#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
 | Patient Empowerment Network @power4patients Happy Friday everyone! Reagan from @power4patients here and excited for today's #patientchat |
 | Carly Flumer (she/her) @carlyflumer Hello, I’m Carly, an #AYA #thyca patient. Happy to be here! 🦋 #patientchat |
 | Simply Kristy @SimplyKristyD Hi Everyone 👋 I am Kristy, a mom, spouse, rare disease patient and a founder (@cshealthapp). #patientchat |
| Patient Chat @patientchat Happy Friday! I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat 😊 |
 | ROHHADwarrior @ROHHAD_warrior @patientchat Hello! I’m Sarah from MI #patientchat |
 | Marie Ennis-O'Connor @JBBC Hi everyone I am delighted to be here - I'm Marie tweeting from a sunny Ireland today #patientchat |
| Simply Kristy @SimplyKristyD @GalNamedJake It's nice to meet you, Jackie :) #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake hey Jackie - great to see you here #patientchat |
| Simply Kristy @SimplyKristyD @ROHHAD_warrior @patientchat Hi Sarah! It's nice to meet you :) #patientchat |
| Simply Kristy @SimplyKristyD @rarelikeher @remember_girls Hi Taylor! 👋 How are things going? #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD @cshealthapp hi there :-) #patientchat |
| Simply Kristy @SimplyKristyD @christie_health Hello from a fellow Kristy 😊 #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Adam Johnson - DadVocate @RareDiseaseDad @patientchat Hi everyone. I'm Adam, a #RareDisease patient who is a dad and an advocate. I call myself a #DadVocate. I'll be in and out a bit today as my daughter starts to launch a project to raise awareness and funds for #mitochondrialdisease, but looking forward to today's #patientchat. |
| Simply Kristy @SimplyKristyD @JBBC @cshealthapp How are you, Marie? #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD really well thank you Kristy :-) #patientchat |
 | Kristie Konsoer @kkbadger1 Hi there - I'm Kristie from WI. #patientchat |
 | Lisa Sharp, MPH @lisasharpgrady Hi! I'm Lisa from @Dartmouth HCF. #patientchat |
| Marie Ennis-O'Connor @JBBC @kkbadger1 Hi Kristie - great to see you #patientchat |
| Simply Kristy @SimplyKristyD @kkbadger1 Yay, another Kristy! 😁 #patientchat |
| Marie Ennis-O'Connor @JBBC @lisasharpgrady hi there Lisa - lovely to see you #patientchat |
| Patient Chat @patientchat @kkbadger1 Happy to have you here with us Kristie! #patientchat |
| Patient Chat @patientchat @lisasharpgrady @dartmouth Hi Lisa, happy you can join us today 😊 #patientchat |
| Kristie Konsoer @kkbadger1 @JBBC You too! #patientchat |
| Simply Kristy @SimplyKristyD @RareDiseaseDad @patientchat Hi Adam, long time no 'see.' I'd love to learn more about your daughter's project 😊 #patientchat |
| Patient Chat @patientchat @RareDiseaseDad Hi Adam! Always a pleasure to have you join us! #patientchat |
 | Patient Worthy @PatientWorthy Hi #patientchat! This is Jessica from Patient Worthy. We are a leading source of #raredisease news and seek to amplify the patient voice. Excited to talk to you today! |
| Patient Worthy @PatientWorthy @RareDiseaseDad @patientchat Hey Adam! Good to see you. #patientchat |
| Patient Chat @patientchat @GalNamedJake Jackie, it’s wonderful to have you here with us today! #patientchat |
| Patient Chat @patientchat Today's #patientchat is an “Ask Me Anything” chat with Marie @JBBC. So yes, please ask anything! You can also see suggested topics here: https://t.co/Z6wU3yW9cS |
| Patient Worthy @PatientWorthy @JBBC Hi Marie! How are you doing? #patientchat |
| Patient Worthy @PatientWorthy @rarelikeher @remember_girls Hey Taylor! Great to see you today. #patientchat |
| Marie Ennis-O'Connor @JBBC Looking forward to answering your social media related questions #patientchat |
| Lisa Sharp, MPH @lisasharpgrady * #DartmouthHCF #patientchat |
 | capital_P_dangit @capitalp_dangit capital_P_dangit() |
| Patient Chat @patientchat Today we will not have our regularly labeled topics (T1, T2). We want to hear the topics and questions that you have. We have Maire @JBBC ready to hear your thoughts #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake great question Jackie - i use both - medium is super fast and easy to get started on #patientchat |
| Patient Chat @patientchat @JBBC #patientchat |
| ROHHADwarrior @ROHHAD_warrior @patientchat @JBBC Is it best to capitalize each new word in a hashtag so that a reader can decipher the #Hashtag? #PatientChat |
| Patient Chat @patientchat RT @JBBC: Looking forward to answering your social media related questions #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @GalNamedJake great question Jackie - i use both - medium is super fast and easy to get started on #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake but you don't own it the same way you own WordPress - #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake also you can't run the same level of analytics on it as you can on wordpress #patientchat |
