngle: T3. We must have team communication to have successful empowered patients in a patient-centered system. The patient has to be the team lead & use their providers as tools not the only resource. Patients - Fill your tool box & have realistic goals w good communication #patientchat https://t.co/BEVt7opdB8 |
| Marcela Musgrove @marcela RT @jamienholloway: I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| Patient Chat @patientchat Topic 4 (T4:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Alan Brewington @abrewi3010 RT @savvy_coop: T2 We actually blogged about #patientengagement this week, that it must be continuous, not a one and done thing. Can read thoughts here: https://t.co/2cYyHUEsWo #patientchat https://t.co/FWnSEAtjaK |
 | Carissa B. Caramanis @CarissaO Simplest mantra for #patientengagement - Early & often! #patientchat https://t.co/GMehONlrSI |
| Christina Lizaso @btrfly12 RT @gratefull080504: @btrfly12 1) Patient Centered Policies 2) Patient Voice Strategy not Tactics 3) Senior Leadership Buy In #patientchat https://t.co/RNSgZS0R7k |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey THIS. ALL. DAY. #rightcare #healthcarematters #patientchat https://t.co/x5zXsDdkan |
| Patient Critical Co-op @PatientCritical T2: Quality of life must come before a care provider's preference for treatment, or profit models for businesses or even long term #Sustainability of the system. People come before the operation system of #healthcare or they don't materially matter at all #patientchat https://t.co/yyxnhhYwPL |
| Mary MACK @MaryOCMack T3. The culture of medicine needs radical change. If it remains unchanged, not much will REALLY change #patientchat |
| Richard Zhao @richardzhao RT @PatientCritical: Absolutely. Action destroys the tokenism of rhetoric. Make a change, make a plan, don't wait for a perfect confluence events to begin. #patientchat https://t.co/Wtce16Yah2 |
| Savvy Cooperative | #AskPatients @savvy_coop T2 And as to where to find patients for #codesign...well we humbly suggest you check out our fabulous co-op of patients who are at the ready to help companies with just this! And hope you'll join us! https://t.co/6owHnEOcPa #patientchat |
| Enlightening Results 💡 @GraceCordovano @anthonynotleon @btrfly12 @patientchat Must meet patients & care partners where they are! Silly not to. #patientchat |
| Patient Chat @patientchat T4: Different patients want different things, so how can all pts’ needs be met? Is it possible? If not, what is the compromise? #patientchat |
| Patient Critical Co-op @PatientCritical #patientchat We need everyone talking and building together https://t.co/4Q7wNjQ9Te |
 | PatientOrator @PatientOrator #empathy in health care"My parents are in their 90's, they've had a difficult time, sometimes they R treated insignificantly. There could be a little bit more understanding when it comes to the elderly, theres room for improvement there" Lamar #patientchat https://t.co/jAh7X4ZNg2 |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: Different patients want different things, so how can all pts’ needs be met? Is it possible? If not, what is the compromise? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat T4: Different patients want different things, so how can all pts’ needs be met? Is it possible? If not, what is the compromise? #patientchat |
 | Laurus @LaurusT001 RT @PatientOrator: #empathy in health care"My parents are in their 90's, they've had a difficult time, sometimes they R treated insignificantly. There could be a little bit more understanding when it comes to the elderly, theres room for improvement there" Lamar #patientchat https://t.co/jAh7X4ZNg2 |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Patients on the core team, from the beginning, for everything. Lather/rinse/repeat. #thatisall #patientchat |
| Patient Empowerment Network @power4patients RT @GraceCordovano: @anthonynotleon @btrfly12 @patientchat Must meet patients & care partners where they are! Silly not to. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Is this an advertisement ? #patientchat https://t.co/sk2oszHUsK |
| Savvy Cooperative | #AskPatients @savvy_coop @MightyCasey @gratefull080504 When it comes to people talking about #valuebasedcare....I always ask them to define value to who? Let's be explicit and transparent about who we think should see value. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop RT @jamienholloway: I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| Richard Zhao @richardzhao T3: Patients have to be vocal, even put comments on #socialmedia about experience on clinics, systems or providers will be a good start #patientchat |
| Christina Lizaso @btrfly12 RT @MightyCasey: T3: T3: Patients on the core team, from the beginning, for everything. Lather/rinse/repeat. #thatisall #patientchat |
| Dr Mary Ann Wilmarth @Back2backPT A1 #Patients & # Family should be involved w/ # design from beginning because it completely impacts their lives when #system doesn't work‼️ I am barely living proof of that... Start w/ #EMR Not made 4 MDs pts Rarely correct inclusive @Back2backPT @power4patients #patientchat https://t.co/BjBYqW5Eah |
| Enlightening Results 💡 @GraceCordovano @QuinlanTurner @patientchat Cultural transformation of medicine from paternalistic to shared decision making as well as recognition of importance of fostering trusting relationships is critical #patientchat |
| Patient Critical Co-op @PatientCritical Nothing ever changes unless a core group take a risk... ...and a grassroots movement takes that ball and runs with it, not just the advocates. Public discussion, momentum is crucial. Not just the same voices. #patientchat https://t.co/smh3uXoZsd |
| Jamie Holloway, PhD @jamienholloway T4: Incorporating PROs or other steps into protocols that encourage LISTENING to a patient & acting on their feedback are important. My priorities may not be the same as your priorities. #patientchat |
 | Cristy St John @CristyStJohn RT @savvy_coop: T1: T1: healthcare has notoriously been a B2B model, but with the transition to patient-centricity & #valuebasedcare it is paramount that we work with those affected by health conditions and the system so understand what value means to them. Otherwise what are we doing? #patientchat |
| The II @Interventional2 We believe it is the responsibility of healthcare professionals & disease specific advocacy groups to present medical information in comprehensible ways so that the public does understand and can fully participate in the process, treatment options and the care plan. #patientchat https://t.co/s88XUU97SQ |
