#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
– ().
See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat You can find the topic we’ll cover on today’s Empowered #patientchat with @stales here: https://t.co/EegwClV9hv |
 | Patient Empowerment Network @power4patients RT @stales: Join me in a few minutes for the empowered #patientchat Info/Topics: https://t.co/F4Oc4TjNqC |
 | Alicia C. Staley @stales You can learn more about the Empowered #patientchat series and how to participate here: https://t.co/xQvHzlX4US #patientchat |
| Alicia C. Staley @stales Are you new to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage with others on the topic. #patientchat |
| Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Alicia C. Staley @stales Here’s an article with more tips for participating in tweet chats: https://t.co/ilZj3TCQ4M #patientchat |
| Alicia C. Staley @stales You can find the topics we’ll cover on today’s Empowered #patientchat here:https://t.co/F4Oc4TjNqC #patientchat |
| Patient Empowerment Network @power4patients RT @stales: You can find the topics we’ll cover on today’s Empowered #patientchat here:https://t.co/F4Oc4TjNqC #patientchat |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Alicia C. Staley @stales RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Alicia C. Staley @stales RT @patientchat: You can find the topic we’ll cover on today’s Empowered #patientchat with @stales here: You can find the topic we’ll cover on today’s Empowered #patientchat with @stales here: https://t.co/EegwClV9hv |
| Alicia C. Staley @stales @patientchat Happy to be here! #patientchat |
| Patient Chat @patientchat I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat. Happy Friday! |
| Patient Chat @patientchat Happy to have Alicia (@stales) joining us today! She is the co-founder of #BCSM and VP of Patient Engagement at @mediadata! Excited to hear your thoughts during today’s #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Alicia C. Staley @stales @patientchat @mediadata Happy to be here! This is a great topic. #patientchat |
| Patient Empowerment Network @power4patients Hi #patientchat! I'm Kara from @power4patients and a brain cancer survivor |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
| Alicia C. Staley @stales @power4patients Hi thee! nice to see you. #patientchat |
| Alicia C. Staley @stales I’m a 3x cancer survivor, co-founder of #BCSM, and VP of Patient Engagement at @mediadata! Excited to be here for today’s #patientchat |
| Alicia C. Staley @stales I’m a 30+ year cancer survivor, diagnosed with Hodgkin’s and Breast cancer - multiple surgeries, radiation, chemo etc etc. #patientchat |
| Patient Empowerment Network @power4patients @stales Hi Alicia! #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is "What is an Empowered Survivor?" https://t.co/EegwClV9hv |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Patient Chat @patientchat RT @stales: I’m a 30+ year cancer survivor, diagnosed with Hodgkin’s and Breast cancer - multiple surgeries, radiation, chemo etc etc. #patientchat |
| Alicia C. Staley @stales RT @patientchat: I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Alicia C. Staley @stales RT @patientchat: Today's #patientchat topic is "What is an Empowered Survivor?" https://t.co/EegwClV9hv |
| Alicia C. Staley @stales Today's #patientchat topic is What is an Empowered Survivor? #patientchat |
| Patient Chat @patientchat T1: What do you think of words like “survivor,” “fighter,” “battle,” “journey," and others often used in the health/patient community? #patientchat https://t.co/I60bXLr5Jz |
| Alicia C. Staley @stales @KickinCancerAss <<< HUGS >>>> that's awesome. #patientchat #bcsm |
 | Lesley Kailani Glenn @LesleyKailani @stales interesting topic...following along. #patientchat |
| Alicia C. Staley @stales @LesleyKailani hi there. thanks joining in. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What do you think of words like “survivor,” “fighter,” “battle,” “journey," and others often used in the health/patient community? #patientchat https://t.co/I60bXLr5Jz |
| Alicia C. Staley @stales RT @patientchat: T1: T1: What do you think of words like “survivor,” “fighter,” “battle,” “journey," and others often used in the health/patient community? #patientchat https://t.co/I60bXLr5Jz |
| Lesley Kailani Glenn @LesleyKailani @patientchat #patientchat I think it is a personal preference. |
