#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Happy Friday, everyone! I’m Nykema from @power4patients and I’m looking forward to today’s #patientchat! |
 | Patient Empowerment Network @power4patients Happy Friday #patientchat! Kara from @power4patients joining in to hear and learn from you all 😃 |
 | Lorrie @LorrieForseth @patientchat Good morning, my name is Lorrie & I am from Vancouver Canada. I advocate for Epilepsy Awareness because, no one should ever fight alone #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Alan Brewington @abrewi3010 Alan here. Tired and hurting bad so I’m not sure how long I’ll chat today. Here is some of my photography for your eyes. #patientchat https://t.co/sEtYzOgHwU |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/XO3X3JyAcV #patientchat |
| Patient Chat @patientchat @LorrieForseth Hi Lorrie! Thank you for joining us today! #patientchat |
| Patient Chat @patientchat Today's #patientchat is a “Wellness Matters: Risk-Reducing Care” Empowered #patientchat https://t.co/S3estSmfI5 |
| Lorrie @LorrieForseth @patientchat I really enjoyed participating last month , happy to be here again , tweeting along. Thanks for the nice welcome :) #patientchat |
| Patient Chat @patientchat @abrewi3010 Appreciate you dropping by and sharing those wonderful pics, Alan. Hoping you feel better soon #patientchat |
| Lorrie @LorrieForseth RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Alan Brewington @abrewi3010 @patientchat 🙏🙏🙏🙏🙏 Thank you! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Patient Chat @patientchat T1: Risk-reducing care? Health maintenance? Preventative care? What term for this topic resonates with you and why? #patientchat https://t.co/fHOEFB8tn5 |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: Risk-reducing care? Health maintenance? Preventative care? What term for this topic resonates with you and why? #patientchat https://t.co/fHOEFB8tn5 |
| Alan Brewington @abrewi3010 T1 Preventative Care - Prevent is an action. It gives me something to do, it helps me engage. Also, there is not guarantee in prevention. I understand and accept this. #patientchat |
| Patient Chat @patientchat T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat https://t.co/0GJXJXkh28 |
| Lorrie @LorrieForseth @patientchat T1 : Preventative care ; Learning about seizure triggers & how to take care of yourself & or your loved one is part of Epilepsy advocacy & education. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat https://t.co/0GJXJXkh28 |
 | Monique C Gore-Massy (she) #ACR22 @GoldenMoe @patientchat T1: Many patients groups are predisposed to microagressions,racism,biases, etc.. impacting the ability to access risk reducing/preventive care. Changing ones “lifestyle” is easier said then done. I think it’s important to address #DEI #diversityequityandinclusion. #patientchat |
| Lorrie @LorrieForseth @patientchat T2 : Knowing your risks or seizure triggers, can help you make the right choices, with help from your health care provider with a plan in place for your specific need , may prevent injury #Epilepsy #patientchat |
 | Memej99-SickleCellLifeOfMemej @Memej99 @patientchat Hi Nykema! I'm Jemela, some know me as Memej99! Gad to be here! #patientchat |
| Patient Chat @patientchat RT @GoldenMoe: @patientchat T1: @patientchat T1: Many patients groups are predisposed to microagressions,racism,biases, etc.. impacting the ability to access risk reducing/preventive care. Changing ones “lifestyle” is easier said then done. I think it’s important to address #DEI #diversityequityandinclusion. #patientchat |
| Memej99-SickleCellLifeOfMemej @Memej99 @patientchat T1: Preventative Care resonates with me because as someone with #SickleCellAnemia, #preventativecare is vital to preventing things like infections, strokes, painful #crises to further safeguard our #sicklecellhealth & protect us from further silent & organ damage. #patientchat |
| Memej99-SickleCellLifeOfMemej @Memej99 @patientchat T2: I identify #risks by learning to listen to my body & by discussing Everything going on with me, even things I think are small, with members of my healthcare team. It helps me make healthier choices because awareness can possibly prevent an even worse health event #patientchat |
| Patient Chat @patientchat @Memej99 Thanks for joining us today, Jemela! #patientchat |
| Patient Chat @patientchat T3: What are some challenges for certain populations in getting routine health screenings? #patientchat https://t.co/ZmbtbK8Spw |
| Alan Brewington @abrewi3010 T2 “risks” are action items we need to remember. Food is a good example. I might live something today and my allergic next week. Exercise is also an example, it means something different to everyone depending on their patient story #patientchat |