| HealthSparq @HealthSparq So well said & so true! #Patients can offer perspectives, skills, and expertise on EVERYTHING in #healthcare because patients are a hugely diverse & skilled group of people. #PatientChat https://t.co/xNuyIB4uVf |
| Alan Brewington @abrewi3010 A3 we must raise our healthcare literacy rate, comprehension, and language skills. We need better communication between all parties. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Sorry, guys, gotta bail - meetings and deadlines! Fridays are ALWAY insanity 'round my world 😱😱😱 #patientchat |
| Marcela Musgrove @marcela #t4 That's a tough issue in mental health. Some people are well served by medical model/treatment while other identify as psychiatric survivors and disengage from system altogether. Hard to include all voices #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @jamienholloway 100%! We NEED diverse opinions, not everyone needs a PhD (says the person with a PhD here), that is not what makes someone an expert on their experiences, and we want to give them a variety of outlets to share. #patientchat |
| Christina Lizaso @btrfly12 RT @jamienholloway: I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @jamienholloway: T4: T4: Incorporating PROs or other steps into protocols that encourage LISTENING to a patient & acting on their feedback are important. My priorities may not be the same as your priorities. #patientchat |
| Richard Zhao @richardzhao T3: If patients do not bring transparency to the system, nobody will. The more transparent, the less confussion or over-charged bills. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T4: My bible is the Institute of Medicine Report: Crossing the Quality Chasm #patientcentered care take into account patient preferences Patients must drive policy #patientchat https://t.co/Q1g5MB4Wdz |
| Your GPS Doc, LLC @yourgpsdoc T4: Great point and this certainly adds to the complexity. Each patient’s perspective is important and should be considered when designing solutions. Ultimately, must work toward being as inclusive as possible. #patientchat https://t.co/89Aq0C31Qr |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @richardzhao: T3: T3: Patients have to be vocal, even put comments on #socialmedia about experience on clinics, systems or providers will be a good start #patientchat |
| HealthSparq @HealthSparq RT @savvy_coop: @jamienholloway 100%! We NEED diverse opinions, not everyone needs a PhD (says the person with a PhD here), that is not what makes someone an expert on their experiences, and we want to give them a variety of outlets to share. #patientchat |
 | Carly by Nature @SynceNerd_Carli RT @richardzhao: T3: T3: Patients have to be vocal, even put comments on #socialmedia about experience on clinics, systems or providers will be a good start #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @savvy_coop: T2 And as to where to find patients for #codesign...well we humbly suggest you check out our fabulous co-op of patients who are at the ready to help companies with just this! And hope you'll join us! https://t.co/6owHnEOcPa #patientchat |
| Carly by Nature @SynceNerd_Carli RT @jamienholloway: T4: T4: Incorporating PROs or other steps into protocols that encourage LISTENING to a patient & acting on their feedback are important. My priorities may not be the same as your priorities. #patientchat |
| The II @Interventional2 @abrewi3010 agree! Everyone can take part in improved healthcare literacy. #patientchat https://t.co/Hs9fDDte5F |
| Enlightening Results 💡 @GraceCordovano T4: Prioritize building trust in relationships. Embracing listening. Practicing kinds and compassion. Patients & their families need to feel heard, valued, safe, and supported. #patientchat https://t.co/HofXkTvGu8 |
| Carly by Nature @SynceNerd_Carli RT @HealthSparq: So well said & so true! #Patients can offer perspectives, skills, and expertise on EVERYTHING in #healthcare because patients are a hugely diverse & skilled group of people. #PatientChat https://t.co/xNuyIB4uVf |
| Patient Critical Co-op @PatientCritical @GraceCordovano @QuinlanTurner @patientchat Exactly...we need to each of us find a way to build the momentum outside of our silo's. We always cite @MADDOnline for an example of interested parties changing the societal view of an issue. We need to reach people where they live & caregive #patientchat |
| Melissa VanHouten @melissarvh T4 Likely not possible but can attempt 2 hear various segments. Pt reps can often be voice 4 many. Never perfect representation #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @richardzhao Yes #patientchat https://t.co/ii58DNCiVg |
| Savvy Cooperative | #AskPatients @savvy_coop T4 I think it's important to step out of our own echo chambers and ask diverse patients what they want, and then work together to provide those opportunities. I think as patient advocates, we can also fall victim to thinking we know the whole community's needs. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @savvy_coop @gratefull080504 OOOOOO, that's a can o'worms. Attend some guidelines conferences to have a real "tear own face off with rusty cheese grater" party. Guidelines are important, but in era of #PrecisionMedicine ... YMMV. #PatientChat |
| Christina Lizaso @btrfly12 RT @Interventional2: We believe it is the responsibility of healthcare professionals & disease specific advocacy groups to present medical information in comprehensible ways so that the public does understand and can fully participate in the process, treatment options and the care plan. #patientchat https://t.co/s88XUU97SQ |
| Barby Ingle Official @BarbyIngle T4. Individualized medicine There is never going to be a one size fits all When we move to a patient-centered approach & TX each person as they are then we will see better outcomes The TXs that work for me dont work for all with same diseases due to genetics & enviro #patientchat https://t.co/oE0jBpUSkR |
| Your GPS Doc, LLC @yourgpsdoc RT @GraceCordovano: @QuinlanTurner @patientchat Cultural transformation of medicine from paternalistic to shared decision making as well as recognition of importance of fostering trusting relationships is critical #patientchat |
| Alan Brewington @abrewi3010 T4 all humans want a higher quality of life. If we treat humans, not symptoms, we can improve everyone’s lives. #patientchat |
| Christina Lizaso @btrfly12 RT @HealthSparq: So well said & so true! #Patients can offer perspectives, skills, and expertise on EVERYTHING in #healthcare because patients are a hugely diverse & skilled group of people. #PatientChat https://t.co/xNuyIB4uVf |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T4. Individualized medicine There is never going to be a one size fits all When we move to a patient-centered approach & TX each person as they are then we will see better outcomes The TXs that work for me dont work for all with same diseases due to genetics & enviro #patientchat https://t.co/oE0jBpUSkR |
| Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T4. Individualized medicine There is never going to be a one size fits all When we move to a patient-centered approach & TX each person as they are then we will see better outcomes The TXs that work for me dont work for all with same diseases due to genetics & enviro #patientchat https://t.co/oE0jBpUSkR |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T4. Individualized medicine There is never going to be a one size fits all When we move to a patient-centered approach & TX each person as they are then we will see better outcomes The TXs that work for me dont work for all with same diseases due to genetics & enviro #patientchat https://t.co/oE0jBpUSkR |
| Richard Zhao @richardzhao T3: Even patients start sharing their expereince on a public space, for example #socialmedia , it will bring changes. #PatientSentiment #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @savvy_coop @MightyCasey @gratefull080504 Exactly. If you ask 20 ppl, you'll get 20 answers regarding the definition of healthcare "value" . This speaks to #PrecisionMedicine and the idea that patients be seen as collaborators, not studies #patientchat |
| HealthSparq @HealthSparq RT @btrfly12: RT @patientchat T4: RT @patientchat T4: Different patients want different things, so how can all pts’ needs be met? Is it possible? If not, what is the compromise? #patientchat |
 | Lisa Davis Budzinski @lisadbudzinski Trying to follow #patientchat & #raredisease while packing to leave in the morning for @RareAdvocates #raredisease week in D.C. where I finally get to meet my colleague/partner @Cpnervecenter @bbhomebody IRL!! https://t.co/HjdtppgDKK |
| Richard Zhao @richardzhao RT @gratefull080504: @richardzhao Yes #patientchat https://t.co/ii58DNCiVg |
| Savvy Cooperative | #AskPatients @savvy_coop @MightyCasey @gratefull080504 You're not one to shy away from a can'o'worms convo :) Gotta have the convos. #patientchat |
| Mary MACK @MaryOCMack T4 navigating the labyrinth of healthcare is a major challenge It should not be so hard. I think every patient wants that. And Doctors need to talk to each other about their patients in common. #patientchat |
| Enlightening Results 💡 @GraceCordovano @HealthSparq I always point out: patient is not synonymous with stupid, weak, or helpless. People with a diagnosis have an incredible, sometimes untouchable, set of lifeskills. #patientchat |
| Patient Critical Co-op @PatientCritical We need to have a touchstone issue like @MADDOnline found in 'don't drink and drive'. Need a way to strike a nerve that makes people care about #healthcare before they're sick & churning thru the system. Only way to effect policy is activate a majority to care. #patientchat |
| The II @Interventional2 RT @MaryOCMack: T4 navigating the labyrinth of healthcare is a major challenge It should not be so hard. I think every patient wants that. And Doctors need to talk to each other about their patients in common. #patientchat |
| Alan Brewington @abrewi3010 T4 healthcare that’s a human right brings down most of the greatest access barriers we have today. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Have to run Have a good weekend and thanks for the chance to participate #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @savvy_coop: T4 I think it's important to step out of our own echo chambers and ask diverse patients what they want, and then work together to provide those opportunities. I think as patient advocates, we can also fall victim to thinking we know the whole community's needs. #patientchat |
| Marcela Musgrove @marcela RT @savvy_coop: T1: T1: Patients and caregivers are experts on their experiences, you don't get that insight from a textbook, it comes from lived experiences. When patients/caregivers bring that expertise and work with those in other fields they can create solutions that actually matter #patientchat https://t.co/32tSl4589Q |
| Patient Chat @patientchat Topic 5 (T5:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Melissa VanHouten @melissarvh T4 Make it easier & more convenient 4 patients to participate - cost barriers & physical limitations must be overcome. #patientchat |
| HealthSparq @HealthSparq @QuinlanTurner @patientchat Love it! Breaking things down into digestible issues to tackle by finding the themes that are shared! #PatientChat |
| Savvy Cooperative | #AskPatients @savvy_coop @verylightnosuga This is very very true. Already engaged. But it may be a start. And those who are already activated can work with their communities as well. We must do better, but there will be inherent bias to begin. #patientchat |
 | Jim Myers @kidneystories RT @gratefull080504: Hi Kevin checking in from Chicago Patient Advocacy interests: Hi Kevin checking in from Chicago Patient Advocacy interests: spectrum of #kidneydisease #patientchat |
| Christina Lizaso @btrfly12 re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! gratefull080504: @richardzhao Yes #patientchat https://t.co/855zoeQtra |
| Savvy Cooperative | #AskPatients @savvy_coop RT @ShereesePubHlth: @savvy_coop @MightyCasey @gratefull080504 Exactly. If you ask 20 ppl, you'll get 20 answers regarding the definition of healthcare "value" . This speaks to #PrecisionMedicine and the idea that patients be seen as collaborators, not studies #patientchat |
| Jim Myers @kidneystories RT @gratefull080504: T1: T1: In the US healthcare has never been designed for patients Time to right the ship #patientchat https://t.co/WmyYtHqAIr |
| Jamie Holloway, PhD @jamienholloway @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Patient Chat @patientchat T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T5: T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Jim Myers @kidneystories RT @richardzhao: T3: T3: If patients do not bring transparency to the system, nobody will. The more transparent, the less confussion or over-charged bills. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Alan Brewington @abrewi3010 T4 reduce the paperwork storm in healthcare so patients don’t have to live through the sick experience twice. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Christina Lizaso @btrfly12 @lisadbudzinski I hope @RareAdvocates goes well - thanks for all you do to advocate for patients :) #patientchat |
