#whywedoresearch Transcript

Healthcare social media transcript of the #whywedoresearch hashtag.
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Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Time to kick off! Q1. What is engagement in research? #WhyWeDoResearch https://t.co/tiqCVub19m
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Q1 What is public engagement in research? #WhyWeDoResearch https://t.co/BgDzXpt9Ur
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
I'd love to hear examples of #WhyWeDoResearch community engagement in research
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Q1 What is public engagement in research? #WhyWeDoResearch https://t.co/BgDzXpt9Ur
Derek Stewart @DerekCStewart
RT @EmmaYhnell: We have 5 minutes until the beginning of the final #WhyWeDoResearch chat. So please introduce yourselves and say hi using t…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
Final tweetchat of #WhyWeDoResearch tweetfest 2018 - Q1 up now... https://t.co/TCEGZrAiCV
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw @ArthritisRUK @AllisonWorth4 Hi welcome Lynn #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: Welcome everyone to this chat on public engagement and involvement in research. The final tweet chat of #WhyWeDoResearch Tw…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell Hi, am in Scotland and a Patient Insight Partner with @ArthritisRUK and part of @AllisonWorth4 PPI group. #W
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@smithhazelann @Irish_RNN Hi Hazel - thanks and welcome #WhyWeDoResearch
Bettina Ryll @BettinaRyll
RT @EmmaYhnell: We have 5 minutes until the beginning of the final #WhyWeDoResearch chat. So please introduce yourselves and say hi using t…
Hazel A Smith (PhD) @smithhazelann
I like this #whywedoresearch tweetchat already. I can easily answer what patient and family engagement is but would struggle with public. https://t.co/Twjasa4YX0
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
Hi all, I'm Claire, #WhyWeDoResearch originator, Lead Nurse for Research & #hEDS patient https://t.co/kyPHX2rqWe
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ClaireW_UK Hi Claire - welcome along to #WhyWeDoResearch
Petra Boynton @DrPetra
RT @ClaireW_UK: Final tweetchat of #WhyWeDoResearch tweetfest 2018 - Q1 up now... https://t.co/TCEGZrAiCV
Kay @hotmail_kay
@EmmaYhnell #whywedoresearch
UoSCancerResearch @uoscares
RT @EmmaYhnell: I'd love to hear examples of #WhyWeDoResearch community engagement in research
@JPUHResearch @JPUHResearch
Hi all, we're the research department @JamesPagetNHS Looking forward to the final tweetchat of tweetfest #patientfocused #whywedoresearch
UoSCancerResearch @uoscares
RT @smithhazelann: 30mins to the last #WhyWeDoResearch chat for this year's tweetfest! @EmmaYhnell will be talking about 'Public Engagement…
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell I like to think it’s more than participation or hearing about research. It’s active involvement in setting research priorities and contributing lived experience to make research relevant. Teamwork! #WhyWeDoResearch
Derek Stewart @DerekCStewart
@EmmaYhnell Hi Emma - Derek here! Patient (impatient) advocate/activist passionate about #WhyWeDoResearch and the benefits for people’s health and wellbeing
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: I'd love to hear examples of #WhyWeDoResearch community engagement in research
Hazel A Smith (PhD) @smithhazelann
I think open days are a good idea. Pick a afternoon or evening where the research center is open to members of the public to come in and ask questions, show and explain your research and ask for their ideas? #whywedoresearch https://t.co/Twjasa4YX0
Derek Stewart @DerekCStewart
RT @lynn_laidlaw: @EmmaYhnell Hi, am in Scotland and a Patient Insight Partner with @ArthritisRUK and part of @AllisonWorth4 PPI group. #W
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@smithhazelann Public is quite a broad term isn't it. I had run engagement activities from primary children all the way up to elderly people. This means engagement is quite variable depending on the audience #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
RT @ClaireW_UK: Hi all, I'm Claire, #WhyWeDoResearch originator, Lead Nurse for Research & #hEDS patient https://t.co/kyPHX2rqWe
Lilly Trials @LillyTrials
Hi, all! Happy to be joining this chat and closing out tweetfest on the topic of public engagement and involvement in research. #whywedoresearch
carmen villar @carmenvillarb
RT @SantiagoPG_12: #WhyWedoResearch Q1 Mi experiencia me permite asegurar que las unidades de investigación son necesarias. En el Hosp 12 d…
UoSCancerResearch @uoscares
@EmmaYhnell Hi Ben here @uoscares Cancer researching Clinical Trials assistant @UHSFT #WhyWeDoResearch
Victoria Shepherd @VickyLShepherd
RT @CUH_Research: Great example of a research info graphic from the #whywedoresearch tweet chat https://t.co/ahEIuiOklk
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @smithhazelann Public is quite a broad term isn't it. I had run engagement activities from primary children all the way up…
Sharon Kempson RN @sharon_kempson
A1: lots of examples. CRN WM have great research ambassadors, PPIE groups and @YPSGWMids #WhyWeDoResearch https://t.co/fKOx1laURF
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
To me it's about working with #patients #public for developing, conducting & disseminating #research. So much amazing knowledge out there #WhyWeDoResearch https://t.co/TCEGZrAiCV
Sharon Kempson RN @sharon_kempson
RT @lynn_laidlaw: @EmmaYhnell I like to think it’s more than participation or hearing about research. It’s active involvement in setting re…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @LillyTrials: Hi, all! Happy to be joining this chat and closing out tweetfest on the topic of public engagement and involvement in rese…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @smithhazelann Public is quite a broad term isn't it. I had run engagement activities from primary children all the way up…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@smithhazelann I love open days. However I think we can do more to attract a more diverse audience. For example people who aren't confident/able to come along. What does everyone else think? #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @DerekCStewart: @EmmaYhnell Hi Emma - Derek here! Patient (impatient) advocate/activist passionate about #WhyWeDoResearch and the benefi…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell I like to think it’s more than participation or hearing about research. It’s active involvement in setting re…
Rheumatoid Patient @rheumpatient
Hi. Patient with rheumatoid arthritis. Involved patient with Arthritis Research UK, EULAR and The BMJ. #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @JPUHResearch: Hi all, we're the research department @JamesPagetNHS Looking forward to the final tweetchat of tweetfest #patientfocused
Christina Lizaso @btrfly12
RT @ClaireW_UK: Hi all, I'm Claire, #WhyWeDoResearch originator, Lead Nurse for Research & #hEDS patient https://t.co/kyPHX2rqWe
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @sharon_kempson: A1: lots of examples. CRN WM have great research ambassadors, PPIE groups and @YPSGWMids #WhyWeDoResearch https://t.co/…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: Hi. Patient with rheumatoid arthritis. Involved patient with Arthritis Research UK, EULAR and The BMJ. #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @smithhazelann I love open days. However I think we can do more to attract a more diverse audience. For example people who…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@uoscares @UHSFT Welcome Ben #whywedoresearch
UoSCancerResearch @uoscares
@lynn_laidlaw @EmmaYhnell A1 #WhyWeDoResearch To me it ANYTHING to do with research & Joe & Jane Public - doesn't matter what format. Any engagement is good engagement
Sharon Kempson RN @sharon_kempson
RT @DerekCStewart: @EmmaYhnell Hi Emma - Derek here! Patient (impatient) advocate/activist passionate about #WhyWeDoResearch and the benefi…
Sharon Kempson RN @sharon_kempson
RT @EmmaYhnell: @smithhazelann Public is quite a broad term isn't it. I had run engagement activities from primary children all the way up…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@DerekCStewart Hi Derek - welcome along to #whywedoresearch
@JPUHResearch @JPUHResearch
RT @uoscares: @lynn_laidlaw @EmmaYhnell A1 #WhyWeDoResearch To me it ANYTHING to do with research & Joe & Jane Public - doesn't matter what…
Hazel A Smith (PhD) @smithhazelann
@EmmaYhnell how to you event start to plan/ organise a public engagement event? Do you contact the primary school or are you responding to a request? #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @rheumpatient: Hi. Patient with rheumatoid arthritis. Involved patient with Arthritis Research UK, EULAR and The BMJ. #whywedoresearch
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @smithhazelann I love open days. However I think we can do more to attract a more diverse audience. For example people who…
UoSCancerResearch @uoscares
@EmmaYhnell @UHSFT Better slightly late than never ;) #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @smithhazelann: I think open days are a good idea. Pick a afternoon or evening where the research center is open to members of the publi…
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @smithhazelann I love open days. However I think we can do more to attract a more diverse audience. For example people who…
Kay @hotmail_kay
@ClaireW_UK Hi all! I think public engagement is patients speaking to other patients about life with conditions to back Up academic teachings and engage the general public to talk about health research #Whywedoresearch
UoSCancerResearch @uoscares
RT @EmmaYhnell: @smithhazelann I love open days. However I think we can do more to attract a more diverse audience. For example people who…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ClaireW_UK: To me it's about working with #patients #public for developing, conducting & disseminating #research. So much amazing knowl…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @uoscares: @lynn_laidlaw @EmmaYhnell A1 #WhyWeDoResearch To me it ANYTHING to do with research & Joe & Jane Public - doesn't matter what…
@JPUHResearch @JPUHResearch
#WhyWeDoResearch We like open days as @smithhazelann suggested, they're great! We also like to go 'out there' & host stalls etc in shopping centres.
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@uoscares @lynn_laidlaw Who are the main drivers behind engagement in research? #whywedoresearch
UoSCancerResearch @uoscares
@EmmaYhnell @smithhazelann #WhyWeDoResearch @SarahwResearch Come on in Sarah, give us your views please ;) #itsoktoask isn't it?!?
