#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Diverse Health Hub @DHealthhub
RT @patientchat: You can watch online here: You can watch online here: https://t.co/9dRM1SmRYy or follow along on Twitter with the hashtag #patientchat
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Carly Flumer (she/her) @carlyflumer
Carly here! I’m an #AYA #thyca patient advocate. 😊 #patientchat
Alan Brewington @abrewi3010
Alan here. Hi everyone! #patientchat
Alexa Jett 🦋 @ohhiialexa
Alexa in East Texas. Thyroid cancer survivor and AYA (Adolescent/Young Adult) cancer advocate. Tuning in right now on the virtual chat stream! #patientchat
Inspire @InspireIsHealth
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat
Patient Chat @patientchat
Today's #patientchat topic is Empowered Tips: Building Resilience and Boosting Immunity https://t.co/NNjJxw9nVR https://t.co/hMGQipMOQh
Patient Empowerment Network @power4patients
RT @patientchat: Today's #patientchat topic is Empowered Tips: Today's #patientchat topic is Empowered Tips: Building Resilience and Boosting Immunity https://t.co/NNjJxw9nVR https://t.co/hMGQipMOQh
Diverse Health Hub @DHealthhub
RT @patientchat: Today's #patientchat topic is Empowered Tips: Today's #patientchat topic is Empowered Tips: Building Resilience and Boosting Immunity https://t.co/NNjJxw9nVR https://t.co/hMGQipMOQh
Patient Chat @patientchat
You can watch online here: https://t.co/9dRM1SmRYy or follow along on here with the hashtag #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Patient Chat @patientchat
T1: What are some frustrations you are dealing with right now? #patientchat https://t.co/SLsGphfPLX
Patient Empowerment Network @power4patients
RT @patientchat: T1: T1: What are some frustrations you are dealing with right now? #patientchat https://t.co/SLsGphfPLX
PF Anderson @pfanderson@disabled.social @pfanderson
RT @patientchat: T1: T1: What are some frustrations you are dealing with right now? #patientchat https://t.co/SLsGphfPLX
Alexa Jett 🦋 @ohhiialexa
T1: Opening back up too soon. It has hurt Texas a lot, and many are acting like life is normal again. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @patientchat: You can watch online here: You can watch online here: https://t.co/9dRM1SmRYy or follow along on here with the hashtag #patientchat
Spencer Health Solutions @spencerhealth
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
Joining #patientchat from Montreal ⤵️ My background's in bioethics & patient privacy, specifically clinical research ethics I was diagnosed in 2016 with #CRPS - and neuropathic #chronicpain - so now put my expertise to work as a Patient Partner on projects & patient advocacy https://t.co/B1XjaDeBv1
Carly Flumer (she/her) @carlyflumer
T1: The fact that covid cases are still rising, when, in February, they expected this to end by now. I have a feeling this will go on until a vaccine is made (and then some won’t get the vaccine). #patientchat
Alan Brewington @abrewi3010
A1 my right should has been hurting for a month now. Afraid Arthur is attacking it. Out of my 10 plus surgeries now, shoulder surgery was my least favorite. Hard to recover from. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@patientchat I don't know if frustration is the right word. Recovering from COVID, weakness, too many friends dying all at once .... things like shopping challenges or how to cook seem kind of small right now #PatientChat
Patient Empowerment Network @power4patients
@patientchat For me it's frustrating to continue to have to have limited contact with others. Zoom is great but I miss seeing people in person. #patientchat
Alexa Jett 🦋 @ohhiialexa
@carlyflumer Me too! ☹️ #patientchat
Diverse Health Hub @DHealthhub
@patientchat I’m Nykema from Diverse Health Hub, also tuned in on the live Zoom stream! #patientchat
Janet Kennedy @GetSocialHealth
I have never had to be a caregiver (yea, healthy child) but have become the caregiver who had a hemorrhagic stroke 3 weeks ago. (He is doing great). There's so much more than getting pills and a glass of water! #PatientChat #LearningEmpathy
Patient Chat @patientchat
T2: What does resilience mean to you? #patientchat https://t.co/6gWX8RzFYk