| HealthSparq @HealthSparq RT @btrfly12: re: re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Patient Critical Co-op @PatientCritical T4: Different patients want different things, so how can all pts’ needs be met? This is why we need groups organized around issue specific groups, research specific groups & national issues affecting all patients. And keep communicating between groups. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @btrfly12: re: re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Christina Lizaso @btrfly12 RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @btrfly12: re: re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @jamienholloway @ShereesePubHlth @MightyCasey @gratefull080504 You're in my head!!! YES. their individual experiences may differ, but at the end of the day we are all humans who want to be heard, valued and respected. #patientchat |
| HealthSparq @HealthSparq RT @btrfly12: RT @patientchat T5: RT @patientchat T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T5 Preregistration tech was introduced b/c of patients. The innovation is designed to reduce wait times & cut down on transactional inefficiencies #API #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @btrfly12 @RareAdvocates Awww thank you for that Christina💕💕💕 Its going to be hard for us as #intractable #pain #patients but it needs to be done✨ #patientchat |
| HealthSparq @HealthSparq @bbhomebody @lisadbudzinski @RareAdvocates @Cpnervecenter I love this. #patientchat |
| Barby Ingle Official @BarbyIngle T5. Where I have seen specific examples of system changes due to patient involvement is clinical trials, having the patients meet the researchers, & participate from idea through creation, like Movantik (OIC med), to marketing, our voice & experiences mattered #patientchat https://t.co/E6gsHoc1FJ |
| HealthSparq @HealthSparq RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T5: ...thinking...thinking...I wish I could come up with an answer to this! #patientchat https://t.co/Ks376ZyCku |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T5. Where I have seen specific examples of system changes due to patient involvement is clinical trials, having the patients meet the researchers, & participate from idea through creation, like Movantik (OIC med), to marketing, our voice & experiences mattered #patientchat https://t.co/E6gsHoc1FJ |
| Christina Lizaso @btrfly12 RT @abrewi3010: T4 all humans want a higher quality of life. If we treat humans, not symptoms, we can improve everyone’s lives. #patientchat |
| HealthSparq @HealthSparq RT @savvy_coop: @jamienholloway @ShereesePubHlth @MightyCasey @gratefull080504 You're in my head!!! YES. their individual experiences may differ, but at the end of the day we are all humans who want to be heard, valued and respected. #patientchat |
 | Shanon McQuitty @shanonmc RT @PatientCritical: T1: T1: is the better question HOW can patients and families be included in redesigning health care systems & processes? #healthcare exists to make us well after all. A byproduct of patient #codesign? It save $ for biz & make system more sustainable for all. #patientchat |
| Ken Taylor, RPIC @KenRayTaylor RT @BarbyIngle: T5. Where I have seen specific examples of system changes due to patient involvement is clinical trials, having the patients meet the researchers, & participate from idea through creation, like Movantik (OIC med), to marketing, our voice & experiences mattered #patientchat https://t.co/E6gsHoc1FJ |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: T5. Where I have seen specific examples of system changes due to patient involvement is clinical trials, having the patients meet the researchers, & participate from idea through creation, like Movantik (OIC med), to marketing, our voice & experiences mattered #patientchat https://t.co/E6gsHoc1FJ |
| The II @Interventional2 We are working with patients like this one to share stories that provide more awareness about treatment options. We would like to hear more from patients. #patientchat #withoutascalpel https://t.co/6q1GPMyo8F |
| Patient Critical Co-op @PatientCritical T4: Different patients want different things, so how can all pts’ needs be met? We risk creating more silos, but have to balance that against tackling issues too large it muddies any coherent message. Pick your battles & again, keep communicating between groups. #patientchat |
| Alan Brewington @abrewi3010 A5 my first rheumatologist never wore a watch. I got his undivided attention without the time stressfulness usually involved in appointments #patientchat |
| Dr Mary Ann Wilmarth @Back2backPT A1 It starts w/basic premise of humanity & what used 2B basis of #medical & #PT school when I was @DukeU #compassion #Caring #empathy Listen to your #patients Check out @JeremyHowick 4 evidence. All the high-tech won't take place of👂👀 @Back2backPT #patientchat @power4patients |
| Enlightening Results 💡 @GraceCordovano T5: Patient-reported outcomes in trials and studies are taking up steam! @US_FDA #PatientChat https://t.co/nu3EYUdgEd |
| The Advocate Is In @TheAdvocateIsIn T5: I had the opportunity to give input on a diabetes weight loss program for a major pharma company once. They were backing off on support at the exact moment they should have increased it. #patientchat |
| FrancieGrace @FrancieGrace #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: the organizing principle that everything that is done or proposed must be relentlessly measured against "How does this help the health and well-being of patients?" https://t.co/nYVlCvEMg1 |
 | Vera Rulon FAHIMA @vrulon @ShereesePubHlth Joining late!! The power of co-design!! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @FrancieGrace: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: the organizing principle that everything that is done or proposed must be relentlessly measured against "How does this help the health and well-being of patients?" https://t.co/nYVlCvEMg1 |
| Patient Critical Co-op @PatientCritical T5: #patientchat #mpgac https://t.co/hWa03L3NJO |
| HealthSparq @HealthSparq @GraceCordovano @US_FDA Any links to share?! #PatientChat |
| Richard Zhao @richardzhao T5: We are trying to include patients interpretation into our algorithm. Great patients advocates like @bbhomebody @fireflyrn84 @lisadbudzinski all participated in this process. #patientchat https://t.co/XfBBc4HnSu |
| Patient Critical Co-op @PatientCritical RT @PatientCritical: T5: T5: #patientchat #mpgac https://t.co/hWa03L3NJO |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T5: T5: Patient-reported outcomes in trials and studies are taking up steam! @US_FDA #PatientChat https://t.co/nu3EYUdgEd |