 | Amanda Crowell Itliong @MIShouldTalk Hi! I’m Amanda from MI. Advocate and Racial Disparities in Cancer Researcher in treatment and living with ovarian cancer for 4th time in 12 years. Listening to learn. #patientchat |
 | Alan Brewington @abrewi3010 T1 I don’t mind them as much as others do. With platforms like Twitter, we need words that save space but help paint the picture of my current story. #patientchat |
| Alicia C. Staley @stales @patientchat This is a great question - these terms get used quite a bit in cancer communities. Whatever term/label feels right to you, use it! #patientchat |
| Alicia C. Staley @stales @patientchat There's always a great debate on the "war" metaphors and if they help or hurt when discussing the cancer patient experience. #patientchat |
| Patient Chat @patientchat RT @writersamr: Happy to be joining in with #patientchat today! A1: |
| Patient Chat @patientchat RT @stales: @patientchat There's always a great debate on the "war" metaphors and if they help or hurt when discussing the cancer patient experience. #patientchat |
 | Patsy Hinson @patsyhinson Glad to join y’all. Ovarian cancer survivor here. #patientchat |
| Patient Chat @patientchat #patientchat |
| Patient Chat @patientchat T2: How would you define “survivor?” #patientchat https://t.co/ZKXGYfVwbt |
| Patient Empowerment Network @power4patients @patsyhinson Welcome Patsy, glad you could join too! #patientchat |
 | Barby Ingle Official @BarbyIngle @patientchat T1. #patientchat I think a person should use the words that motivate them. Some of these I like and some of these I dont, but it is personal opinion and they are emotional words not scientific/medical terms, so it will be different for each of us, imo. |
| Amanda Crowell Itliong @MIShouldTalk T1 I hate the war and battle references with a passion. We should be celebrating the strength and perseverance of those with terminal or chronic disease at least as much as the one and done patients who “won” or “beat cancer.” #patientchat |
| Alicia C. Staley @stales Good article here on the "war", "battle" metaphors in cancer #patientchat: #patientchat https://t.co/cSS1KF7CpY |
| Patsy Hinson @patsyhinson T1 we are all different. No “right language” or approach IMO. Use whatever gets you thru. #patientchat |
| Alicia C. Staley @stales Don't forget to tag your tweets with #patientchat if you are following along and want to join the conversation. |
| Lesley Kailani Glenn @LesleyKailani I always use the NCI's definition, a survivor is someone from the time of diagnosis until death. I live with stage IV MBC and survive every day. #patientchat |
| Alicia C. Staley @stales RT @patsyhinson: T1 we are all different. No “right language” or approach IMO. Use whatever gets you thru. #patientchat |
| Amanda Crowell Itliong @MIShouldTalk T1 Our current prevailing cancer language really assumes that patients have much more direct control over their disease than we really do. It’s insulting to those of us who have difficult to treat, high recurrence, or always terminal cancers. #patientchat |
| Patient Chat @patientchat RT @stales: Don't forget to tag your tweets with #patientchat if you are following along and want to join the conversation. |
| Alicia C. Staley @stales @patsyhinson Exactly. whatever works is the right answer. #patientchat |
| Alicia C. Staley @stales RT @MIShouldTalk: T1 Our current prevailing cancer language really assumes that patients have much more direct control over their disease than we really do. It’s insulting to those of us who have difficult to treat, high recurrence, or always terminal cancers. #patientchat |
| Lesley Kailani Glenn @LesleyKailani @patsyhinson Agree! #patientchat |
| Patient Empowerment Network @power4patients RT @LesleyKailani: I always use the NCI's definition, a survivor is someone from the time of diagnosis until death. I live with stage IV MBC and survive every day. #patientchat |
| Alicia C. Staley @stales RT @LesleyKailani: I always use the NCI's definition, a survivor is someone from the time of diagnosis until death. I live with stage IV MBC and survive every day. #patientchat |
| Alicia C. Staley @stales @LesleyKailani yes, here's the link to @theNCI definition: https://t.co/6gmNihWavu #patientchat |
| Barby Ingle Official @BarbyIngle @patientchat T2. #patientchat To me, a person who survives, especially a person remaining alive after an event in which many others have died would be the definition of a survivor, like the 2001 attacks on a macro scale, or a school shooting on a micro scale. |