| Patient Chat @patientchat Don’t forget we have some ideas on our event page to get you thinking: https://t.co/Z6wU3yW9cS #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake so there's advantages and disadvantages - comes down to what you want to achieve with blogging #patientchat |
| Patient Chat @patientchat What would you like to ask Marie @JBBC? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior that's a great question! There's no hard and fast rule to that but capitalizing makes it more legible #patientchat |
 | Spencer Health Solutions @spencerhealth Hi @JBBC! Great to connect on #patientchat! (BTW - This is @GetSocialHealth commenting as Spencer Health. I'm the Sr Digital Brand Manager for Spencer.) |
| Marie Ennis-O'Connor @JBBC @spencerhealth hi great to meet you! #patientchat |
| ROHHADwarrior @ROHHAD_warrior @JBBC Thank you! I have a friend that is a great advocate and she was stressing this. 😊#PatientChat |
| Patient Empowerment Network @power4patients RT @JBBC: @GalNamedJake but you don't own it the same way you own WordPress - #patientchat |
| Spencer Health Solutions @spencerhealth @Medium is a paid platform now, so not as easy to spread the word. #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake what are your thoughts Jackie? I know you used wordpress in the past but i see you on medium now #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior that's a great question! There's no hard and fast rule to that but capitalizing makes it more legible #patientchat |
| Kristie Konsoer @kkbadger1 I'm interested in increasing followers/readership for my blog. I've read tips, am doing most of them, but it still feels slow after 2+ years. #patientchat |
| Spencer Health Solutions @spencerhealth @ROHHAD_warrior @patientchat @JBBC That's what I do when it's a new or non-familiar hashtag. #PatientChat |
| Marie Ennis-O'Connor @JBBC @spencerhealth yes a good point - you only get something like 5 free articles a month but you can share links w/ friends #patientchat |
| Patient Chat @patientchat RT @ROHHAD_warrior: @patientchat @JBBC Is it best to capitalize each new word in a hashtag so that a reader can decipher the #Hashtag? #PatientChat |
 | Terri Coutee @6state @patientchat @JBBC Hi @JBBC What are your favs for measuring your impact? #patientchat |
| Marie Ennis-O'Connor @JBBC @spencerhealth but Medium does seem to have high visibilty and reach #patientchat |
 | Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz I'm 34 & have three #rarediseases, and have been a federal health patient advocate since 2013. I'm very much a "80/20" D.C. resident with the remainder of my time in Bucks County. #patientchat. I sit on 4/5 @EveryLifeOrg's working groups and am a @remember_girls Board member. |
| Simply Kristy @SimplyKristyD Hi @JBBC. what are some of your favourite Twitter health chats to participate in? #patientchat |
| Patient Chat @patientchat RT @SimplyKristyD: Hi @JBBC. what are some of your favourite Twitter health chats to participate in? #patientchat |
| Spencer Health Solutions @spencerhealth What are your thoughts on #PatientAdvocates publishing on LinkedIn @JBBC? #PatientChat |
| ROHHADwarrior @ROHHAD_warrior @patientchat @JBBC Can you touch a little on the different starters listed for today’s chat? #patientchat |
| Marie Ennis-O'Connor @JBBC @6state Hi Terri - the native inbuilt analytics for twitter, IG and particularly Facebook are good to start with #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat @JBBC Hi Marie! Hope all is well. I'm fairly new to the social media world & advocacy. Twitter is coming around ok, I think, & I have an IG account as well. Any tips for balancing the 2? And from an advocacy perspective, what kinds of posts work best on each platform? #patientchat |
| Patient Empowerment Network @power4patients RT @6state: @patientchat @JBBC Hi @JBBC What are your favs for measuring your impact? #patientchat |
| Patient Empowerment Network @power4patients RT @SimplyKristyD: Hi @JBBC. what are some of your favourite Twitter health chats to participate in? #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD I was just thinking I don't participate in nearly enough chats these days - I used to do far more in the past #patientchat |
| Patient Chat @patientchat RT @ROHHAD_warrior: @patientchat @JBBC Can you touch a little on the different starters listed for today’s chat? #patientchat |