| Savvy Cooperative | #AskPatients @savvy_coop @abrewi3010 My current rheum gives me all the time I need (and even kept my whole paper chart because she said I was one she wanted to flip back through history and too complicated with EHR). Connect on a human level, so novel! #patientchat |
| Jamie Holloway, PhD @jamienholloway T5: What's that phrase about how to eat an elephant-- one bite at a time? Hard to make a change to the big system without starting small. I've seen great progress in individuals, university settings, pharma. #patientchat |
| Melissa VanHouten @melissarvh T5 Not sure I can find specific example, but changes over time are clear. Chats like this & talk re including patients=progress #patientchat |
| Mary MACK @MaryOCMack T5 some clinical trial sponsors will pay for costs of patient travel to trial sites. #patientchat |
| Alan Brewington @abrewi3010 T5 #Medx #Hcsm #patientchat are perfect examples of patients designing #healthcare for the betterment of all. |
| Patient Empowerment Network @power4patients @TheAdvocateIsIn Great! Did they change their approach as a result of your input? Did you feel listened to? #patientchat |
| HealthSparq @HealthSparq RT @savvy_coop: @abrewi3010 My current rheum gives me all the time I need (and even kept my whole paper chart because she said I was one she wanted to flip back through history and too complicated with EHR). Connect on a human level, so novel! #patientchat |
| The II @Interventional2 RT @FrancieGrace: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: the organizing principle that everything that is done or proposed must be relentlessly measured against "How does this help the health and well-being of patients?" https://t.co/nYVlCvEMg1 |
| Vera Rulon FAHIMA @vrulon @savvy_coop @jamienholloway @ShereesePubHlth @MightyCasey @gratefull080504 Agree --- 'value to who'?? In my view --- value to people/patients! #patientchat |
| HealthSparq @HealthSparq @savvy_coop @abrewi3010 These are the people we need more of in #healthcare! #WTFix #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski @richardzhao @bbhomebody @fireflyrn84 Thank you for the shout out!! Yes, we love helping you✨ #patientchat |
| Patient Chat @patientchat Last Topic (T6:) coming up...https://t.co/orcg0zpcRH #patientchat |
| Patient Critical Co-op @PatientCritical A perfect example of the Venn diagram of efficiency & care. #patientchat https://t.co/QzhtWlwsqT |
| RaquelRoschell @raquelonpurpose RT @patientchat: T5: T5: Is there a specific example of a system or process that was changed or designed because of patients? #patientchat |
| Richard Zhao @richardzhao @lisadbudzinski @bbhomebody @fireflyrn84 Love to have you helping us out, even I am so late on some stuff. #patientchat |
| Alan Brewington @abrewi3010 RT @savvy_coop: @abrewi3010 My current rheum gives me all the time I need (and even kept my whole paper chart because she said I was one she wanted to flip back through history and too complicated with EHR). Connect on a human level, so novel! #patientchat |
| Richard Zhao @richardzhao RT @lisadbudzinski: @richardzhao @bbhomebody @fireflyrn84 Thank you for the shout out!! Yes, we love helping you✨ #patientchat |
| Jamie Holloway, PhD @jamienholloway @HealthSparq @GraceCordovano @US_FDA The FDA-- esp. @FDAOncology-- does a phenomenal job of engaging patients and acting on their input: PROs, modernizing eligibility criteria publications, breakthrough designation... #patientchat |
| RaquelRoschell @raquelonpurpose RT @savvy_coop: T1: T1: Patients and caregivers are experts on their experiences, you don't get that insight from a textbook, it comes from lived experiences. When patients/caregivers bring that expertise and work with those in other fields they can create solutions that actually matter #patientchat https://t.co/32tSl4589Q |
 | couragesings @couragesings RT @btrfly12: re: re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Alan Brewington @abrewi3010 @savvy_coop So cool to hear! #patientchat |
| Patient Chat @patientchat T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation? #patientchat |
| Patient Critical Co-op @PatientCritical T5: Apple adding years-old FHIR tech to iPhones to permit the clients of a dozen silo'd health portals is a first step. It indicates tech Giants now entering #healthcare see value in the health conscious demographic. That's a wedge we can use to expand awareness. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @FrancieGrace Oh yeah it's a total buzzword. And the diagrams of patient-centered care with a patient and people around them is bizarre. Patients want to be partners, not stared at like a zoo animal #patientchat https://t.co/BELuyZtPHO |
| Vera Rulon FAHIMA @vrulon @btrfly12 @patientchat Someone already mentioned clinical trials - patient speaking among themselves about their trials via social media change a paradigm - can't blind #patientchat |
| The II @Interventional2 Patients speaking at medical conferences to healthcare professionals are a powerful way to be heard by specific medical disciplines! #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @bbhomebody @HealthSparq @lisadbudzinski @RareAdvocates @Cpnervecenter Can't wait to follow you both! #patientchat |
 | Cat Williams @dizzycatdesign RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
| Alan Brewington @abrewi3010 @HealthSparq @savvy_coop Yes we do!!!!! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @btrfly12: RT @patientchat T6: RT @patientchat T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @richardzhao @bbhomebody @fireflyrn84 We totally understand 😉 It’s how our lives as #patients run any way. So win-win ✨#patientchat |
| Jamie Holloway, PhD @jamienholloway Great point, Diana! #patientchat https://t.co/cZDZIwliSV |
| Savvy Cooperative | #AskPatients @savvy_coop @vrulon @jamienholloway @ShereesePubHlth @MightyCasey @gratefull080504 That's the goal :) #patientchat |
| FrancieGrace @FrancieGrace RT @Interventional2: Patients speaking at medical conferences to healthcare professionals are a powerful way to be heard by specific medical disciplines! #patientchat |
| Melissa VanHouten @melissarvh T6 How soon can I sign up? :) #patientchat |
| Richard Zhao @richardzhao T5: Whoever want to participate our annotation, which is to include consumer's interpretation into patient experience, we are willing to take. Follow the footsteps of @lisadbudzinski @fireflyrn84 @bbhomebody @RieOfLetters #patientchat |
| Christina Lizaso @btrfly12 RT @jamienholloway: @HealthSparq @GraceCordovano @US_FDA The FDA-- esp. @FDAOncology-- does a phenomenal job of engaging patients and acting on their input: PROs, modernizing eligibility criteria publications, breakthrough designation... #patientchat |