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: @ClaireW_UK Hi all! I think public engagement is patients speaking to other patients about life with conditions to back Up…
Derek Stewart @DerekCStewart
@EmmaYhnell A1 Engagement is changing from a mainly ‘talking to’ the public and ‘speaking with’. The Research Excellence Framework demands reach and significance. #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @ClaireW_UK Hi all! I think public engagement is patients speaking to other patients about life with conditions to back Up…
Hazel A Smith (PhD) @smithhazelann
RT @JPUHResearch: #WhyWeDoResearch We like open days as @smithhazelann suggested, they're great! We also like to go 'out there' & host stal…
UoSCancerResearch @uoscares
RT @smithhazelann: @EmmaYhnell how to you event start to plan/ organise a public engagement event? Do you contact the primary school or are…
Kay @hotmail_kay
RT @DerekCStewart: @EmmaYhnell A1 Engagement is changing from a mainly ‘talking to’ the public and ‘speaking with’. The Research Excellence…
@JPUHResearch @JPUHResearch
#WhyWeDoResearch A1. Formal & informal routes are good for engaging with patients in research
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Time for Q2: What is public involvement in research? #whywedoresearch https://t.co/bITKZNycX3
@JPUHResearch @JPUHResearch
RT @DerekCStewart: @EmmaYhnell A1 Engagement is changing from a mainly ‘talking to’ the public and ‘speaking with’. The Research Excellence…
UoSCancerResearch @uoscares
RT @ClaireW_UK: To me it's about working with #patients #public for developing, conducting & disseminating #research. So much amazing knowl…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @uoscares @lynn_laidlaw Who are the main drivers behind engagement in research? #whywedoresearch
nobism @nobismhealth
RT @JPUHResearch: #WhyWeDoResearch We like open days as @smithhazelann suggested, they're great! We also like to go 'out there' & host stal…
nobism @nobismhealth
RT @JPUHResearch: #WhyWeDoResearch A1. Formal & informal routes are good for engaging with patients in research
nobism @nobismhealth
RT @EmmaYhnell: Time for Q2: What is public involvement in research? #whywedoresearch https://t.co/bITKZNycX3
Phillip Smith @researchPhil
RT @EmmaYhnell: Time for Q2: What is public involvement in research? #whywedoresearch https://t.co/bITKZNycX3
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @ClaireW_UK Hi all! I think public engagement is patients speaking to other patients about life with conditions to back Up…
UoSCancerResearch @uoscares
RT @JPUHResearch: Hi all, we're the research department @JamesPagetNHS Looking forward to the final tweetchat of tweetfest #patientfocused
Hazel A Smith (PhD) @smithhazelann
@JPUHResearch I have never, in Ireland, seen a research stand in any shopping center. Do you have to pay the shopping center for the space that you get or are the shopping centers happy to host you? #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@DerekCStewart Measuring the impact of engagement can be difficult. It is something we are using in lots of engagement activities @CUmedicengage #whywedoresearch
Kay @hotmail_kay
@DerekCStewart @EmmaYhnell Absolutely agree and I feel speaking with patients gives conditions a face and the patients can identify with others going through the journey #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
@hotmail_kay Hi Kay 👋👋👋 Definitely. I've found this helpful on a personal level with my #hEDS through recent pregnancy #WhyWeDoResearch
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @uoscares What do you mean by engagement? I think there are plenty of events out there to TELL patients about research but much less to actually meaningfully INVOLVE patients in the research process, especially in Scotland. #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @DerekCStewart @EmmaYhnell Absolutely agree and I feel speaking with patients gives conditions a face and the patients can…
Sharon Kempson RN @sharon_kempson
Especially On clinical trials day:) #whywedoresearch https://t.co/WT58t6XBvQ
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @DerekCStewart Measuring the impact of engagement can be difficult. It is something we are using in lots of engagement acti…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
How does engagement in research differ from involvement in research? #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
Where has that time gone??? Q2 up already... #WhyWeDoResearch https://t.co/KxuP2p8zgz
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
Beautifully worded as ever #WhyWeDoResearch https://t.co/ES6v0Mo8vo
Rheumatoid Patient @rheumpatient
A1: Lots of different ways patients can engage. With Arthritis Research UK pts review grant applications, sit on committees, act as mentors to HCPs. At EULAR advise on research study design, help develop guidelines and at The BMJ review research before published. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @EmmaYhnell @uoscares What do you mean by engagement? I think there are plenty of events out there to TELL patients abou…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @JPUHResearch: #WhyWeDoResearch We like open days as @smithhazelann suggested, they're great! We also like to go 'out there' & host stal…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @lynn_laidlaw @EmmaYhnell A1 #WhyWeDoResearch To me it ANYTHING to do with research & Joe & Jane Public - doesn't matter what…
SantiagoPerezGarcia @SantiagoPG_12
#WhyWedoResearch Desde las unidades de investigación, no solo tenemos la labor de potenciar la investigación en cuidados, también hay que buscar estrategias de ayudas Una utilizada en el Hospital 12 Octubre ha sido acercamiento al instituto investigación i+12
UoSCancerResearch @uoscares
@EmmaYhnell A2 #WhyWeDoResearch (repeat button hit!) Anything that involves non-research people. Science & Engineering days, Hospital Open Days, STEM Ambassadors, Scout/Cub/Beaver meetings (they are always looking for people to help with their meetings in the winter months, hint hint)
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: A1: Lots of different ways patients can engage. With Arthritis Research UK pts review grant applications, sit on committe…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: How does engagement in research differ from involvement in research? #WhyWeDoResearch
Kay @hotmail_kay
@ClaireW_UK Hey! Yes I feel that patients speaking about conditions and how it affects day to day living is as important as the knowledge of the condition itself #Whywedoresearch
Phillip Smith @researchPhil
We’ve got patients to be applicants for research grants in supportive oncology @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/p45fQPvw3o
Derek Stewart @DerekCStewart
@EmmaYhnell Great example where patients with mnd community asked for a more comfortable collar https://t.co/6v11UU4UaI @Devices4Dignity #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @sharon_kempson: Especially On clinical trials day:) #whywedoresearch https://t.co/WT58t6XBvQ
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell @uoscares What do you mean by engagement? I think there are plenty of events out there to TELL patients abou…
Hazel A Smith (PhD) @smithhazelann
RT @JPUHResearch: #WhyWeDoResearch A1. Formal & informal routes are good for engaging with patients in research
Hazel A Smith (PhD) @smithhazelann
RT @DerekCStewart: @EmmaYhnell A1 Engagement is changing from a mainly ‘talking to’ the public and ‘speaking with’. The Research Excellence…
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Time for Q2: What is public involvement in research? #whywedoresearch https://t.co/bITKZNycX3
Lilly Trials @LillyTrials
A1: Have you heard about the Metastatic Prostate Cancer Project? They partner directly with men with metastatic and/or advanced prostate cancer to further cancer research. https://t.co/rkOvEQ0TBl #whywedoresearch
Derek Stewart @DerekCStewart
RT @hotmail_kay: @DerekCStewart @EmmaYhnell Absolutely agree and I feel speaking with patients gives conditions a face and the patients can…
Hazel A Smith (PhD) @smithhazelann
RT @uoscares: @EmmaYhnell A2 #WhyWeDoResearch (repeat button hit!) Anything that involves non-research people. Science & Engineering days,…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
@EmmaYhnell You'll love these thoughts from Kay... (just tagging you directly as am sure you're swamped) #WhyWeDoResearch https://t.co/Vl8DZ65qGb
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @EmmaYhnell A2 #WhyWeDoResearch (repeat button hit!) Anything that involves non-research people. Science & Engineering days,…
UoSCancerResearch @uoscares
@ClaireW_UK #WhyWeDoResearch It's the good old 2 ears, 1 mouth thingamajig thingy
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @DerekCStewart Measuring the impact of engagement can be difficult. It is something we are using in lots of engagement acti…
Lilly Trials @LillyTrials
RT @lynn_laidlaw: @EmmaYhnell I like to think it’s more than participation or hearing about research. It’s active involvement in setting re…
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @DerekCStewart @EmmaYhnell Absolutely agree and I feel speaking with patients gives conditions a face and the patients can…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @DerekCStewart: @EmmaYhnell Great example where patients with mnd community asked for a more comfortable collar https://t.co/6v11UU4UaI…
Nichola Verstraelen @nicholaverstra1
Loving this poster clear and simple #ICT2018 #IAMResearch @LancsResearch #whywedoresearch https://t.co/WV6XFZxSs8
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @uoscares SHARE register in Scotland is a case in point, it appears to be all about signing patients up to research projects not actually engaging or involving them. Missed opportunity? #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
RT @ClaireW_UK: @hotmail_kay Hi Kay 👋👋👋 Definitely. I've found this helpful on a personal level with my #hEDS through recent pregnancy #Wh
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sounds great. How do patients feel about being co-applicants? I know in some instances we have struggled to add patient co-applicants without academic affiliations just down to the online submission systems used! #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: We’ve got patients to be applicants for research grants in supportive oncology @ENHertResearch @SupportiveOnc @researchPh
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ClaireW_UK: @EmmaYhnell You'll love these thoughts from Kay... (just tagging you directly as am sure you're swamped) #WhyWeDoResearch h…
SantiagoPerezGarcia @SantiagoPG_12
#WhyWedoResearch Estar dentro del i+12 ha permitido convocatorias anuales de becas intensificación. En estos últimos años 26 enfermeras han podido desarrollar sus estudios gracias a tener tiempo laboral para ello
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
#whywedoresearch A1 & A2 The @OfficialNIHR have the amazing @NIHR_PRAI which is fantastic
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sounds great. How do patients feel about being co-applic…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
bit late for an important date on a #FridayFeeIing #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sounds great. How do patients feel about being co-applic…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell @uoscares SHARE register in Scotland is a case in point, it appears to be all about signing patients up to re…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @LillyTrials: A1: Have you heard about the Metastatic Prostate Cancer Project? They partner directly with men with metastatic and/or adv…
Hazel A Smith (PhD) @smithhazelann
RT @researchPhil: We’ve got patients to be applicants for research grants in supportive oncology @ENHertResearch @SupportiveOnc @researchPh
UoSCancerResearch @uoscares
RT @ClaireW_UK: #whywedoresearch A1 & A2 The @OfficialNIHR have the amazing @NIHR_PRAI which is fantastic
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@hotmail_kay @ClaireW_UK Certainly! So important real life and lived experience is vital for understanding the reality of living with conditions #whywedoresearch
Derek Stewart @DerekCStewart
@EmmaYhnell @CUmedicengage It has to be more than counting the people we talk to. We need to capture the essence and clarity of what difference engagement made #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
RT @LillyTrials: A1: Have you heard about the Metastatic Prostate Cancer Project? They partner directly with men with metastatic and/or adv…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