| Alicia C. Staley @stales RT @MIShouldTalk: T1 I hate the war and battle references with a passion. We should be celebrating the strength and perseverance of those with terminal or chronic disease at least as much as the one and done patients who “won” or “beat cancer.” #patientchat |
| Alicia C. Staley @stales RT @BarbyIngle: @patientchat T1. #patientchat I think a person should use the words that motivate them. Some of these I like and some of these I dont, but it is personal opinion and they are emotional words not scientific/medical terms, so it will be different for each of us, imo. |
| Alicia C. Staley @stales @BarbyIngle @patientchat exactly - whatever works for each person is the best. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How would you define “survivor?” #patientchat https://t.co/ZKXGYfVwbt |
| Alan Brewington @abrewi3010 T2 survival is turning into the problem/issue/illness at the moment. #patientchat |
| Alicia C. Staley @stales @patientchat T2: I define survivor as someone diagnosed with cancer that's still living no matter where they are with treatment. #patientchat |
| Patient Chat @patientchat #patientchat |
 | Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz @patientchat I’m Jill, a multiple myeloma patient and advocate, and I’m happy to be here today to discuss being an empowered survivor. #mmsm #patientchat |
 | Matthew Zachary ✡️ 🇮🇱🟦 @MatthewZachary RT @stales: I’m a 30+ year cancer survivor, diagnosed with Hodgkin’s and Breast cancer - multiple surgeries, radiation, chemo etc etc. #patientchat |
| Alan Brewington @abrewi3010 RT @stales: @patientchat T2: @patientchat T2: I define survivor as someone diagnosed with cancer that's still living no matter where they are with treatment. #patientchat |
| Patient Chat @patientchat T3: How do you manage fear of recurrence whether it be from “scanxiety” or the challenges that present itself after being told you are in remission? #patientchat https://t.co/DvIgIVG53m |
| Patient Chat @patientchat @MIShouldTalk Happy you could join us Amanda!! #patientchat |
| Alicia C. Staley @stales t2: here is the @americanCancer definition https://t.co/f5F7vz2ygx #patientchat |
| Patient Empowerment Network @power4patients T2: I agree with @LesleyKailani "a survivor is someone from the time of diagnosis until death" #patientchat |
| Alicia C. Staley @stales RT @patientchat: T3: T3: How do you manage fear of recurrence whether it be from “scanxiety” or the challenges that present itself after being told you are in remission? #patientchat https://t.co/DvIgIVG53m |
| Patient Chat @patientchat @JillZitzewitz Hi Jill! Happy you could join us today #patientchat |
| Patient Chat @patientchat RT @stales: @patientchat T2: @patientchat T2: I define survivor as someone diagnosed with cancer that's still living no matter where they are with treatment. #patientchat |
| Amanda Crowell Itliong @MIShouldTalk T2 and T1 I really disagree with everyone. Language that reinforces the idea that patients have more direct control over their health than we actually do (win, beat, kick cancer’s ass) really messes with the minds of many patients! It’s constantly pushed at everyone. #patientchat |
| Patient Chat @patientchat RT @writersamr: A2: |
| Alicia C. Staley @stales @patientchat T3: Try to stay in the moment, go day by day. You can only live one day at a time, so focusing on what you need to get through each day is helpful. #patientchat |
 | Annette McKinnon @anetto T1 Many chronic diseases do not kill you. It's a matter of endurance. 'Survivor' is not really appropriate when it's the way you have to live your life, not a fixed battle. #patientchat |
| Patient Chat @patientchat RT @stales: @patientchat T3: @patientchat T3: Try to stay in the moment, go day by day. You can only live one day at a time, so focusing on what you need to get through each day is helpful. #patientchat |
| Alan Brewington @abrewi3010 T3 one thing I learned from dad was that is future patients problem. No sense worrying about tomorrow. Much more fun & productive to worry about which restaurant to eat dinner tonight than what might happen in the future #patientchat |