| Patient Chat @patientchat #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What are some challenges for certain populations in getting routine health screenings? #patientchat https://t.co/ZmbtbK8Spw |
| Memej99-SickleCellLifeOfMemej @Memej99 @patientchat T3: Black Communities and Communities Of Color in particular face several barriers including medical mistrust, lack of nearby facilities, insurance & household income. Far too many issues affect underserved communities impacting their routine care or lack of. #patientchat |
| Alan Brewington @abrewi3010 T3 Cost is the universal wall to access. Even in our “rich” country a $2 copay can break someone. #patientchat |
| Patient Chat @patientchat RT @Memej99: @patientchat T3: @patientchat T3: Black Communities and Communities Of Color in particular face several barriers including medical mistrust, lack of nearby facilities, insurance & household income. Far too many issues affect underserved communities impacting their routine care or lack of. #patientchat |
| Patient Chat @patientchat #patientchat |
 | Erica @CeliacBeast Access/accessibility for low income populations |
| Patient Chat @patientchat RT @abrewi3010: T3 Cost is the universal wall to access. Even in our “rich” country a $2 copay can break someone. #patientchat |
| Patient Chat @patientchat T4: What role does wellness play in your life? #patientchat https://t.co/Fo627CvEsr |
| Alan Brewington @abrewi3010 T3 Time management is another barrier. If I work 10 hours a day & my doc is open for 8 I have to decide on a smaller paycheck or health screen. If I feel great a health screen is going to be a low priority if I need my paycheck for food/rent. #patientchat |
| Lorrie @LorrieForseth @patientchat T3 : invisible illness in the Epilepsy community or any chronic illness community can make it tricky , what you can't see is harder to prove . You feel unheard in the beginning( if that makes sense) #patientchat |
| Erica @CeliacBeast RT @Memej99: @patientchat T3: @patientchat T3: Black Communities and Communities Of Color in particular face several barriers including medical mistrust, lack of nearby facilities, insurance & household income. Far too many issues affect underserved communities impacting their routine care or lack of. #patientchat |
| Alan Brewington @abrewi3010 @patientchat Thanks for the assist! Great example of brain fog on my part #patientchat |
| Patient Chat @patientchat @LorrieForseth Definitely makes sense, Lorrie. #patientchat |
| Alan Brewington @abrewi3010 T4 for me I use a daily quality of life check vs using wellness. That said it’s a constant assessment process. Do I walk at lunch? Do I got in the backcountry to hike? Can I eat/drink X for enjoyment despite inflammation possibility? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What role does wellness play in your life? #patientchat https://t.co/Fo627CvEsr |
| Lorrie @LorrieForseth @patientchat T4 : If you don't take care of yourself, you may not be able to take care of another. You can't get water from an empty glass #Epilepsy #carer #patientchat |
| Memej99-SickleCellLifeOfMemej @Memej99 @patientchat T4: #Wellness plays a huge role in my life! Living with a #chronicillness like #sicklecelldisease wellness affects every aspect of my life. If I'm honest it plays a Much larger part than I wish it did, but I also know it's what I need 2 do 2 be as healthy as I can be #patientchat |
| Patient Chat @patientchat RT @LorrieForseth: @patientchat T4 : @patientchat T4 : If you don't take care of yourself, you may not be able to take care of another. You can't get water from an empty glass #Epilepsy #carer #patientchat |
 | Jenn Schropp @Endo_Jenn @patientchat T2: Listening to my own intuition. Plus education and awareness. Communication with those around me helps me and them understand risks. #patientchat |
 | EpMatch @epstrong RT @LorrieForseth: @patientchat T4 : @patientchat T4 : If you don't take care of yourself, you may not be able to take care of another. You can't get water from an empty glass #Epilepsy #carer #patientchat |
| Alan Brewington @abrewi3010 T4 my #chronicpain is currently flaring bad. Unless I show (cry)/tell someone no one can tell bc it’s invisible. Do I share? Do I cry? Do I go home? Can I still be productive at work? All going thru my mind right now which relate to my current wellness #patientchat |
| Monique C Gore-Massy (she) #ACR22 @GoldenMoe @patientchat T4: Once I realized wellness wasn’t something to achieve, an item on a checklist, 👌🏾. Im now allowing wellness to be a journey,changing it depending on what I need physically, mentally, cognitively..No one area, but doing what I can,with what with I have for ME #patientchat |