#WhyWeDoResearch Hi @WendyPMitchell https://t.co/Gp3Kr5kYkB
NuriaDeArgila @NuriaDeArgila
RT @SantiagoPG_12: #WhyWedoResearch Q1 Mi experiencia me permite asegurar que las unidades de investigación son necesarias. En el Hosp 12 d…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Public involvement should be a partnership - working together using each expertise #Whywedoresearch https://t.co/Ck0knSk7s7
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ataxiaandme Welcome Alan! #whywedoresearch
Kay @hotmail_kay
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think it is a good thing for some patients to be co apps but I do think it can be an intimidating process if you aren’t part of a wider network and training for the general public would be a good idea #Whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ataxiaandme We are discussing engagement and involvement in research at the moment #whywedoresearch
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Can’t the online submission systems be changed? It would be lovely to be given the opportunity to be a co applicant, they seem few and far between! #WhyWeDoResearch
Sharon Kempson RN @sharon_kempson
RT @WendyPMitchell: Public involvement should be a partnership - working together using each expertise #Whywedoresearch https://t.co/Ck0knS…
Phillip Smith @researchPhil
We feel that patients are fellow human beings and we are there to be part of their journey in life. Part of that may involve their desire to help others though research participation or design. @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/DYLuBj9Qzh
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@DerekCStewart @CUmedicengage Impactful and meaningful engagement #whywedoresearch
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Training vital. #WhyWeDoResearch
Claire West @ClaireWest10
RT @NIHRCRN_SWPen: Catch up with the #Plymouth #Research Team @Derriford_Hosp foyer today! Celebrating the upcoming #InternationalClinicalT
Nichola Verstraelen @nicholaverstra1
Really like your posters - everyone can see who is running each trial. Never fail to deliver on getting the message out! Well done Oncology research team @Stephaniecornt2 @BrarNavdeepk #ICTD2018 #WhyWeDoResearch @LancsHospitals @RosemereCF https://t.co/iLiUXF4iSR
UoSCancerResearch @uoscares
@EmmaYhnell @lynn_laidlaw #WhyWeDoResearch No pun intended, but it is engaged individuals that get off their proverbials (like these tweet chats) and go & engage - whatever form that may take - & it is SO much fun & gratifying showing & sharing research experiences @ClaireW_UK
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It was after we asked :) but the fact we had to ask was telling #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
@IPCOR_Ireland @IrishCancerSoc @IrishCancerReg #WhyWeDoResearch https://t.co/Dr78UGxxqV
Rheumatoid Patient @rheumpatient
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Never mind being a co-applicant as long as I will be involved in the project after researchers get the grant. Nothing worse than being used to get a grant and then discarded. #whywedoresearch
Kay @hotmail_kay
@EmmaYhnell @ClaireW_UK Yes I think living with conditions is much more than the condition itself that having someone to talk to who has either been through or is going through it really does help #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @nicholaverstra1: Loving this poster clear and simple #ICT2018 #IAMResearch @LancsResearch #whywedoresearch https://t.co/WV6XFZxSs8
Ataxia and Me CIO 1184030 @Ataxia_and_Me
@EmmaYhnell Communication is the word #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@hotmail_kay @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I totally understand that the process can be intimidating especially when grant applications can be very complex and long. Is there any specific training or things we could do to make it easier? #whywedoresearch
Phillip Smith @researchPhil
RT @lynn_laidlaw: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Can’t the online submission systems be cha…
Nichola Verstraelen @nicholaverstra1
Amaaaazing!! #WhyWeDoResearch @LancsResearch https://t.co/2th2C900b5
Hazel A Smith (PhD) @smithhazelann
Yes, @TinkleLin gave a great #WhyWeDoResearch tweetchat on CDC yesterday. https://t.co/mpGX6oTzMw
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 This is awful and I am really sorry to hear about this experience #whywedoresearch
SantiagoPerezGarcia @SantiagoPG_12
RT @castrocloud: @carmenvillarb #whywedoresearch Q4 la participacion de pacientes y ciudadania en proceso de investigacion es FUNDAMENTAL h…
Hazel A Smith (PhD) @smithhazelann
RT @rheumpatient: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Never mind being a co-applicant as long as…
UoSCancerResearch @uoscares
@nicholaverstra1 @Stephaniecornt2 @BrarNavdeepk @LancsHospitals @RosemereCF Hey @nicholaverstra1 get involved now with the #WhyWeDoResearch tweetchat, right up your street ;)
Farshid @FAmirabdollahia
RT @researchPhil: We’ve got patients to be applicants for research grants in supportive oncology @ENHertResearch @SupportiveOnc @researchPh
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: We feel that patients are fellow human beings and we are there to be part of their journey in life. Part of that may invo…
SantiagoPerezGarcia @SantiagoPG_12
RT @bflasquetty: #whywedoresearch Q1 unidades de investigación totalmente necesarias. Que todos los trabajos que se vayan a llevar a un eve…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: @EmmaYhnell @ClaireW_UK Yes I think living with conditions is much more than the condition itself that having someone to t…
C3T @C3T_HLM
At https://t.co/wzb5s9wW3U we bring the best practices of #HealthLiteracy to #ClinicalTrials helping everyone better understand #whywedoresearch.
trees @tracyrees4
RT @VelindreT: @VelindreCC We have had an amazing week raising awareness #whywedoresearch #velindretrials
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ataxiaandme Communication between researchers and patients? #whywedoresearch
Kay @hotmail_kay
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think for some the sheer words ‘grant application’,’ CRF’s’ and the like need to be addressed before patients are on the team as it can be intimidating to ask so I feel some may shy away #WhyWeDoResearch
Phillip Smith @researchPhil
The actual technical process will always be a challenge. We must first of all accept that success is patient involvement - all other barriers are hurdles along the way. # @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/fHcdc0TO6u
DrDr (😊)Wendy Mitchell @WendyPMitchell
Come to the party very late - I’m sure its been a brilliant week of #Whywedoresearch 😊 https://t.co/CRVUlCBieP
Derek Stewart @DerekCStewart
RT @EmmaYhnell: @DerekCStewart @CUmedicengage Impactful and meaningful engagement #whywedoresearch
UoSCancerResearch @uoscares
RT @hotmail_kay: @ClaireW_UK Hi all! I think public engagement is patients speaking to other patients about life with conditions to back Up…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Here we go with Q3. Is there a difference between public engagement and public involvement in research? #whywedoresearch https://t.co/6eJeiUaDiE
Phillip Smith @researchPhil
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think for some the sheer words ‘grant app…
Kay @hotmail_kay
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe a clinical trials day open to PRA’s to learn the processes? #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @EmmaYhnell @ClaireW_UK Yes I think living with conditions is much more than the condition itself that having someone to t…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @EmmaYhnell @lynn_laidlaw #WhyWeDoResearch No pun intended, but it is engaged individuals that get off their proverbials (lik…
Rheumatoid Patient @rheumpatient
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sadly, I think it's quite common seeing as patient involvement is either necessary or viewed favourably to get funding in the UK. Leads to the system being played. #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Public involvement should be a partnership - working together using each expertise #Whywedoresearch https://t.co/Ck0knS…
Dr Jonathan Boote 🏳️‍🌈 @jonathanboote
RT @DerekCStewart: @EmmaYhnell A1 Engagement is changing from a mainly ‘talking to’ the public and ‘speaking with’. The Research Excellence…
Lilly Trials @LillyTrials
@smithhazelann Great idea! The Lilly Spanish affiliate has followed a similar model, inviting patient advocacy groups for in-house sessions. @LillyES #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@hotmail_kay @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 The dreaded acronyms! #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think for some the sheer words ‘grant app…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @hotmail_kay @ClaireW_UK Certainly! So important real life and lived experience is vital for understanding the reality of l…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
@EmmaYhnell @hotmail_kay #WhyWeDoResearch Definitely. Here's ours https://t.co/mNT7tKeOvq #hEDS
Phillip Smith @researchPhil
We can have patient involvement without asking them to fill in the forms #@ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/bGK6BYIOa3
Derek Stewart @DerekCStewart
@EmmaYhnell @CUmedicengage I also think we have to enter into the idea of engagement with some identifiable outcomes #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @LillyTrials: @smithhazelann Great idea! The Lilly Spanish affiliate has followed a similar model, inviting patient advocacy groups for…
Kay @hotmail_kay
@EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I do think that,coupled with the fact you’re on a team of full time researchers may mean some people shy away from the role #Whywedoresearch
@JPUHResearch @JPUHResearch
RT @LillyTrials: @smithhazelann Great idea! The Lilly Spanish affiliate has followed a similar model, inviting patient advocacy groups for…
@JPUHResearch @JPUHResearch
RT @rheumpatient: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sadly, I think it's quite common seeing as…
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe a clinical trials day open to PRA’s t…
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe a clinical trials day open to PRA’s t…
Lynn Laidlaw @lynn_laidlaw
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It shouldn’t be this hard for patients though. I put a large amount of effort into being “ involved “ , e mailing, looking for opportunities etc. If I find it hard how can people engage “ normal “ patients. #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
RT @DerekCStewart: @EmmaYhnell @CUmedicengage I also think we have to enter into the idea of engagement with some identifiable outcomes #Wh
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: Here we go with Q3. Is there a difference between public engagement and public involvement in research? #whywedoresearch ht…
UoSCancerResearch @uoscares
@EmmaYhnell A3 #WhyWeDoResearch Yup. Engagement 2 me is being aware & being able 2 make simple choices/decisions about research in general. Involvement is just that - being actively involved, as a participant (thank you 2 all of you that are) or in any other way - however tiny (in your eyes)
@JPUHResearch @JPUHResearch
RT @WendyPMitchell: Come to the party very late - I’m sure its been a brilliant week of #Whywedoresearch 😊 https://t.co/CRVUlCBieP
@JPUHResearch @JPUHResearch
RT @researchPhil: The actual technical process will always be a challenge. We must first of all accept that success is patient involvement…
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think for some the sheer words ‘grant app…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @ataxiaandme Communication between researchers and patients? #whywedoresearch
@JPUHResearch @JPUHResearch
RT @C3T_HLM: At https://t.co/wzb5s9wW3U we bring the best practices of #HealthLiteracy to #ClinicalTrials helping everyone better understan…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
It is very sad and incredibly frustrating to hear patient and public involvement being used as a box ticking exercise. How can we address this? #whywedoresearch https://t.co/V56dc232TV
Hazel A Smith (PhD) @smithhazelann
RT @LillyTrials: @smithhazelann Great idea! The Lilly Spanish affiliate has followed a similar model, inviting patient advocacy groups for…
UoSCancerResearch @uoscares
@hotmail_kay @smithhazelann @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 #WhyWeDoResearch What are PRAs please?