PF Anderson @pfanderson@disabled.social @pfanderson
@power4patients @patientchat This, isolation and skin hunger, are both causing huge mental health challenges for many. How do you help? #PatientChat
Patient Empowerment Network @power4patients
@carlyflumer Sadly, I think you're exactly right :( #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T2: T2: What does resilience mean to you? #patientchat https://t.co/6gWX8RzFYk
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
Hi all. I'm Shereese from Maryland #patientchat https://t.co/SNEBJ10R03
Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba
@pfanderson @patientchat Hi. Fancy meeting you here. #patientchat
Alan Brewington @abrewi3010
A2 realizing yesterday was easy so that means I’ve got today. #patientchat
Janet Kennedy @GetSocialHealth
@patientchat To me: The ability to face my work, my home and family, and daily living with renewed energy and optimism every day. #PatientChat
Patient Empowerment Network @power4patients
@patientchat To me, resilience is defined by how we choose to carry our burdens. They can either pull us to the ground or we can figure out to balance and carry them with us. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@ShereesePubHlth @patientchat I try but actually got it on my calendar this time. YAY, EMAIL! #PatientChat
Patient Empowerment Network @power4patients
RT @abrewi3010: A2 realizing yesterday was easy so that means I’ve got today. #patientchat
Alexa Jett 🦋 @ohhiialexa
T2: My girl @carlyflumer has been the resilience queen lately. But it means to me that you keep moving forward, no matter how long it takes. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@GetSocialHealth OMG, Janet, how scary! #PatientChat
Diverse Health Hub @DHealthhub
RT @power4patients: @patientchat To me, resilience is defined by how we choose to carry our burdens. They can either pull us to the ground or we can figure out to balance and carry them with us. #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat What does resilience mean to you? To me, it's finding ways to do the things I love, despite having Complex Regional Pain Syndrome #CRPS - e.g. outdoor sports! And being able to help others, which is so important to me that it's the reason for my career in #bioethics https://t.co/3LOhn4XZdK
Carly Flumer (she/her) @carlyflumer
@ohhiialexa Thank you!!! 🙏❤️🦋 #thycabestie #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@pfanderson @ShereesePubHlth @patientchat Helloooooo Pat! Happy #patientchat day!
Seth Rotberg @Srotberg15
RT @power4patients: @patientchat To me, resilience is defined by how we choose to carry our burdens. They can either pull us to the ground or we can figure out to balance and carry them with us. #patientchat
Carly Flumer (she/her) @carlyflumer
T2: Resilience to me means knowing how strong you are and owning your story! #patientchat
Diverse Health Hub @DHealthhub
RT @carlyflumer: T2: T2: Resilience to me means knowing how strong you are and owning your story! #patientchat
Janet Kennedy @GetSocialHealth
@pfanderson The first 24-hours were scary - not being able to visit was rough. Prognosis is very good. Then his brother has 3 heart attacks in 24 hours on Wednesday! His stress & BP were crazy high. Phew! #PatientChat
Patient Empowerment Network @power4patients
RT @carlyflumer: T2: T2: Resilience to me means knowing how strong you are and owning your story! #patientchat
Patient Chat @patientchat
T3: How do you feed your sense of resiliency? #patientchat https://t.co/0tWd4WWIRZ
Alan Brewington @abrewi3010
A2. My first physical therapist, after my rock climbing fall, use to tell me I got lots of hurt which means I’ve earned the right to bad days/weeks. In order for that to be true it also means I have a right to a good life. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T3: T3: How do you feed your sense of resiliency? #patientchat https://t.co/0tWd4WWIRZ
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@ShereesePubHlth Great to see you here on #patientchat, Shereese! https://t.co/TA9yBWtGbz
Alexa Jett 🦋 @ohhiialexa