| Patient Chat @patientchat RT @spencerhealth: What are your thoughts on #PatientAdvocates publishing on LinkedIn @JBBC? #PatientChat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD tweet chats are a super way to build community and connect with people #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @6state Hi Terri - the native inbuilt analytics for twitter, IG and particularly Facebook are good to start with #patientchat |
| Marie Ennis-O'Connor @JBBC @spencerhealth I think we need to see more patient advocates publish on LinkedIN - there's high visibility there #patientchat |
| Patient Chat @patientchat @kkbadger1 @JBBC #patientchat |
| Marie Ennis-O'Connor @JBBC @6statethere are paid tools too - but you can do a lot with native free tools - it's all about tracking progress as you go #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @SimplyKristyD tweet chats are a super way to build community and connect with people #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @spencerhealth I think we need to see more patient advocates publish on LinkedIN - there's high visibility there #patientchat |
 | Inspire @InspireIsHealth RT @JBBC: I'll be answering your questions on social media on @power4patients #patientchat today. Looking forward to seeing you there! https://t.co/ZAzYiDqE0t |
| Kristie Konsoer @kkbadger1 @JBBC @spencerhealth I publish on WordPress and LinkedIn. I also have Instagram but don't publish every post there because I don't have a visual to post. #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior sure - I'll do my best :-) I forgot how quickly these chats move! #patientchat |
| ROHHADwarrior @ROHHAD_warrior @JBBC do recommend anything for someone new to blogging? Any tips? Good blog site? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior is there one aspect in particular you are interested in learning more about? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior I like WordPress and I use it myself but it can take some time to learn - start simple - #patientchat |
 | Jackie Fox @PlainsDame @SimplyKristyD @JBBC Sorry to barge in but #bcsm for breast cancer is an excellent chat I used to participate every week. So wonderful and supportive! #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior have you started blogging? #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior I like WordPress and I use it myself but it can take some time to learn - start simple - #patientchat |
| ROHHADwarrior @ROHHAD_warrior @JBBC I have not really. I did a quick facebook blog for Rare Disease Day. It was very simplified. #patientchat |
| Spencer Health Solutions @spencerhealth @GalNamedJake @JBBC I don't think it's the platform. Publish where you want. What you need is a robust social media plan to push your content out via other platforms. Active use of multiple hashtags. #PatientChat |
| Marie Ennis-O'Connor @JBBC @6state is excellent on LinkedIN #patientchat |
 | 🌟 Sherry Reynolds ✨ Person-Centered Health @Cascadia Good Morning from the Cascade foothills (outside Seattle). I am the Director of the Center for Health Innovation - where patients co-design health solutions with providers and technologists. (UX for healthcare) #patientchat |
| Terri Coutee @6state RT @JBBC: @6state is excellent on LinkedIN #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior that sounds great - simple really is the best way to start - #patientchat |
| Terri Coutee @6state @JBBC I really appreciate that Marie! #patientchat |
| Simply Kristy @SimplyKristyD @GalNamedJake @JBBC Not barging in at all. I'll have to check out #bcsm sometime. Thank you for sharing it 😊 #patientchat |
| Spencer Health Solutions @spencerhealth Create a "Social Cooperative." Form a group of 4-6 #patientAdvocates and support each other's work. "Rising tides lifts all boats" - Right? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior it takes time to build a blog - you will often get more reach and engagement on Facebook #patientchat |
| ROHHADwarrior @ROHHAD_warrior @JBBC The best platform/social media site and how to come up with share worthy material. #patientchat |
| Patient Worthy @PatientWorthy @SimplyKristyD @JBBC Great question! We are always looking for some new chats. #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior here is some more information on how to start a wordpress blog https://t.co/UUsOqbDZOB #patientchat |
| Patient Chat @patientchat RT @RareDiseaseDad: @patientchat @JBBC Hi Marie! Hope all is well. I'm fairly new to the social media world & advocacy. Twitter is coming around ok, I think, & I have an IG account as well. Any tips for balancing the 2? And from an advocacy perspective, what kinds of posts work best on each platform? #patientchat |
| Simply Kristy @SimplyKristyD .@JBBC - how do you stay on top of social media trends? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior the best platform is where your audience is but also where you like to be #patientchat |