| RaquelRoschell @raquelonpurpose So many great chats to choose. Making it to this one late. I've read some great tweets so far.. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @richardzhao: T5: T5: Whoever want to participate our annotation, which is to include consumer's interpretation into patient experience, we are willing to take. Follow the footsteps of @lisadbudzinski @fireflyrn84 @bbhomebody @RieOfLetters #patientchat |
| FrancieGrace @FrancieGrace RT @Interventional2: We believe it is the responsibility of healthcare professionals & disease specific advocacy groups to present medical information in comprehensible ways so that the public does understand and can fully participate in the process, treatment options and the care plan. #patientchat https://t.co/s88XUU97SQ |
 | Diana Merino Vega @d2merino RT @btrfly12: re: re: co-design - Don't forget to check out the recent #HowNotToDoPtEngagement #HowToDoPtEngagement threads :) #patientchat |
| Alan Brewington @abrewi3010 T6 yesssssssss!!!! #patientchat |
| RaquelRoschell @raquelonpurpose RT @jamienholloway: @ShereesePubHlth @savvy_coop @MightyCasey @gratefull080504 Still, I think there are big themes that apply-- respect me, respect my time, listen to me, help me understand. Those work in all situations, & will begin to address the individualized needs. #patientchat |
 | Oscar’s Mom 🩺🟧🇺🇦 @dachshundmom14 #patientchat |
 | Amanda Haddock 🧬 @AmandaHaddock RT @jamienholloway: I think there's a patient for every level. Sometimes a patient's role is to share their story, but sometimes they need to review the science or processes to make sure that they're in line with patient needs. #patientchat https://t.co/VwqaomurNe |
| HealthSparq @HealthSparq RT @btrfly12: RT @patientchat T6: RT @patientchat T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation? #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @jamienholloway @HealthSparq @GraceCordovano @US_FDA @FDAOncology Great point, #PFDD meetings are a great start, they have many #patientengagement initiatives as well. Although honestly sometimes I am unclear how it translates or if just giving patients a space to speak. But it is movement towards listening to patients. #patientchat |
| Amanda Haddock 🧬 @AmandaHaddock RT @savvy_coop: T1: T1: Patients and caregivers are experts on their experiences, you don't get that insight from a textbook, it comes from lived experiences. When patients/caregivers bring that expertise and work with those in other fields they can create solutions that actually matter #patientchat https://t.co/32tSl4589Q |
| Patient Critical Co-op @PatientCritical This also helps to evolve the discussions of patient participation beyond 'should they be here' in the first place? #patientchat https://t.co/nTK2rv2zoG |
| Patient Empowerment Network @power4patients Interested in hearing more thoughts about how increasing health literacy creates more meaningful opportunities for patient-centered design. BYW, we agree! #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| The Advocate Is In @TheAdvocateIsIn T6: I'm in. #patientchat |
| HealthSparq @HealthSparq T6. YES! #patientchat https://t.co/V1Q6dt0W95 |
| Christina Lizaso @btrfly12 RT @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Vera Rulon FAHIMA @vrulon @btrfly12 @patientchat @power4patients There is some great work being done out west (Berkeley) on co-design. I'm mostly aware of in the aging space... but this applies to all!! #patientchat |
| Richard Zhao @richardzhao @lisadbudzinski @bbhomebody @fireflyrn84 Yeah. Everybody is trying to juggling several balls at the same time for lifes. #patientchat |
| Cat Williams @dizzycatdesign @patientchat hope it's ok to jump into #patientchat. Hard to read/type using @AffloVest +doing nebs for #cysticfibrosis. Good discussion!👏 |
 | Espaço Jovem @twjovem #patientchat Top PopMusic in RadioGlobal! https://t.co/Ti9lBOmIu6 |
| HealthSparq @HealthSparq Changes to #healthcare don't all have to be huge, a lot fo the time simple, small changes work wonders! Great insight @QuinlanTurner! #PatientChat #WTFix https://t.co/RnEyIgl2YV |
| Amanda Haddock 🧬 @AmandaHaddock RT @Interventional2: Patients speaking at medical conferences to healthcare professionals are a powerful way to be heard by specific medical disciplines! #patientchat |
 | Jillian Buza @JillianBuza RT @BarbyIngle: T4. Individualized medicine There is never going to be a one size fits all When we move to a patient-centered approach & TX each person as they are then we will see better outcomes The TXs that work for me dont work for all with same diseases due to genetics & enviro #patientchat https://t.co/oE0jBpUSkR |
| Savvy Cooperative | #AskPatients @savvy_coop T6: Quite literally our favorite thing. Totally in! #patientchat https://t.co/pqgzwHNpsm |
| Amanda Haddock 🧬 @AmandaHaddock RT @vrulon: @btrfly12 @patientchat Someone already mentioned clinical trials - patient speaking among themselves about their trials via social media change a paradigm - can't blind #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation? #patientchat |
| Vera Rulon FAHIMA @vrulon @power4patients Communication is at the heart of any improvement in the system!! Providers need to adapt their language to help. #patientchat |
| Alan Brewington @abrewi3010 RT @HealthSparq: T6. YES! #patientchat https://t.co/V1Q6dt0W95 |
| Amanda Haddock 🧬 @AmandaHaddock RT @MaryOCMack: T5 some clinical trial sponsors will pay for costs of patient travel to trial sites. #patientchat |
| Barby Ingle Official @BarbyIngle Thank you .@mswizzzard for your service to the chronic community. I have done a lot of trials myself and know it is not easy but it is progress for our futures and our communities future #patientchat https://t.co/g72omVUZN4 |
| Diana Merino Vega @d2merino @PatientCritical There should be some type of educational curricula to more rapidly and effectively enable patients to be able to do this. I have seen patients who perhaps did more harm to the field bc they were not properly trained #patientchat |
| Jillian Buza @JillianBuza RT @abrewi3010: T1 healthcare for people needs to be designed by humans, not the beast of #healthcare. QOL comes from human centered ideas. #patientchat |
 | Annette McKinnon @anetto RT @richardzhao: @lisadbudzinski @bbhomebody @fireflyrn84 Yeah. Everybody is trying to juggling several balls at the same time for lifes. #patientchat |
| Patient Critical Co-op @PatientCritical #patientchat If you discuss "why involve patients & caregivers?" with anyone, this illustration says it all. https://t.co/BdgM3tziMx |