T3: Faith, family, friends, and nourishing myself in the ways that I need. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @abrewi3010: A2. My first physical therapist, after my rock climbing fall, use to tell me I got lots of hurt which means I’ve earned the right to bad days/weeks. In order for that to be true it also means I have a right to a good life. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @patientchat: T3: T3: How do you feed your sense of resiliency? #patientchat https://t.co/0tWd4WWIRZ
Carly Flumer (she/her) @carlyflumer
T3: Talking to others in the #rare and #chronic community, joining support groups, and writing. #patientchat
Barby Ingle Official @BarbyIngle
@patientchat T1: right now I am dealing with the frustrations of valley fever and RSD physically and the lengths it takes to get proper and timely care access, every time. #patientchat
Patient Empowerment Network @power4patients
@patientchat Exercise helps! Check out these exercises to help build your resiliency from @carlyflumer #patientchat https://t.co/Qhs9qGO4d2
Alexa Jett 🦋 @ohhiialexa
@power4patients @patientchat @carlyflumer Now that’s an exercise source I can trust! 😂 #patientchat
Patient Chat @patientchat
T4: What is mindfulness to you? #patientchat https://t.co/X0TiqcgYC1
Alan Brewington @abrewi3010
A3 there is a famous saying in the chronic community “it’s ok to not be ok”. I think the saying should be “it’s ok to be ok”. My chroniciness is not going anywhere, that doesn’t mean I have to listen to it. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T4: T4: What is mindfulness to you? #patientchat https://t.co/X0TiqcgYC1
Enlightening Results 💡 @GraceCordovano
T1) Poor communication re:patient care due to hospital & cancer center restrictions on visitors. "Patient only policies" at appointments/procedures means #carepartners are excluded. Need caregivers to include & connect, contact synchronously or asynchronously. #PatientChat
Barby Ingle Official @BarbyIngle
To me resilience means you keep going, even if the score is 50 to 0, if it is your purpose, find a way to accomplish it (within the laws of the land and morally) and do it. It also means to know when to say no for your own good. #patientchat
Alexa Jett 🦋 @ohhiialexa
T4: It’s taking a break from the daily load! #patientchat
Alan Brewington @abrewi3010
RT @power4patients: @patientchat Exercise helps! Check out these exercises to help build your resiliency from @carlyflumer #patientchat https://t.co/Qhs9qGO4d2
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat One of my favourite quotes: "Mindfulness meditation was associated with statistically significant improvement in depression, physical health-related quality of life, and mental health-related quality of life.” https://t.co/2PkkWcFeWb https://t.co/tcNb4x15gd
Enlightening Results 💡 @GraceCordovano
T1) Disruptions in cancer care due to statewide shutdowns have now left many patients unable to resume their care as they have lost their jobs & insurance coverage over the last few months. #FinancialToxicity & #Cancer are hell on earth. #patientchat
Carly Flumer (she/her) @carlyflumer
T4: Taking breaks when you need them, thinking clearly and rationally even though it’s hard sometimes, and focused breathing. #patientchat
Janet Kennedy @GetSocialHealth
RT @patientchat: T3: T3: How do you feed your sense of resiliency? #patientchat https://t.co/0tWd4WWIRZ
Alan Brewington @abrewi3010
A4 yesterday is over and tomorrow hasn’t unfolded at. What matters is now. What can I grab/learn from yesterday that applies to now so tomorrow can be a good life. #patientchat
Patient Empowerment Network @power4patients
@patientchat A Complete Guide to #Mindfulness #patientchat https://t.co/YcxSlwBOu0
Janet Kennedy @GetSocialHealth
Harry Potter, Pilates, Twizzlers. #PatientChat
Barby Ingle Official @BarbyIngle
T3. My resilience comes from hope & it is in me from birth & trained along with self-esteem the last 47 years on earth. If I am having a tough time, I remind my self of my positive accomplishments & know that those were also difficult to obtain but worth the effort #patientchat
Patient Empowerment Network @power4patients
RT @carlyflumer: T4: T4: Taking breaks when you need them, thinking clearly and rationally even though it’s hard sometimes, and focused breathing. #patientchat