| Patient Chat @patientchat RT @JBBC: @ROHHAD_warrior here is some more information on how to start a wordpress blog https://t.co/UUsOqbDZOB #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @6state is excellent on LinkedIN #patientchat |
| Spencer Health Solutions @spencerhealth Think in multiples. One blog = 4 Tweets + 1 Video + One LinkedIn post + One YouTube. Maximize your message over multiple channels. #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior you don't need to be everywhere - which platforms do you like to use? #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior the best platform is where your audience is but also where you like to be #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior here is some more information on how to start a wordpress blog https://t.co/UUsOqbDZOB #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD great question! because social media is constantly changing it can be hard to keep on top of trends #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD for me it's about following the people on social media who are always on top of trends #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD and there are so many amazing industry leaders in social media - subscribe to their newsletters and channels #patientchat |
| Marie Ennis-O'Connor @JBBC @SimplyKristyD so short answer - I follow the right people to stay on top of trends :-) #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior shareworthy material is about creating engaging content that your audience is interested in #patientchat |
 | Christina Lizaso @btrfly12 RT @JBBC: @ROHHAD_warrior here is some more information on how to start a wordpress blog https://t.co/UUsOqbDZOB #patientchat |
| Christina Lizaso @btrfly12 RT @spencerhealth: Create a "Social Cooperative." Form a group of 4-6 #patientAdvocates and support each other's work. "Rising tides lifts all boats" - Right? #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior so visuals and video are particularly shareworthy - things like infographics too #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior shareworthy material is about creating engaging content that your audience is interested in #patientchat |
| Marie Ennis-O'Connor @JBBC @ROHHAD_warrior you can find more tips on creating share worthy content here https://t.co/kDCT1MJpu3 #patientchat |
| Christina Lizaso @btrfly12 RT @JBBC: @ROHHAD_warrior you can find more tips on creating share worthy content here https://t.co/kDCT1MJpu3 #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @ROHHAD_warrior you can find more tips on creating share worthy content here https://t.co/kDCT1MJpu3 #patientchat |
| Marie Ennis-O'Connor @JBBC I have a question for you all - what's your biggest challenge in creating social media content? #patientchat |
| Marie Ennis-O'Connor @JBBC @kkbadger1 @spencerhealth this is a great point - if you choose to use Instagram you also need to be ready to create visuals that will stand out #patientchat |
 | Alan Brewington @abrewi3010 That line between quality/helpful content vs content just for content sake. #patientchat |
| Marie Ennis-O'Connor @JBBC @RareDiseaseDad @patientchat hi Adam - really great question. Particularly with IG, you need to be creating eye-catching visuals, stories and videos #patientchat |
| Spencer Health Solutions @spencerhealth @JBBC Being consistent. Social Media needs regular attention and fresh content. #PatientChat |
 | Beverly A. Zavaleta MD @BZavaletaMD @JBBC Biggest challenges 1. Creating visuals for posts 2. Keeping the creative juice flowing (fatigue/ exhaustion) #patientchat Also- hi everyone! Late but here! |
| Marie Ennis-O'Connor @JBBC @RareDiseaseDad @patientchat with Twitter it's about the connections you make and the conversations you have. Twitter chats are probably THE best way to do this #patientchat |
| Marie Ennis-O'Connor @JBBC @RareDiseaseDad @patientchat the balance is about experimenting with what is working on both platforms - doing more of that - and less of what isn't working for you in terms of engagement #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD Thanks for your input. There are lots of great tools out there to help with creating visuals - I'll put a link up here after the chat #patientchat |
| Alan Brewington @abrewi3010 To often I think advocacy revolves around the negative. My story doesn’t care about negative or positive, it’s the content of my story that matters. #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD 2. I've just written a post on Medium about finding inspiration with creativity lags - will also send link after chat #patientchat |
| Patient Chat @patientchat RT @JBBC: @RareDiseaseDad @patientchat hi Adam - really great question. Particularly with IG, you need to be creating eye-catching visuals, stories and videos #patientchat |