| Alicia C. Staley @stales RT @anetto: T1 Many chronic diseases do not kill you. It's a matter of endurance. 'Survivor' is not really appropriate when it's the way you have to live your life, not a fixed battle. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: How do you manage fear of recurrence whether it be from “scanxiety” or the challenges that present itself after being told you are in remission? #patientchat https://t.co/DvIgIVG53m |
| Alicia C. Staley @stales RT @power4patients: T2: T2: I agree with @LesleyKailani "a survivor is someone from the time of diagnosis until death" #patientchat |
| Lesley Kailani Glenn @LesleyKailani Unfortunately, for me the word "progression" holds the power because I am stage IV and always will be. No cure. Lots of meditation, and nature. #patientchat |
| Alan Brewington @abrewi3010 RT @stales: @patientchat T3: @patientchat T3: Try to stay in the moment, go day by day. You can only live one day at a time, so focusing on what you need to get through each day is helpful. #patientchat |
| Amanda Crowell Itliong @MIShouldTalk T3 I’ve been living with cancer this 4th time since 2015 so I’m just happy to still be alive! I was left without treatment options twice already but a clinical trial and a new idea have prolonged my life. #patientchat |
| Alicia C. Staley @stales RT @LesleyKailani: Unfortunately, for me the word "progression" holds the power because I am stage IV and always will be. No cure. Lots of meditation, and nature. #patientchat |
| Patient Chat @patientchat T4: Transitioning out of active treatment may create more questions than answers for some. What resources did you depend on during this time? #patientchat https://t.co/U421lLcEAP |
| Patient Chat @patientchat @Crohnoid Thanks for joining, Nigel! #patientchat |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz @patientchat T1: I’m not a big fan of “battle” or “fighter” because having cancer is something you have to learn to live with, not something you win or lose at. “Journey” or “survivor” are okay. Usually, I just say “I’m a cancer patient.” #mmsm #patientchat |
| Alicia C. Staley @stales @patientchat T4: Make sure to stay connected with your healthcare team - ask questions if you need more information or have any concerns about a new symptom/feeling etc. Be proactive in maintaining these connections. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: Transitioning out of active treatment may create more questions than answers for some. What resources did you depend on during this time? #patientchat https://t.co/U421lLcEAP |
| Alicia C. Staley @stales @patientchat T4: Stay engaged with a patient community - find a local support group, or join one online. The shared sense of experience can be healing and very helpful as you navigate the world when treatment is completed. #patientchat |
| Patient Empowerment Network @power4patients RT @stales: @patientchat T4: @patientchat T4: Make sure to stay connected with your healthcare team - ask questions if you need more information or have any concerns about a new symptom/feeling etc. Be proactive in maintaining these connections. #patientchat |
| Alicia C. Staley @stales @patientchat T4: Transitioning from active treatment to "treated" can be very stressful, in some cases you might have been going to the hospital or cancer center on a daily or weekly basis. The change in schedule can be tough to navigate and that's okay! #patientchat |
| Patient Chat @patientchat T5: If you’ve dealt with survivor’s guilt before, how have you coped? #patientchat https://t.co/Cjmfq57zzL |
| Alicia C. Staley @stales RT @MIShouldTalk: T3 I’ve been living with cancer this 4th time since 2015 so I’m just happy to still be alive! I was left without treatment options twice already but a clinical trial and a new idea have prolonged my life. #patientchat |
| Alicia C. Staley @stales RT @writersamr: A4: |
| Alicia C. Staley @stales RT @patientchat: T4: T4: Transitioning out of active treatment may create more questions than answers for some. What resources did you depend on during this time? #patientchat https://t.co/U421lLcEAP |
| Barby Ingle Official @BarbyIngle T3. Is scanxiety the fear of going back for check-ups. I've Never heard this term, & I never want to go back, I do my scans & checks for my husband, because he wants to know. I dont want to know, because then I have to go through something I never want to face again. #patientchat |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz T2: I think of a survivor as anyone living with cancer, whether they’re just starting treatment, have been in remission for a long time or have relapsed. Survivors are alive and living each day to the fullest! #mmsm #patientchat |