Patient Empowerment Network @power4patients
RT @SandraWoodsMtl: #patientchat One of my favourite quotes: "Mindfulness meditation was associated with statistically significant improvement in depression, physical health-related quality of life, and mental health-related quality of life.” https://t.co/2PkkWcFeWb https://t.co/tcNb4x15gd
Seth Rotberg @Srotberg15
RT @carlyflumer: T3: T3: Talking to others in the #rare and #chronic community, joining support groups, and writing. #patientchat
Enlightening Results 💡 @GraceCordovano
T1) The complete lack of effort to connect patients & their families to #digitalhealth solutions to help support #MentalHealth. WE HAVE A PLETHORA OF OPTIONS! Asking patients to fill out a mental health screening questionnaire & doing zero about it is a failure. #PatientChat
Enlightening Results 💡 @GraceCordovano
@ShereesePubHlth Happy Friday darling! #PatientChat
Janet Kennedy @GetSocialHealth
So... I fall down a bit on mindfulness - for me. For someone else, I can think ahead and anticipate needs. I eat too fast, stay up too late. That's changing with caring for my friend. #PatientChat
Our Odyssey @_OurOdyssey_
RT @power4patients: @patientchat Exercise helps! Check out these exercises to help build your resiliency from @carlyflumer #patientchat https://t.co/Qhs9qGO4d2
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@GraceCordovano Waving hellloooo Grace! I'm kind of missing the Montreal snow this week... our "RealFeel" is 108F today #patientchat
Alan Brewington @abrewi3010
A1 waiting on my pain meds to play catch up. #patientchat
Our Odyssey @_OurOdyssey_
RT @GraceCordovano: T1) The complete lack of effort to connect patients & their families to #digitalhealth solutions to help support #MentalHealth. WE HAVE A PLETHORA OF OPTIONS! Asking patients to fill out a mental health screening questionnaire & doing zero about it is a failure. #PatientChat
Barby Ingle Official @BarbyIngle
T4. To me mindfulness is a peace and centering of my thoughts so I can plan, prepare and organize with clarity to accomplish more in life. It brings out my creativity, peace & healing. #patientchat
Enlightening Results 💡 @GraceCordovano
@SandraWoodsMtl Is there anything you can not do?! You never fail to amaze or disappoint Sandra! #PatientChat
Enlightening Results 💡 @GraceCordovano
@carlyflumer I love that Carly! #PatientChat
Patient Chat @patientchat
T5: Do you have any personal or cultural home remedies to boost your immunity? #patientchat https://t.co/UgNATVIdVr
Patient Empowerment Network @power4patients
RT @patientchat: T5: T5: Do you have any personal or cultural home remedies to boost your immunity? #patientchat https://t.co/UgNATVIdVr
Alan Brewington @abrewi3010
A4 in skiing there is something called flow state. It’s the perfect turn, perfect snow, it’s that shot of ego where for a moment you are level with Mother Nature. We have this is life. That perfect tasting dinner, nap, kiss, love. #patientchat
Seth Rotberg @Srotberg15
RT @GraceCordovano: T1) The complete lack of effort to connect patients & their families to #digitalhealth solutions to help support #MentalHealth. WE HAVE A PLETHORA OF OPTIONS! Asking patients to fill out a mental health screening questionnaire & doing zero about it is a failure. #PatientChat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T1: My frustrations include having to cancel all my travel plans; not being able to allow my teen sons to do things they'd like to do, due to virus risk to me & my husband. #patientchat; the challenges of trying to do my job in a whole new way b/c of pandemic. #patientchat
Enlightening Results 💡 @GraceCordovano
@BarbyIngle @patientchat So sorry you are dealing with all this Barby; all very heavy to carry and yet you are still pushing forward & cheering all they way. #PatientChat
Alexa Jett 🦋 @ohhiialexa
T5: Eating spicy foods, sleeping, drinking lemon juice. #patientchat
Barby Ingle Official @BarbyIngle
T5. Physical distance, wash my hands/any body part exposed (typically feet since I wear flip flops when out), change clothing after going out, dont wear outdoor shoes in the house ... because I dont have a strong immune system or body #patientchat