| Patient Chat @patientchat RT @JBBC: @RareDiseaseDad @patientchat with Twitter it's about the connections you make and the conversations you have. Twitter chats are probably THE best way to do this #patientchat |
| Patient Chat @patientchat RT @JBBC: @RareDiseaseDad @patientchat the balance is about experimenting with what is working on both platforms - doing more of that - and less of what isn't working for you in terms of engagement #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @JBBC @patientchat Outstanding advice & insight. Thank you for sharing! #PatientChat |
| Beverly A. Zavaleta MD @BZavaletaMD Another social media challenge: measuring my “energy in” vs. output. ROI, I guess. Doing video is very “expensive” for me as an introvert. #patientchat |
| Marie Ennis-O'Connor @JBBC Great point Alan! And the only way to know this is to check your analytics - see which content is resonating best and do more of that! #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD I totally get this - so play to your strengths - it's about doing what you enjoy doing the most and that you can manage - do that really well and the rest follows #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: Great point Alan! And the only way to know this is to check your analytics - see which content is resonating best and do more of that! #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD there are no hard and fast rules - sure video works - but if it's not for you - there are ways around it - even on facebook you can create video slideshows with v little effort #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @RareDiseaseDad @patientchat the balance is about experimenting with what is working on both platforms - doing more of that - and less of what isn't working for you in terms of engagement #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @RareDiseaseDad @patientchat hi Adam - really great question. Particularly with IG, you need to be creating eye-catching visuals, stories and videos #patientchat |
| Lisa Sharp, MPH @lisasharpgrady RT @JBBC: @ROHHAD_warrior you can find more tips on creating share worthy content here https://t.co/kDCT1MJpu3 #patientchat |
| Marie Ennis-O'Connor @JBBC @kkbadger1 @ROHHAD_warrior it depends on what you want to do with Facebook and how much you want to separate your personal identity. FOr me I have a separate page for my breast cancer blog but it's not essential to do so #patientchat |
| Alan Brewington @abrewi3010 I would add that it’s great to push your own vulnerability limit & compare that to ur analytics. However, don’t hurt yourself by pushing that envelope. Use time to expand ur vulnerability #patientchat |
| Marie Ennis-O'Connor @JBBC @abrewi3010 love this - we should get better at "minding" oursleves online #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD mine too :-) no need for video ;-) #patientchat |
 | Nancy's Point @NancysPoint @JBBC @SimplyKristyD Same here. Haven't been participating in chats much lately. #patientchat |
| Alan Brewington @abrewi3010 RT @JBBC: @abrewi3010 love this - we should get better at "minding" oursleves online #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake @spencerhealth let's see more of you on LinkedIn Jackie :-) i think what's great about LinkedIn is that you expand your reach to more than patient advocates #patientchat |
 | LiveLaughConnect @LLCwithNetta @SimplyKristyD @JBBC #patientchat. I co-facilitate a Breast Cancer Support group every 2nd Wednesday of the month on zoom. People like the intimate setting and if they don't feel well can just click off or sometimes just listen. Email womeninstrength2@gmail.com for details. |
| ROHHADwarrior @ROHHAD_warrior @JBBC This is great information. Thank you! #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @JBBC My biggest challenge originally was to find balance (& I still grapple with this at times). As a #RareDisease patient, I finally came around on being all in w/social, but quickly found it was more emotionally exhausting than I thought. #PatientChat |
| Beverly A. Zavaleta MD @BZavaletaMD @NancysPoint @JBBC @SimplyKristyD Hey Nancy. 🖐 I’ve been too tired at night for even #bcsm 😬 #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake Hi Jackie - can discuss this some more with you after chat - hard to give detailed answer during fast moving chat :-) #patientchat |
| Marie Ennis-O'Connor @JBBC @NancysPoint @SimplyKristyD how lovely to see you here Nancy #patientchat |
| Nancy's Point @NancysPoint @GalNamedJake @NancysPoint @JBBC @SimplyKristyD Hi! Apologies for being super late Good excuse tho Got 2nd vaccine this morning #patientchat |
| Patient Chat @patientchat RT @JBBC: @spencerhealth I think we need to see more patient advocates publish on LinkedIN - there's high visibility there #patientchat |
