#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Happy Friday all! I'm Nykema from @power4patients and I’m looking forward to today’s #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Marni Cartelli @Purrfectly_Rare #patientchat Hi everyone! I'm Marni from NY & I am SO Excited I was able to make the chat today I just had surgery Friday & it was a horrible patient experience (not surgery itself) Reminded me how much work we still have to do *sigh* |
 | Patient Empowerment Network @power4patients Hi Everyone! Reagan from @powerer4patients here! Excited for today's #patientchat |
| Patient Chat @patientchat @Purrfectly_Rare Welcome Marni. Happy to have you here today! Sorry to hear about that experience. Our work never stops! #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
 | Abner Mason @abnermason Hi! My name is Abner. I'm the founder and CEO of @ConsejoSano_US. Looking forward to discussing health trends—though I'll be in and out today! #patientchat |
| Patient Chat @patientchat @power4patients Hi Reagan! Happy Friday! #patientchat |
| Patient Chat @patientchat Today's #patientchat is a “Healthcare Trends: Are They Here to Stay?” https://t.co/zEEGUY5RoQ |
 | John Novack @J2Novack Hello to #patientchat, John Novack from Inspire here to listen and learn. |
 | Alan Brewington @abrewi3010 Alan here. Doing my usual work vs chat shuffle dance. Also, hoping the first #COVID19 shot shoulder pain at least stalls out soon, yikes that really hurts and my shot was yesterday. #patientchat |
| Patient Chat @patientchat @J2Novack Happy to have you here today, John! #patientchat |
| John Novack @J2Novack RT @patientchat: Today's #patientchat is a “Healthcare Trends: Are They Here to Stay?” https://t.co/zEEGUY5RoQ |
| Patient Chat @patientchat @abnermason @ConsejoSano_US Hi Abner! Thank you for joining us today. #patientchat |
| Patient Chat @patientchat @darlakbrown Hi Darla, happy you’re here with us today! #patientchat |
 | Adam Johnson - DadVocate @RareDiseaseDad @patientchat Hi all. I'm Adam, joining in from Idaho. I'm a #DadVocate...a dad with a #RareDisease who is also an #advocate. I got my second vaccine on Wednesday & am slowly getting back to my baseline. Glad to have that done! Hope everyone is doing well. #PatientChat |
| Abner Mason @abnermason @patientchat @ConsejoSano_US Thanks for hosting! #patientchat |
| Patient Chat @patientchat @abrewi3010 Hi Alan, congratulations on the first shot! Sorry about that shoulder pain though. Happy you could be here today #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of each answer - hard to remember but helpful #patientchat |
| Abner Mason @abnermason @Purrfectly_Rare Nice to meet you, Marni. Sorry to hear about your experience. I hope recovery is going well. #patientchat |
 | R.M.C. Inc @RMCAwareness Good afternoon all, I’m Cora from SC looking forward to #patientchat |
| Patient Chat @patientchat @RareDiseaseDad Hi Adam! Congratulations on your second vaccine. Happy to hear you’re on your way to feeling better!! Thanks for joining us today #patientchat |
| Alan Brewington @abrewi3010 @patientchat Thank you! Always is a good day when I can contribute to this conversation #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @Purrfectly_Rare Marni forgot to mention in her intro that she's a resident rare disease rockstar. Hope your recovery moves along well, and soon, Marni! #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: What recent healthcare trends have you noticed come to the forefront in light of the pandemic? #patientchat https://t.co/bz3ZuXm65K |
| Abner Mason @abnermason T1: The most notable trend to materialize during COVID-19 is the push toward health equity. This issue simmered on low heat, among people who care most about it, even as health disparities ravaged underserved communities. Now, it's front & center, with gov support. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @abrewi3010 Hey Alan! Nice to see you here. Glad you got your first shot! I got my second one on Wednesday, so I feel your pain. 😉 It really did a number on me, but it's way better than the alternative! #patientchat |
| Abner Mason @abnermason @Purrfectly_Rare Glad to hear it! #patientchat |
| Patient Chat @patientchat [REDACTED USER] [REDACTED USER] Happy to have you with us today Cristina! #patientchat |
| Alan Brewington @abrewi3010 A1 I think/hope there has been an improvement in active listening since so much of the pandemic has involved being alone. Active listening is the antidote to loneliness. #patientchat |