| Alicia C. Staley @stales Any comments from #BCSM #LCSM #GYNCSM #BTSM #PCSM #MMSM for #patientchat? |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: If you’ve dealt with survivor’s guilt before, how have you coped? #patientchat https://t.co/Cjmfq57zzL |
| Alan Brewington @abrewi3010 T4 this can be an exciting time I think bc more control is going back to the patient. I need to work towards my quality of life instead of having others work for me. #patientchat |
| Alicia C. Staley @stales RT @JillZitzewitz: T2: T2: I think of a survivor as anyone living with cancer, whether they’re just starting treatment, have been in remission for a long time or have relapsed. Survivors are alive and living each day to the fullest! #mmsm #patientchat |
| Alicia C. Staley @stales RT @Crohnoid: T1: |
| Patsy Hinson @patsyhinson T3 I always have something fun planned to look forward to. Actually, recurring was somewhat easier because I relied on this. #PatientChat |
| Alicia C. Staley @stales @BarbyIngle Yes, "scanxiety" is the term for the anxiousness/nervousness many patients feel when returning for a yearly scan. #patientchat |
| Barby Ingle Official @BarbyIngle T4. #patientchat only my instincts, I was not ready to share or talk about the experiences for a while after. |
| Lesley Kailani Glenn @LesleyKailani @stales @BarbyIngle Yep...just had my scans yesterday and this am. I get mine every 6 months. #patientchat |
| Barby Ingle Official @BarbyIngle T5 #patientchat - I know we are all hear for a purpose. Once someone has completed their purpose on earth, they go to heaven, we don't know how or when that will be, so everyday I wake up is a day to make a difference on earth for myself and other humans. |
| Alicia C. Staley @stales RT @BarbyIngle: T4. #patientchat only my instincts, I was not ready to share or talk about the experiences for a while after. |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz T3: Having #myeloma means always being in treatment, so I’ve learned to focus on my overall health, including exercise, stress reduction, nutrition and sleep, as the best way to help with disease management and worry. #mmsm #patientchat |
| Amanda Crowell Itliong @MIShouldTalk T5 Survivor’s Guilt is really tough. I handle it by doing the work I do as an advocate/activist/researcher/speaker in memory of my friends who have died. They guide my work and keep me humble every day! #patientchat |
| Alicia C. Staley @stales RT @JillZitzewitz: T3: T3: Having #myeloma means always being in treatment, so I’ve learned to focus on my overall health, including exercise, stress reduction, nutrition and sleep, as the best way to help with disease management and worry. #mmsm #patientchat |
| Lesley Kailani Glenn @LesleyKailani Me too!! Just finished DOD reviews. Makes me happy to help decide where the money goes. #patientchat |
| Alicia C. Staley @stales RT @patientchat: T5: T5: If you’ve dealt with survivor’s guilt before, how have you coped? #patientchat https://t.co/Cjmfq57zzL |
| Patient Chat @patientchat T6: Do you have any go-to survivorship resources or coping mechanisms? #patientchat https://t.co/S4aUQRqiQR |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: Do you have any go-to survivorship resources or coping mechanisms? #patientchat https://t.co/S4aUQRqiQR |
| Alicia C. Staley @stales @patientchat It's a tough one, yes, I've definitely experienced this. As my advocacy efforts have expanded, I've channeled this into a better place. I stay focused on what I'm trying to achieve as a way to honor those that have passed. #patientchat |
| Lesley Kailani Glenn @LesleyKailani I couldn't find one that met the survivorship needs for those of us with MBC,so I created it myself. @ProjectLifeMBC #patientchat |
| Amanda Crowell Itliong @MIShouldTalk T5 My current research project started with a small group of women and my dear friend Shonece on our team died unexpectedly. I feel like the whole project is in her honor. #patientchat |
 | John Novack @J2Novack RT @patientchat: T6: T6: Do you have any go-to survivorship resources or coping mechanisms? #patientchat https://t.co/S4aUQRqiQR |
| Patsy Hinson @patsyhinson T4 lots of time hanging out with other survivors. They understood me and still do. #patientchat |