| Marie Ennis-O'Connor @JBBC @GalNamedJake @spencerhealth a lot of people say it - but it can be quite a powerful platform :-) #patientchat |
| ROHHADwarrior @ROHHAD_warrior @JBBC I am on @Facebook and @instagram most of the time for my personal accounts. I have been on @Twitter for years, but just recently made this account to join the conversations and advocate.#patientchat |
| Beverly A. Zavaleta MD @BZavaletaMD @NancysPoint @GalNamedJake @JBBC @SimplyKristyD Hooray for COVID vax! #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @BZavaletaMD @JBBC I hear this so much, Beverly! Fatigue/exhaustion is real. That’s so hard for me as a patient advocate because I want to try to do it all, be involved often, have interesting & relevant content. But I also need to take care of me, which often goes to the back burner. #PatientChat |
| Nancy's Point @NancysPoint @BZavaletaMD @NancysPoint @JBBC @SimplyKristyD I don't do evening stuff much anymore. Boundaries. Personal time. #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD 6 Tools To Help Beat Writer’s Block #patientchat https://t.co/CzzefUEYKL |
| Alan Brewington @abrewi3010 Sometimes we look at sharing on social media only through the lens of advocacy. However, sharing can be used as medicine, mental health support, a tool to raise ur quality of life. Using social media has multiple silos that can help you. #patientchat |
| Patient Worthy @PatientWorthy RT @LLCwithNetta: @SimplyKristyD @JBBC #patientchat. I co-facilitate a Breast Cancer Support group every 2nd Wednesday of the month on zoom. People like the intimate setting and if they don't feel well can just click off or sometimes just listen. Email womeninstrength2@gmail.com for details. |
| Christina Lizaso @btrfly12 RT @JBBC: @BZavaletaMD 6 Tools To Help Beat Writer’s Block #patientchat https://t.co/CzzefUEYKL |
| Nancy's Point @NancysPoint @GalNamedJake @JBBC @spencerhealth I dropped LinkedIN. Not a fan. #patientchat |
| Beverly A. Zavaleta MD @BZavaletaMD @JBBC Thanks! #blogger #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @BZavaletaMD 6 Tools To Help Beat Writer’s Block #patientchat https://t.co/CzzefUEYKL |
| Spencer Health Solutions @spencerhealth @BZavaletaMD @JBBC @canva and @PicMonkey have lots of great templates to get your graphic design creative juices flowing. #PatientChat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD How To Create Professional Graphics — Even If You’re Not a Graphic Designer https://t.co/FwnQp5VOM5 #patientchat |
| Simply Kristy @SimplyKristyD Great #patientchat everyone. Thanks to @JBBC for being a guest. I've got to hop off to prepare for a meeting. Have a great weekend everyone! |
| Patient Chat @patientchat RT @abrewi3010: Sometimes we look at sharing on social media only through the lens of advocacy. However, sharing can be used as medicine, mental health support, a tool to raise ur quality of life. Using social media has multiple silos that can help you. #patientchat |
| Patient Chat @patientchat RT @JBBC: @BZavaletaMD 6 Tools To Help Beat Writer’s Block #patientchat https://t.co/CzzefUEYKL |
| Patient Chat @patientchat RT @JBBC: @ROHHAD_warrior you can find more tips on creating share worthy content here https://t.co/kDCT1MJpu3 #patientchat |
| Spencer Health Solutions @spencerhealth @NancysPoint @GalNamedJake @JBBC It depends on your goals. If you want to connect with healthcare professionals and companies, @LinkedIn is your best option. If you want to connect with #patientadvocates I'd consider @Instagram @Facebook and @Twitter. Know what you want to achieve. #PatientChat |
| Beverly A. Zavaleta MD @BZavaletaMD @NancysPoint @GalNamedJake @JBBC @spencerhealth I’ll occasionally publish my blog on LI and repost mentions, but I’m not consistent- thus, I know I’m not leveraging it like I could. My friend got a book deal from her bi-weekly articles pub’d on LI! @ElizaVancort #patientchat |
| Marie Ennis-O'Connor @JBBC RT @spencerhealth: @NancysPoint @GalNamedJake @JBBC It depends on your goals. If you want to connect with healthcare professionals and companies, @LinkedIn is your best option. If you want to connect with #patientadvocates I'd consider @Instagram @Facebook and @Twitter. Know what you want to achieve. #PatientChat |
| Marie Ennis-O'Connor @JBBC Yes! this is it in one succinct tweet :-) #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @BZavaletaMD How To Create Professional Graphics — Even If You’re Not a Graphic Designer https://t.co/FwnQp5VOM5 #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @christie_health @BZavaletaMD @JBBC I tried Canva for the 1st time this week (made a brochure for my daughter’s fundraising work for mitochondrial disease). It was great! Didn’t think of using it for graphics/visuals for social. Is there a function made for this? Or just screenshot parts you want? #PatientChat |