| Patient Chat @patientchat RT @abnermason: T1: The most notable trend to materialize during COVID-19 is the push toward health equity. This issue simmered on low heat… |
| Patient Empowerment Network @power4patients RT @abnermason: T1: The most notable trend to materialize during COVID-19 is the push toward health equity. This issue simmered on low heat… |
| Alan Brewington @abrewi3010 @RareDiseaseDad So very true! #patientchat |
| John Novack @J2Novack RT @patientchat: T1: What recent healthcare trends have you noticed come to the forefront in light of the pandemic? #patientchat https://t.… |
 | DenetraHampton @ProducerNurse A1: Although not a trend, health disparities are/have been rampant; elevated visually by the pandemic, but no gap bridgers in sight.. the problem is real..@patientchat #patientchat |
| Abner Mason @abnermason @abrewi3010 Active listening is among the first steps to doing right by any patient, so this is certainly good news. #patientchat |
| Patient Chat @patientchat RT @ProducerNurse: A1: Although not a trend, health disparities are/have been rampant; elevated visually by the pandemic, but no gap bridge… |
| Patient Chat @patientchat Topic 2 (T2:) coming up..... #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T1: It's not necessarily that recent, but since the start of the pandemic, telehealth has been an integral part of managing my #RareDisease care. Seeing my specialists from around the country would be off the table without it, & my son does PT virtually now as well. #patientchat |
| Marni Cartelli @Purrfectly_Rare #patientchat A1. Well as I stated in my intro, healthcare systems & even Drs R only allowing pts at apts This is problematic bc many times pts need support advocating, understanding, retaining, or telling information I understand safety is reasoning but this=about safety 2 |
| Patient Chat @patientchat T2: What specific healthcare trend do you hope continues to develop after the pandemic and why? #patientchat https://t.co/85Bo0MuD0Q |
| Alan Brewington @abrewi3010 A1 I’m not sure if trend is the right word but I think the pandemic has showed us the draw back of checkbook healthcare. Care needs to become a human centered right, not a checkbook right. #patientchat |
| Alan Brewington @abrewi3010 RT @RareDiseaseDad: @patientchat T1: It's not necessarily that recent, but since the start of the pandemic, telehealth has been an integral… |
| Abner Mason @abnermason T2: Health equity has to become more of a priority. COVID-19 shows what happens when we ignore underserved communities: sickness, hospitalization, death. But this cycle occurs for many other conditions. We need a stronger approach to beating health disparities. #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A1 I’m not sure if trend is the right word but I think the pandemic has showed us the draw back of checkbook healthcare. Ca… |
| Patient Empowerment Network @power4patients RT @RareDiseaseDad: @patientchat T1: It's not necessarily that recent, but since the start of the pandemic, telehealth has been an integral… |
| Adam Johnson - DadVocate @RareDiseaseDad @abnermason Yes. And I certainly hope it stays there, where it deserves/needs to be. Health equity needs to stay at the forefront rather than sliding into the background as we emerge from the pandemic. Raising our voices & coming together to support the cause will be paramount! #patientchat |
| Abner Mason @abnermason RT @RareDiseaseDad: @abnermason Yes. And I certainly hope it stays there, where it deserves/needs to be. Health equity needs to stay at the… |
| Patient Empowerment Network @power4patients RT @RareDiseaseDad: @abnermason Yes. And I certainly hope it stays there, where it deserves/needs to be. Health equity needs to stay at the… |
| Patient Chat @patientchat RT @abnermason: T2: Health equity has to become more of a priority. COVID-19 shows what happens when we ignore underserved communities: sic… |
| Patient Chat @patientchat RT @RareDiseaseDad: @abnermason Yes. And I certainly hope it stays there, where it deserves/needs to be. Health equity needs to stay at the… |
| Alan Brewington @abrewi3010 A2 I like that telehealth has improved access to care. I still think there is work to be done in how we pay for telehealth. Also, we need better access to broadband internet services. #patientchat |
| Abner Mason @abnermason @RareDiseaseDad This is right! We have the opportunity to build a foundation for longer-term health equity right now. We need to take it. #patientchat |