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It shouldn’t be this hard for patients though. I put…
Catina O'Leary @CatinaOLeary
RT @C3T_HLM: At https://t.co/wzb5s9wW3U we bring the best practices of #HealthLiteracy to #ClinicalTrials helping everyone better understan…
@JPUHResearch @JPUHResearch
RT @uoscares: @nicholaverstra1 @Stephaniecornt2 @BrarNavdeepk @LancsHospitals @RosemereCF Hey @nicholaverstra1 get involved now with the #W
Phillip Smith @researchPhil
Yes some will shy away - given that is a fact - how do we engage differently? @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/Un6l1NUlbj
Kay @hotmail_kay
@researchPhil @SupportiveOnc @NHSRDForum @CRIPACC1 Ahh ok I wasn’t aware of this.... I just have heard some patients feel this way #Whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: We can have patient involvement without asking them to fill in the forms #@ENHertResearch @SupportiveOnc @researchPhil @…
Derek Stewart @DerekCStewart
Hello @WendyPMitchell good to see you at #whywedoresearch
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @hotmail_kay @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I totally understand that the process can b…
@JPUHResearch @JPUHResearch
RT @ataxiaandme: @EmmaYhnell Communication is the word #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell @ClaireW_UK Yes I think living with conditions is much more than the condition itself that having someone to t…
@JPUHResearch @JPUHResearch
RT @rheumpatient: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Never mind being a co-applicant as long as…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @lynn_laidlaw @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It was after we asked :) but the fact we h…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
@EmmaYhnell true less complicated and less Jargon #Please #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @uoscares: @EmmaYhnell @lynn_laidlaw #WhyWeDoResearch No pun intended, but it is engaged individuals that get off their proverbials (lik…
@JPUHResearch @JPUHResearch
RT @nicholaverstra1: Really like your posters - everyone can see who is running each trial. Never fail to deliver on getting the message ou…
UoSCancerResearch @uoscares
RT @ClaireW_UK: @EmmaYhnell @hotmail_kay #WhyWeDoResearch Definitely. Here's ours https://t.co/mNT7tKeOvq #hEDS
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Training vital. #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @DerekCStewart @CUmedicengage Impactful and meaningful engagement #whywedoresearch
Rheumatoid Patient @rheumpatient
A3: I think that patient engagement is more about researchers holding events with patients/public to inform about their research or educate, involvement is when patients become more entrenched in the research process itself and can affect the outcome. #whywedoresearch
@JPUHResearch @JPUHResearch
RT @researchPhil: We feel that patients are fellow human beings and we are there to be part of their journey in life. Part of that may invo…
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Can’t the online submission systems be cha…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @ataxiaandme We are discussing engagement and involvement in research at the moment #whywedoresearch
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think it is a good thing for some patient…
@JPUHResearch @JPUHResearch
RT @WendyPMitchell: Public involvement should be a partnership - working together using each expertise #Whywedoresearch https://t.co/Ck0knS…
@JPUHResearch @JPUHResearch
RT @DerekCStewart: @EmmaYhnell @CUmedicengage It has to be more than counting the people we talk to. We need to capture the essence and cla…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @hotmail_kay @ClaireW_UK Certainly! So important real life and lived experience is vital for understanding the reality of l…
@JPUHResearch @JPUHResearch
RT @ataxiaandme: bit late for an important date on a #FridayFeeIing #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @ClaireW_UK: #whywedoresearch A1 & A2 The @OfficialNIHR have the amazing @NIHR_PRAI which is fantastic
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sounds great. How do patients feel about being co-applic…
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @EmmaYhnell @uoscares SHARE register in Scotland is a case in point, it appears to be all about signing patients up to re…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@DerekCStewart @CUmedicengage Identifiable outcomes for impact. Interestingly numbers are often used and quoted in relation to events and sometimes used to measure success. I'd argue quality over quantity #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
#WhyWeDoResearch https://t.co/2FX90DYacr
@JPUHResearch @JPUHResearch
RT @ClaireW_UK: @EmmaYhnell @hotmail_kay #WhyWeDoResearch Definitely. Here's ours https://t.co/mNT7tKeOvq #hEDS
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @rheumpatient: @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sadly, I think it's quite common seeing as…
Lisa Whittaker @LisaWhittaker02
RT @smithhazelann: 30mins to the last #WhyWeDoResearch chat for this year's tweetfest! @EmmaYhnell will be talking about 'Public Engagement…
Mary O'Sullivan @MaryOSu08962120
RT @stjamesdublin: We're celebrating #ClinicalTrialsDay Visit us in our concourse and celebrate the power of research! You'll also see post…
@JPUHResearch @JPUHResearch
RT @rheumpatient: A3: I think that patient engagement is more about researchers holding events with patients/public to inform about their r…
UoSCancerResearch @uoscares
RT @ataxiaandme: @EmmaYhnell Communication is the word #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @rheumpatient: A3: I think that patient engagement is more about researchers holding events with patients/public to inform about their r…
@JPUHResearch @JPUHResearch
RT @ataxiaandme: @EmmaYhnell true less complicated and less Jargon #Please #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ataxiaandme: @EmmaYhnell true less complicated and less Jargon #Please #WhyWeDoResearch
@JPUHResearch @JPUHResearch
RT @researchPhil: Yes some will shy away - given that is a fact - how do we engage differently? @ENHertResearch @SupportiveOnc @researchPh
Derek Stewart @DerekCStewart
@EmmaYhnell @smithhazelann Interesting article by Susanne Shultz defines PUBLIC as either General, Pure, Affected and Partisan https://t.co/J00WbbAXmq #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ataxiaandme I think we'd all appreciate this! #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Here we go with Q3. Is there a difference between public engagement and public involvement in research? #whywedoresearch ht…
Lynn Laidlaw @lynn_laidlaw
@rheumpatient @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes! The “ quality “ of the involvement activity can be poor as well, it’s very easy when lay reviewing to spot “ box ticking “ involvement! #WhyWeDoResearch
Sharon Kempson RN @sharon_kempson
RT @DerekCStewart: Hello @WendyPMitchell good to see you at #whywedoresearch
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @smithhazelann: 30mins to the last #WhyWeDoResearch chat for this year's tweetfest! @EmmaYhnell will be talking about 'Public Engagement…
UoSCancerResearch @uoscares
RT @rheumpatient: A3: I think that patient engagement is more about researchers holding events with patients/public to inform about their r…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @uoscares: @EmmaYhnell A3 #WhyWeDoResearch Yup. Engagement 2 me is being aware & being able 2 make simple choices/decisions about resear…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @rheumpatient @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes! The “ quality “ of the…
UoSCancerResearch @uoscares
@smithhazelann #WhyWeDoResearch Thank you (I know MY jargon well, but not everyone elses!!)
Kay @hotmail_kay
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe having training specifically for or include patient researchers on clinical trial days would be beneficial #whywedoresearch
Phillip Smith @researchPhil
I would like to that that patients are involved in research on many ways. There are practical problems but we must keep trying... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/A7bWyTkKBI
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @lynn_laidlaw: @rheumpatient @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes! The “ quality “ of the…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @uoscares: @smithhazelann #WhyWeDoResearch Thank you (I know MY jargon well, but not everyone elses!!)
Rheumatoid Patient @rheumpatient
@EmmaYhnell Patient research partners at Arthritis Research UK are pretty good at spotting when PPI is on grant app to get funding but has not been thought through. We are also working with the charity to change the application forms to get more info on planned involvement. #whywedoresearch
Phillip Smith @researchPhil
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe having training specifically for or include patie…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a responsibility to ask and review involvement activities so that there are implications for those who use this as a box ticking exercise. It is not acceptable #whywedoresearch
@JPUHResearch @JPUHResearch
RT @researchPhil: I would like to that that patients are involved in research on many ways. There are practical problems but we must keep…
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe having training specifically for or include patie…
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @rheumpatient @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes! The “ quality “ of the…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @ataxiaandme I think we'd all appreciate this! #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @DerekCStewart: @EmmaYhnell @smithhazelann Interesting article by Susanne Shultz defines PUBLIC as either General, Pure, Affected and Pa…
@JPUHResearch @JPUHResearch
RT @DerekCStewart: @EmmaYhnell @smithhazelann Interesting article by Susanne Shultz defines PUBLIC as either General, Pure, Affected and Pa…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a respo…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @DerekCStewart @CUmedicengage Identifiable outcomes for impact. Interestingly numbers are often used and quoted in relation…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a respo…
@JPUHResearch @JPUHResearch
RT @rheumpatient: @EmmaYhnell Patient research partners at Arthritis Research UK are pretty good at spotting when PPI is on grant app to ge…
@JPUHResearch @JPUHResearch
RT @sharon_kempson: Especially On clinical trials day:) #whywedoresearch https://t.co/WT58t6XBvQ
@JPUHResearch @JPUHResearch
RT @smithhazelann: @JPUHResearch I have never, in Ireland, seen a research stand in any shopping center. Do you have to pay the shopping ce…
Kay @hotmail_kay
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a respo…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @rheumpatient: @EmmaYhnell Patient research partners at Arthritis Research UK are pretty good at spotting when PPI is on grant app to ge…
Phillip Smith @researchPhil
Yes or we could sit with patients and listen to their experiences... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/165q5fWAr8
UoSCancerResearch @uoscares
RT @rheumpatient: @EmmaYhnell Patient research partners at Arthritis Research UK are pretty good at spotting when PPI is on grant app to ge…
Phillip Smith @researchPhil
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a respo…
UoSCancerResearch @uoscares
RT @EmmaYhnell: @ataxiaandme I think we'd all appreciate this! #whywedoresearch
@JPUHResearch @JPUHResearch
@smithhazelann We've not had to pay - We've told them what we're doing & they've allowed us space which is very kind #WhyWeDoResearch
Kay @hotmail_kay
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes I think that I would encourage more people to take on the role #Whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Q4 Is public involvement important in all types and stages of research? #whywedoresearch https://t.co/Jx2KOuqv9B
@JPUHResearch @JPUHResearch
RT @researchPhil: Yes or we could sit with patients and listen to their experiences... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDF
Phillip Smith @researchPhil
And we have a moral responsibility too I would suggest... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/7ArrdoAiDI
Derek Stewart @DerekCStewart
@EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusion Measures illustrating the changes; a photo of meeting; a smartphone video clip capturing people’s opinions #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: And we have a moral responsibility too I would suggest... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywe
Kate Cheshire @Dottymom
RT @sharon_kempson: A1: lots of examples. CRN WM have great research ambassadors, PPIE groups and @YPSGWMids #WhyWeDoResearch https://t.co/…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes I think that I would encourage more people to take…
Lydia L. Seiders @lseiders3
RT @lynn_laidlaw: @rheumpatient @EmmaYhnell @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes! The “ quality “ of the…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @JPUHResearch: @smithhazelann We've not had to pay - We've told them what we're doing & they've allowed us space which is very kind #Why
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Until all funders mandate proper patient Involvement/ Insight in ALL grant applications then I don’t think anything will change unfortunately. There is lots of good practice out there but it’s patchy. #WhyWeDoResearch
Hazel A Smith (PhD) @smithhazelann
@hotmail_kay I did it when I was co-hosting my first #WhyWeDoResearch tweetchat with @ClaireW_UK 😁
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @DerekCStewart: @EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusio…
UoSCancerResearch @uoscares
RT @DerekCStewart: @EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusio…
Hazel A Smith (PhD) @smithhazelann
RT @DerekCStewart: @EmmaYhnell @smithhazelann Interesting article by Susanne Shultz defines PUBLIC as either General, Pure, Affected and Pa…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Can’t keep up like I used to but so good to watch #whywedoresearch is still one of my favourite hashtags - well done all⭐️
Kay @hotmail_kay
@EmmaYhnell Yes and I also think PPI is important in all STAGES of research too to make sure the project is designed and executed to answer the questions the patients want answered #Whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @DerekCStewart: @EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusio…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @hotmail_kay: @EmmaYhnell Yes and I also think PPI is important in all STAGES of research too to make sure the project is designed and e…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It needs to be required and well evaluated across the board #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Q4 Is public involvement important in all types and stages of research? #whywedoresearch https://t.co/Jx2KOuqv9B
UoSCancerResearch @uoscares
@DerekCStewart @EmmaYhnell @CUmedicengage #WhyWeDoResearch I'm sure we spoke about smartphone videos 'in the moment' & then 'after a bit of reflection' on here a few weeks ago. Strong real messages can be simply articulated :)
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: Can’t keep up like I used to but so good to watch #whywedoresearch is still one of my favourite hashtags - well done a…
Hazel A Smith (PhD) @smithhazelann
RT @WendyPMitchell: Can’t keep up like I used to but so good to watch #whywedoresearch is still one of my favourite hashtags - well done a…
Derek Stewart @DerekCStewart
Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brought to absolute clarity
Phillip Smith @researchPhil
Let’s celebrate the good practice and promote it as normal, expected and the right thing to do. This would be one approach of many to make this work. @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/BnSxf0ulnZ
Derek Stewart @DerekCStewart
RT @uoscares: @DerekCStewart @EmmaYhnell @CUmedicengage #WhyWeDoResearch I'm sure we spoke about smartphone videos 'in the moment' & then '…