Alan Brewington @abrewi3010
A5 I take vitamin D3 in large amounts daily. A great strawberry and banana shake. Breathing in pure mountain air. #patientchat
Enlightening Results 💡 @GraceCordovano
@patientchat T3) Continue to find ways to make positive, incremental adjustments. (A sense of humor also goes a long way 😜) #PatientChat https://t.co/jgLJgmDuBn
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat My home remedies to boost immunity = Time in nature, outdoor sports, focus on anti-inflammatory foods & watching the wild rabbits & other creatures in our gardens! e.g. just back from a 35 miles bike ride, through forests https://t.co/vw5z5np5g4
Diverse Health Hub @DHealthhub
I loved the introduction of the term “forest bathing!” Thank you to Gerri and Broderick, I’m going to step my #mindfulness game up! #patientchat
Barby Ingle Official @BarbyIngle
@GraceCordovano @patientchat Thanks @GraceCordovano, healthcare should not take this much effort. But it does, so I give it, hoping to make access to care better for all chronic patients. #PatientChat
Patient Empowerment Network @power4patients
RT @DHealthhub: I loved the introduction of the term “forest bathing!” Thank you to Gerri and Broderick, I’m going to step my #mindfulness game up! #patientchat
Patient Chat @patientchat
T6: What do you think is the root of anxiety for most people? #patientchat https://t.co/txxrEl9hDq
Enlightening Results 💡 @GraceCordovano
@patientchat T5) Listening to music! Highly recommend creating a Motivation playlist! #PatientChat https://t.co/kQzU1K895f
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T2: To me, resilience means being able to cope with and adapt to challenging circumstances in a way that enables a person to "bounce back" - either return to previous levels of strength and emotional/mental health or surpass them. #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@GraceCordovano Ha! I'm really not a good cook. Baking, that I can do, but cooking a meal just isn't my thing... #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T2 (cont.): Resilience involves drawing on creativity, strength, and improvisation. A sense of humor also helps. #patientchat
Enlightening Results 💡 @GraceCordovano
@SandraWoodsMtl Ice cream STAT! #PatientChat https://t.co/BrVTXwN9tU
Alan Brewington @abrewi3010
A5 mountain air for a positive immunity boost #patientchat https://t.co/oLEZm7RA8f
Alexa Jett 🦋 @ohhiialexa
T6: Living too much in the future or plain uncertainty. I love rephrasing it as: “Fear is just being curious about the future.” #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@GetSocialHealth My family is similarly being hit hard. Struggling. #PatientChat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @ohhiialexa: T6: T6: Living too much in the future or plain uncertainty. I love rephrasing it as: “Fear is just being curious about the future.” #patientchat
Diverse Health Hub @DHealthhub
RT @ohhiialexa: T6: T6: Living too much in the future or plain uncertainty. I love rephrasing it as: “Fear is just being curious about the future.” #patientchat
Barby Ingle Official @BarbyIngle
T6. I think anxiety comes mostly from the lack of resources to accomplish something we know we must to keep going. I believe 'it' is different in each of us. #PatientChat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @abrewi3010: A5 mountain air for a positive immunity boost #patientchat https://t.co/oLEZm7RA8f
Patient Empowerment Network @power4patients
@patientchat Some tips for managing anxiety for #cancer survivors or for anyone dealing with a serious diagnosis #patientchat https://t.co/vLOwFJBRja
Janet Kennedy @GetSocialHealth
1) Catching COVID 2) Financial Stability (for white, employed people). For #POC or lower-income individuals, you can add about 10 more things. #patientchat
Enlightening Results 💡 @GraceCordovano
T6) Trying to live in the future or reliving the past. Presence in the present is the only thing we can control our reaction to. #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat People with #ChronicPain often disbelieved: "The consequences of not being believed and not being listened to are far reaching... The patient is vulnerable and feels unable to challenge and question. The patient is ignored and feels belittled" https://t.co/BbH3d4JvEV