| R.M.C. Inc @RMCAwareness RT @RareDiseaseDad: @abnermason Yes. And I certainly hope it stays there, where it deserves/needs to be. Health equity needs to stay at the… |
| R.M.C. Inc @RMCAwareness RT @abnermason: T2: Health equity has to become more of a priority. COVID-19 shows what happens when we ignore underserved communities: sic… |
| R.M.C. Inc @RMCAwareness RT @abrewi3010: A2 I like that telehealth has improved access to care. I still think there is work to be done in how we pay for telehealth.… |
| DenetraHampton @ProducerNurse A2: Structural racism is a heavy topic. I hope that the conversations become bricks and mortar and not performative. The healthcare system bleeds poor outcomes for the disadvantaged.. we have to do better..@patientchat #patientchat |
| Patient Chat @patientchat RT @ProducerNurse: A2: Structural racism is a heavy topic. I hope that the conversations become bricks and mortar and not performative. Th… |
| Patient Chat @patientchat Topic 3 (T3:) coming up..... #patientchat |
| Patient Chat @patientchat T3: Is there any healthcare trend you believe will do more harm than good? #patientchat https://t.co/2Nm1l97fJB |
| Marni Cartelli @Purrfectly_Rare @abnermason I agree this=most important&1 of the greatest things 2 come from Pandemic Even when I was in school there=always a line about "health disparities",yet there was no real push 2 close gaps Covid provided empirical evidence of these disparities over a single event #patientchat |
| Alan Brewington @abrewi3010 A2 before the pandemic I think access was defined as getting those already able to afford care on to telehealth or better access to their EHRs. Access is now meaning make sure everyone has access to the same level of care. #patientchat |
 | Renuka Dhinakaran @renudhinakaran @RareDiseaseDad @patientchat Absolutely! This has been particularly crucial for mental health appointments. Going to & coming back from these wete draining & the added emotional drainage just wiped me out. Telehealth has taken that away. |
| Patient Chat @patientchat RT @abrewi3010: A2 before the pandemic I think access was defined as getting those already able to afford care on to telehealth or better a… |
| Abner Mason @abnermason @ProducerNurse @patientchat A2: This has always been clear, but COVID disparities in outcomes & vaccine access have pushed the need for increased health equity front and center. #patientchat |
| Patient Chat @patientchat #patientchat |
| Abner Mason @abnermason T3: Misinformation & disinformation isn't new in healthcare, but it's more prominent than before COVID. This contributes to vaccine hesitancy. Frankly, it kills. If we don't take steps to combat misinfo, patients will pay the price. #patientchat |
| Patient Chat @patientchat RT @abnermason: T3: Misinformation & disinformation isn't new in healthcare, but it's more prominent than before COVID. This contributes to… |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T2: I hope that instances of collaboration & support for the greater good can come to the forefront a bit more. Working together & really listening can lead to some amazing results. Not that it was perfect by any stretch, but it could be something to build on. #patientchat |
| R.M.C. Inc @RMCAwareness T3 Patients not being able to access out of state hospital for treatment because of the type of insurance they have is a problem. #patientchat |
| Alan Brewington @abrewi3010 A2 healthcares trend of being unable to change or change quickly needs to end. This pandemic should us that we only have hours to learn, adjust, and adapt before people start to die unnecessarily. #patientchat |
| John Novack @J2Novack RT @patientchat: T3: Is there any healthcare trend you believe will do more harm than good? #patientchat https://t.co/2Nm1l97fJB |
| Marni Cartelli @Purrfectly_Rare @RareDiseaseDad @patientchat #patientchat Yesss!!! #telehealth has become a vital tool in many communities However we need to protect it bc ins. Co's have started to decrease reimbursement for these visits bc they saw an increase in usage. Now Drs are being forced to have in face apts in order to get paid |
| Patient Chat @patientchat Topic 4 (T4:) coming up..... #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: A2 I like that telehealth has improved access to care. I still think there is work to be done in how we pay for telehealth.… |
| Patient Empowerment Network @power4patients RT @abnermason: @RareDiseaseDad This is right! We have the opportunity to build a foundation for longer-term health equity right now. We ne… |