| Patient Empowerment Network @power4patients RT @spencerhealth: @NancysPoint @GalNamedJake @JBBC It depends on your goals. If you want to connect with healthcare professionals and companies, @LinkedIn is your best option. If you want to connect with #patientadvocates I'd consider @Instagram @Facebook and @Twitter. Know what you want to achieve. #PatientChat |
| Marie Ennis-O'Connor @JBBC @spencerhealth @NancysPoint @GalNamedJake @LinkedIn @instagram @Facebook @Twitter knowing what you want to achieve with social media helps you make decisions on where you should be and what you should be doing on social media #PatientChat |
| Beverly A. Zavaleta MD @BZavaletaMD Worth repeating: know your audience! #patientadvocates #PatientExperience #cancer #blogger #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
| Alan Brewington @abrewi3010 I think we are all guilty, I’m very much, of posting under the guise of “patient advocate” or “epatient scholar”. Sometimes we just need to talk, sometimes we just need to actively listen. My content quality rises when I’m just me. Quality over quantity. #patientchat |
| Patient Chat @patientchat RT @JBBC: I have a question for you all - what's your biggest challenge in creating social media content? #patientchat |
| Christina Lizaso @btrfly12 RT @JBBC: @BZavaletaMD How To Create Professional Graphics — Even If You’re Not a Graphic Designer https://t.co/FwnQp5VOM5 #patientchat |
| Marie Ennis-O'Connor @JBBC @BZavaletaMD @NancysPoint @GalNamedJake @spencerhealth @ElizaVancort wow that's amazing! consistency really does pay off on LinkedIn - this may help :-) https://t.co/HpN5cobPQJ #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @BZavaletaMD @NancysPoint @GalNamedJake @spencerhealth @ElizaVancort wow that's amazing! consistency really does pay off on LinkedIn - this may help :-) https://t.co/HpN5cobPQJ #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: @spencerhealth @NancysPoint @GalNamedJake @LinkedIn @instagram @Facebook @Twitter knowing what you want to achieve with social media helps you make decisions on where you should be and what you should be doing on social media #PatientChat |
| Kristie Konsoer @kkbadger1 Thanks everyone. At treatment now and have to go. #patientchat |
| Patient Chat @patientchat RT @JBBC: @BZavaletaMD @NancysPoint @GalNamedJake @spencerhealth @ElizaVancort wow that's amazing! consistency really does pay off on LinkedIn - this may help :-) https://t.co/HpN5cobPQJ #patientchat |
| Beverly A. Zavaleta MD @BZavaletaMD #patientchat Thanks for the ideas & encouragement everyone! My advocacy burnout feels better already 😍 |
| Nancy's Point @NancysPoint Yes! Know & respect readers. RT @BZavaletaMD: Worth repeating: know your audience! #cancer #blogger #patientchat #patientchat |
| Alan Brewington @abrewi3010 CT Definitely follow & listen to @JBBC. Her content is great for patients looking for help to long time epatient scholars like myself. #patientchat |
 | Laurie Reed @LReedptadvocate @patientchat Thank you @JBBC for taking the time to share your thoughts and perspective based on your experience. Sorry for my late arrival but have listened closely and feel inspired. Thank you all. #patientchat |
| Marie Ennis-O'Connor @JBBC @RareDiseaseDad @christie_health @BZavaletaMD there is so much you can do with canva - here's a step by step guide https://t.co/FwnQp5VOM5 #PatientChat |
| Christina Lizaso @btrfly12 I find @JBBC to be a breath of fresh air when it comes to social media tips! Practical information presented in human-centered language. Which is not what I've found to be the norm. Thanks for sharing of your time and energy to help patient advocates. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @spencerhealth @NancysPoint @GalNamedJake @JBBC @LinkedIn @instagram @Facebook @Twitter Love this point about knowing your goals! After debate, I posted my blog entries on LinkedIn as a way to share my journey & also to raise awareness. I’d like people in my circles outside of rare disease to learn more about rare & see the importance mental health. #PatientChat |
| Marie Ennis-O'Connor @JBBC @LReedsbooks @patientchat thank you for your lovely tweet - feel free to reach out to me if you have any questions after the chat #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: CT Definitely follow & listen to @JBBC. Her content is great for patients looking for help to long time epatient scholars like myself. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Nancy's Point @NancysPoint Have a great weekend, all! #patientchat |