| Amanda Haddock 🧬 @AmandaHaddock RT @FrancieGrace: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: the organizing principle that everything that is done or proposed must be relentlessly measured against "How does this help the health and well-being of patients?" https://t.co/nYVlCvEMg1 |
| Christina Lizaso @btrfly12 T5: there is a great #btsm initiative with patients included in the design going on to check out another example leading the way #patientchat |
| Vera Rulon FAHIMA @vrulon @dizzycatdesign @patientchat @AffloVest Welcome! #patientchat |
| Richard Zhao @richardzhao Great to have somebody like you on the project from the bottom of my heart! True #Leaders take action! #patientchat https://t.co/jmS5qdskNW |
| Alan Brewington @abrewi3010 CT Failure is just as valuable as success in human centered design. Humans are not perfect, but that doesn’t mean we can’t learn to be. #patientchat |
| HealthSparq @HealthSparq RT @jamienholloway: @HealthSparq @GraceCordovano @US_FDA The FDA-- esp. @FDAOncology-- does a phenomenal job of engaging patients and acting on their input: PROs, modernizing eligibility criteria publications, breakthrough designation... #patientchat |
| Annette McKinnon @anetto RT @power4patients: Interested in hearing more thoughts about how increasing health literacy creates more meaningful opportunities for patient-centered design. BYW, we agree! #patientchat |
| Melissa VanHouten @melissarvh CT Tell your unique story loudly & often & fight for the changes you seek. Patient-centered must be > just a buzzword. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @GinaMcGalliard @FrancieGrace Oh goodness no - if this is as good as it gets, we're in danger. #patientchat https://t.co/TBQ3zcQ0VK |
| Christina Lizaso @btrfly12 RT @melissarvh: CT Tell your unique story loudly & often & fight for the changes you seek. Patient-centered must be > just a buzzword. #patientchat |
| Amanda Haddock 🧬 @AmandaHaddock With #patientchat and #nihchat traffic at the same time, it’s a field day for those looking to improve patient outcomes! |
| Dr Mary Ann Wilmarth @Back2backPT A1 Spent entire life #educating myself & my3 children: #DVM #Neuro #Resident #MBA #healthcare #architect #lifelonglearning #advocating & my MDs won't listen & act as if I don't want to go #backtowork I was #CEO at 28yrs-old! HELLO‼️ @Back2backPT #patientchat @power4patients https://t.co/tZGTtlIMt9 |
| Vera Rulon FAHIMA @vrulon @GinaMcGalliard @savvy_coop @FrancieGrace Oh my.... culture change needed!!! #patientchat |
| Cat Williams @dizzycatdesign @vrulon @patientchat @AffloVest Thanks! First time at #patientchat |
| RaquelRoschell @raquelonpurpose Great insight #patientchat https://t.co/cs5qfj9qeD |
| Christina Lizaso @btrfly12 RT @HealthSparq: Changes to #healthcare don't all have to be huge, a lot fo the time simple, small changes work wonders! Great insight @QuinlanTurner! #PatientChat #WTFix https://t.co/RnEyIgl2YV |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat |
| Jamie Holloway, PhD @jamienholloway @AmandaHaddock Thanks for the heads up! I'll have to head over and read #nihchat this afternoon-- missed that one! #patientchat |
| Patient Critical Co-op @PatientCritical And while we need to move into partnership not blame in #healthcare, this graphic shows the problem of tokenistic patient engagement from the patient perspective: #patientchat https://t.co/z5eT7Cppvb |
| Annette McKinnon @anetto RT @savvy_coop: @FrancieGrace Oh yeah it's a total buzzword. And the diagrams of patient-centered care with a patient and people around them is bizarre. Patients want to be partners, not stared at like a zoo animal #patientchat https://t.co/BELuyZtPHO |
| Patient Chat @patientchat #patientchat is your community. Thanks for joining in today and if there is any additional you want to included in our guide, please reach out to @power4patients or @patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @FrancieGrace : This is the essence of #patientcentered care #patientchat https://t.co/vCFpdhHhx0 |
| Vera Rulon FAHIMA @vrulon @abrewi3010 How true! We learn from our failures and then improve... :) #patientchat |
| Barby Ingle Official @BarbyIngle CT: Always stand up for yourself & get involved in your care and your family members care so that you get the best care possible. The US system is not set up for chronic care needs so we must create our individualized paths & never give up on getting better! #patientchat |
| Melissa VanHouten @melissarvh Many thanks to @patientchat & @power4patients for hosting another fabulous discussion! #patientchat |
| Heather McCullen @H_SalemOaks RT @savvy_coop: T4 I think it's important to step out of our own echo chambers and ask diverse patients what they want, and then work together to provide those opportunities. I think as patient advocates, we can also fall victim to thinking we know the whole community's needs. #patientchat |
| FrancieGrace @FrancieGrace #patientchat Those diagrams are awful. Patients know when they ARE at the center of things if: MD listens, answers Qs, is willing to communicate between appts, adjusts treatment based on patient experience/input, consults others when not sure what's wrong, corrects MedRec errors https://t.co/oK4ny7kwIh |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, March 9th at 10amPT | 1pmPT. Hope to see you there! |
| Annette McKinnon @anetto RT @FrancieGrace: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: #patientchat "Patient-centered" can be misused meaningless buzz word but for the sincere, here's a definition: the organizing principle that everything that is done or proposed must be relentlessly measured against "How does this help the health and well-being of patients?" https://t.co/nYVlCvEMg1 |
| Jamie Holloway, PhD @jamienholloway Shameless plug for the #patientchat crew, but I wrote a piece for @Science37x last week on patient centered research. Like the chat, but more characters! https://t.co/zTEnP5SAEP |
| Savvy Cooperative | #AskPatients @savvy_coop RT @FrancieGrace: #patientchat Those diagrams are awful. Patients know when they ARE at the center of things if: #patientchat Those diagrams are awful. Patients know when they ARE at the center of things if: MD listens, answers Qs, is willing to communicate between appts, adjusts treatment based on patient experience/input, consults others when not sure what's wrong, corrects MedRec errors https://t.co/oK4ny7kwIh |