| Patient Chat @patientchat T4: Which healthcare trend do you believe will play a big role in taking steps toward eliminating health inequities? #patientchat https://t.co/25EceHNhOg |
| Abner Mason @abnermason [REDACTED USER] T3: Yes! Every other industry is abandoning the one-size-fits-all approach (Netflix and Amazon, to name a couple of businesses). Healthcare needs to get the message and do the same. It only helps patients. #patientchat |
| Alan Brewington @abrewi3010 .This is an excellent point! A doctor needs to listen directly to my heart, can’t be done over the internet. Still need regular blood work, an app can’t do that. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: Is there any healthcare trend you believe will do more harm than good? #patientchat https://t.co/2Nm1l97fJB |
| Patient Empowerment Network @power4patients RT @abrewi3010: A2 before the pandemic I think access was defined as getting those already able to afford care on to telehealth or better a… |
| Adam Johnson - DadVocate @RareDiseaseDad @renudhinakaran @patientchat Excellent points, Renuka! Beyond access to a wider variety of specialists & locations, the added benefit of saving time & corresponding energy (that is precious & limited) is a huge plus for these appointments. Thanks for adding your valuable perspective here! #patientchat |
| DenetraHampton @ProducerNurse A4: Acknowledgment and placement of nurse scientist on boards. Period. This role is vital to bridging the gap....@patientchat #patientchat |
| Abner Mason @abnermason T4: 2 things: engaging patients who are from underserved communities & hiring healthcare stakeholders from those communities. When we listen to patients, we can do more for them. Especially when the org includes people who look like, talk like & live like them. #patientchat |
| Alan Brewington @abrewi3010 A4 human centered design thinking will move us towards eliminating health inequalities. We need more, how might WE... vs I want a billion dollars for producing a random X for the market. #patientchat |
| Marni Cartelli @Purrfectly_Rare A2. #patientchat I think we need to protect & refine #telehealth & its reimbursement system Telehealth has opened up many opportunities 4 patients but at the same time does have limitations we must accept We must recognize how it can & should fit in healthcare as a valuable tool |
| Patient Chat @patientchat Topic 5 (T5:) coming up..... #patientchat |
| Marni Cartelli @Purrfectly_Rare RT @abnermason: T3: Misinformation & disinformation isn't new in healthcare, but it's more prominent than before COVID. This contributes to… |
| Patient Empowerment Network @power4patients RT @patientchat: T4: Which healthcare trend do you believe will play a big role in taking steps toward eliminating health inequities? #pati… |
| Patient Chat @patientchat T5: Have you adopted any trends in your health journey? #patientchat https://t.co/nA9jcOlPEU |
| Patient Empowerment Network @power4patients RT @patientchat: T5: Have you adopted any trends in your health journey? #patientchat https://t.co/nA9jcOlPEU |
| Patient Chat @patientchat @bullringbash1 You can view topics on our page! #patientchat Thanks for joining us today! |
| Abner Mason @abnermason T5: I spend every day trying to increase health equity. COVID made the value of this work even more visible. I'm heartbroken all we lost to this pandemic. Their stories drive me to push harder for people of color, lower-income families & everyone who's underserved. #patientchat |
| John Novack @J2Novack RT @patientchat: T4: Which healthcare trend do you believe will play a big role in taking steps toward eliminating health inequities? #pati… |
| Marni Cartelli @Purrfectly_Rare A.4 #patientchat I think the rise of the strong patient advocate voice weve seen the past yr will go a long way 2 make sure policies & practices 2 eliminate disparities r enacted More importantly,the unification of this voice has been a beautiful thing. We r all fighting 2gether |
| Alan Brewington @abrewi3010 A5 I’ve kind of gone back to basics. Motion is lotion for my arthritic joints and mental health. An organic apple will make it more likely I’ll go for a hike vs watching more tv with a pizza. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat T4: If the simple yet undervalued/underutilized act of listening can be considered a healthcare trend, I think it could play a huge role in taking steps towards eliminating health inequities. Seek underserved communities, listen (really listen), then act together. #patientchat |
