#loweresearch Conference Hashtag

I SCIENTIFIC CONFERENCE with Doctors an Rela tives of Patients’ RELATIVES with Lowe Syndrome

International Conference about the Research in an ultra-rare disease (Lowe Syndrome). The participants will be the doctors and relatives of the children with this disease (boys), and the aim will be the collective inteligence between the doctors and relatives for research about the affectations of this disease and to create a register of it. Preliminary program 9:00- 10:15 Hand in documentation to the assistants. Welcome coffee 10:15-10:45: Introduction to the Conference 10:45- 12:15 First field: medical information i. Biological basis of the Lowe Syndrome: J Armstrong ii. Nephrological disorders and their treatment: A Camacho iii. Eye disor ders and their treatment: E Arrondo iv. GH therapy, attendees’ experience: L Suárez and all the assitants. Interactive session 12:15-1…

#loweresearch is a conference hashtag submitted by @dinamizoaptic