| Patient Chat @patientchat T5: Aside from your physical health, how are you currently maintaining your emotional and mental health? #patientchat https://t.co/S7l4edQck8 |
| Jenn Schropp @Endo_Jenn @patientchat T4: if I can't take care of myself then I can't help anyone else. I'm big on meditation and exercise to keep me feeling good and going! #patientchat |
 | John Novack @J2Novack RT @patientchat: T5: T5: Aside from your physical health, how are you currently maintaining your emotional and mental health? #patientchat https://t.co/S7l4edQck8 |
| Alan Brewington @abrewi3010 I love this, “wellness wasn’t something to achieve”. It very much is a chronic process which can change moment by moment. #patientchat |
| Patient Chat @patientchat RT @abrewi3010: I love this, “wellness wasn’t something to achieve”. It very much is a chronic process which can change moment by moment. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: Aside from your physical health, how are you currently maintaining your emotional and mental health? #patientchat https://t.co/S7l4edQck8 |
| Lorrie @LorrieForseth @patientchat T5 : self care is very important, when things get overwhelming try to take a break when time permits , nap ,listen to music . I found this on social media for anyone #patientchat 👇 https://t.co/OEQCjbECEC |
| Jenn Schropp @Endo_Jenn @patientchat T5: meditation is a great thing! 🧘🏼♀️ #patientchat |
| Patient Chat @patientchat RT @LorrieForseth: @patientchat T5 : @patientchat T5 : self care is very important, when things get overwhelming try to take a break when time permits , nap ,listen to music . I found this on social media for anyone #patientchat 👇 https://t.co/OEQCjbECEC |
| Patient Chat @patientchat @LorrieForseth Love this image Lorrie! So cute! #patientchat |
| Memej99-SickleCellLifeOfMemej @Memej99 @patientchat T5:I'm maintaining my #mental & #emotionalhealth both by attending weekly @sicklecellmw #communitycheckins. I can't stress how vital #support is 2 #sicklecell or Anyone living/w a #chronicillness! Leaning on those who Get & appreciate u 4 who u are is invaluable #patientchat |
| Alan Brewington @abrewi3010 T5 I’ve my rely heavily on my #photography lately for mental health. It’s something I can focus on during #chronicpain spells. Plus it’s selfish too, it makes me feel a little better when my photos can make fellow chronic patients smile for a moment #patientchat |
| Lorrie @LorrieForseth @patientchat It's a great image , not mine . Just love sharing it if it helps someone #patientchat :) |
| Alan Brewington @abrewi3010 RT @Endo_Jenn: @patientchat T5: @patientchat T5: meditation is a great thing! 🧘🏼♀️ #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #patientchat |
| Monique C Gore-Massy (she) #ACR22 @GoldenMoe @patientchat T5: Oof, I'm currently moving from just making it with broken pieces. I changed HCPs that weren't serving my comprehensive goals. Put my therapist back on VIP contact list, lol. I'm also giving myself 20min in am before I give anything to the day.. #patientchat |
| Monique C Gore-Massy (she) #ACR22 @GoldenMoe RT @LorrieForseth: @patientchat T5 : @patientchat T5 : self care is very important, when things get overwhelming try to take a break when time permits , nap ,listen to music . I found this on social media for anyone #patientchat 👇 https://t.co/OEQCjbECEC |
| Patient Chat @patientchat @GoldenMoe Haha, the VIP contact list. Also, love that 20 minutes you give yourself in the AM before doing anything else for the day. I'd definitely like to give that a try! #patientchat |
| Alan Brewington @abrewi3010 CT we need more preventative care public measures so people can eat organic vs the Golden Arches. We need more #movementismedicine ideas in the work place. Let’s just ban smoking altogether. Finally let’s take more time to ask how might we…? when problem solving #patientchat |
| Lorrie @LorrieForseth @patientchat C/T : Education is key in the #Epilepsy community, seizure first aid , advocacy, empathy, compassion & never giving up hope. Self care is not selfish , take time for you . As a patient or as a carer you matter , you're not alone 💜 #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Monique C Gore-Massy (she) #ACR22 @GoldenMoe RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Patient Chat @patientchat Save the date! Join us on Friday, September 3rd for our next Empowered #patientchat @ 10 AM PT/ 1 PM ET. https://t.co/lgS4KmpsxJ |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat |
| Lorrie @LorrieForseth @patientchat @power4patients Today was fun , thank you for hosting it . See you in September! #patientchat :) |
| Lorrie @LorrieForseth RT @patientchat: Save the date! Join us on Friday, September 3rd for our next Empowered #patientchat @ 10 AM PT/ 1 PM ET. https://t.co/lgS4KmpsxJ |
#patientchat content from Twitter.