| The II @Interventional2 Studies show that Empowered Patients have better outcomes! #patientchat #FridayMotivation #withoutascalpel https://t.co/hq6Z1z6wms |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Christina Lizaso @btrfly12 RT @BarbyIngle: CT: CT: Always stand up for yourself & get involved in your care and your family members care so that you get the best care possible. The US system is not set up for chronic care needs so we must create our individualized paths & never give up on getting better! #patientchat |
| Patient Critical Co-op @PatientCritical Exactly! #healthliteracy & courage to ask & question are in short supply. We need to make the courage & conviction that it's a patient's right to question commonplace! #patientchat https://t.co/K9IEIoCwBD |
| Richard Zhao @richardzhao Got go to meeting now. Have a nice weekend everybody! #patientchat |
 | PREFeR_Project @PREFeRProject Want research on health care topics that matter to you? We want to hear from anyone living in #BC in this 5-10 minute survey: https://t.co/Eh4mxCjkxa #patientchat #PatientOrientedResearch @PatientVoicesBC @DrMroz @dhwanibabla @ChangeDayBC @VancouverCHI @ubcspph @SFUResearch https://t.co/Z8GHG28TCr |
| Christina Lizaso @btrfly12 RT @patientchat The next Empowered #patientchat will be Friday, March 9th at 10amPT | 1pmPT. Hope to see you there! |
| Christina Lizaso @btrfly12 RT @patientchat: #patientchat is your community. Thanks for joining in today and if there is any additional you want to included in our guide, please reach out to @power4patients or @patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: CT: CT: Always stand up for yourself & get involved in your care and your family members care so that you get the best care possible. The US system is not set up for chronic care needs so we must create our individualized paths & never give up on getting better! #patientchat |
| FrancieGrace @FrancieGrace RT @gratefull080504: T4: My bible is the Institute of Medicine Report: T4: My bible is the Institute of Medicine Report: Crossing the Quality Chasm #patientcentered care take into account patient preferences Patients must drive policy #patientchat https://t.co/Q1g5MB4Wdz |
| Vera Rulon FAHIMA @vrulon Signing off #patientchat!! Even though I joined late it was a terrific conversation!! |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: CT: CT: Always stand up for yourself & get involved in your care and your family members care so that you get the best care possible. The US system is not set up for chronic care needs so we must create our individualized paths & never give up on getting better! #patientchat |
| FrancieGrace @FrancieGrace RT @gratefull080504: @FrancieGrace : @FrancieGrace : This is the essence of #patientcentered care #patientchat https://t.co/vCFpdhHhx0 |
 | Darren Klass @MRAkid RT @Interventional2: Studies show that Empowered Patients have better outcomes! #patientchat #FridayMotivation #withoutascalpel https://t.co/hq6Z1z6wms |
| Vera Rulon FAHIMA @vrulon @btrfly12 @patientchat I'll be traveling home from HIMSS18 but will try if not inflight!! #patientchat |
 | Laura Walters @elcie28 RT @Interventional2: Studies show that Empowered Patients have better outcomes! #patientchat #FridayMotivation #withoutascalpel https://t.co/hq6Z1z6wms |
| HealthSparq @HealthSparq RT @savvy_coop: @FrancieGrace Oh yeah it's a total buzzword. And the diagrams of patient-centered care with a patient and people around them is bizarre. Patients want to be partners, not stared at like a zoo animal #patientchat https://t.co/BELuyZtPHO |
| Dr Mary Ann Wilmarth @Back2backPT A6 I'd absolutely be interested in help 2 create guide! I have many ideas. Just getting started, but my hands are weak, thumbs dislocated (I told previous MD, but was dismissed-only my area of expertise😊) & I'm slow bc in flare🤷♀️ @Back2backPT #patientchat @power4patients https://t.co/xZXF0X0igf |
| HealthSparq @HealthSparq Amazing #patientchat, as always!! Thank you @btrfly12 @patientchat! |
| Barby Ingle Official @BarbyIngle Top Influencers of #patientchat 👉 @patientchat @jamienholloway @savvy_coop @btrfly12 @gracecordovano @barbyingle @abrewi3010 @healthsparq @power4patients https://t.co/fdl7XTRr1I via @symplur |
| Savvy Cooperative | #AskPatients @savvy_coop Thanks #patientchat! And if interested in #patientengagement, we'll be talking abt connected patient care at #HIMSS18 with @Lygeia & @HealthData4All and looking to present your thoughts to the crowd (since we believe we can't speak for everyone!) Survey: https://t.co/M3XEKPW4sE https://t.co/PC0Z7zUUeD |
| Enlightening Results 💡 @GraceCordovano RT @BarbyIngle: Top Influencers of #patientchat 👉 @patientchat @jamienholloway @savvy_coop @btrfly12 @gracecordovano @barbyingle @abrewi3010 @healthsparq @power4patients https://t.co/fdl7XTRr1I via @symplur |
| The II @Interventional2 Enjoyed the #patientchat today! @patientchat @savvy_coop @HealthSparq @power4patients #FridayMotivation #patientchat https://t.co/mqw41LrnQ4 |
 | John Lynn @techguy Those new hashtags are a great idea. #PatientChat https://t.co/cM2zvnYGXW |
| Patient Critical Co-op @PatientCritical Thanks for all the good work and sparking so much discussion #patientchat! We'll do our best to carry it into the world, and put the inspiration you help light up into practice in healthcare! |
| FrancieGrace @FrancieGrace RT @BarbyIngle: CT: CT: Always stand up for yourself & get involved in your care and your family members care so that you get the best care possible. The US system is not set up for chronic care needs so we must create our individualized paths & never give up on getting better! #patientchat |
| John Lynn @techguy I think we have to be a little careful with this if compensation=money. Once you add money to the equation, then you're an employee and will be treated like an employee. Sometimes it's better not to be financially compensated, but to be "paid" in other ways. #patientchat https://t.co/F3dW2qDABO |
| Dr Mary Ann Wilmarth @Back2backPT A4 All #patients want someone to #listen to them; to show some #empathy ; to look them in the #eye at some point during their visit; & want to #getwell That gives a great #platform from which to start with #commonalities @Back2backPT #patientchat @power4patients https://t.co/0WKYuqkyTk |
 | beccafinley3 @Sossity57 #DumpNRATV #ChangeAWordImproveAFilm #BadTimesToSayCheckPlease The NCAA #patientchat #SSAC18 #FAT2018 #HITsm https://t.co/zCCEhstY4T |
| HealthSparq @HealthSparq RT @BarbyIngle: Top Influencers of #patientchat 👉 @patientchat @jamienholloway @savvy_coop @btrfly12 @gracecordovano @barbyingle @abrewi3010 @healthsparq @power4patients https://t.co/fdl7XTRr1I via @symplur |
 | Janae Sharp @CoherenceMed @techguy What ways? #PatientChat |
#patientchat content from Twitter.