Hazel A Smith (PhD) @smithhazelann
@WendyPMitchell Thank you Wendy delighted to are here tonight #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
How about involvement in pre-clinical / lab based research? #whywedoresearch https://t.co/6ZoQv1yOFC
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: Let’s celebrate the good practice and promote it as normal, expected and the right thing to do. This would be one approac…
UoSCancerResearch @uoscares
RT @EmmaYhnell: How about involvement in pre-clinical / lab based research? #whywedoresearch https://t.co/6ZoQv1yOFC
Hazel A Smith (PhD) @smithhazelann
'Nothing about me, without me' #whywedoresearch https://t.co/ZbED9ud4wa
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the way with the standards etc. I wouldn’t be so passionate about it if I didn’t feel that patients have so much to offer. This is crucial to improving research for the benefit of all. #WhyWeDoResearch
Rheumatoid Patient @rheumpatient
A4: In an ideal world patients/public should be involved from the beginning with setting the research question/research priorities. Often when asked for input the grant has already been approved (maybe even ethics too) so too late to influence study design #whywedoresearch
UoSCancerResearch @uoscares
@EmmaYhnell #WhyWeDoResearch Good point well made! @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK
Phillip Smith @researchPhil
RT @smithhazelann: 'Nothing about me, without me' #whywedoresearch https://t.co/ZbED9ud4wa
UoSCancerResearch @uoscares
RT @smithhazelann: 'Nothing about me, without me' #whywedoresearch https://t.co/ZbED9ud4wa
Kay @hotmail_kay
@EmmaYhnell Yes I feel the general public should be involved from the very beginning to gain data from earlier but also to make sure the conditions are being addressed and patients questions answered #whywedoresearch
Rheumatoid Patient @rheumpatient
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Until all funders mandate pr…
Croí Buckley @CroiBuckley
Met some lovely patients & staff @stjamesdublin while promoting research in the hospital and @TCDTMI today 🔬#Whywedoresearch #cancerresearch https://t.co/dRAgfbLzfi
Kay @hotmail_kay
RT @rheumpatient: A4: In an ideal world patients/public should be involved from the beginning with setting the research question/research p…
Kay @hotmail_kay
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the…
Rheumatoid Patient @rheumpatient
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the…
Lynn Laidlaw @lynn_laidlaw
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 There is a lot to celebrate, we have come a long way but still much to be done! #WhyWeDoResearch
Kay @hotmail_kay
RT @researchPhil: Let’s celebrate the good practice and promote it as normal, expected and the right thing to do. This would be one approac…
DrDr (😊)Wendy Mitchell @WendyPMitchell
RT @DerekCStewart: Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brou…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
@smithhazelann @EmmaYhnell @DerekCStewart #whywedoresearch https://t.co/L69ubJC5dq
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR and @NCCPE are doing great things to ensure high quality and meaningful engagement and involvement in research #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
Let the public and patients decide. Get them included and if they don't want to advise or support than they make that decision instead of us deciding for them #WhyWeDoResearch https://t.co/pgXp2n0AwH
Phillip Smith @researchPhil
So we need to think about public and patient involvement and how this relates to all types of research- especially involving people! @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/c0JoB6YXTh
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: @EmmaYhnell Yes I feel the general public should be involved from the very beginning to gain data from earlier but also t…
Hazel A Smith (PhD) @smithhazelann
RT @ataxiaandme: @smithhazelann @EmmaYhnell @DerekCStewart #whywedoresearch https://t.co/L69ubJC5dq
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @researchPhil: So we need to think about public and patient involvement and how this relates to all types of research- especially involv…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR a…
Michael keeling @keeling_michael
RT @ataxiaandme: @smithhazelann @EmmaYhnell @DerekCStewart #whywedoresearch https://t.co/L69ubJC5dq
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 There is a lot to celebrate, we have come a long way b…
@JPUHResearch @JPUHResearch
RT @CroiBuckley: Met some lovely patients & staff @stjamesdublin while promoting research in the hospital and @TCDTMI today 🔬#Whywedoresear
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell Yes I feel the general public should be involved from the very beginning to gain data from earlier but also t…
@JPUHResearch @JPUHResearch
RT @uoscares: @EmmaYhnell #WhyWeDoResearch Good point well made! @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK What do you think about involvement in lab based research? #whywedoresearch
@JPUHResearch @JPUHResearch
RT @rheumpatient: A4: In an ideal world patients/public should be involved from the beginning with setting the research question/research p…
Kay @hotmail_kay
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR a…
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: How about involvement in pre-clinical / lab based research? #whywedoresearch https://t.co/6ZoQv1yOFC
Michael keeling @keeling_michael
RT @researchPhil: We’ve got patients to be applicants for research grants in supportive oncology @ENHertResearch @SupportiveOnc @researchPh
@JPUHResearch @JPUHResearch
RT @researchPhil: Let’s celebrate the good practice and promote it as normal, expected and the right thing to do. This would be one approac…
@JPUHResearch @JPUHResearch
RT @DerekCStewart: Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brou…
Victoria Shepherd @VickyLShepherd
RT @smithhazelann: Please let me, @ClaireW_UK or @keeling_michael know if any #WhyWeDoResearch tweetchats that you would like to see held d…
@JPUHResearch @JPUHResearch
RT @uoscares: @DerekCStewart @EmmaYhnell @CUmedicengage #WhyWeDoResearch I'm sure we spoke about smartphone videos 'in the moment' & then '…
Michael keeling @keeling_michael
RT @EmmaYhnell: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Sounds great. How do patients feel about being co-applic…
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It needs to be required and…
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @EmmaYhnell Yes and I also think PPI is important in all STAGES of research too to make sure the project is designed and e…
@JPUHResearch @JPUHResearch
RT @WendyPMitchell: Can’t keep up like I used to but so good to watch #whywedoresearch is still one of my favourite hashtags - well done a…
@JPUHResearch @JPUHResearch
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Until all funders mandate pr…
@JPUHResearch @JPUHResearch
RT @DerekCStewart: @EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusio…
@JPUHResearch @JPUHResearch
RT @researchPhil: And we have a moral responsibility too I would suggest... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywe
@JPUHResearch @JPUHResearch
RT @EmmaYhnell: Q4 Is public involvement important in all types and stages of research? #whywedoresearch https://t.co/Jx2KOuqv9B
@JPUHResearch @JPUHResearch
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes I think that I would encourage more people to take…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the end when results are known and everything inbetween #Whywedoresearch https://t.co/puvR6Zal1X
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK What do you think about involvement in lab based…
Hazel A Smith (PhD) @smithhazelann
RT @uoscares: @EmmaYhnell #WhyWeDoResearch Good point well made! @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @smithhazelann: @hotmail_kay I did it when I was co-hosting my first #WhyWeDoResearch tweetchat with @ClaireW_UK 😁
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: How about involvement in pre-clinical / lab based research? #whywedoresearch https://t.co/6ZoQv1yOFC
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @EmmaYhnell: @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK What do you think about involvement in lab based…
hamada @hamadahamada133
RT @lynn_laidlaw: @EmmaYhnell I like to think it’s more than participation or hearing about research. It’s active involvement in setting re…
Michael keeling @keeling_michael
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Until all funders mandate pr…
Hazel A Smith (PhD) @smithhazelann
RT @researchPhil: So we need to think about public and patient involvement and how this relates to all types of research- especially involv…
Michael keeling @keeling_michael
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It needs to be required and…
Michael keeling @keeling_michael
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the…
Michael keeling @keeling_michael
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR a…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
Phillip Smith @researchPhil
Well said kay@hotmail_kay @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/IlS3rNkLJQ
Hazel A Smith (PhD) @smithhazelann
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
Kay @hotmail_kay
@WendyPMitchell Completely agree. The patients are as much or the team as everyone else and should be treated as such #Whywedoresearch
Rheumatoid Patient @rheumpatient
RT @hotmail_kay: @EmmaYhnell Yes and I also think PPI is important in all STAGES of research too to make sure the project is designed and e…
Lilly Trials @LillyTrials
@hotmail_kay Agree, but sometimes we find it difficult to frame early research questions in a way that's not overly scientific or clinical. Any tips there? #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the results #whywedoresearch
UoSCancerResearch @uoscares
@EmmaYhnell @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK If it doesn't currently happen, then it should!! Come on @planetscharity what are your thoughts #whywedoresearch I know for the TargetNET study some people were very involved in helping it get off the ground @UHSFT @cave_judith
nobism @nobismhealth
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
nobism @nobismhealth
RT @researchPhil: Well said kay@hotmail_kay @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.…
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @WendyPMitchell Completely agree. The patients are as much or the team as everyone else and should be treated as such #Wh
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @LillyTrials: @hotmail_kay Agree, but sometimes we find it difficult to frame early research questions in a way that's not overly scient…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @WendyPMitchell Completely agree. The patients are as much or the team as everyone else and should be treated as such #Wh
Claudia Morán del Pozo @ClaudiaMoranDel
RT @SantiagoPG_12: #WhyWedoResearch Q1 Mi experiencia me permite asegurar que las unidades de investigación son necesarias. En el Hosp 12 d…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
Sharon Kempson RN @sharon_kempson
RT @EmmaYhnell: @WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the resu…
UoSCancerResearch @uoscares
RT @smithhazelann: Let the public and patients decide. Get them included and if they don't want to advise or support than they make that de…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK What do you think about involvement in lab based…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR a…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 There is a lot to celebrate, we have come a long way b…
julia simister @JuliaSimister
RT @FHFT_Research: 7 compelling reasons for health professionals, patients and the public to get involved in clinical research! @FrimleyHea
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @CroiBuckley: Met some lovely patients & staff @stjamesdublin while promoting research in the hospital and @TCDTMI today 🔬#Whywedoresear
Ataxia and Me CIO 1184030 @Ataxia_and_Me
@EmmaYhnell @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK this would be good but adjustment must be made for #patients to be involved #Times of sessions #travel and other out of pocket expenses need to be added within any funding by #Reseacher / Lab #whywedoresearch
UoSCancerResearch @uoscares
RT @LillyTrials: @hotmail_kay Agree, but sometimes we find it difficult to frame early research questions in a way that's not overly scient…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @EmmaYhnell Yes I feel the general public should be involved from the very beginning to gain data from earlier but also t…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @EmmaYhnell #WhyWeDoResearch Good point well made! @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: A4: In an ideal world patients/public should be involved from the beginning with setting the research question/research p…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE are leading the…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: Let’s celebrate the good practice and promote it as normal, expected and the right thing to do. This would be one approac…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @DerekCStewart: Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brou…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @DerekCStewart @EmmaYhnell @CUmedicengage #WhyWeDoResearch I'm sure we spoke about smartphone videos 'in the moment' & then '…
Hazel A Smith (PhD) @smithhazelann
#whywedoresearch https://t.co/xSchHfWz45
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @LillyTrials: @hotmail_kay Agree, but sometimes we find it difficult to frame early research questions in a way that's not overly scient…
UoSCancerResearch @uoscares
RT @EmmaYhnell: Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is very powerful, is there any point in research if it’s an academic exercise the outcome of which isn’t important to patients? #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 It needs to be required and…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @EmmaYhnell Yes and I also think PPI is important in all STAGES of research too to make sure the project is designed and e…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Can’t keep up like I used to but so good to watch #whywedoresearch is still one of my favourite hashtags - well done a…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Sadly not everyone feels the same - should be just part of the norm #Whywedoresearch https://t.co/ou2YW3LoZW
Kay @hotmail_kay
@LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the patients earlier? #Whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @LillyTrials: @hotmail_kay Agree, but sometimes we find it difficult to frame early research questions in a way that's not overly scient…
UoSCancerResearch @uoscares
RT @EmmaYhnell: @WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the resu…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
Rheumatoid Patient @rheumpatient
@EmmaYhnell I think this is a difficult one. I'm involved in one such project now and even with a biochemistry degree I'm struggling! #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @ataxiaandme: @EmmaYhnell @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK this would be good but adjustment mu…
Michael keeling @keeling_michael
@EmmaYhnell @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE Sorry to hear about this experiences.. Do the @NIHRINVOLVE @OfficialNIHR audit the quality of PPI and ensuring meaningful engagement? #WhyWeDoResearch
Alkida_Bucaj @b_alkida
RT @emmaukresearch: So proud to work with such an incredible team of people who work so hard to improve treatment and care for our cardiac…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @EmmaYhnell @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK If it doesn't currently happen, then it should!!…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the resu…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@LillyTrials @hotmail_kay Research questions around mechanism are particularly difficult to phrase in lay language - any tips from #whywedoresearch?