| Abner Mason @abnermason RT @RareDiseaseDad: @patientchat T4: If the simple yet undervalued/underutilized act of listening can be considered a healthcare trend, I t… |
| Patient Chat @patientchat Topic 6 (T6:) coming up..... #patientchat |
| Patient Chat @patientchat T6: What health trend do you think is yet to come? #patientchat https://t.co/zo1bFcH85t |
| Patient Chat @patientchat RT @RareDiseaseDad: @patientchat T4: If the simple yet undervalued/underutilized act of listening can be considered a healthcare trend, I t… |
| Abner Mason @abnermason T6: Health plans are beginning to take health equity more seriously, but I think the real work has yet to come. They know their members well, so they're in a unique position to strive for health equity now and long into the future. It will happen. It must happen. #patientchat |
| Marni Cartelli @Purrfectly_Rare @abnermason Yes! We must see ourselves reflected 2 feel like some1 gets our experience & I think there is truth 2 that As a patient I'm trusted less than a male but more than a POC when I describe symptoms I know I can't understand, but I can listen & help try 2 make it right #patientchat |
| Alan Brewington @abrewi3010 A6 I keep hoping for a game changer for improving health literacy. As we keep moving to a tech heavy system we must improve and keep improving on health literacy or millions will be left behind #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T6: What health trend do you think is yet to come? #patientchat https://t.co/zo1bFcH85t |
| Patient Empowerment Network @power4patients RT @RareDiseaseDad: @patientchat T4: If the simple yet undervalued/underutilized act of listening can be considered a healthcare trend, I t… |
 | Ross Felix @RossFelix RT @abnermason: T6: Health plans are beginning to take health equity more seriously, but I think the real work has yet to come. They know t… |
| Patient Chat @patientchat RT @abrewi3010: A6 I keep hoping for a game changer for improving health literacy. As we keep moving to a tech heavy system we must improve… |
| Alan Brewington @abrewi3010 A6 I think a complete and transformational redesign of the health care bill is about to happen. Healthcare shouldn’t require more paperwork than buying a house just for the hope of raising ones quality of life. #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @ProducerNurse @patientchat Thank you for doing this incredibly valuable work! I admire how you saw the need & are doing something about it through powerful & substantial avenues. 💚#patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
| Marni Cartelli @Purrfectly_Rare A6. #patientchat I think we r still missing the idea that every patient is different & a one size fits all approach doesn't work It's hard 2 get providers 2 change how they do things even if it will B better 4 the patient, if it deviates from their "norm" I HOPE that=on horizon |
| Marni Cartelli @Purrfectly_Rare RT @abrewi3010: A6 I keep hoping for a game changer for improving health literacy. As we keep moving to a tech heavy system we must improve… |
| Abner Mason @abnermason CT: It's always so helpful to listen to and learn from patients. Thank you for sharing your wisdom—and for sharing the vision that we can and must create a more equitable healthcare system. #patientchat |
| Alan Brewington @abrewi3010 CT it’s easy to get inspired and energized about some of these trends and changes. Mistakes will be made however, but like our health, this can be a great thing. Mistakes are learning opportunities, we need opportunities more than ever right now! #patientchat |
| Adam Johnson - DadVocate @RareDiseaseDad @patientchat CT: Many healthcare trends that have come to light during the pandemic have been present concerns for many people for a long, long time. Health equity needs to stay at the forefront. This trend is only just beginning. It needs to move from trend to permanent staple. #PatientChat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| John Novack @J2Novack RT @patientchat: T6: What health trend do you think is yet to come? #patientchat https://t.co/zo1bFcH85t |
| Patient Chat @patientchat Join us for a “Rare but Not Invisible: Finding Your Community” Empowered #patientchat on Friday, April 16th at @ 10 AM PT| 1 PM ET with our RMC Network Manager, Cora Connor (@RMCAwareness)! https://t.co/KoZ2dAKJ0r https://t.co/J5cWcJajrg |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat Happy Friday, everyone! |
#patientchat content from Twitter.