PF Anderson @pfanderson@disabled.social @pfanderson
RT @SandraWoodsMtl: #patientchat My home remedies to boost immunity = Time in nature, outdoor sports, focus on anti-inflammatory foods & watching the wild rabbits & other creatures in our gardens! e.g. just back from a 35 miles bike ride, through forests https://t.co/vw5z5np5g4
Patient Empowerment Network @power4patients
RT @GraceCordovano: @patientchat T5) Listening to music! Highly recommend creating a Motivation playlist! #PatientChat https://t.co/kQzU1K895f
Patient Empowerment Network @power4patients
RT @patientchat: T6: T6: What do you think is the root of anxiety for most people? #patientchat https://t.co/txxrEl9hDq
Ted Chan @upwardmobility
Hi #PatientChat, Ted Chan from @caredash. I meant to join for the full chat but got caught up in other things. I hope everyone's doing well and there's a lot of great insights here.
Patient Chat @patientchat
T7: How have you personally managed your anxiety? #patientchat https://t.co/vzQwV3gNmr
PF Anderson @pfanderson@disabled.social @pfanderson
RT @BarbyIngle: T5. Physical distance, wash my hands/any body part exposed (typically feet since I wear flip flops when out), change clothing after going out, dont wear outdoor shoes in the house ... because I dont have a strong immune system or body #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T3: I feed my sense of resiliency with daily practices of creative pursuits, meditation, exercise, and time in nature. After my cancer dx, I also started taking improv classes (graduated in Dec 2018). #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @ohhiialexa: T5: T5: Eating spicy foods, sleeping, drinking lemon juice. #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: T7: T7: How have you personally managed your anxiety? #patientchat https://t.co/vzQwV3gNmr
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@pfanderson @GetSocialHealth Holy cow... sending the very best wishes to both your families! #patientchat
Alexa Jett 🦋 @ohhiialexa
@GraceCordovano My mom and I had a great conversation about living in the past after re-watching Napoleon Dynamite! It is a big source of anxiety. #patientchat
Patient Chat @patientchat
@upwardmobility @caredash Hi Ted! Glad you could make it :) #patientchat
Alan Brewington @abrewi3010
A6 for to long I mourned the old me. That was pointless bc the current me is where the fun is. Once I realized that I used my current skill/ability to live which is constantly evolving unlike my old self that used ego to much.This has helped in reducing my anxiety. #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T4: To me, mindfulness is both a dedicated practice (setting aside time to breathe, center, and pray or meditate) as well as a cultivated daily habit of trying to be attentive to the present moment and intentional in thoughts and actions. #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat I don't suffer from anxiety, so focus on trying to help others with theirs... depression and anxiety are extremely common among #CRPS patients - and COVID-19 has worsened this... https://t.co/cdnu7aGiBO
Barby Ingle Official @BarbyIngle
T7 Analyze, ask questions, plan and prepare so that I dont have too may anxiety filled experience in life. When I do, I try to recognize, stop negative thoughts and exchange them for realistic ones, and ask for help when needed. #PatientChat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @BarbyIngle: T7 Analyze, ask questions, plan and prepare so that I dont have too may anxiety filled experience in life. When I do, I try to recognize, stop negative thoughts and exchange them for realistic ones, and ask for help when needed. #PatientChat
Patient Empowerment Network @power4patients
RT @abrewi3010: A6 for to long I mourned the old me. That was pointless bc the current me is where the fun is. Once I realized that I used my current skill/ability to live which is constantly evolving unlike my old self that used ego to much.This has helped in reducing my anxiety. #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@BarbyIngle I like this a lot. #PatientChat