UoSCancerResearch @uoscares
RT @lynn_laidlaw: @EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @smithhazelann: @WendyPMitchell Thank you Wendy delighted to are here tonight #WhyWeDoResearch
Michael keeling @keeling_michael
RT @EmmaYhnell: How about involvement in pre-clinical / lab based research? #whywedoresearch https://t.co/6ZoQv1yOFC
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: Sadly not everyone feels the same - should be just part of the norm #Whywedoresearch https://t.co/ou2YW3LoZW
Michael keeling @keeling_michael
RT @EmmaYhnell: @uoscares @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK What do you think about involvement in lab based…
Michael keeling @keeling_michael
RT @uoscares: @EmmaYhnell @UoS_WISHlab @CCI_UoS @SouthamptonCTU @CRUKSouthampton @ECMC_UK If it doesn't currently happen, then it should!!…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
@WendyPMitchell It's wonderful to see you here #WeLoveWendy #WhyWeDoResearch #inspiration
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is…
Hazel A Smith (PhD) @smithhazelann
#whywedoresearch https://t.co/SDOpJ9g9t2
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Until all funders mandate pr…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @DerekCStewart: @EmmaYhnell @CUmedicengage Better to have a ‘before’ and ‘after’ version of a Patient Info Leaflet; a list of 3 Inclusio…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: And we have a moral responsibility too I would suggest... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywe
Michael keeling @keeling_michael
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: Q4 Is public involvement important in all types and stages of research? #whywedoresearch https://t.co/Jx2KOuqv9B
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Yes I think that I would encourage more people to take…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @keeling_michael: @EmmaYhnell @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Morad Faoury @MoradFaoury
RT @RDsouthampton: My day could be sitting at a computer writing things or running around like a headless chicken. I love doing fun engagem…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 I think funders have a respo…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: @EmmaYhnell Patient research partners at Arthritis Research UK are pretty good at spotting when PPI is on grant app to ge…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 Maybe having training specifically for or include patie…
Sharon Kempson RN @sharon_kempson
RT @EmmaYhnell: Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: I would like to that that patients are involved in research on many ways. There are practical problems but we must keep…
Rheumatoid Patient @rheumpatient
@keeling_michael @EmmaYhnell @lynn_laidlaw @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE Good question. Anyone know? #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@keeling_michael @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE A fab question. I'd love to know the answer @OfficialNIHR #whywedoresearch
Kay @hotmail_kay
@EmmaYhnell @LillyTrials Maybe a specific PPI Officer can explain to the patients what they are expected to do?#Whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @LillyTrials @hotmail_kay Research questions around mechanism are particularly difficult to phrase in lay language - any ti…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Fear of being used by the public as many don’t understand ‘research’ - important to have a patient champion singing the praises of #Whywedoresearch https://t.co/3oKMxpiFsb
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @LillyTrials @hotmail_kay Research questions around mechanism are particularly difficult to phrase in lay language - any ti…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @keeling_michael: @EmmaYhnell @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @rheumpatient: @EmmaYhnell I think this is a difficult one. I'm involved in one such project now and even with a biochemistry degree I'm…
UoSCancerResearch @uoscares
@lynn_laidlaw @ClaireW_UK @EmmaYhnell #WhyWeDoResearch We are involved in a lot of academic research - but through this there are 14 patients that have had direct help (treatment) that would not have been available without our studies @UoS_WISHlab @RDsouthampton @UHSRDDirector - We do our research for people...
Hazel A Smith (PhD) @smithhazelann
RT @lynn_laidlaw: @EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is…
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
UoSCancerResearch @uoscares
RT @hotmail_kay: @LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @hotmail_kay: @LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: @EmmaYhnell I think this is a difficult one. I'm involved in one such project now and even with a biochemistry degree I'm…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Sadly not everyone feels the same - should be just part of the norm #Whywedoresearch https://t.co/ou2YW3LoZW
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@hotmail_kay @LillyTrials I've not really heard of PPI officers, what is their role? #whywedoresearch
UoSCancerResearch @uoscares
RT @EmmaYhnell: @LillyTrials @hotmail_kay Research questions around mechanism are particularly difficult to phrase in lay language - any ti…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @WendyPMitchell: Fear of being used by the public as many don’t understand ‘research’ - important to have a patient champion singing th…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @lynn_laidlaw @ClaireW_UK @EmmaYhnell #WhyWeDoResearch We are involved in a lot of academic research - but through this there…
Rheumatoid Patient @rheumpatient
RT @WendyPMitchell: Yes from the beginning to see the patients point of view in all matters but also important to inform patients at the en…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @ataxiaandme: A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Lynn Laidlaw @lynn_laidlaw
@keeling_michael @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE I don’t know actually. Recently did some lay review for NIHR and would love some feedback as was pretty scathing about the quality of PPI in the application! #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Fear of being used by the public as many don’t understand ‘research’ - important to have a patient champion singing th…
Rheumatoid Patient @rheumpatient
RT @hotmail_kay: @WendyPMitchell Completely agree. The patients are as much or the team as everyone else and should be treated as such #Wh
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @EmmaYhnell @LillyTrials Maybe a specific PPI Officer can explain to the patients what they are expected to do?#Whywedores
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: Fear of being used by the public as many don’t understand ‘research’ - important to have a patient champion singing th…
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: @hotmail_kay @LillyTrials I've not really heard of PPI officers, what is their role? #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ataxiaandme: A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @keeling_michael @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
David Montgomery @dmonty007
@EmmaYhnell @LillyTrials @hotmail_kay Ask patients and public - get their input. What works well (and why) plus what doesn't. The odd infographic helps - less is more! #whywedoresearch
Rheumatoid Patient @rheumpatient
RT @EmmaYhnell: @WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the resu…
Hazel A Smith (PhD) @smithhazelann
RT @hotmail_kay: @EmmaYhnell @LillyTrials Maybe a specific PPI Officer can explain to the patients what they are expected to do?#Whywedores
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @keeling_michael @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Phillip Smith @researchPhil
@EmmaYhnell I think the main barrier is that there is a tension between doing great research to advance knowledge and going great research to enhance patient care - we have 2 different subcultures... & whole systems to support each subculture. It is a challenge 2 join them. #whywedoresearch
Derek Stewart @DerekCStewart
RT @EmmaYhnell: @WendyPMitchell People are good enough to volunteer their time to take part. The least we can do is inform them of the resu…
IST3 stroke trial @IST_3
RT @keeling_michael: #WhyWeDoResearch #ESOC2018 #stroke #StrokeMonth valuable message from @AvrilDrummond1 @ESOstroke that science moves on…
Kay @hotmail_kay
@EmmaYhnell @LillyTrials They have a knowledge of clinical trials,programme grants etc but their main role is working with patients and service users so maybe they could help the patient get involved earlier? #Whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@ataxiaandme The involving people network @ResearchWales is a great network to join if you are looking for opportunities in Wales #whywedoresearch
Kay @hotmail_kay
RT @dmonty007: @EmmaYhnell @LillyTrials @hotmail_kay Ask patients and public - get their input. What works well (and why) plus what doesn'…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @uoscares: @lynn_laidlaw @ClaireW_UK @EmmaYhnell #WhyWeDoResearch We are involved in a lot of academic research - but through this there…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #Whywedoresearch https://t.co/1o5wM6W8Tk
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @EmmaYhnell: @ataxiaandme The involving people network @ResearchWales is a great network to join if you are looking for opportunities in…
Hazel A Smith (PhD) @smithhazelann
Seen a few #whywedoresearch tweets that are missing the 'h' from 'why'! Think this is one of the those autocorrect moments!