| Patient Chat @patientchat RT @JBBC: @RareDiseaseDad @christie_health @BZavaletaMD there is so much you can do with canva - here's a step by step guide https://t.co/FwnQp5VOM5 #PatientChat |
| Marie Ennis-O'Connor @JBBC @btrfly12 Oh Christina thank you - you made my day - my year :-) #patientchat https://t.co/7wgeKsJYIE |
 | Possiabilities @possiabilities RT @PatientWorthy: Hi #patientchat! This is Jessica from Patient Worthy. We are a leading source of #raredisease news and seek to amplify the patient voice. Excited to talk to you today! |
| Patient Empowerment Network @power4patients RT @btrfly12: I find @JBBC to be a breath of fresh air when it comes to social media tips! Practical information presented in human-centered language. Which is not what I've found to be the norm. Thanks for sharing of your time and energy to help patient advocates. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @JBBC @christie_health @BZavaletaMD Love this! Thank you all! #PatientChat |
| Marie Ennis-O'Connor @JBBC @abrewi3010 thank you so much Alan - that means a lot to me #patientchat |
| Patient Empowerment Network @power4patients RT @RareDiseaseDad: @spencerhealth @NancysPoint @GalNamedJake @JBBC @LinkedIn @instagram @Facebook @Twitter Love this point about knowing your goals! After debate, I posted my blog entries on LinkedIn as a way to share my journey & also to raise awareness. I’d like people in my circles outside of rare disease to learn more about rare & see the importance mental health. #PatientChat |
| Alan Brewington @abrewi3010 RT @btrfly12: I find @JBBC to be a breath of fresh air when it comes to social media tips! Practical information presented in human-centered language. Which is not what I've found to be the norm. Thanks for sharing of your time and energy to help patient advocates. #patientchat |
| Marie Ennis-O'Connor @JBBC @patientchat my pleasure - I realize I may not have had the opportunity to answer everyone's question but please feel free to reach out to me #patientchat |
| Alan Brewington @abrewi3010 @JBBC You are welcome! Just speaking the truth. #patientchat |
| Marie Ennis-O'Connor @JBBC 12 Actionable Tips For Social Media Success in 2021 https://t.co/JWdxonCVkU #patientchat |
| Alan Brewington @abrewi3010 RT @abrewi3010: @JBBC You are welcome! Just speaking the truth. #patientchat |
| Patient Chat @patientchat Join us for a "Healthcare Trends: Are They Here to Stay?" Empowered #patientchat on Friday, April 2nd at @ 10 AM PT| 1 PM ET! https://t.co/zEEGUY5RoQ https://t.co/c0slaN0VWS |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
| Lisa Sharp, MPH @lisasharpgrady I use Canva. You can connect your social media accounts and share directly from Canva. Or download your item and upload to the platform. #patientchat |
| Marie Ennis-O'Connor @JBBC #PatientChat I have a LinkedIn group for healthcare communicators - with tips and tools for social media feel free to join me there https://t.co/0JAhuZffwx |
 | Pat Rich @pat_health RT @btrfly12: I find @JBBC to be a breath of fresh air when it comes to social media tips! Practical information presented in human-centered language. Which is not what I've found to be the norm. Thanks for sharing of your time and energy to help patient advocates. #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: 12 Actionable Tips For Social Media Success in 2021 https://t.co/JWdxonCVkU #patientchat |
| Patient Empowerment Network @power4patients RT @JBBC: #PatientChat I have a LinkedIn group for healthcare communicators - with tips and tools for social media feel free to join me there https://t.co/0JAhuZffwx |
| Patient Chat @patientchat Our PEN-Powered Activity Guide 6 is out now! "What is Patient Advocacy?" #patientchat https://t.co/Vthg5RUv38 |
| Adam Johnson - DadVocate @RareDiseaseDad @JBBC Fantastic #PatientChat, Marie! Thank you for sharing your knowledge, expertise, & support. It is much appreciated. All the best to you! |
| Patient Chat @patientchat RT @JBBC: @patientchat my pleasure - I realize I may not have had the opportunity to answer everyone's question but please feel free to reach out to me #patientchat |
 | Abigail Johnston, Esq (she/her) @AMJohnston1315 RT @btrfly12: I find @JBBC to be a breath of fresh air when it comes to social media tips! Practical information presented in human-centered language. Which is not what I've found to be the norm. Thanks for sharing of your time and energy to help patient advocates. #patientchat |
| Abigail Johnston, Esq (she/her) @AMJohnston1315 RT @spencerhealth: @NancysPoint @GalNamedJake @JBBC It depends on your goals. If you want to connect with healthcare professionals and companies, @LinkedIn is your best option. If you want to connect with #patientadvocates I'd consider @Instagram @Facebook and @Twitter. Know what you want to achieve. #PatientChat |
#patientchat content from Twitter.