Carly Flumer (she/her) @carlyflumer
T7: Talking to friends and family and exercising!! #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @abrewi3010: A6 for to long I mourned the old me. That was pointless bc the current me is where the fun is. Once I realized that I used my current skill/ability to live which is constantly evolving unlike my old self that used ego to much.This has helped in reducing my anxiety. #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Janet Kennedy @GetSocialHealth
What she said... I too feel like my anxiety is under control because I have a job and health insurance. Without those, I'd be a mess. #PatientChat
Alan Brewington @abrewi3010
A7 most recently I bought an expensive camera try and learn photography. Beauty is a great antidote to anxiety and the best part is beauty right outside our front doors. #patientchat
Alexa Jett 🦋 @ohhiialexa
T7: Like Gerri on the virtual #patientchat, planning helps me. Google calendar has been a great resource to see how much I’m doing, when I’m doing it, and think about it mindfully. #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T5: I swear by Umcka, a homeopathic syrup made from a South African plant & recommended to me by an M.D. years ago b/c of clinical evidence showing it helps fight colds. In 2+ yrs of chemotherapy, it has kept me from getting sick. #patientchat
Alexa Jett 🦋 @ohhiialexa
CT: “I love humans” - Broderick Rodell, PhD #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@abrewi3010 #patientchat Fantastic idea! I can't use my right hand much anymore due to #CRPS so have tried to adapt my photography to smartphone pics... Actually had one in @jthexhibit art exhibition!
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T5: I also see a Traditional Chinese Medicine doctor (who also has his M.D. and Ph.D.) for acupuncture, cupping, and general health recommendations. I believe all of this has helped lower my stress and boost my immune system. #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime.
Patient Chat @patientchat
Thanks so much @yourgpsdoc, @gds59, @JillZitzewitz, and Dr. Broderick Rodell for being today’s virtual #patientchat guests and sharing your insights!
Alan Brewington @abrewi3010
CT we all have earned the right to have high anxiety time periods, bad days. The trick is to remember we have all earned the right to a good life. Life happens now and going forward. Yesterday is a textbook to learn from so we can enjoy a good life #patientchat
Diverse Health Hub @DHealthhub
RT @ohhiialexa: CT: CT: “I love humans” - Broderick Rodell, PhD #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T6: I think the root of anxiety is facing circumstances we wouldn't choose and can't control - or even thinking abt potentially facing such circumstances. #patientchat
Patient Chat @patientchat
We’ll be providing a recap of this program to include some highlights from the discussion, stay tuned. #patientchat
Alexa Jett 🦋 @ohhiialexa
All of you did SO AMAZING!! #patientchat
Patient Chat @patientchat
RT @abrewi3010: CT we all have earned the right to have high anxiety time periods, bad days. The trick is to remember we have all earned the right to a good life. Life happens now and going forward. Yesterday is a textbook to learn from so we can enjoy a good life #patientchat
Patient Empowerment Network @power4patients
RT @ohhiialexa: T7: T7: Like Gerri on the virtual #patientchat, planning helps me. Google calendar has been a great resource to see how much I’m doing, when I’m doing it, and think about it mindfully. #patientchat
Patient Chat @patientchat
We’ll be back to the original format on August 7th for the next #patientchat. See you there! https://t.co/TBIlDox87J
Patient Empowerment Network @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Diverse Health Hub @DHealthhub
@ohhiialexa Yes. Alexa I was going to tweet that same satatment, it was amazing. If everyone else is interested in stepping their #mindfness game up, check out https://t.co/5kk3xP17cL#patientchat. I think you’ll gain more insight into some of his work.