Michael keeling @keeling_michael
@WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this should be written into protocols the process as to how this will happen at the end of the study... As important as all other parts of the trial process #WhyWeDoResearch
Hightower Clinical @HightowerClTrl
@EmmaYhnell A5: Awareness. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @keeling_michael @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Lilly Trials @LillyTrials
@hotmail_kay We don't have that role in the US. Can you tell us more about a PPI Officer? #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @dmonty007: @EmmaYhnell @LillyTrials @hotmail_kay Ask patients and public - get their input. What works well (and why) plus what doesn'…
Sharon Kempson RN @sharon_kempson
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
Michael keeling @keeling_michael
RT @EmmaYhnell: Q5: What do you are the main barriers to engagement/involvement in research? #whywedoresearch https://t.co/S2YCwZkVBw
UoSCancerResearch @uoscares
RT @hotmail_kay: @EmmaYhnell @LillyTrials They have a knowledge of clinical trials,programme grants etc but their main role is working with…
DrDr (😊)Wendy Mitchell @WendyPMitchell
Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
David Montgomery @dmonty007
@EmmaYhnell Yes though PPI like research is not one size fits all so recipes need to be adapted. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: @EmmaYhnell I think the main barrier is that there is a tension between doing great research to advance knowledge and goi…
Michael keeling @keeling_michael
RT @researchPhil: @EmmaYhnell I think the main barrier is that there is a tension between doing great research to advance knowledge and goi…
Hazel A Smith (PhD) @smithhazelann
RT @LillyTrials: @hotmail_kay We don't have that role in the US. Can you tell us more about a PPI Officer? #whywedoresearch
Rheumatoid Patient @rheumpatient
@EmmaYhnell @WendyPMitchell I remember a study I took part in and ticked the box to say I want to be informed of the results. Never was. I saw the results on a conference poster 2 years later - brought it up with the supervisor presenting who said he'd send them to me. 3 years on - nothing. #whywedoresearch
steve ffoulkes @steveffoulkes
RT @ataxiaandme: A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Michael keeling @keeling_michael
RT @HightowerClTrl: @EmmaYhnell A5: Awareness. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
UoSCancerResearch @uoscares
RT @ataxiaandme: A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Lilly Trials @LillyTrials
We saw that the NIHR released new standards for public involvement in research, "designed to encourage self-reflection and learning." What are your thoughts on these standards? https://t.co/xMP6dDZGou #whywedoresearch
Michael keeling @keeling_michael
@HightowerClTrl @EmmaYhnell Yes #WhyWeDoResearch
Derek Stewart @DerekCStewart
RT @EmmaYhnell: @ataxiaandme The involving people network @ResearchWales is a great network to join if you are looking for opportunities in…
UoSCancerResearch @uoscares
RT @HightowerClTrl: @EmmaYhnell A5: Awareness. #whywedoresearch
Derek Stewart @DerekCStewart
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
DrDr (😊)Wendy Mitchell @WendyPMitchell
RT @keeling_michael: @WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this shoul…
Michael keeling @keeling_michael
RT @lynn_laidlaw: @EmmaYhnell Yes, that as well. I think the patients lived experience can only enhance lab activity. Patient narrative is…
Derek Stewart @DerekCStewart
RT @rheumpatient: @EmmaYhnell @WendyPMitchell I remember a study I took part in and ticked the box to say I want to be informed of the resu…
Michael keeling @keeling_michael
RT @WendyPMitchell: Sadly not everyone feels the same - should be just part of the norm #Whywedoresearch https://t.co/ou2YW3LoZW
Ataxia and Me CIO 1184030 @Ataxia_and_Me
@EmmaYhnell @ResearchWales yes, a good weekly bulletin. but many people are not aware of somewhere to look #whywedoresearch
Kay @hotmail_kay
@LillyTrials They facilitate patient research groups but are involved in clinical trials and the like so have an understanding of clinical and research terms but also are familiar with working with the general public #Whywedoresearch
Michael keeling @keeling_michael
RT @hotmail_kay: @LillyTrials Maybe working with PPI officers to simplify or explain the terms may be beneficial to gain insight from the…
Michael keeling @keeling_michael
RT @EmmaYhnell: @keeling_michael @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: @LillyTrials They facilitate patient research groups but are involved in clinical trials and the like so have an understan…
Kay @hotmail_kay
RT @ataxiaandme: @EmmaYhnell @ResearchWales yes, a good weekly bulletin. but many people are not aware of somewhere to look #whywedoresea
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @ataxiaandme: @EmmaYhnell @ResearchWales yes, a good weekly bulletin. but many people are not aware of somewhere to look #whywedoresea
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @LillyTrials: We saw that the NIHR released new standards for public involvement in research, "designed to encourage self-reflection and…
Kay @hotmail_kay
RT @LillyTrials: We saw that the NIHR released new standards for public involvement in research, "designed to encourage self-reflection and…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: @EmmaYhnell @WendyPMitchell I remember a study I took part in and ticked the box to say I want to be informed of the resu…
UoSCancerResearch @uoscares
@rheumpatient @DerekCStewart @EmmaYhnell @WendyPMitchell #WhyWeDoResearch Poor - am saying sorry to you on their lacklustre support for you - such a basic requisite :(
Kay @hotmail_kay
RT @ataxiaandme: @smithhazelann @EmmaYhnell @DerekCStewart #whywedoresearch https://t.co/L69ubJC5dq
Phillip Smith @researchPhil
@WendyPMitchell @sharon_kempson Well said @WendyPMitchell - you are a superstar #whywedoresearch @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Q6: My final question and the last question of #whywedoresearch! What are your main motivations for engagement and involvement in research? #whywedoresearch https://t.co/vP59XDFbLE
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @dmonty007: @EmmaYhnell Yes though PPI like research is not one size fits all so recipes need to be adapted. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ataxiaandme: @EmmaYhnell @ResearchWales yes, a good weekly bulletin. but many people are not aware of somewhere to look #whywedoresea
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @LillyTrials: @hotmail_kay We don't have that role in the US. Can you tell us more about a PPI Officer? #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @keeling_michael: @WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this shoul…
DrDr (😊)Wendy Mitchell @WendyPMitchell
We don’t know what we don’t know so we mustn’t be expected to find you, you need to find us #Whywedoresearch https://t.co/sIgxatWhum
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @ataxiaandme The involving people network @ResearchWales is a great network to join if you are looking for opportunities in…
UoSCancerResearch @uoscares
RT @keeling_michael: @WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this shoul…
Rheumatoid Patient @rheumpatient
A5: Lack of payment for time, sometimes not even out-of-pocket expenses! Meetings held in the daytime so only retired/unemployed can attend. #whywedoresearch
Phillip Smith @researchPhil
RT @WendyPMitchell: Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
Lynn Laidlaw @lynn_laidlaw
@researchPhil @EmmaYhnell I don’t see them as mutually exclusive though. Patients are mainly concerned with what improves their lives on a day to day basis but I think we appreciate the need to advance knowledge too. It should all come back to patient benefit. #WhyWeDoResearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: @EmmaYhnell I think the main barrier is that there is a tension between doing great research to advance knowledge and goi…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @dmonty007: @EmmaYhnell @LillyTrials @hotmail_kay Ask patients and public - get their input. What works well (and why) plus what doesn'…
UoSCancerResearch @uoscares
RT @WendyPMitchell: Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
Kay @hotmail_kay
RT @keeling_michael: @WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this shoul…
Kay @hotmail_kay
RT @WendyPMitchell: Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
Michael keeling @keeling_michael
@EmmaYhnell @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE Judging by comments you would not be alone.. #WhyWeDoResearch an important question @OfficialNIHR
Kay @hotmail_kay
RT @dmonty007: @EmmaYhnell Yes though PPI like research is not one size fits all so recipes need to be adapted. #whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: @LillyTrials They facilitate patient research groups but are involved in clinical trials and the like so have an understan…
Michael keeling @keeling_michael
RT @EmmaYhnell: Q4 Is public involvement important in all types and stages of research? #whywedoresearch https://t.co/Jx2KOuqv9B
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @rheumpatient: A5: Lack of payment for time, sometimes not even out-of-pocket expenses! Meetings held in the daytime so only retired/une…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: We don’t know what we don’t know so we mustn’t be expected to find you, you need to find us #Whywedoresearch https://t.…
Michael keeling @keeling_michael
RT @hotmail_kay: @EmmaYhnell @LillyTrials Maybe a specific PPI Officer can explain to the patients what they are expected to do?#Whywedores
Hazel A Smith (PhD) @smithhazelann
@HRB is the biggest healthcare funding body in Ireland. They have 'Public and patient involvement in research' to review grant applications https://t.co/MovCSazCxf #WhyWeDoResearch
Kay @hotmail_kay
RT @lynn_laidlaw: @researchPhil @EmmaYhnell I don’t see them as mutually exclusive though. Patients are mainly concerned with what improve…
Agnes Houston MBE @agnes_houston
RT @keeling_michael: @WendyPMitchell Hi @WendyPMitchell :-) completely agree..From conception to dissemination of results. Think this shoul…
Michael keeling @keeling_michael
RT @hotmail_kay: @LillyTrials They facilitate patient research groups but are involved in clinical trials and the like so have an understan…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @keeling_michael: @EmmaYhnell @lynn_laidlaw @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Michael keeling @keeling_michael
RT @WendyPMitchell: Fear of being used by the public as many don’t understand ‘research’ - important to have a patient champion singing th…
Jan Payne 🎼⛪♿ @elymusic1
RT @DerekCStewart: Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brou…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @researchPhil @EmmaYhnell I don’t see them as mutually exclusive though. Patients are mainly concerned with what improve…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: A5: Lack of payment for time, sometimes not even out-of-pocket expenses! Meetings held in the daytime so only retired/une…
Agnes Houston MBE @agnes_houston
RT @WendyPMitchell: Research often fills a gap for me where services are lacking #Whywedoresearch https://t.co/HJ7SiQI2bY
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @WendyPMitchell: We don’t know what we don’t know so we mustn’t be expected to find you, you need to find us #Whywedoresearch https://t.…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Important barriers to recognise as it may skew your PPI input #whywedoresearch https://t.co/4kGuCfxxf8
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: Q6: My final question and the last question of #whywedoresearch! What are your main motivations for engagement and involve…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: @WendyPMitchell @sharon_kempson Well said @WendyPMitchell - you are a superstar #whywedoresearch @ENHertResearch @Suppor
Heidi Gardner @heidirgardner
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
UoSCancerResearch @uoscares
@EmmaYhnell Q6 #WhyWeDoResearch 'If no one said yes I wouldn't be alive now' is a common phrase I hear from patients. 'If it will help someone else then it's a yes from me' is the other altruistic view BIG thanks to all who say YES to #WhyWeDoResearch 👍👏👏
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @rheumpatient: A5: Lack of payment for time, sometimes not even out-of-pocket expenses! Meetings held in the daytime so only retired/une…