| Lesley Kailani Glenn @LesleyKailani @patsyhinson Totally agree. I love my MBC peeps. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
| Alicia C. Staley @stales RT @Crohnoid: T6: |
| Alicia C. Staley @stales RT @writersamr: A6: |
| Alicia C. Staley @stales RT @patsyhinson: T4 lots of time hanging out with other survivors. They understood me and still do. #patientchat |
| Alicia C. Staley @stales RT @MIShouldTalk: T5 My current research project started with a small group of women and my dear friend Shonece on our team died unexpectedly. I feel like the whole project is in her honor. #patientchat |
| Alicia C. Staley @stales RT @LesleyKailani: I couldn't find one that met the survivorship needs for those of us with MBC,so I created it myself. @ProjectLifeMBC #patientchat |
| Alicia C. Staley @stales RT @patientchat: T6: T6: Do you have any go-to survivorship resources or coping mechanisms? #patientchat https://t.co/S4aUQRqiQR |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz @patientchat T5: Being a patient advocate is hard because I’m gotten to know so many wonderful people who have died from #myeloma. The best way to honor their memory is to advocate for and support other patients. #mmsm #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Patient Chat @patientchat Again, I want to give a huge thank you to Alicia (@stales) for joining us today! #patientchat |
| Patient Chat @patientchat Join us for our next Empowered #patientchat on Friday, July 9th at 1 PM ET/ 10 AM PT! https://t.co/kAD6UVro0e |
| Alicia C. Staley @stales @patientchat This was a great chat. So nice to see so many familiar faces. #PatientChat |
| Patient Chat @patientchat #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz T6: Engaging with other #myeloma patients, learning all I can about new therapies and teaching others, a daily walk in nature, and reading memoirs and working on my own are my coping strategies. #mmsm #patientchat |
| Alicia C. Staley @stales @womenofteal @patientchat @smart_patients @teaminspire great points! Follow up plans, copies of med records... so much to consider. #patientchat |
| Alicia C. Staley @stales RT @JillZitzewitz: T6: T6: Engaging with other #myeloma patients, learning all I can about new therapies and teaching others, a daily walk in nature, and reading memoirs and working on my own are my coping strategies. #mmsm #patientchat |
 | Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @stales: Any comments from #BCSM #LCSM #GYNCSM #BTSM #PCSM #MMSM for #patientchat? |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @JillZitzewitz: T3: T3: Having #myeloma means always being in treatment, so I’ve learned to focus on my overall health, including exercise, stress reduction, nutrition and sleep, as the best way to help with disease management and worry. #mmsm #patientchat |
| Keith Stockerl-Goldstein, MD 😷 @CyclingDoctor RT @JillZitzewitz: T6: T6: Engaging with other #myeloma patients, learning all I can about new therapies and teaching others, a daily walk in nature, and reading memoirs and working on my own are my coping strategies. #mmsm #patientchat |
| Patient Chat @patientchat #patientchat |
 | Janet Kennedy @GetSocialHealth @patientchat T6: I have collected some resources in a Word doc that I share with others dealing with the same situation. Mostly links to credible info sources online, on @YouTube, etc. #PatientChat #TimeSaver |
| Alicia C. Staley @stales RT @GetSocialHealth: @patientchat T6: @patientchat T6: I have collected some resources in a Word doc that I share with others dealing with the same situation. Mostly links to credible info sources online, on @YouTube, etc. #PatientChat #TimeSaver |
| Alicia C. Staley @stales RT @patientchat: Keep the conversation going between chats with hashtag #patientchat |
| Patient Chat @patientchat #patientchat |
| Alicia C. Staley @stales @patientchat Thank you for the invitation to today's chat! #PatientChat |
| Dr. Jill Zitzewitz, PhD (she/her) @JillZitzewitz CT: Today’s #patientchat is a great reminder that I can live a full and rewarding life with #myeloma by being an empowered patient and patient advocate. I’m so grateful for patients, doctors, scientists and advocates who have given me hope! 💚🌻💜 #mmsm |
| Alicia C. Staley @stales @JillZitzewitz Yes, you can! Each day is a good day. Keep up the great work! #patientChat |
| Alicia C. Staley @stales Thanks for the great chat! @patientchat #patientchat Thanks everyone |
#patientchat content from Twitter.