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T7: I manage my anxiety by starting my day w/ things I can control - getting up early so I can do what feeds my soul and calms my mind (reading, coffee, nature, prayer, meditation, knitting). #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @ohhiialexa: CT: CT: “I love humans” - Broderick Rodell, PhD #patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
RT @revdrduke: @patientchat T6: @patientchat T6: I think the root of anxiety is facing circumstances we wouldn't choose and can't control - or even thinking abt potentially facing such circumstances. #patientchat
Patient Chat @patientchat
Keep the conversation going between chats with hashtag #patientchat
Rev. Dr. Stacey Simpson Duke @revdrduke
@patientchat T7: When I find myself getting anxious, it helps me to verbalize my fears, even if they seem unrealistic, to someone I trust and who won't invalidate my feelings. #patientchat
Alexa Jett 🦋 @ohhiialexa
@DHealthhub He was incredible, and if you missed the virtual #patientchat, check him out!
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
#patientchat Thanks to the fantastic presenters, and to all who commented here on Twitter or via Zoom! Distant hugs to you all... Stay safe! And with the heat wave here, 108F, I'm sending some cooling thoughts from a Montreal winter '-) This snowfall buried entire cars! https://t.co/KIxOydqqjc
Your GPS Doc, LLC @yourgpsdoc
@patientchat @gds59 @JillZitzewitz It was my pleasure!! ❤️#patientchat
PF Anderson @pfanderson@disabled.social @pfanderson
@revdrduke @patientchat Not having a plan. If you have a plan, and know you have support, those terrifying circumstance become something you can cope with again. #PatientChat
Your GPS Doc, LLC @yourgpsdoc
RT @ohhiialexa: CT: CT: “I love humans” - Broderick Rodell, PhD #patientchat
Alan Brewington @abrewi3010
@SandraWoodsMtl @jthexhibit I’ve had to adapt to my physical limitations too. I’ve found that’s easier while being distracted by photography. Congratulations on the art exhibition! That’s awesome. I’m hoping to get into an exhibition at some point. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@ohhiialexa Thank you, Alexa! You, @honoramiller and @MelDMann set the bar high! 😊 #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: We’ll be providing a recap of this program to include some highlights from the discussion, stay tuned. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @abrewi3010: CT we all have earned the right to have high anxiety time periods, bad days. The trick is to remember we have all earned the right to a good life. Life happens now and going forward. Yesterday is a textbook to learn from so we can enjoy a good life #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @revdrduke: @patientchat T4: @patientchat T4: To me, mindfulness is both a dedicated practice (setting aside time to breathe, center, and pray or meditate) as well as a cultivated daily habit of trying to be attentive to the present moment and intentional in thoughts and actions. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@abrewi3010 I love this mindset shift! #patientchat
Your GPS Doc, LLC @yourgpsdoc
@GetSocialHealth Caregiving is one of the most difficult things I’ve ever done! Sending you hugs and light. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @GraceCordovano: T6) Trying to live in the future or reliving the past. Presence in the present is the only thing we can control our reaction to. #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@abrewi3010 @jthexhibit It's a great experience, particularly being able to attend the opening of the art exhibition '-) Funny coincidence? My photo was named "Resilience", so it really fit in with today's #patientchat! I often focus on my little #ChronicPain + #RareDisease #CRPS awareness buddy, Max https://t.co/lx0IVJUqW9
Your GPS Doc, LLC @yourgpsdoc
@DHealthhub Me too! #patientchat
Sandra Woods, CIPP/C; she/her @SandraWoodsMtl
@GetSocialHealth Great points, Janet! #patientchat
Alan Brewington @abrewi3010
@yourgpsdoc Thank you! #patientchat
#patientchat content from Twitter.