Phillip Smith @researchPhil
Yes these are hurdles that we need to address @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/wZ21pHXWYR
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @uoscares: @EmmaYhnell Q6 #WhyWeDoResearch 'If no one said yes I wouldn't be alive now' is a common phrase I hear from patients. 'If it…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: Important barriers to recognise as it may skew your PPI input #whywedoresearch https://t.co/4kGuCfxxf8
Michael keeling @keeling_michael
@WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so it's seen as the norm... #WhyWeDoResearch
UoSCancerResearch @uoscares
RT @EmmaYhnell: Important barriers to recognise as it may skew your PPI input #whywedoresearch https://t.co/4kGuCfxxf8
Ataxia and Me CIO 1184030 @Ataxia_and_Me
A6 participating will bring benfit to the future for both #patients and #researchers #whywedoresearch
Michael keeling @keeling_michael
RT @ataxiaandme: A5 Knowing about oppertunities to participate in the first place is the first barrier #WhyWeDoResearch
Kay @hotmail_kay
This is a major factor as I feel there is a big demographic (myself included) who are unable to give their voice as work and other commitments prevent research participation #whywedoresearch https://t.co/wy8cJveCtI
Michael keeling @keeling_michael
RT @EmmaYhnell: @ataxiaandme The involving people network @ResearchWales is a great network to join if you are looking for opportunities in…
UoSCancerResearch @uoscares
RT @lynn_laidlaw: @researchPhil @EmmaYhnell I don’t see them as mutually exclusive though. Patients are mainly concerned with what improve…
Michael keeling @keeling_michael
RT @ataxiaandme: @EmmaYhnell @ResearchWales yes, a good weekly bulletin. but many people are not aware of somewhere to look #whywedoresea
Derek Stewart @DerekCStewart
@LillyTrials The Standards male it easier to be precise about why and what we are doing. They provide a language to describe the active involvement in research processes. We still need to clearer about the purpose, the cultural changes required for #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @uoscares: @EmmaYhnell Q6 #WhyWeDoResearch 'If no one said yes I wouldn't be alive now' is a common phrase I hear from patients. 'If it…
Hazel A Smith (PhD) @smithhazelann
@HRB is the biggest healthcare funding body in Ireland. They also award grants to help researchers with Public and Patient Involvement (@PPI_NUIG, @PPI_Ignite_DCU, @PPI_Ignite_TCD, @PPI_Ignite_UL) https://t.co/MovCSazCxf #WhyWeDoResearch
Michael keeling @keeling_michael
@ataxiaandme @EmmaYhnell @ResearchWales How can we address this? #WhyWeDoResearch
Kay @hotmail_kay
RT @ataxiaandme: A6 participating will bring benfit to the future for both #patients and #researchers #whywedoresearch
Rheumatoid Patient @rheumpatient
@EmmaYhnell @WendyPMitchell Some great work done by @elspeth_mathie on why and how to give patients feedback during the research process: https://t.co/8Con5mdAmB #whywedoresearch
Sharon Kempson RN @sharon_kempson
RT @keeling_michael: @WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so i…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @DerekCStewart: @LillyTrials The Standards male it easier to be precise about why and what we are doing. They provide a language to desc…
Michael keeling @keeling_michael
RT @uoscares: @lynn_laidlaw @ClaireW_UK @EmmaYhnell #WhyWeDoResearch We are involved in a lot of academic research - but through this there…
Kay @hotmail_kay
RT @keeling_michael: @WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so i…
Hazel A Smith (PhD) @smithhazelann
RT @uoscares: @EmmaYhnell Q6 #WhyWeDoResearch 'If no one said yes I wouldn't be alive now' is a common phrase I hear from patients. 'If it…
UoSCancerResearch @uoscares
RT @WendyPMitchell: We don’t know what we don’t know so we mustn’t be expected to find you, you need to find us #Whywedoresearch https://t.…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @hotmail_kay: This is a major factor as I feel there is a big demographic (myself included) who are unable to give their voice as work a…
Kay @hotmail_kay
RT @researchPhil: Yes these are hurdles that we need to address @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch
DrDr (😊)Wendy Mitchell @WendyPMitchell
My main motivation is wanting to change the future no matter what small part I play #Whywedoresearch https://t.co/Qpo04fOzSe
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: This is a major factor as I feel there is a big demographic (myself included) who are unable to give their voice as work a…
Michael keeling @keeling_michael
RT @WendyPMitchell: Yes we need more healthcare professionals to normalise talking about research then it would be normal to participate #W
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @ataxiaandme: A6 participating will bring benfit to the future for both #patients and #researchers #whywedoresearch
Lynn Laidlaw @lynn_laidlaw
@EmmaYhnell My life totally changed due to illness, I lost my job and driving licence. Physically I am not the same but my brain is still active. Research involvement gives me hope, it empowers me and keeps me occupied. #WhyWeDoResearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @ataxiaandme: A6 participating will bring benfit to the future for both #patients and #researchers #whywedoresearch
Hazel A Smith (PhD) @smithhazelann
RT @EmmaYhnell: Q6: My final question and the last question of #whywedoresearch! What are your main motivations for engagement and involve…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @keeling_michael: @WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so i…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: Yes these are hurdles that we need to address @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch
DrDr (😊)Wendy Mitchell @WendyPMitchell
RT @keeling_michael: @WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so i…
UoSCancerResearch @uoscares
@WendyPMitchell @EmmaYhnell #WhyWeDoResearch 👍 💡moment
Michael keeling @keeling_michael
RT @lynn_laidlaw: @keeling_michael @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLV
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @lynn_laidlaw: @EmmaYhnell My life totally changed due to illness, I lost my job and driving licence. Physically I am not the same but m…
Hazel A Smith (PhD) @smithhazelann
A6: Improve research, make it stronger and make it relevant to the needs of the population it is intended for #whywedoresearch https://t.co/DECB1mMIjY
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @rheumpatient: @EmmaYhnell @WendyPMitchell Some great work done by @elspeth_mathie on why and how to give patients feedback during the r…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@hotmail_kay Super important as barriers like these may impact recruitment to a study too #whywedoresearch
Phillip Smith @researchPhil
@EmmaYhnell When we do research participant surveys the main answer is that people take part in research to help others. Some say they do it to have a chance of a better treatment but this is a secondary reason @ENHertResearch @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @WendyPMitchell: My main motivation is wanting to change the future no matter what small part I play #Whywedoresearch https://t.co/Qpo04…
David Montgomery @dmonty007
@researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 These discussions have been going on for a decade. we won't get it right till we learn from getting it wrong so there's a risk involved. Risk of not trying seems even greater though! #whywedoresearch
UoSCancerResearch @uoscares
RT @smithhazelann: A6: Improve research, make it stronger and make it relevant to the needs of the population it is intended for #whywedore
valerie batty @ValerieBatty
RT @DerekCStewart: Many of our international colleagues might like to read @WendyPMitchell https://t.co/3zivq0E5LZ #WhyWeDoResearch is brou…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @lynn_laidlaw: @EmmaYhnell My life totally changed due to illness, I lost my job and driving licence. Physically I am not the same but m…
Kay @hotmail_kay
This is why I feel these twitterfests are so beneficial for the majority of us who are unable to take part in research projects and meetings #Whywedoresearch https://t.co/wy8cJveCtI
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @EmmaYhnell: @hotmail_kay Super important as barriers like these may impact recruitment to a study too #whywedoresearch
DrDr (😊)Wendy Mitchell @WendyPMitchell
RT @uoscares: @WendyPMitchell @EmmaYhnell #WhyWeDoResearch 👍 💡moment
Rheumatoid Patient @rheumpatient
RT @hotmail_kay: This is a major factor as I feel there is a big demographic (myself included) who are unable to give their voice as work a…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
@lynn_laidlaw Thank you for saying yes to research Lynn #whywedoresearch
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @hotmail_kay: This is why I feel these twitterfests are so beneficial for the majority of us who are unable to take part in research pr…
Sharon Kempson RN @sharon_kempson
A better future plan and simple #whywedoresearch https://t.co/vQBFJIRllu
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @dmonty007: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 These discussions have been going on for a decade. we wo…
UoSCancerResearch @uoscares
RT @DerekCStewart: @LillyTrials The Standards male it easier to be precise about why and what we are doing. They provide a language to desc…
Claire Whitehouse (#WhyWeDoResearch) 🌈 @ClaireW_UK
RT @researchPhil: @EmmaYhnell When we do research participant surveys the main answer is that people take part in research to help others.…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: @EmmaYhnell When we do research participant surveys the main answer is that people take part in research to help others.…
UoSCancerResearch @uoscares
RT @keeling_michael: @WendyPMitchell Yes.. Important to make research both visible and accessible.. To help demistify this world.. And so i…
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @sharon_kempson: A better future plan and simple #whywedoresearch https://t.co/vQBFJIRllu
Michael keeling @keeling_michael
@lynn_laidlaw @EmmaYhnell @rheumpatient @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 @NIHRINVOLVE @OfficialNIHR @NCCPE Was this made public? #WhyWeDoResearch It would be interesting to read.. Good that it's been done.. But what's the plan to improve his.. ??? @OfficialNIHR
Kay @hotmail_kay
@EmmaYhnell And ultimately the results of the study as not all demographics are represented #Whywedoresearch
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @dmonty007: @researchPhil @ENHertResearch @SupportiveOnc @NHSRDForum @CRIPACC1 These discussions have been going on for a decade. we wo…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
RT @researchPhil: Yes these are hurdles that we need to address @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch
UoSCancerResearch @uoscares
RT @sharon_kempson: A better future plan and simple #whywedoresearch https://t.co/vQBFJIRllu
Michael keeling @keeling_michael
RT @sharon_kempson: A better future plan and simple #whywedoresearch https://t.co/vQBFJIRllu
Michael keeling @keeling_michael
RT @hotmail_kay: @EmmaYhnell And ultimately the results of the study as not all demographics are represented #Whywedoresearch
UoSCancerResearch @uoscares
RT @EmmaYhnell: @hotmail_kay Super important as barriers like these may impact recruitment to a study too #whywedoresearch
Carl Smith @MrCarlRSmith
@EmmaYhnell I'm pleased to say #publicengagement in #research has progressed considerably in the last few years, from a head counting research dissemination exercise to meaningful conversation with the public to co-produce research, create mutual benefit and societal change. #WhyWeDoResearch
Phillip Smith @researchPhil
Yes of course - expenses should be paid - thanks for this reminder @SarahwResearch I don’t understand why this is always checked by research ethics committees... @ENHertResearch @SupportiveOnc @researchPhil @NHSRDForum #whywedoresearch @CRIPACC1 https://t.co/jjtx9NpMSX
Ataxia and Me CIO 1184030 @Ataxia_and_Me
RT @MrCarlRSmith: @EmmaYhnell I'm pleased to say #publicengagement in #research has progressed considerably in the last few years, from a h…
Dr Emma Yhnell 🧬🔬🧪🧠 @EmmaYhnell
Wow! That is the end of my tweetchat and that brings #whywedoresearch to a close for 2018! Thank you all so much for taking part! Keep chatting using the #whywedoresearch hashtag and thank you to all for your engagement and involvement in research! https://t.co/2NPPlj8TAN
#whywedoresearch content from Twitter.